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What is CAR-T therapy? An expert explains in simple terms
Not specific to CLL but informative. CAR-T therapy is a completely new type of therapy that uses the immune system to kill cancer cells. In some cases it has cured people where all other treatments have failed. Professor Karl Peggs, Scientific Director of the National Institute for Health Research (NIHR
Not specific to CLL but informative. CAR-T therapy is a completely new type of therapy that uses the immune system to kill cancer cells. In some cases it has cured people where all other treatments have failed. Professor Karl Peggs, Scientific Director of the National Institute for Health Research (NIHR
Jm954
Administrator
in
CLL Support
5 years ago
Association of gene mutations with time‐to‐first treatment in 384 treatment‐naive chronic lymphocytic leukaemia patients
First published: 26 June 2019 in BJH - full paper behind a paywall unfortunately This study correlated somatic mutation results and known prognostic factors with time‐to‐first treatment (TTFT) in 384 treatment‐naïve (TN) chronic lymphocytic leukaemia (CLL) patients to help determine disease‐specific
First published: 26 June 2019 in BJH - full paper behind a paywall unfortunately This study correlated somatic mutation results and known prognostic factors with time‐to‐first treatment (TTFT) in 384 treatment‐naïve (TN) chronic lymphocytic leukaemia (CLL) patients to help determine disease‐specific
Jm954
Administrator
in
CLL Support
5 years ago
War in the blood - BBC iPlayer
Hi all, Just wondering whether any of you had managed to catch the BBC documentary War in the blood which was shown Sunday night? It's on repeat on iPlayer for the rest of the month. The documentary tells the story of Graham and Mahmoud, two individuals with acute lymphoblastic leukaemia who opted to
Hi all, Just wondering whether any of you had managed to catch the BBC documentary War in the blood which was shown Sunday night? It's on repeat on iPlayer for the rest of the month. The documentary tells the story of Graham and Mahmoud, two individuals with acute lymphoblastic leukaemia who opted to
NicoleLeukaemiaCare
in
Leukaemia Support
5 years ago
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ASH 2018: Dr. Lamanna on combinations for CLL
Lamanna discusses this at ASH 2018 here: https://cllsociety.org/2019/05/ash-2018-dr-nicole-lamanna-on-combination-therapies-in-cll-chronic-
lymphocytic
-
leukemia
/?
Lamanna discusses this at ASH 2018 here: https://cllsociety.org/2019/05/ash-2018-dr-nicole-lamanna-on-combination-therapies-in-cll-chronic-
lymphocytic
-
leukemia
/?
bkoffman
CLL CURE Hero
in
CLL Support
5 years ago
The Force is Strong in This One
Hi Forum Friends , , I had notification of a new follower on here today and I realised how much time has elapsed since I posted an update. Time flies when you're enjoying yourself eh. As you will no doubt have guessed by now I'm a Star Wars fan , I even put my religion down as Jedi on one or 2 of the
Hi Forum Friends , , I had notification of a new follower on here today and I realised how much time has elapsed since I posted an update. Time flies when you're enjoying yourself eh. As you will no doubt have guessed by now I'm a Star Wars fan , I even put my religion down as Jedi on one or 2 of the
JediReject
in
MPN Voice
5 years ago
V + O frontline approved by FDA
https://news.abbvie.com/news/press-releases/abbvie-announces-us-fda-approval-venclexta-venetoclax-as-chemotherapy-free-combination-regimen-for-previously-untreated-chronic-
lymphocytic
-
leukemia
-patients.htm
https://news.abbvie.com/news/press-releases/abbvie-announces-us-fda-approval-venclexta-venetoclax-as-chemotherapy-free-combination-regimen-for-previously-untreated-chronic-
lymphocytic
-
leukemia
-patients.htm
avzuclav
in
CLL Support
5 years ago
New to it all
62 yo male here; was diagnosed with CLL in November of 2018. After three sets of bloodwork, a CT and a boner marrow biopsy Im told I continue on watch and wait. My only symptom is extreme fatigue which precludes me from working 8 hours a day. I should note that I’m also a long time bariatric patient.
62 yo male here; was diagnosed with CLL in November of 2018. After three sets of bloodwork, a CT and a boner marrow biopsy Im told I continue on watch and wait. My only symptom is extreme fatigue which precludes me from working 8 hours a day. I should note that I’m also a long time bariatric patient.
