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Tried lots of oral drugs, where do i go now?
Rhumy says that studies are now showing it's inconclusive if biologics cause an increase in
lymphomas
. What do you think? Any suggestions of other meds to talk to my rhumy about? Any experience with biologics? Other side effects of them?
Rhumy says that studies are now showing it's inconclusive if biologics cause an increase in
lymphomas
. What do you think? Any suggestions of other meds to talk to my rhumy about? Any experience with biologics? Other side effects of them?
mainstreet
in
NRAS
10 years ago
News flash—the way most oncologists create income is by giving chemotherapy
This very US centric article by Rebecca Bechhold, MD on the Cancer Network (free membership) expands on recent topics in the news and here on a study that found that cancer centre advertising emphasises positive outcomes and says nothing about side effects or costs and direct-to-consumer marketing of
This very US centric article by Rebecca Bechhold, MD on the Cancer Network (free membership) expands on recent topics in the news and here on a study that found that cancer centre advertising emphasises positive outcomes and says nothing about side effects or costs and direct-to-consumer marketing of
AussieNeil
Partner
in
CLL Support
10 years ago
Help, FCR OR BR?
My oncologist has telephoned me today giving me an option of either FCR or BR. As I am 11q del I thought I had only one option! She told me that the FLAIR trial will be starting in 6-8 weeks time but as my WBC is at 387 and my Hg is 95 she would like me to start treatment now. I am 52 years old now and
My oncologist has telephoned me today giving me an option of either FCR or BR. As I am 11q del I thought I had only one option! She told me that the FLAIR trial will be starting in 6-8 weeks time but as my WBC is at 387 and my Hg is 95 she would like me to start treatment now. I am 52 years old now and
flutterbye
in
CLL Support
10 years ago
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Achilles' heel to lower defenses of antibiotic-resistant bacteria found
[i]'Researchers at the University of East Anglia (UAE) in England have now uncovered an Achille's heel in the bacterial cell defenses that could mean that bacteria wouldn't develop drug-resistance in the first place. : : "The really exciting thing about this research is that new drugs will specifically
[i]'Researchers at the University of East Anglia (UAE) in England have now uncovered an Achille's heel in the bacterial cell defenses that could mean that bacteria wouldn't develop drug-resistance in the first place. : : "The really exciting thing about this research is that new drugs will specifically
AussieNeil
Partner
in
CLL Support
10 years ago
Starting 6 rounds of Rituxan Chemotherapy tomorrow
I am 40 yr old with CLL stage VI Lymphoma and stage II Leukemia. This is a very fast decision to start chemo as I had developed symptoms that the doctors can't get under control. Will I lose my hair, will I be able to continue to work???? Questions, questions! Please help!
I am 40 yr old with CLL stage VI Lymphoma and stage II Leukemia. This is a very fast decision to start chemo as I had developed symptoms that the doctors can't get under control. Will I lose my hair, will I be able to continue to work???? Questions, questions! Please help!
deanna2289
in
CLL Support
10 years ago
CT scan series part 10 - Clinical Trial CT scan Context
CT scan series part 10 - Clinical Trial CT scan Context There is solid rationale for CT-scanning in a Clinical Trial setting that cannot be avoided but is it adequate or overkill? Who decides? There are so many newer drugs that promise better efficacy with less toxicity that it is hard to keep up with
CT scan series part 10 - Clinical Trial CT scan Context There is solid rationale for CT-scanning in a Clinical Trial setting that cannot be avoided but is it adequate or overkill? Who decides? There are so many newer drugs that promise better efficacy with less toxicity that it is hard to keep up with
ThreeWs
in
CLL Support
10 years ago
ASH 2013: Dr. John Pagel Discusses Radio-Immune Therapy (RIT) in Chronic Lymphocytic Leukemia (CLL)
This is the model that has been successfully deployed in other
lymphomas
, but not in CLL. More interviews to come from ASH as I get ready for ASCO 2014. If you haven't already, please check out Dr. Sharman's latest post on his crazy schedule at the upcoming ASCO http://www.cll-nhl.com .
