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Madopar CR
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I’m new here and to off times
I am 70 and was diagnosed in August 2013. My neurologist said I seemed to have a slowly developing type of Parkinson’s. I seemed to cope well and was exercising a lot. I was taking Modopar (4x125) and Sifrol in the daytime only until my last appointment in October. I mentioned I had started to have
I am 70 and was diagnosed in August 2013. My neurologist said I seemed to have a slowly developing type of Parkinson’s. I seemed to cope well and was exercising a lot. I was taking Modopar (4x125) and Sifrol in the daytime only until my last appointment in October. I mentioned I had started to have
Arre
in
Cure Parkinson's
5 years ago
Gabapentin causing itch?
Hi all again, I have been on Gabapentin twice a day from my skin over--sensitization issues and half a madopar at night for the hypnic jerks and everything else. After a week or so, the doctor advised me to use three gabapentin of 400/day to attack the skin sensitivity issue even more. However, after
Hi all again, I have been on Gabapentin twice a day from my skin over--sensitization issues and half a madopar at night for the hypnic jerks and everything else. After a week or so, the doctor advised me to use three gabapentin of 400/day to attack the skin sensitivity issue even more. However, after
dimpep
in
Restless Legs Syndrome
5 years ago
Madopar shortage
Boots in the UK tell me they cannot supply Madopar 100/25 capsules at the moment because of a problem at the manufacturers. They do not know when it will be available again. Anyone else been told this?
Boots in the UK tell me they cannot supply Madopar 100/25 capsules at the moment because of a problem at the manufacturers. They do not know when it will be available again. Anyone else been told this?
Buckholt
in
Cure Parkinson's
5 years ago
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Sinamet CR providing no relief
My Mom has PD and has been taking C-L with relative stability, but would go through "off-times" routinely 2 hours after taking her meds. In order to prevent this, her doctor started her on Sinemet CR, hoping it would provide a smoother day, with less severe "off times". Her doctor eased her into the
My Mom has PD and has been taking C-L with relative stability, but would go through "off-times" routinely 2 hours after taking her meds. In order to prevent this, her doctor started her on Sinemet CR, hoping it would provide a smoother day, with less severe "off times". Her doctor eased her into the
filmor14
in
Cure Parkinson's
5 years ago
Madopar Advice
Need advice on those taking Madopar (or similar). My main symptoms rigidity in back and legs - with a continuous cramp in my feet. I take 125mg x 3 times per day. I really only feel "off" after I take the Madopar. About 20-40 mins after taking the tablet I get serious cramps in back/legs/feet for a period
Need advice on those taking Madopar (or similar). My main symptoms rigidity in back and legs - with a continuous cramp in my feet. I take 125mg x 3 times per day. I really only feel "off" after I take the Madopar. About 20-40 mins after taking the tablet I get serious cramps in back/legs/feet for a period
Dingler
in
Cure Parkinson's
5 years ago
Sifrol
Has anyone been on Sifrol long term without augmentation? Also, if I augmented on Madopar would I definitely have the same reaction to Sifrol? Thanks all - your posts are all so helpful! Thank goodness I found this forum!!
Has anyone been on Sifrol long term without augmentation? Also, if I augmented on Madopar would I definitely have the same reaction to Sifrol? Thanks all - your posts are all so helpful! Thank goodness I found this forum!!
Eponine53
in
Restless Legs Syndrome
5 years ago
B1 experience so far!
Hello all. I have been tuning in to everyone's experiences since I joined in March 2018. At that time my husband was diagnosed with PD and as I am the more able one with computers I have been reading listening to your experiences and researching your valuable advice. We have had quite the roller coaster
Hello all. I have been tuning in to everyone's experiences since I joined in March 2018. At that time my husband was diagnosed with PD and as I am the more able one with computers I have been reading listening to your experiences and researching your valuable advice. We have had quite the roller coaster
Fnjb
in
Cure Parkinson's
5 years ago
Getting off Madopar
I really want to get off Madopar and it’s augmentation, and try to treat my legs with diet alone. Any suggestions? Have you successfully broken the crazy cycle of taking Madopar for rls then having to take it for the rebound effect of the medication? TIA!!
I really want to get off Madopar and it’s augmentation, and try to treat my legs with diet alone. Any suggestions? Have you successfully broken the crazy cycle of taking Madopar for rls then having to take it for the rebound effect of the medication? TIA!!
Eponine53
in
Restless Legs Syndrome
6 years ago
Apo morphine - no effect
My consultant recently recommended I use apo-morphine via the Apo-go self injection pen . (I 've been dx 15 years and have v unpredictable and severe off periods) i had the tests to see how well i tolerated it lsdt week. I was in hospital fir a dsy with a dedicated apo nurse . We tried doses from 1 to
My consultant recently recommended I use apo-morphine via the Apo-go self injection pen . (I 've been dx 15 years and have v unpredictable and severe off periods) i had the tests to see how well i tolerated it lsdt week. I was in hospital fir a dsy with a dedicated apo nurse . We tried doses from 1 to
pen1
in
Cure Parkinson's
6 years ago
Madopar cr?
Doesn't seem to work
Doesn't seem to work
chutney333
in
Cure Parkinson's
6 years ago
Overdose of Madopar CR - urgent help please
My Mum is in hospital and I discovered they’ve been giving her
Madopar
CR
100/25 (sustained release) all day instead of her
Madopar
100/25 (blue and white) pills all day. If they’ve got it wrong at every dose, she’s probably had 4
Madopar
CR
during the day; she usually gets one at bedtime.