Pokerguy
in
CLL Support
5 years ago
What questions should I ask the consultant?
I have an appointment this afternoon. The Drs suspect that I have Essential Thrombocythemia but I have not had a diagnosis. I have had a bone marrow biopsy but have not yet had the results, I should be getting them later today. Any advice on questions that I should ask? Thank you in advance
I have an appointment this afternoon. The Drs suspect that I have Essential Thrombocythemia but I have not had a diagnosis. I have had a bone marrow biopsy but have not yet had the results, I should be getting them later today. Any advice on questions that I should ask? Thank you in advance
Notenoughbluefood
in
MPN Voice
5 years ago
CLL and Medical Marijuana
Has anyone found Medical marijuana CBD/THC tincture to be helpful with sleep and anxiety due to watch and wait stage? Injesting anything foreign is a concern with a compromised immune system but the same can be said for Chemo. ?
Has anyone found Medical marijuana CBD/THC tincture to be helpful with sleep and anxiety due to watch and wait stage? Injesting anything foreign is a concern with a compromised immune system but the same can be said for Chemo. ?
Madprofessor22
in
CLL Support
5 years ago
Mode of Progression After Frontline Treatment Predicts Clinical Outcomes in Patients With CLL
Not only is CLL heterogeneous in watch and wait, that's also the case after treatment. An analysis of over 2,000 patients from three German CLL Study Group clinical trials has identified that unfit patients developing lymphadenopathy (swelling nodes) have a significantly lower median overall survival
Not only is CLL heterogeneous in watch and wait, that's also the case after treatment. An analysis of over 2,000 patients from three German CLL Study Group clinical trials has identified that unfit patients developing lymphadenopathy (swelling nodes) have a significantly lower median overall survival
AussieNeil
Partner
in
CLL Support
5 years ago
cll/sll or MZL? & Rituxan
I'm month three of trying to get properly diagnosed. Initial cll/sll diagnosis now in doubt at two leading cancer centers because I am cd20 bright. So MZL or some other type of small b cell lymphoma is hypothesized. Yesterday I saw a lymphoma specialist who recommended rituxan now even though I don't
I'm month three of trying to get properly diagnosed. Initial cll/sll diagnosis now in doubt at two leading cancer centers because I am cd20 bright. So MZL or some other type of small b cell lymphoma is hypothesized. Yesterday I saw a lymphoma specialist who recommended rituxan now even though I don't
Sunfishjoy
in
CLL Support
5 years ago
Discontinuation of ibrutinib
Hi everyone! It´s been a while since my last post. My mother continues taking ibrutinib, almost 3 years now and doing fine. But right now she has to prepare for a digestive endoscopy, which is ineluctable, so she has to discontinue ibrutinib treatment. My mother is very sensitive to these kind of discontinuations
Hi everyone! It´s been a while since my last post. My mother continues taking ibrutinib, almost 3 years now and doing fine. But right now she has to prepare for a digestive endoscopy, which is ineluctable, so she has to discontinue ibrutinib treatment. My mother is very sensitive to these kind of discontinuations
nicolas_12
in
CLL Support
5 years ago
Newbie to mpd/et
Hi I've recently been diagnosed with mpd et and looking to learn more about it and how it could affect my life,lifestyle and longevity ,also as I'm on hydroxacarbomide was wondering if anyone on here their mpd/et had turned into leukaemia because of the medication used? Strange thing I've had bmb which
Hi I've recently been diagnosed with mpd et and looking to learn more about it and how it could affect my life,lifestyle and longevity ,also as I'm on hydroxacarbomide was wondering if anyone on here their mpd/et had turned into leukaemia because of the medication used? Strange thing I've had bmb which
Jackybuckley
in
MPN Voice
5 years ago
No comfort from Insurance Cos while suffering from Cancer
It’s 3 years since I was diagnosed with CLL stage 0 and got another set back yesterday Turned down for LTC policy While I did not ask for this cancer yet I feel like a second class citizen I understand there is risk to the insurance company and underwriters but during times of suffering one of the
It’s 3 years since I was diagnosed with CLL stage 0 and got another set back yesterday Turned down for LTC policy While I did not ask for this cancer yet I feel like a second class citizen I understand there is risk to the insurance company and underwriters but during times of suffering one of the
Hidden
in
CLL Support
5 years ago
MRD-U Baby your one of four in two million!
