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Ask Dr. Furman - Monday, November 19 at 3 PM Eastern time (2 PM CT, 12 PM PT) for a LIVE, 30-minute session about CLL on Patient Power
Do you have a burning question for an expert in chronic
lymphocytic
leukemia
(CLL)? Join Patient Power and the Patient Empowerment Network on Monday, November 19 at 3 PM Eastern time (2 PM CT, 12 PM PT) for a LIVE, 30-minute “Ask the Expert” session with CLL specialist Dr.
Do you have a burning question for an expert in chronic
lymphocytic
leukemia
(CLL)? Join Patient Power and the Patient Empowerment Network on Monday, November 19 at 3 PM Eastern time (2 PM CT, 12 PM PT) for a LIVE, 30-minute “Ask the Expert” session with CLL specialist Dr.
lankisterguy
Volunteer
in
CLL Support
6 years ago
Who Gives Care to the Caregiver - Online Free Educational Program by LLS.org The Leukemia & Lymphoma Society
Who Gives Care to the Caregiver - Online Free Educational Program by LLS.org The Leukemia & Lymphoma Society The latest information for patients and caregivers. Healthcare professionals are invited to participate. JOIN US FOR A FREE TELEPHONE/WEB EDUCATION PROGRAM WEDNESDAY November 28, 201812
Who Gives Care to the Caregiver - Online Free Educational Program by LLS.org The Leukemia & Lymphoma Society The latest information for patients and caregivers. Healthcare professionals are invited to participate. JOIN US FOR A FREE TELEPHONE/WEB EDUCATION PROGRAM WEDNESDAY November 28, 201812
lankisterguy
Volunteer
in
CLL Support
6 years ago
'Dulce et Decorum Est' by Wilfred Owen.
Arguably our greatest war poet Wilfred Owen wrote this poem focusing in particular on one moment in the First World War, when Owen and his platoon are attacked with poison gas. ‘Dulce et Decorum Est’ is a studied analysis of suffering and perhaps the most famous anti-war poem ever written. The full title
Arguably our greatest war poet Wilfred Owen wrote this poem focusing in particular on one moment in the First World War, when Owen and his platoon are attacked with poison gas. ‘Dulce et Decorum Est’ is a studied analysis of suffering and perhaps the most famous anti-war poem ever written. The full title
sufferer2
in
Lung Conditions Community Forum
6 years ago
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Bpdcn
Hi there, I am new here. I am a carer for a family member. Does anyone know of, or has anyone heard of BPDCN? Blastic plasmacytoid dendritic cell neoplasm (BPDCN), previously known as natural killer (NK) cell leukemia/lymphoma,? My father is taking oral chemotherapy ...anyone know of this?
Hi there, I am new here. I am a carer for a family member. Does anyone know of, or has anyone heard of BPDCN? Blastic plasmacytoid dendritic cell neoplasm (BPDCN), previously known as natural killer (NK) cell leukemia/lymphoma,? My father is taking oral chemotherapy ...anyone know of this?
StefHere
in
Leukaemia CARE
6 years ago
Hi Bone Marrow lymphoma cancer
Hi my niece was diagnosed with tjus will Jakafi help her thanks
Hi my niece was diagnosed with tjus will Jakafi help her thanks
rkhabtec
in
MPN Voice
6 years ago
Tisomy 12
Dx 203 CLL in Feb 2013,male, living in India, watch and wait till last week. I am Ighv mutated and no Zap 70 and CD 38. My Fish test revealed no genetic deletion Like 17p, 13q, 11q. Due to gradual fall of Hb to 8 and lymphocytes around 100k, I was advised B R chemo immunotherapy and stated on November
Dx 203 CLL in Feb 2013,male, living in India, watch and wait till last week. I am Ighv mutated and no Zap 70 and CD 38. My Fish test revealed no genetic deletion Like 17p, 13q, 11q. Due to gradual fall of Hb to 8 and lymphocytes around 100k, I was advised B R chemo immunotherapy and stated on November
venk_46
in
CLL Support
6 years ago
A Phase II Study of Curcumin and Vitamin D in Previously Untreated Patients with Early Stage Chronic Lymphocytic Leukemia (CLL) or Small Lym
Background: Current therapies for CLL/SLL have frequent toxicities, are non-curative, and several trials have demonstrated that early treatment of the disease doesn’t result in longer overall survival. In high doses, both curcumin (CM), from turmeric, and vitamin D (VD) have been shown to be safe in
Background: Current therapies for CLL/SLL have frequent toxicities, are non-curative, and several trials have demonstrated that early treatment of the disease doesn’t result in longer overall survival. In high doses, both curcumin (CM), from turmeric, and vitamin D (VD) have been shown to be safe in
Cllcanada
Top Poster CURE Hero
in
CLL Support
6 years ago
Wife just diagnosed with CLL too!
