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biopsy
I'm new to this site. Having a needle biopsy of right upper lung lobe in a few days. Is it painful and what is the recovery like?
I'm new to this site. Having a needle biopsy of right upper lung lobe in a few days. Is it painful and what is the recovery like?
dunnellon
in
Lung Conditions Community Forum
4 years ago
67 year old wimp!
Hi, I am new here and I am having a lobectomy of my top right lung on Monday, having it done at London Bridge Hospital as covid is causing problems at the other hospitals. The cancer was luckily found in a CT that was looking for something else. After a PET scan and needle biopsy it was found to be
Hi, I am new here and I am having a lobectomy of my top right lung on Monday, having it done at London Bridge Hospital as covid is causing problems at the other hospitals. The cancer was luckily found in a CT that was looking for something else. After a PET scan and needle biopsy it was found to be
Hidden
in
Lung Conditions Community Forum
4 years ago
Shielding updates and Q&A, webinars for each UK country are now opening for registration
Good morning friends With imminent announcements of changes to shielding guidance and the different rates of implementation and advice given by the different UK countries. Leukaemia Care and sister charities are working with specialist haematologists in each country to support you through changes.
Good morning friends With imminent announcements of changes to shielding guidance and the different rates of implementation and advice given by the different UK countries. Leukaemia Care and sister charities are working with specialist haematologists in each country to support you through changes.
HAIRBEAR_UK
Administrator
in
CLL Support
4 years ago
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Shielding updates and Q&A, the webinars for each UK country are now opening for registration
Good morning With imminent announcements about government shielding guidance and the different rates of implementation and advice given by the different UK countries. Leukaemia Care are working with specialist haematologists in each country to support you through changes. Each webinar will update
Good morning With imminent announcements about government shielding guidance and the different rates of implementation and advice given by the different UK countries. Leukaemia Care are working with specialist haematologists in each country to support you through changes. Each webinar will update
HAIRBEAR_UK
in
Leukaemia Support
4 years ago
In what situations would Chlorambucil still be used?
I've just heard of a patient is the U S a a major hospital, with good insurance being started on chlorambucil to treat CLL. I know he has kidney issues from the CLL. I'm just wondering why they wouldn't use one of the newer drugs? john
I've just heard of a patient is the U S a a major hospital, with good insurance being started on chlorambucil to treat CLL. I know he has kidney issues from the CLL. I'm just wondering why they wouldn't use one of the newer drugs? john
johnl
in
CLL Support
4 years ago
Ropeginterferon Alfa-2b Helps Maintain Hematocrit Control for Low-Risk Polycythemia Vera
« More patients with low-risk polycythemia vera treated with ropeginterferon alfa-2b were able to maintain hematocrit levels at or below 45% compared with those who received monthly phlebotomy alone. » https://www.onclive.com/view/added-cytoreductive-therapy-helps-maintain-hematocrit-control-for-low-risk-pv-patients
« More patients with low-risk polycythemia vera treated with ropeginterferon alfa-2b were able to maintain hematocrit levels at or below 45% compared with those who received monthly phlebotomy alone. » https://www.onclive.com/view/added-cytoreductive-therapy-helps-maintain-hematocrit-control-for-low-risk-pv-patients
Manouche
in
MPN Voice
4 years ago
Understanding the CLL micro-environment may ultimately lead us to better control of the disease.
https://cllsociety.org/2020/04/ash-2019-dr-neil-kay-on-how-the-chronic-
lymphocytic
-
leukemia
-cll-microenvironment-affects-blood-cell-production/?utm_source=April+21%2C+2020&utm_campaign=April+21%2C+2020+Alert&utm_medium=email Hope this is helpful!
https://cllsociety.org/2020/04/ash-2019-dr-neil-kay-on-how-the-chronic-
lymphocytic
-
leukemia
-cll-microenvironment-affects-blood-cell-production/?utm_source=April+21%2C+2020&utm_campaign=April+21%2C+2020+Alert&utm_medium=email Hope this is helpful!
bkoffman
CLL CURE Hero
in
CLL Support
4 years ago
Time-Limited Triplet Emerges as a Potential Standard in Relapsed/Refractory CLL
Oncology live May 06, 2020 [i]The time-limited triplet of umbralisib, ublituximab, and venetoclax (Venclexta) could potentially become a standard of care for patients with relapsed/refractory chronic
lymphocytic
leukemia
(CLL) who have progressed on frontline BTK inhibition, according to Paul M.