My Mum is in hospital and I discovered they’ve been giving her
Madopar
CR
100/25 (sustained release) all day instead of her
Madopar
100/25 (blue and white) pills all day. If they’ve got it wrong at every dose, she’s probably had 4
Madopar
CR
during the day; she usually gets one at bedtime.
Harebell
in
Cure Parkinson's
6 years ago
Size of apo pump
Hi I was dx with young onset PD in 2003 aged 46. I'm now 62 and have kept on top of it by gradually upping the madopar . In the last few months madopar's effectiveness has dropped right off and my consultant says there is ni more room to tweak my medication or increase the madopar. To my distress
Hi I was dx with young onset PD in 2003 aged 46. I'm now 62 and have kept on top of it by gradually upping the madopar . In the last few months madopar's effectiveness has dropped right off and my consultant says there is ni more room to tweak my medication or increase the madopar. To my distress
pen1
in
Cure Parkinson's
6 years ago
Anyone taking Madopar cr?
I was do 2013, resisted meds until now. I'm beginning to think I need to take it. Has anyone taken MadaparCR? This is what my neurologist recommend. Does anyone have any experience of this drug? Thank you.
I was do 2013, resisted meds until now. I'm beginning to think I need to take it. Has anyone taken MadaparCR? This is what my neurologist recommend. Does anyone have any experience of this drug? Thank you.
Nutbeam
in
Cure Parkinson's
6 years ago
Sinemet IR or Sinemet CR??
For those of you on sinemet, do you prefer sinemet immediate release or sinemet controlled release? My neuro is taking me off mirapex( due to bad side effects) and wants me to try sinemet. I don’t know which one I should try.
For those of you on sinemet, do you prefer sinemet immediate release or sinemet controlled release? My neuro is taking me off mirapex( due to bad side effects) and wants me to try sinemet. I don’t know which one I should try.
Nurse7
in
Cure Parkinson's
6 years ago
Yom Kippur fasting while on Madopar?
Just wondering if anyone has advice for me, in first year of taking Madopar. I take 3 25/100 each day. Still early stage. Tonight/tomorrow is a 26 hour fast for the Yom Kippur Jewish holiday (yes, some holiday not eating or drinking!). In recent years, mainly because of getting older and being on some
Just wondering if anyone has advice for me, in first year of taking Madopar. I take 3 25/100 each day. Still early stage. Tonight/tomorrow is a 26 hour fast for the Yom Kippur Jewish holiday (yes, some holiday not eating or drinking!). In recent years, mainly because of getting older and being on some
ge1shh
in
Cure Parkinson's
6 years ago
Dyskinesia from coffee?
I would like to know if anybody got dyskinesia from coffee. Lately a few days ago I started to drink a cup of coffee in the morning. (I feel much better, better mood, more energy). I take every 2.75 hours 1.5 sinemet 25/100 and 3 times a day Comtan, during the night take 1 Sinemet 25/100 and 1 sinemet
I would like to know if anybody got dyskinesia from coffee. Lately a few days ago I started to drink a cup of coffee in the morning. (I feel much better, better mood, more energy). I take every 2.75 hours 1.5 sinemet 25/100 and 3 times a day Comtan, during the night take 1 Sinemet 25/100 and 1 sinemet
luba1
in
Cure Parkinson's
6 years ago
Holiday relief
First post on here but have been enjoying the discussions for a while. Based in the UK but had a holiday in Spain recently. Normally take 6 half-Sinemet CR a day and generally pretty well controlled. On holiday I was walking an average of 15000 steps every day including doing 1/2hr of running every
First post on here but have been enjoying the discussions for a while. Based in the UK but had a holiday in Spain recently. Normally take 6 half-Sinemet CR a day and generally pretty well controlled. On holiday I was walking an average of 15000 steps every day including doing 1/2hr of running every
buzbyc
in
Cure Parkinson's
6 years ago
Taking Madopar (2)
I'm not surprised you thought my post of a couple of days ago weird, Motherfather, I left out any mention of the medicine I've been on for some time now. So here's what I intended to write (I blame the PD!). I live in the UK and so am blessed to be under the care of a Parkinson's Disease Nurse.
I'm not surprised you thought my post of a couple of days ago weird, Motherfather, I left out any mention of the medicine I've been on for some time now. So here's what I intended to write (I blame the PD!). I live in the UK and so am blessed to be under the care of a Parkinson's Disease Nurse.
plainbob
in
Cure Parkinson's
6 years ago
Taking Madopar
I live in the UK and so am blessed to be under the care of a Parkinson's Disease Nurse. She has suggested I take dispersible Madopar 62.5mgs on an ad hoc basis, maximum of one dose per day. I wondered if anybody on this site had experience of this. TIA Jim
I live in the UK and so am blessed to be under the care of a Parkinson's Disease Nurse. She has suggested I take dispersible Madopar 62.5mgs on an ad hoc basis, maximum of one dose per day. I wondered if anybody on this site had experience of this. TIA Jim
plainbob
in
Cure Parkinson's
6 years ago
Parkinsons and Osteoporosis medications
Hello all. I have both PD and osteoporosis. When I got my PD diagnosis last year, I was on a rest period from all osteoporosis treatments except Vitamin D. My recent bone density tests were not too bad, but the docs are concerned about my PD and want me to resume the osteo medication. This time they
Hello all. I have both PD and osteoporosis. When I got my PD diagnosis last year, I was on a rest period from all osteoporosis treatments except Vitamin D. My recent bone density tests were not too bad, but the docs are concerned about my PD and want me to resume the osteo medication. This time they
ge1shh
in
Cure Parkinson's
6 years ago
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