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Light the Night Australia..Walk Locations
The Australian Leukaemia Foundation includes these special fund raising events between September and November annually. The different lantern colours have special meanings: [i]"Gold to remember loved ones lost to blood cancer, white for those diagnosed themselves and blue to show community support
The Australian Leukaemia Foundation includes these special fund raising events between September and November annually. The different lantern colours have special meanings: [i]"Gold to remember loved ones lost to blood cancer, white for those diagnosed themselves and blue to show community support
AussieNeil
Partner
in
CLL Support
6 years ago
DIAGNOSIS today cll/sll
Got my "official " diagnosis today....even though I full suspected it. I will have a baseline ct scan the end of the month then see my dr in Jan 2019. We will do blood draws every 4 mos. WBC actually reduced from 42.6 to 30.9 in 5 weeks and absolute lymphocytes reduced from 32 to 22. Still high but
Got my "official " diagnosis today....even though I full suspected it. I will have a baseline ct scan the end of the month then see my dr in Jan 2019. We will do blood draws every 4 mos. WBC actually reduced from 42.6 to 30.9 in 5 weeks and absolute lymphocytes reduced from 32 to 22. Still high but
Pat351v
in
CLL Support
6 years ago
10 years ago today I received my allogeneic hematopoietic stem cell transplant (HSCT) for my CLL
You can read it about here: https://cllsociety.org/2018/07/10-years-ago-today-i-received-my-allogeneic-hematopoietic-stem-cell-transplant-hsct-for-my-cll-chronic-
lymphocytic
-
leukemia
/ Since then I have tried twice more for a home run. Stay strong. We are in this together. Brian
You can read it about here: https://cllsociety.org/2018/07/10-years-ago-today-i-received-my-allogeneic-hematopoietic-stem-cell-transplant-hsct-for-my-cll-chronic-
lymphocytic
-
leukemia
/ Since then I have tried twice more for a home run. Stay strong. We are in this together. Brian
bkoffman
CLL CURE Hero
in
CLL Support
6 years ago
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Cll and chemo this is my first
I have cll my and now the test show bile duk dilated.my first treatment og chemo is this week my count is 154.000. Is tge bile duck another issue. Will i get sick from chemo i have no fever or night sweat. Sjould i get second opinion before chemo
I have cll my and now the test show bile duk dilated.my first treatment og chemo is this week my count is 154.000. Is tge bile duck another issue. Will i get sick from chemo i have no fever or night sweat. Sjould i get second opinion before chemo
christrom
in
CLL Support
6 years ago
Take part in a user-testing workshop for a new website around clinical trials.
Sense about Science is currently organising a user-testing workshop on a new website around stem cell therapy clinical trials, and they would like someone from our community to join them on the day.
It will be on Tuesday 4th September from 1pm to 3.30pm in their office at 14A, Clerkenwell Green,
Sense about Science is currently organising a user-testing workshop on a new website around stem cell therapy clinical trials, and they would like someone from our community to join them on the day.