Oncology live May 06, 2020 [i]The time-limited triplet of umbralisib, ublituximab, and venetoclax (Venclexta) could potentially become a standard of care for patients with relapsed/refractory chronic
lymphocytic
leukemia
(CLL) who have progressed on frontline BTK inhibition, according to Paul M.
Jm954
Administrator
in
CLL Support
4 years ago
Webinar on CLL treatment - a Changing Landscape
CLL treatment - a changing landscape
When: Jun 29, 2020 11:00 AM You are invited to join us for a webinar by our sister charity Leukaemia Care on chronic lymphocytic leukaemia (CLL) treatment. Register your attendance via Zoom here https://us02web.zoom.us/webinar/register/WN_m2_TU8zlTauJ37YOyD_vGw
CLL treatment - a changing landscape
When: Jun 29, 2020 11:00 AM You are invited to join us for a webinar by our sister charity Leukaemia Care on chronic lymphocytic leukaemia (CLL) treatment. Register your attendance via Zoom here https://us02web.zoom.us/webinar/register/WN_m2_TU8zlTauJ37YOyD_vGw
Jm954
Administrator
in
CLL Support
4 years ago
Published today: COVID-19 UK CLL patient experience survey 3 interim report
We are pleased to share latest results and info graphics of answers to survey 3 in this series of surveys by the collaboration of CLL patients with the UK CLL Forum, CLL Support and Leukaemia Care .. This report also compares noticeable change since survey 2. The first survey was launched on 27th
We are pleased to share latest results and info graphics of answers to survey 3 in this series of surveys by the collaboration of CLL patients with the UK CLL Forum, CLL Support and Leukaemia Care .. This report also compares noticeable change since survey 2. The first survey was launched on 27th
HAIRBEAR_UK
in
Leukaemia Support
4 years ago
How COVID-19 Has Impacted Clinical Trials for Chronic Lymphocytic Leukemia
[i]"Many patients with chronic
lymphocytic
leukemia
(CLL) rely on the outcomes of clinical trials that examine new ways to treat the disease.
[i]"Many patients with chronic
lymphocytic
leukemia
(CLL) rely on the outcomes of clinical trials that examine new ways to treat the disease.
AussieNeil
Partner
in
CLL Support
4 years ago
FDA Accepts Application for Ropeginterferon Alfa-2b for Polycythemia Vera
The FDA has accepted a Biologics License Application (BLA) for ropeginterferon alfa-2b (P1101) for use as a treatment for patients with polycythemia vera (PV) in the absence of symptomatic splenomegaly, according to PharmaEssentia Corporation, the manufacturer of the novel pegylated interferon. https
The FDA has accepted a Biologics License Application (BLA) for ropeginterferon alfa-2b (P1101) for use as a treatment for patients with polycythemia vera (PV) in the absence of symptomatic splenomegaly, according to PharmaEssentia Corporation, the manufacturer of the novel pegylated interferon. https
Manouche
in
MPN Voice
4 years ago
Richter's transformation???
