Hi Forum Friends , , I had notification of a new follower on here today and I realised how much time has elapsed since I posted an update. Time flies when you're enjoying yourself eh.
As you will no doubt have guessed by now I'm a Star Wars fan , I even put my religion down as Jedi on one or 2 of the many surveys I've been asked to fill in. But for me there are many parallels to be drawn between fiction and fact.
I see The Force as life itself and I'm pleased to say again that I'm enjoying living it albeit still with some limitations. For those of you who 'know'me and supported me through my hardest times over the past few years you lovely people helped to get me to this point and I THANK YOU ALL from the bottom of my heart for that.
What I'd like to say also is that recently I've had a number of things going on that made those hard times worthwhile and re-affirmed my decision to opt for SCT in 2015. They're not earth shattering events simply family things like taking my Grand-daughter to the park and being there to accompany my elderly father to a couple of hospital appointments. And going out for a drink with my lovely wife.
In myself I'm in a fairly good place mentally I think , , half the battle of SCT goes on in your head and it's easy to become depressed when you're physically weakened.
My Graft Versus Host Disease is still active and I'm still taking a small dose of immuno-suppressant. My eyes remain very dry and troublesome and I've recently been to Liverpool Blood Donation Centre to give a pint for my next batch of blood serum eye drops which help a little. I'm struggling to put weight on but since I stopped Ruxolitinib many months ago my appetite fluctuates. Mind you I've always been a eat to live person. I tire easily but can do light jobs and potter in the garden. My mobility isn't brilliant and I use crutches to propel along, I also have a small mobility scooter which is great.
I attend blood clinic at Manchester once a month which is much more manageable than twice a week !!.
So that's where I'm at. I'm happy with my life as it is because as I've said before , it's life. So please keep fighting your own personal battles and May The Force Be With You All.
Kind Regards - Chris
PS I read recently that a UK arm of the Mayo Clinic is to be opened in London I think but I don't know any detail. I guess it will be private health care.