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Withdrawal from Ropinirole
Hi everyone Looking for some advise, I have started my withdrawal of ropinirole I'm now down to 0.50mg per day and taking 200mg of Gabapentin in the Morning & Night, I am waiting to see someone regarding possible nerve damage as I suffer from constant aching/Pain. At the weekend I had a terrible time
Hi everyone Looking for some advise, I have started my withdrawal of ropinirole I'm now down to 0.50mg per day and taking 200mg of Gabapentin in the Morning & Night, I am waiting to see someone regarding possible nerve damage as I suffer from constant aching/Pain. At the weekend I had a terrible time
Marymill
in
Restless Legs Syndrome
19 days ago
Final ropinirole drop.
Hey guys, i haven’t posted for a while my RLS was not to bad while dropping from 4mg to now at .25 along side 450 pregabalin and 60mg codeine when needed. In the last few weeks my symptoms have got terrible with 6-3 hours sleep. Ive had my initial app at the Babrbery Birmingham and awaiting bloods
Hey guys, i haven’t posted for a while my RLS was not to bad while dropping from 4mg to now at .25 along side 450 pregabalin and 60mg codeine when needed. In the last few weeks my symptoms have got terrible with 6-3 hours sleep. Ive had my initial app at the Babrbery Birmingham and awaiting bloods
RLSAndy
in
Restless Legs Syndrome
19 days ago
Buprenorphine and depression versus Suboxone
I have been on Buprenorphine for a couple of months at 0.4 mcg. It mainly controls my rls. I have been suffering from depression virtually since I started this. Never suffered before in my life. I came off Pramipexole in May and had a very traumatic time before I started Buprenorphine. Could it be
I have been on Buprenorphine for a couple of months at 0.4 mcg. It mainly controls my rls. I have been suffering from depression virtually since I started this. Never suffered before in my life. I came off Pramipexole in May and had a very traumatic time before I started Buprenorphine. Could it be
keiralee
in
Restless Legs Syndrome
21 days ago
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methadone and depression
hi, I have been taking methadone for 7 months now . I am on 10 mg and still have breakthrough RLS symptoms. I have been debating further increasing my dose to 12.5 mg but am worried about the depression that I feel is creeping in. I am considering asking my GP if I can switch to suboxone, and am interested
hi, I have been taking methadone for 7 months now . I am on 10 mg and still have breakthrough RLS symptoms. I have been debating further increasing my dose to 12.5 mg but am worried about the depression that I feel is creeping in. I am considering asking my GP if I can switch to suboxone, and am interested
Mongolia2020
in
Restless Legs Syndrome
21 days ago
please advise
I need help for my husband. I’ve been here before. He started taking methadone and it seems the combination of that and the horizant is causing side effects such as panic attacks, feels like he can’t breathe when he lays down and can’t sleep. Sue - please advise. 🙏
I need help for my husband. I’ve been here before. He started taking methadone and it seems the combination of that and the horizant is causing side effects such as panic attacks, feels like he can’t breathe when he lays down and can’t sleep. Sue - please advise. 🙏
tiffanie125d
in
Restless Legs Syndrome
22 days ago
Worsening of RLS with baclofen
Hi, I am taking methadone and started taking baclofen to see if it would help me better control my RLS symptoms, which were very intense. From the beginning I felt like it wasn't helping me much, my seizures got worse and I had a lot of side effects. When we decided to double the dose, to 20mg per day
Hi, I am taking methadone and started taking baclofen to see if it would help me better control my RLS symptoms, which were very intense. From the beginning I felt like it wasn't helping me much, my seizures got worse and I had a lot of side effects. When we decided to double the dose, to 20mg per day
ArianeGuerra
in
Restless Legs Syndrome
22 days ago
Anyone treated RLS with progesterone?