So had a consultation with the amazing Prof Hillmen who is based in Leeds, but occasionally sees patients in Harley Street. He is great as a second opinion and to talk about odd things or decision points with. He explained that one of the tests that had been done in my bone marrow had a sensitivity
So had a consultation with the amazing Prof Hillmen who is based in Leeds, but occasionally sees patients in Harley Street. He is great as a second opinion and to talk about odd things or decision points with. He explained that one of the tests that had been done in my bone marrow had a sensitivity
AdrianUK
in
CLL Support
5 years ago
Living Beyond Lymphoma: Mindfulness Teleconference Wednesday, July 31, 2019 1:30 PM -- 2:30 PM ET
Teleconference - Living Beyond Lymphoma: Mindfulness http://support.lymphoma.org/site/MessageViewer;jsessionid=00000000.app30116b?em_id=4128.0&dlv_id=7636&NONCE_TOKEN=3BD44384886320C15278EFEE84201187 The Lymphoma Research Foundation's (LRF) Living Beyond Lymphoma: Mindfulness teleconference explores
Teleconference - Living Beyond Lymphoma: Mindfulness http://support.lymphoma.org/site/MessageViewer;jsessionid=00000000.app30116b?em_id=4128.0&dlv_id=7636&NONCE_TOKEN=3BD44384886320C15278EFEE84201187 The Lymphoma Research Foundation's (LRF) Living Beyond Lymphoma: Mindfulness teleconference explores
lankisterguy
Volunteer
in
CLL Support
5 years ago
CLL Society Tribune!
Welcome to the Second 2019 Issue of The CLL Society Tribune. https://cllsociety.org/quarter-2-2019-volume-5-issue-2/?utm_source=CLL+Tribune+Q2+2019&utm_campaign=Quarter+2+2019%3A+Volume+5+Issue+2&utm_medium=email Dear Friends and Supporters of the CLL Society. Welcome to the growing and evolving
Welcome to the Second 2019 Issue of The CLL Society Tribune. https://cllsociety.org/quarter-2-2019-volume-5-issue-2/?utm_source=CLL+Tribune+Q2+2019&utm_campaign=Quarter+2+2019%3A+Volume+5+Issue+2&utm_medium=email Dear Friends and Supporters of the CLL Society. Welcome to the growing and evolving
lankisterguy
Volunteer
in
CLL Support
5 years ago
B Cell cll
Hello, My father is 73 years old and was recently diagnosed with b cell chronic
lymphocytic
leukemia
. He hasn't shown any visible symptoms except for a swollen lymph node under his chin and his haemoglobin count, which has been fluctuating between 10 - 11 in the last few months.
Hello, My father is 73 years old and was recently diagnosed with b cell chronic
lymphocytic
leukemia
. He hasn't shown any visible symptoms except for a swollen lymph node under his chin and his haemoglobin count, which has been fluctuating between 10 - 11 in the last few months.
Cllquerist
in
Leukaemia Support
5 years ago
Pre Fibrotic Myelodibrosis
Just wondered if there was anyone else in this group who has been diagnosed with prefibrotic Myelofibrosis . It was only discovered in 2016 and when I found I had it my platelets were 1600 and I had a low amount of fibrosis in my bone marrow. Apparently it may or may not develop into full Myelofibrosis
Just wondered if there was anyone else in this group who has been diagnosed with prefibrotic Myelofibrosis . It was only discovered in 2016 and when I found I had it my platelets were 1600 and I had a low amount of fibrosis in my bone marrow. Apparently it may or may not develop into full Myelofibrosis
kiwitraveller
in
MPN Voice
5 years ago
POST BMT 1-Year & 7 Months, BOY OH BOY!!!
“Ring the bells that still can ring Forget your perfect offering There is a crack, a crack in everything That’s how the light gets in.” Leonard Cohen “Anthem,” The Future album 1992 It has been far to long since my last post but boy have we been through the ringer!! I do want to apologize for
“Ring the bells that still can ring Forget your perfect offering There is a crack, a crack in everything That’s how the light gets in.” Leonard Cohen “Anthem,” The Future album 1992 It has been far to long since my last post but boy have we been through the ringer!! I do want to apologize for
NMMP
in
CLL Support
5 years ago
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