It will be on Tuesday 4th September from 1pm to 3.30pm in their office at 14A, Clerkenwell Green,
Paul_Howard
LUPUS UK
in
LUPUS UK
6 years ago
Itp treatment
Hi . I developed Itp 5.5 month ago. I know I have it after a stressful episode of my life š Now , during this time I've been reading articles about Itp. They suggest to wait e years before doing splenectomy. Personally , I know a woman in my relatives who had it during pregnancy and took 2 years
Hi . I developed Itp 5.5 month ago. I know I have it after a stressful episode of my life š Now , during this time I've been reading articles about Itp. They suggest to wait e years before doing splenectomy. Personally , I know a woman in my relatives who had it during pregnancy and took 2 years
Lman96
in
ITP Support Association
6 years ago
Recent SLL/CLL Patient Question
Hello. I found out I have SLL/CLL earlier this year at 31. I had Rituxan treatment shortly after since I have neutropenia I can't seem to shake. I will save this for another post. My lymph nodes are visible but not huge yet. Since I have 11q I have read it can become a bulky disease. Not sure if they
Hello. I found out I have SLL/CLL earlier this year at 31. I had Rituxan treatment shortly after since I have neutropenia I can't seem to shake. I will save this for another post. My lymph nodes are visible but not huge yet. Since I have 11q I have read it can become a bulky disease. Not sure if they
DriedSeaweed
in
CLL Support
6 years ago
CAR T-Cell Developments in Lymphoma Dr. Ian Flinn Highlights
Flinn Highlights CAR T-Cell Developments in Lymphoma by Brandon Scalea Published: Thursday, Aug 09, 2018 - https://www.onclive.com/web-exclusives/flinn-highlights-car-tcell-developments-in-lymphoma?eKey=bGVua2Vja0Bjb21jYXN0Lm5ldA==&utm_medium=email&utm_campaign=ONCSS%20NHL%20CC%20eNews%20%20Zydelig
Flinn Highlights CAR T-Cell Developments in Lymphoma by Brandon Scalea Published: Thursday, Aug 09, 2018 - https://www.onclive.com/web-exclusives/flinn-highlights-car-tcell-developments-in-lymphoma?eKey=bGVua2Vja0Bjb21jYXN0Lm5ldA==&utm_medium=email&utm_campaign=ONCSS%20NHL%20CC%20eNews%20%20Zydelig
lankisterguy
Volunteer
in
CLL Support
6 years ago
Results of flow
What does this mean regarding cll? PATHOLOGICAL DIAGNOSIS A. Peripheral blood, flow only: - CD5+, CD23 + (subset) B-cell lymphoproliferative disorder, see flow
What does this mean regarding cll? PATHOLOGICAL DIAGNOSIS A. Peripheral blood, flow only: - CD5+, CD23 + (subset) B-cell lymphoproliferative disorder, see flow
Pat351v
in
CLL Support
6 years ago
Potential unrelated donor found
Hi All, A bit of an update. My local transplant unit has advised that a potential unrelated donor has been found for me on the German bone marrow registry. Looking at a mid September transplant, depending on the availability and health of my potential donor and me. A series of appointments have been
Hi All, A bit of an update. My local transplant unit has advised that a potential unrelated donor has been found for me on the German bone marrow registry. Looking at a mid September transplant, depending on the availability and health of my potential donor and me. A series of appointments have been
Simon96
in
MPN Voice
6 years ago
FLAIR Trial 2018 update
This trial is comparing ibrutinib alongside rituximab with fludarabine, cyclophosphamide, rituximab and venetoclax for chronic lymphocytic leukaemia. This trial is for people who havenāt yet had treatment for their chronic lymphocytic leukaemia (CLL). The CLLSA supports this research. The Flair Trial
This trial is comparing ibrutinib alongside rituximab with fludarabine, cyclophosphamide, rituximab and venetoclax for chronic lymphocytic leukaemia. This trial is for people who havenāt yet had treatment for their chronic lymphocytic leukaemia (CLL). The CLLSA supports this research. The Flair Trial
Myrddin
in
CLL Support
6 years ago
Feeling really lost and scared.
My husband did have CLL but had Richters Transformation to Lymphoma. He has been having Rituximab with Gemcitabine and Oxaliplatin. However yesterday his Consultant said his platelets are too low (50) to have the 6th and final planned dose. She does not plan to do a scan for a few weeks, has no other
My husband did have CLL but had Richters Transformation to Lymphoma. He has been having Rituximab with Gemcitabine and Oxaliplatin. However yesterday his Consultant said his platelets are too low (50) to have the 6th and final planned dose. She does not plan to do a scan for a few weeks, has no other
krisskross
in
CLL Support
6 years ago
Bendeka, a fast infusion form of bendamustine, gets 7 year exclusivity in U.S.
Bendeka is for the treatment of chronic
lymphocytic
leukemia
(CLL) and non-Hodgkin's lymphoma (NHL). As a result, and consistent with the order issued by the U.S.
Bendeka is for the treatment of chronic
lymphocytic
leukemia
(CLL) and non-Hodgkin's lymphoma (NHL). As a result, and consistent with the order issued by the U.S.