I was diagnosed in 2006 and have been in clinical trial since 2016. My wife was just diagnosed. All sorts of questions: could it be an environmental exposure we shared at some point (married over 49 years)? Some sort of virus that predisposed us? Coincidence? Should our grown children worry? Other
I was diagnosed in 2006 and have been in clinical trial since 2016. My wife was just diagnosed. All sorts of questions: could it be an environmental exposure we shared at some point (married over 49 years)? Some sort of virus that predisposed us? Coincidence? Should our grown children worry? Other
Walt424
in
CLL Support
6 years ago
CAR-T Cell expert Dr. Utkarsh Acharya online; CAR-T Patient Dr. Brian Koffman at CLL Society Support Meetings- Philadelphia & New York City
This week there are several opportunities to learn more about CAR-T http://campaign.r20.constantcontact.com/render?m=1120967015548&ca=8ae5639f-9cb3-476f-8278-85bec8eb87ec - Online we hear again from Dr. Utkarsh Acharya on his perspective of caring for CAR-T patients including our own Dr. Koffman. https
This week there are several opportunities to learn more about CAR-T http://campaign.r20.constantcontact.com/render?m=1120967015548&ca=8ae5639f-9cb3-476f-8278-85bec8eb87ec - Online we hear again from Dr. Utkarsh Acharya on his perspective of caring for CAR-T patients including our own Dr. Koffman. https
lankisterguy
Volunteer
in
CLL Support
6 years ago
Anybody like this?
Platelets transfusion every 10 days. Black or red dots on your skin. Mostly hands and legs. Stool looks like tar when your platelets count gets less than 5. Please reply
Platelets transfusion every 10 days. Black or red dots on your skin. Mostly hands and legs. Stool looks like tar when your platelets count gets less than 5. Please reply
cier04
in
ITP Support Association
6 years ago
Does anyone else have another blood cancer as well as an MPN?
Hi. I’m now nearly two years post diagnosis with MF, and I also have CLL. Chronic lymph.. leukemia ( can never remember, spell or pronounce the L in the middle) CLL to its friends. That means that I get excluded from clinical trials, which is a big downside. I wondered how many other people who use
Hi. I’m now nearly two years post diagnosis with MF, and I also have CLL. Chronic lymph.. leukemia ( can never remember, spell or pronounce the L in the middle) CLL to its friends. That means that I get excluded from clinical trials, which is a big downside. I wondered how many other people who use
Rachelthepotter
in
MPN Voice
6 years ago
fluoride for teeth when on hydroxyurea?
My dentist has recommended that I start using fluoride gel trays for my teeth to protect them while taking the hydroxyurea. Has anyone heard about this? I have Essential Thrombocythemia (high platelets) & as I understand it I will be taking the hydroxyurea for the rest of my life.
My dentist has recommended that I start using fluoride gel trays for my teeth to protect them while taking the hydroxyurea. Has anyone heard about this? I have Essential Thrombocythemia (high platelets) & as I understand it I will be taking the hydroxyurea for the rest of my life.
h2ogal
in
MPN Voice
6 years ago
I got soaked through in the rain today
Had to take one of my dogs to the vet for her yearly injections, not much fun she hates it and barks as soon as we get through the door! I am surprised they haven't asboed us! On the way back (1/2hour walk at least), it poured down, terribly so. I got drenched, hair, trousers everything. Got home towel
Had to take one of my dogs to the vet for her yearly injections, not much fun she hates it and barks as soon as we get through the door! I am surprised they haven't asboed us! On the way back (1/2hour walk at least), it poured down, terribly so. I got drenched, hair, trousers everything. Got home towel
Shancock
in
Lung Conditions Community Forum
6 years ago
Clinical Trial Ibrutinib Plus Venetoclax Versus Chlorambucil Plus Obinutuzumab Untreated CLL & SLL @EU & UK locations
A Study of the Combination of Ibrutinib Plus Venetoclax Versus Chlorambucil Plus Obinutuzumab for the First-line Treatment of Participants With Chronic
Lymphocytic
Leukemia
(CLL)/Small
Lymphocytic
Lymphoma (SLL) Phase 3- Radomized Open Label https://clinicaltrials.gov/ct2/show/study/NCT03462719?