This is the model that has been successfully deployed in other
lymphomas
, but not in CLL. More interviews to come from ASH as I get ready for ASCO 2014. If you haven't already, please check out Dr. Sharman's latest post on his crazy schedule at the upcoming ASCO http://www.cll-nhl.com .
bkoffman
CLL CURE Hero
in
CLL Support
10 years ago
CT scan series part 5 – A bit about CT scanners
Let's first define some terms. I don't want to lose you in the detail of sievert (Sv) vs gray (Gy) as units of radiation measurement because there is no meaningful way you can calculate your individual risk based on adding up sources of ionizing radiation. Any assessment of risk must be done by statistical
Let's first define some terms. I don't want to lose you in the detail of sievert (Sv) vs gray (Gy) as units of radiation measurement because there is no meaningful way you can calculate your individual risk based on adding up sources of ionizing radiation. Any assessment of risk must be done by statistical
ThreeWs
in
CLL Support
10 years ago
CT scan series part 4 - Everything needs context
But aren't we living with ionizing radiation all the time so what's the big deal? Correct, the average yearly exposure of a US resident is 3 to 3.2 mSv (milli sievert). Brian Koffman who spends much of his time at 30 thousand feet flying all over the place to bring us great interviews is probably getting
But aren't we living with ionizing radiation all the time so what's the big deal? Correct, the average yearly exposure of a US resident is 3 to 3.2 mSv (milli sievert). Brian Koffman who spends much of his time at 30 thousand feet flying all over the place to bring us great interviews is probably getting
ThreeWs
in
CLL Support
10 years ago
Has anyone here successfully treated Diffuse Large B Cell lymphoma using CVP-R, minus the Vincristine?
My mother had one round of CHOP-R, but it affected her heart so adversely the doctor won't administer it anymore as he is afraid she might not survive through it. (So, she will continue with CVP-R, minus the Vincristine.) As a result he says we are no longer treating to cure, but to relieve symptoms
My mother had one round of CHOP-R, but it affected her heart so adversely the doctor won't administer it anymore as he is afraid she might not survive through it. (So, she will continue with CVP-R, minus the Vincristine.) As a result he says we are no longer treating to cure, but to relieve symptoms
Hidden
in
Lymphoma Canada
10 years ago
There's lots happening in Adoptive T-cell transfer technology cancer research - CAR-T being just one aspect
When Dr Carl June of the University of Pennsylvania, used chimeric antigen receptor (CAR) technology to provide an amazing cure in a CAR-T trial in 2011 for three CLL patients that had pretty well run out of options http://www.uphs.upenn.edu/news/News_Releases/2011/08/t-cells/ there were valid concerns
When Dr Carl June of the University of Pennsylvania, used chimeric antigen receptor (CAR) technology to provide an amazing cure in a CAR-T trial in 2011 for three CLL patients that had pretty well run out of options http://www.uphs.upenn.edu/news/News_Releases/2011/08/t-cells/ there were valid concerns
AussieNeil
Partner
in
CLL Support
11 years ago
SLL and prognostic indicators
I'm reading articles which suggest that the chromosomal abnormalities of SLL are different from CLL, most especially absence of 17p del and prevalence of Trisomy 12. Does anyone know anything about this?
I'm reading articles which suggest that the chromosomal abnormalities of SLL are different from CLL, most especially absence of 17p del and prevalence of Trisomy 12. Does anyone know anything about this?
Hidden
in
CLL Support
11 years ago
Treatment of My Father suffering from CLL with Endoxan (Cyclophosphamide) and Bendit--Bendamustine Hydrochloride.
My father was diagnosed CLL- Chronic Lymphocytic Leukemia on 03-Sep-2013 through a bone marrow. The values of %LYM = 80 % with WBC= 511,000. We have consulted an oncologist for the treatment. He has started Chemotherapy with Endoxan (Cyclophosphamide) and did 06 Cycles of chemo (Each after 21-Days)
My father was diagnosed CLL- Chronic Lymphocytic Leukemia on 03-Sep-2013 through a bone marrow. The values of %LYM = 80 % with WBC= 511,000. We have consulted an oncologist for the treatment. He has started Chemotherapy with Endoxan (Cyclophosphamide) and did 06 Cycles of chemo (Each after 21-Days)
nadeemnaz4190
in
CLL Support
11 years ago
Explainer: What is Cancer Immunotherapy?