Cllcanada
Top Poster CURE Hero
in
CLL Support
6 years ago
Brain fog
It has been a while since I posted. Things have been going well on the Ruxolitinib and my platelets have been coming down steadily. I have been feeling a bit light headed the last few days but experienced serious brain fog for the first time today. I went to do the shopping and firstly couldnāt remember
It has been a while since I posted. Things have been going well on the Ruxolitinib and my platelets have been coming down steadily. I have been feeling a bit light headed the last few days but experienced serious brain fog for the first time today. I went to do the shopping and firstly couldnāt remember
Graham7694
in
MPN Voice
6 years ago
FDA Approves Venetoclax (VENCLEXTA) For CLL or SLL with or without 17p deletion, who have received at least one prior therapy
Comprehensive Guide Chronic
Lymphocytic
Leukemia
/ Small
Lymphocytic
Lymphoma Fact Sheet Videos and Webcasts: Chronic
Lymphocytic
Leukemia
/ Small
Lymphocytic
Lymphoma Video Bruce D.
Comprehensive Guide Chronic
Lymphocytic
Leukemia
/ Small
Lymphocytic
Lymphoma Fact Sheet Videos and Webcasts: Chronic
Lymphocytic
Leukemia
/ Small
Lymphocytic
Lymphoma Video Bruce D.
lankisterguy
Volunteer
in
CLL Support
6 years ago
Being told you have cll or any kind of cancer is a shock to most people ..
I first learned that I had cll in 2016 ā¦.I have read were ginger , chamomile , and turmeric are all good for cll ..I was wondering if any one has tried these and if they feel like they are helping ..other than eating a will balanced meal and getting enough rest as will as staying as stress free as possible
I first learned that I had cll in 2016 ā¦.I have read were ginger , chamomile , and turmeric are all good for cll ..I was wondering if any one has tried these and if they feel like they are helping ..other than eating a will balanced meal and getting enough rest as will as staying as stress free as possible
maddog47
in
CLL Support
6 years ago
feeling rotten
I am new here. At the moment my red blood cells are low. Fortunately the white blood cells are normal. I have been diagnosed with myelofibrosis in May 2018 just by chance. It was caught in the early stages. The worse thing for me is the lack of energy and bruises. It has been a learning
I am new here. At the moment my red blood cells are low. Fortunately the white blood cells are normal. I have been diagnosed with myelofibrosis in May 2018 just by chance. It was caught in the early stages. The worse thing for me is the lack of energy and bruises. It has been a learning
home1970
in
MPN Voice
6 years ago
Ibrutinib vs FCR: does order of therapy matter?
Time for a really specific question that is at the nub of the decision faced by doctors and patients when it is time to initiate first treatment. Does it matter which treatment we choose first? If you are a younger patient then clearly one of the critical issues is that sadly our disease is rarely cured
Time for a really specific question that is at the nub of the decision faced by doctors and patients when it is time to initiate first treatment. Does it matter which treatment we choose first? If you are a younger patient then clearly one of the critical issues is that sadly our disease is rarely cured
AdrianUK
in
CLL Support
6 years ago
NHSE publish positive review outcome for Ibrutinib use in relapsed CLL
Hi all, I have pasted below the Leukaemia Care response to today's good news, following the work of Leukaemia Care, CLLSA, The UK CLL Forum and so many of us together, to get this turn around. Well done everyone. Today NHS England removes restrictions that had been preventing relapsed chronic lymphocytic
Hi all, I have pasted below the Leukaemia Care response to today's good news, following the work of Leukaemia Care, CLLSA, The UK CLL Forum and so many of us together, to get this turn around. Well done everyone. Today NHS England removes restrictions that had been preventing relapsed chronic lymphocytic
HAIRBEAR_UK
Administrator
in
Leukaemia CARE
6 years ago
Green tea with SLE
Hi there I have recently started drinking green tea only once a day in evening. Today I feel like I'm going to have an anxiety attack weird sensations. Has anyone else experienced these symptoms??
Hi there I have recently started drinking green tea only once a day in evening. Today I feel like I'm going to have an anxiety attack weird sensations. Has anyone else experienced these symptoms??
Hidden
in
LUPUS UK
6 years ago
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