I posted a related question a few days ago but I am increasingly concerned about a Richter's transformation so altering it a bit to see if anyone can shed more light... Cll diagnosed 2012 Bendamustine/Gazyva 2015 IGg steadily declining, now at 74 September 2019: atypical lymphoid proliferation resulting
I posted a related question a few days ago but I am increasingly concerned about a Richter's transformation so altering it a bit to see if anyone can shed more light... Cll diagnosed 2012 Bendamustine/Gazyva 2015 IGg steadily declining, now at 74 September 2019: atypical lymphoid proliferation resulting
CoCoLuna11
in
CLL Support
4 years ago
CLL Medications and Corona Virus
This is the link to the article for any of you interested: https://patientpower.info/chronic-
lymphocytic
-
leukemia
/ask-the-expert/coronavirus-separating-fact-from-fiction-for-cll-patients#read-transcript-anchor When I read other articles written by doctors about this concept of strong immune systems
This is the link to the article for any of you interested: https://patientpower.info/chronic-
lymphocytic
-
leukemia
/ask-the-expert/coronavirus-separating-fact-from-fiction-for-cll-patients#read-transcript-anchor When I read other articles written by doctors about this concept of strong immune systems
wizzard166
in
CLL Support
4 years ago
UK webinar - CLL treatment a changing landscape
Posted on behalf of HAIRBEAR_UK When: Jun 29, 2020 11:00 AM London We invite you to Join us for an upcoming webinar on chronic lymphocytic leukaemia (CLL) treatment. Register here https://us02web.zoom.us/webinar/register/WN_m2_TU8zlTauJ37YOyD_vGw We will joined by: Professor Anna Schuh, consultant haematologist
Posted on behalf of HAIRBEAR_UK When: Jun 29, 2020 11:00 AM London We invite you to Join us for an upcoming webinar on chronic lymphocytic leukaemia (CLL) treatment. Register here https://us02web.zoom.us/webinar/register/WN_m2_TU8zlTauJ37YOyD_vGw We will joined by: Professor Anna Schuh, consultant haematologist
Jm954
Administrator
in
CLL Support
4 years ago
New to Chronic leukemia
Hi all. I'm new to all this and hoping to connect with ppl that understand what I'm going thru. I lost my right leg to bone lesion, failed bone transplants and osteomyelitis. Doc have always bee looking for in your face cancer cause. Everything with me has been borderline. It's been confusing for all
Hi all. I'm new to all this and hoping to connect with ppl that understand what I'm going thru. I lost my right leg to bone lesion, failed bone transplants and osteomyelitis. Doc have always bee looking for in your face cancer cause. Everything with me has been borderline. It's been confusing for all
Wowo23
in
CLL Support
4 years ago
Management of CLL Patients Early in the COVID-19 Pandemic: An International Survey of CLL Experts
John Pagel, https://cllsociety.org/2020/05/ash-2019-dr-pagel-discusses-intermittent-dosing-of-the-pi3k-inhibitor-me401-in-chronic-
lymphocytic
-
leukemia
-cll/ we learn that PI3 kinase inhibitors are potent medications that control CLL, but their widespread adoption has been slowed by their potential side
John Pagel, https://cllsociety.org/2020/05/ash-2019-dr-pagel-discusses-intermittent-dosing-of-the-pi3k-inhibitor-me401-in-chronic-
lymphocytic
-
leukemia
-cll/ we learn that PI3 kinase inhibitors are potent medications that control CLL, but their widespread adoption has been slowed by their potential side
bkoffman
CLL CURE Hero
in
CLL Support
4 years ago
Atypical lymphoid proliferation - colon, and neck?
Hi, I haven't posted here yet. I was diagnosed with CLL at age 43 in 2012 (13Q, Unmutated) and was treated in 2015 with Bendamustine/Gazyva. I had a routine colonoscopy Fall 2019 and had a 3.7 cm lymphoid infiltrate in colon. I had a terminal ileum and right colon resection and after a long wait on
Hi, I haven't posted here yet. I was diagnosed with CLL at age 43 in 2012 (13Q, Unmutated) and was treated in 2015 with Bendamustine/Gazyva. I had a routine colonoscopy Fall 2019 and had a 3.7 cm lymphoid infiltrate in colon. I had a terminal ileum and right colon resection and after a long wait on
CoCoLuna11
in
CLL Support
4 years ago
CLL virtual town hall THIS Saturday
https://patientpower.info/events/event/chronic-
lymphocytic
-
leukemia
-town-hall-meeting/2020-03-28/0930. Don't miss it! And send your questions to cll@patientpower.info. We are all in this together!
https://patientpower.info/events/event/chronic-
lymphocytic
-
leukemia
-town-hall-meeting/2020-03-28/0930. Don't miss it! And send your questions to cll@patientpower.info. We are all in this together!
andrewschorr
in
CLL Support
4 years ago
The Myeloproliferative Neoplasm Landscape: A Patient’s Eye View
Post by MPN-MATE Admin » Sat May 30, 2020 10:24 am Last Post for today before I go for a very fresh cycle ... :D This Post is about an article that has endeavoured to look at MPNs through the /Lens' of the MPN patient. Best wishes Steve
[i]The Myeloproliferative Neoplasm Landscape: A Patient’s
Post by MPN-MATE Admin » Sat May 30, 2020 10:24 am Last Post for today before I go for a very fresh cycle ... :D This Post is about an article that has endeavoured to look at MPNs through the /Lens' of the MPN patient. Best wishes Steve
[i]The Myeloproliferative Neoplasm Landscape: A Patient’s
socrates_8
in
MPN Voice
4 years ago
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