Nial Wheate, Senior Lecturer in Pharmaceutical Chemistry at the University of Sydney, Australia, provides an introductory overview of the sophisticated ways we now use immunotherapy including vaccinations, antibodies (proteins that bind to foreign objects to mark them for destruction), cytokines (molecules
Nial Wheate, Senior Lecturer in Pharmaceutical Chemistry at the University of Sydney, Australia, provides an introductory overview of the sophisticated ways we now use immunotherapy including vaccinations, antibodies (proteins that bind to foreign objects to mark them for destruction), cytokines (molecules
AussieNeil
Partner
in
CLL Support
11 years ago
Hypothyroidism - advice on levels
Hi I asked for my thyroid levels to be tested again and once again they came back normal. I asked the nurse what the actual levels are and she told me 0.74. I know that here in the UK they can come back 'normal' and still be regarded as low by the standards of other countries eg in the US they can
Hi I asked for my thyroid levels to be tested again and once again they came back normal. I asked the nurse what the actual levels are and she told me 0.74. I know that here in the UK they can come back 'normal' and still be regarded as low by the standards of other countries eg in the US they can
Kirby
in
Fibromyalgia Action UK
11 years ago
Does anyone get meds for hair loss due to the meds like regaine I would think some ladies will but docs tend not to with blokes I think
Cos the cellcept seems to make it recede but the consultant is fobbing me off So would like some info to have a heated discuss with
Cos the cellcept seems to make it recede but the consultant is fobbing me off So would like some info to have a heated discuss with
glasgowguy
in
LUPUS UK
11 years ago
Is Chemotherapy necessary even when the tumor is small and not spread to Axillary lymph nodes?
My mother(53 years had lumptectomy and a tumor of about 3.5 x 3 cms was removed. The biopsy report says negative on the Axillary nodes.. so the cancer has not spread to other parts as I understand that Axillary lymph nodes are first which receive the drainage form the breast. The Onco surgeon has recommended
My mother(53 years had lumptectomy and a tumor of about 3.5 x 3 cms was removed. The biopsy report says negative on the Axillary nodes.. so the cancer has not spread to other parts as I understand that Axillary lymph nodes are first which receive the drainage form the breast. The Onco surgeon has recommended
fatehkhan
in
Breast Cancer India
11 years ago
ASH 2013: Dr. Jeff Sharman Discusses FCR versus BR in CLL
Hi Friends On my blog today http://bkoffman.blogspot.com I share my ASH interview with Dr. Sharman where we discussed the data on FCR versus BR. While this is less the exciting news it would have been a few years back before the emerging era of targeted therapies,, it is still important for a significant
Hi Friends On my blog today http://bkoffman.blogspot.com I share my ASH interview with Dr. Sharman where we discussed the data on FCR versus BR. While this is less the exciting news it would have been a few years back before the emerging era of targeted therapies,, it is still important for a significant
bkoffman
CLL CURE Hero
in
CLL Support
11 years ago
Blood work is back.. I have not talked to the doctor yet but. im guessing shes going to say i am fine
WBC4.2 RBC4.59 Hgb14.8 Hct43.9 MCV 95.8 MCH32.3 MCHC33.7 RDW12.6 Platelet Count218 MPV9.5 NEUTROPHILS %55.7 LYMPHOCYTES %37.3 MONOCYTES %5.3 EOSINOPHILS %0.9 BASOPHILS %0.8 NEUTROPHILS ABS2.3 LYMPHOCYTES ABS1.6 MONOCYTES ABSOLUTE0.2 EOSINOPHILS ABSOLUTE0.0 BASOPHILS ABS0.0
WBC4.2 RBC4.59 Hgb14.8 Hct43.9 MCV 95.8 MCH32.3 MCHC33.7 RDW12.6 Platelet Count218 MPV9.5 NEUTROPHILS %55.7 LYMPHOCYTES %37.3 MONOCYTES %5.3 EOSINOPHILS %0.9 BASOPHILS %0.8 NEUTROPHILS ABS2.3 LYMPHOCYTES ABS1.6 MONOCYTES ABSOLUTE0.2 EOSINOPHILS ABSOLUTE0.0 BASOPHILS ABS0.0
kkgirl
in
LUPUS UK
11 years ago
watch and wait
my 88yr old mother was diagnosed 3/2/2014 early stage cll.being sent for an ultrasound scan(abdomen).her blood readings are wcc14.2/ lymphocytes6.3 with monocytes 0.8.she suffers night sweats and has develped a cough(mucus).she will be sent for in 2/3 months.my question is ,if treatment is necessary,
my 88yr old mother was diagnosed 3/2/2014 early stage cll.being sent for an ultrasound scan(abdomen).her blood readings are wcc14.2/ lymphocytes6.3 with monocytes 0.8.she suffers night sweats and has develped a cough(mucus).she will be sent for in 2/3 months.my question is ,if treatment is necessary,
chrismac
in
CLL Support
11 years ago
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