PV stinging itch and Ruxolitinib

[S031251]

Hi all

I really can’t wait to share how Rux has changed by daily life in less than a week.

I was approved for Ruxolitinib and started taking it a week ago. I feel fantastic - the itch has gone. I am generally warmer - what a wonder this is. I will have my bloods done on 5th and just hope they are ok as HU did control them very well. I am not guarantee to always be given them but for now I am so grateful.

The same day my first granddaughter was born

My best wishes to you all.

I have found a real comfort in reading all your daily posts

Anna 😃 x

[Tico]

Hi anna, what a beautiful picture of your first grandaughter,reminding me when my second grandchild also a girl was recently born in september. Good news about the effects the ruxo is having on you in such a short period. Long may it continue. Atb, tina.🤗

[Superwoman]

Anna, what a beautiful baby she is. Good to hear that Ruxolitinib is working for you long may it last.

Jean x

[Ebot]

Delighted the new meds have made such a difference to you. All the better to enjoy your gorgeous first granddaughter. Congratulations to you and your family.

[S031251 in reply to Ebot]

Thank you 😊

[lizzziep]

Congratulations to you and yours on the birth of your beautiful grandaughter!

Lizzie

[S031251 in reply to lizzziep]

Thank you lizzziep

[Bluetop]

Congratulations! What a wonderful experience -which you could enjoy all the more without itching!

[stillkicking]

Hi Anna,

Really lovely that Rux has been so helpful to you already, and that you have a beautiful granddaughter to celebrate too!

Best Wishes,

Petere

[redumbrella]

Wonderful to hear that you meds are fmhaving a positive effect on your life as will yor beautiful Grandaughter. Congrats on both.

Garry

[asacker]

I so know how you feel. Five months on from starting Ruxilitinib I'm still reveling in the pleasure of having a shower without itching. It has made such a difference to my quality of life. The other great pleasure in my life is my grandchildren. So enjoy the new arrival and many congratulations to you and your family. Amanda

[S031251 in reply to asacker]

Thank you so much I am still in shock at having NO stinging itch after 6 years of daily torment. This is my first grandchild and I always worried how I would be able to help out as they live close by - happy times for now - just hope it lasts.

Thanks also to all the support I’ve had from everyone.

Anna x

[Mazcd Partner MPNVoice]

Wonderful news

[Sand-Dancer]

Congratulations! She is absolutely beautiful!!! Oh, and congratulations on the successful Ruxolitnib! I may go on this in the future so its good to hear its working 😊. Lesley x