Hi, I wondered if anyone had had any success with treating RLS with hormones? My RLS got MUCH worse when I took HRT and I also had bad RLS during pregnancy so I'm wondering if it's my hormones? Has anyone been able to get a hormone test then improve symptoms with progesterone? I think my RLS gets worse
Hi, I wondered if anyone had had any success with treating RLS with hormones? My RLS got MUCH worse when I took HRT and I also had bad RLS during pregnancy so I'm wondering if it's my hormones? Has anyone been able to get a hormone test then improve symptoms with progesterone? I think my RLS gets worse
LunaWise
in
Restless Legs Syndrome
23 days ago
Ferritin concern
My Ferritin level is 126. I thought this was triggering my severe RLS since I had a total knee replacement in November , 2023. My RLS is off the rail . I want an Iron infusion, but the health group I belong to, does not believe I need this? I am traveling the next 2 months, will take Sinemet to use on
My Ferritin level is 126. I thought this was triggering my severe RLS since I had a total knee replacement in November , 2023. My RLS is off the rail . I want an Iron infusion, but the health group I belong to, does not believe I need this? I am traveling the next 2 months, will take Sinemet to use on
Skihill
in
Restless Legs Syndrome
25 days ago
Acetyl DL Leucine
Acetyl-DL-leucine in two individuals with REM sleep behavior disorder improves symptoms, reverses loss of striatal dopamine-transporter binding and stabilizes pathological metabolic brain pattern—case reports: https://www.nature.com/articles/s41467-024-51502-7#:~:text=In%202020%2C%20we%20treated%20a
Acetyl-DL-leucine in two individuals with REM sleep behavior disorder improves symptoms, reverses loss of striatal dopamine-transporter binding and stabilizes pathological metabolic brain pattern—case reports: https://www.nature.com/articles/s41467-024-51502-7#:~:text=In%202020%2C%20we%20treated%20a
MrCrow
in
Restless Legs Syndrome
25 days ago
meds and sleep apnea
I have severe RLS and I have had 2 at home sleep studies done. I was taking methadone when I had the first one done and it said I had mild obstructive sleep apnea. The second at home sleep study was done just recently and during this test I was on gabapentin. This test also said I have mild obstructive
I have severe RLS and I have had 2 at home sleep studies done. I was taking methadone when I had the first one done and it said I had mild obstructive sleep apnea. The second at home sleep study was done just recently and during this test I was on gabapentin. This test also said I have mild obstructive
senders
in
Restless Legs Syndrome
29 days ago
2 questions- Does buprenorphine give you insomnia?! Also what’s the best type to ask for?
one of my biggest problems is insomnia. Is rls and insomnia one in the same? which came first the rls or the insomnia? No idea. Sometimes I wake and then the legs start, sometimes the legs wake me up. so if I was given buprenorphine would I still have the insomnia/make it worse? Because that’s as
one of my biggest problems is insomnia. Is rls and insomnia one in the same? which came first the rls or the insomnia? No idea. Sometimes I wake and then the legs start, sometimes the legs wake me up. so if I was given buprenorphine would I still have the insomnia/make it worse? Because that’s as
Islay9
in
Restless Legs Syndrome
30 days ago
Medication in the UK
Hi, As per RLS posts I have finally got around to requesting a ferritin level check, full iron panel from my GP in the UK. I also have changed from ropinirole to pramipexole and because that change didn't work the GP has said to double the dose of pramipexole being taken, which I will do as desperate
Hi, As per RLS posts I have finally got around to requesting a ferritin level check, full iron panel from my GP in the UK. I also have changed from ropinirole to pramipexole and because that change didn't work the GP has said to double the dose of pramipexole being taken, which I will do as desperate
Cailen
in
Restless Legs Syndrome
1 month ago
Tramadol/tramacet
Hi. I've gotten of pexola and circadin(melatonin, which made my rls worst)with many sleepless nights.Thereafter I had surgery and was prescribed tramadol for pain. I noticed my rls was so much better while I was on this. So I've started taking one tramadol or tramacet at 7pm Just afraid of going through
Hi. I've gotten of pexola and circadin(melatonin, which made my rls worst)with many sleepless nights.Thereafter I had surgery and was prescribed tramadol for pain. I noticed my rls was so much better while I was on this. So I've started taking one tramadol or tramacet at 7pm Just afraid of going through
AzraCG
in
Restless Legs Syndrome
1 month ago
Does hair loss eventually stop? 😔 I'm hoping someone can tell me something positive?