A Study of the Combination of Ibrutinib Plus Venetoclax Versus Chlorambucil Plus Obinutuzumab for the First-line Treatment of Participants With Chronic
Lymphocytic
Leukemia
(CLL)/Small
Lymphocytic
Lymphoma (SLL) Phase 3- Radomized Open Label https://clinicaltrials.gov/ct2/show/study/NCT03462719?
lankisterguy
Volunteer
in
CLL Support
6 years ago
Is Green Tea and Matcha powder same, similar?
Hello All, I've always experienced a benefit from simply drinking green. Over the course of my life, when I was a green tea drinker I had far fewer colds/sinus infections etc than those times when I was a coffee drinker. Anyway, as a W&W CLL person since 2015 I've been increasingly going alternative
Hello All, I've always experienced a benefit from simply drinking green. Over the course of my life, when I was a green tea drinker I had far fewer colds/sinus infections etc than those times when I was a coffee drinker. Anyway, as a W&W CLL person since 2015 I've been increasingly going alternative
jawdfs
in
CLL Support
6 years ago
CLL is gone!!!!
After living with CLL for 5 years. We have decided to divorce after she MRDed negative on my blood and bone marrow. Yes, I just got the best news of my life. I'm free again :-) I am still shocked with the results. I am on the 2nd cohort of the Imbruvica/Venetoclax trial for treatment naive patients
After living with CLL for 5 years. We have decided to divorce after she MRDed negative on my blood and bone marrow. Yes, I just got the best news of my life. I'm free again :-) I am still shocked with the results. I am on the 2nd cohort of the Imbruvica/Venetoclax trial for treatment naive patients
lamboman
in
CLL Support
6 years ago
Is Idiopathic Myelofibrosis cancer?
I’ve read a lot about this disease myelofibrosis which I’ve been diagnosed with but I’m unclear if the idiopathic before it changes the disease in any way. I can’t find a lot of information when I research “idiopathic myelofibrosis” and im wondering if it is considered cancer or not.
I’ve read a lot about this disease myelofibrosis which I’ve been diagnosed with but I’m unclear if the idiopathic before it changes the disease in any way. I can’t find a lot of information when I research “idiopathic myelofibrosis” and im wondering if it is considered cancer or not.
Actuallyclaire
in
MPN Voice
6 years ago
Cll specialists
I hear often the term of CLL specialist. I have to ask if such title exists, Md I have to ask, how does a hematologist become a “CLL Specialist”? I’ve lived with CLL for 10 years, doing fine so far with Ibrutinib. I get my CLL checks and care in Spain, from an experienced, knowledgeable and caring hematologist
I hear often the term of CLL specialist. I have to ask if such title exists, Md I have to ask, how does a hematologist become a “CLL Specialist”? I’ve lived with CLL for 10 years, doing fine so far with Ibrutinib. I get my CLL checks and care in Spain, from an experienced, knowledgeable and caring hematologist
EJM52545
in
CLL Support
6 years ago
Ibrutinib for a year... then obinutuzumab improves MRD- response rates
Ibrutinib and Obinutuzumab in CLL: Improved MRD Response Rates with Substantially Enhanced MRD Depletion for Patients with >1 Year Prior Ibrutinib Exposure https://ash.confex.com/ash/2018/webprogram/Paper112936.html Conclusions: The results suggest that the addition of obinutuzumab to ibrutinib may
Ibrutinib and Obinutuzumab in CLL: Improved MRD Response Rates with Substantially Enhanced MRD Depletion for Patients with >1 Year Prior Ibrutinib Exposure https://ash.confex.com/ash/2018/webprogram/Paper112936.html Conclusions: The results suggest that the addition of obinutuzumab to ibrutinib may
avzuclav
in
CLL Support
6 years ago
Living with blood cancer related fatigue
Thank you to all who have completed a quick symptoms at diagnosis poll so far https://healthunlocked.com/leukaemia-care/polls/139184163/which-if-any-of-the-7-most-reported-symptoms-from-our-patient-survey-did-you-experience-at-or-before-diagnosis and for your comments of other symptoms you experienced
Thank you to all who have completed a quick symptoms at diagnosis poll so far https://healthunlocked.com/leukaemia-care/polls/139184163/which-if-any-of-the-7-most-reported-symptoms-from-our-patient-survey-did-you-experience-at-or-before-diagnosis and for your comments of other symptoms you experienced
HAIRBEAR_UK
Administrator
in
Leukaemia CARE
6 years ago
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