I'm getting new bloods next week & hopefully an increase to 75 (lactose free teva) on my way eventually to around 100 ish as I'm 63 kilos but I'm still losing my hair? Eyebrows have all but gone, eye lashes thining, red sore eye lids, dry eyes with occasional blurring (using drops) and very puffy underneath
I'm getting new bloods next week & hopefully an increase to 75 (lactose free teva) on my way eventually to around 100 ish as I'm 63 kilos but I'm still losing my hair? Eyebrows have all but gone, eye lashes thining, red sore eye lids, dry eyes with occasional blurring (using drops) and very puffy underneath
Elle137
in
Thyroid UK
1 month ago
Use of opioids for Ropinirole withdrawal
I am starting to reduce the amount of Ropinirole I take by small amounts. I note that a low dose opioid can help with the withdrawal symptoms. My withdrawal RLS symptoms start during the morning and I'm trying not to take any ropinirole until the evening, in order to help my sleep. Will taking a low
I am starting to reduce the amount of Ropinirole I take by small amounts. I note that a low dose opioid can help with the withdrawal symptoms. My withdrawal RLS symptoms start during the morning and I'm trying not to take any ropinirole until the evening, in order to help my sleep. Will taking a low
Seakale
in
Restless Legs Syndrome
1 month ago
Has anyone considered or used legal prescription cannabis?
Hi All again, Sorry I keep asking for advice. I’ve been particularly dreadful last few afternoon/nights limbs all over the place, head nodding, grimacing coming off this pramipexole. It’s really made me think about being exactly like this before starting the pramipexole and that’s what life is going
Hi All again, Sorry I keep asking for advice. I’ve been particularly dreadful last few afternoon/nights limbs all over the place, head nodding, grimacing coming off this pramipexole. It’s really made me think about being exactly like this before starting the pramipexole and that’s what life is going
Delilah162
in
Restless Legs Syndrome
1 month ago
Buprenorphine side effects- sertraline
I suffer from depression as a side effect from Buprenorphine and having tried pregabalin unsuccessfully (50mg/day) i asked my GP to prescribe trazodone. He was very reluctant and suggested sertraline. Has anyone used this and does it cause RLS symptoms? Thanks for any help on this Davchar23
I suffer from depression as a side effect from Buprenorphine and having tried pregabalin unsuccessfully (50mg/day) i asked my GP to prescribe trazodone. He was very reluctant and suggested sertraline. Has anyone used this and does it cause RLS symptoms? Thanks for any help on this Davchar23
davchar23
in
Restless Legs Syndrome
1 month ago
coming off ropinirole after augmentation
I would like advice on how best to manage the sleepless nights as I try to wean myself off ropinirole which I’ve been taking in gradually increased amounts for about 6 years up to 3mg this year. I believe that I had the augmentation problem after a GP increased my dose over the max of 4 to 6 mg for
I would like advice on how best to manage the sleepless nights as I try to wean myself off ropinirole which I’ve been taking in gradually increased amounts for about 6 years up to 3mg this year. I believe that I had the augmentation problem after a GP increased my dose over the max of 4 to 6 mg for
Seakale
in
Restless Legs Syndrome
1 month ago
Change in Rx and RLS is drastically reduced
I am now off Trazodone, added Lithium and Seroquel and reduced Buspirone in half. I am no longer taking Ropinirole. I am also taking Lamotrigine. RLS symptoms are nearly gone. Does Trazodone cause RLS? And do my new meds help to reduce RLS symptoms? It’s like a miracle. I am bipolar2.
I am now off Trazodone, added Lithium and Seroquel and reduced Buspirone in half. I am no longer taking Ropinirole. I am also taking Lamotrigine. RLS symptoms are nearly gone. Does Trazodone cause RLS? And do my new meds help to reduce RLS symptoms? It’s like a miracle. I am bipolar2.
Chocolatelover1211
in
Restless Legs Syndrome
1 month ago
RLS Targinact & Pregabalin
is anyone using Targinact and Pregabalin for RLS and what strength? I am taking 15 mg Targinact twice a day (at 9.30 am and about 10.15 pm), together with 450 mg Pregabalin at bed time, but I’m finding I get RLS quite badly early in the evening. Also I get really tired during the day and because
is anyone using Targinact and Pregabalin for RLS and what strength? I am taking 15 mg Targinact twice a day (at 9.30 am and about 10.15 pm), together with 450 mg Pregabalin at bed time, but I’m finding I get RLS quite badly early in the evening. Also I get really tired during the day and because
susiehandley
in
Restless Legs Syndrome
1 month ago
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