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Lymphocytic leukemia
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Ruxolitinib and Covid-19 - Trial
The Times has an article today regarding a trial in London. I remember there was a post here - ? April - saying it was one of the many drugs being looked at, but I certainly hadn't seen anything else since. I imagine those of us who are on it will wonder whether that might already be a benefit to us
The Times has an article today regarding a trial in London. I remember there was a post here - ? April - saying it was one of the many drugs being looked at, but I certainly hadn't seen anything else since. I imagine those of us who are on it will wonder whether that might already be a benefit to us
Hidden
in
MPN Voice
4 years ago
How To Know When You are Getting Old.
I was given a tea towel as a gift which featured the following............ I hope you enjoy reading it as much as I did. Actually many things are very true and I wasn't offended and found it hilarious! Everything hurts! What doesn't hurt doesn't work, The gleam in your eye is the sun shining on your
I was given a tea towel as a gift which featured the following............ I hope you enjoy reading it as much as I did. Actually many things are very true and I wasn't offended and found it hilarious! Everything hurts! What doesn't hurt doesn't work, The gleam in your eye is the sun shining on your
RoadRunner44
in
Lung Conditions Community Forum
4 years ago
The Benefits of Exercise with CLL and COVID-19
Exercise and Chronic
Leukemia
(CLL) - Relationships Among Physical Activity, Fitness, & Inflammation, and Their Impacts on CLL Patients https://ashpublications.org/blood/article/132/Supplement%201/5540/263135/Exercise-and-Chronic-
Lymphocytic
-
Leukemia
-CLL High levels of midlife fitness
Exercise and Chronic
Leukemia
(CLL) - Relationships Among Physical Activity, Fitness, & Inflammation, and Their Impacts on CLL Patients https://ashpublications.org/blood/article/132/Supplement%201/5540/263135/Exercise-and-Chronic-
Lymphocytic
-
Leukemia
-CLL High levels of midlife fitness
AussieNeil
Partner
in
CLL Support
4 years ago
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Poikilocytosis and Burr cells
I have CLL, the slow moving type since 2013; am 68 yrs old. My blood work is not that much out of the normal range and I feel fine. Had my standard checkup last week with a new oncologist who order a standard CBC plus a couple of other new blood tests; testing for the existance of poikilocytosis cells
I have CLL, the slow moving type since 2013; am 68 yrs old. My blood work is not that much out of the normal range and I feel fine. Had my standard checkup last week with a new oncologist who order a standard CBC plus a couple of other new blood tests; testing for the existance of poikilocytosis cells
markjeep51
in
CLL Support
4 years ago
If you want to learn about CLL text or video
/ http://cllsociety.org/cll-101/ - If you do better with explanatory videos Start here: https://patientpower.info/chronic-
lymphocytic
-
leukemia
/what-is-chronic-
lymphocytic
-
leukemia
/ Patient Power is a for-profit patient education website offers instructive videos and more on many health topics
/ http://cllsociety.org/cll-101/ - If you do better with explanatory videos Start here: https://patientpower.info/chronic-
lymphocytic
-
leukemia
/what-is-chronic-
lymphocytic
-
leukemia
/ Patient Power is a for-profit patient education website offers instructive videos and more on many health topics
lankisterguy
Volunteer
in
CLL Support
4 years ago
Hydroxyurea and Zoloft
Hi everyone, Has anyone experienced using hydroxyurea with Zoloft ? Does it have any interaction? My mom is going through anxiety due to some family problems and I was thinking it would be beneficial for her to start using Zoloft to lower her stress level but I’m not sure if it can have any side effect
Hi everyone, Has anyone experienced using hydroxyurea with Zoloft ? Does it have any interaction? My mom is going through anxiety due to some family problems and I was thinking it would be beneficial for her to start using Zoloft to lower her stress level but I’m not sure if it can have any side effect
Lovelymom4
in
MPN Voice
4 years ago
Questions about Richter Syndrome
I would like to ask you some important questions. 1-Before being diagnosed with chronic
lymphocytic
leukemia
, did you constantly have herpes? 2- Have you received treatment for chronic
lymphocytic
leukemia
with chemotherapy?
I would like to ask you some important questions. 1-Before being diagnosed with chronic
lymphocytic
leukemia
, did you constantly have herpes? 2- Have you received treatment for chronic
lymphocytic
leukemia
with chemotherapy?
Priss69
in
CLL Support
4 years ago
Hepcidin Mimetic PTG-300 Shows Early Promise in Polycythemia Vera
"PTG-300 is a big deal, and it is something different," said study investigator, Ronald Hoffman, MD, of The Icahn School of Medicine at Mount Sinai. "It was unanticipated that a regulator of iron metabolism could be used to treat patients with PV. This is the merging of 2 fields: science and hematology
"PTG-300 is a big deal, and it is something different," said study investigator, Ronald Hoffman, MD, of The Icahn School of Medicine at Mount Sinai. "It was unanticipated that a regulator of iron metabolism could be used to treat patients with PV. This is the merging of 2 fields: science and hematology
Manouche
in
MPN Voice
4 years ago
Small Things, Big Difference
Dear all it is a pleasure to share this booklet put together by the CLL community and Abbvie, This may help us all when dealing with the unknown. It’s the small things that make a big difference to the everyday lives of those living with CLL, from those recently diagnosed, to those who have been
Dear all it is a pleasure to share this booklet put together by the CLL community and Abbvie, This may help us all when dealing with the unknown. It’s the small things that make a big difference to the everyday lives of those living with CLL, from those recently diagnosed, to those who have been
HAIRBEAR_UK
Administrator
in
Leukaemia CARE
4 years ago
PV with high MCV,high RDW ,all other parameters normal - what does it mean ?
Was diagnosed with PV in 2019 in February 2019. Was put on Hydroxyurea. Now in February my blood reports are looking much better with all other parameters normal , but however only my MCV (108.7) and MCH (37.5) are higher than before .Also the RDW (14.9) is higher than before. All other blood parameters
Was diagnosed with PV in 2019 in February 2019. Was put on Hydroxyurea. Now in February my blood reports are looking much better with all other parameters normal , but however only my MCV (108.7) and MCH (37.5) are higher than before .Also the RDW (14.9) is higher than before. All other blood parameters
Iwillwin123
in
MPN Voice
4 years ago
Sod the underpants
That’s better, looks less like underwear on my face. Got the hang of it now, Going to have a go at the other design tomorrow.
That’s better, looks less like underwear on my face. Got the hang of it now, Going to have a go at the other design tomorrow.
MissKota
in
Lung Conditions Community Forum
4 years ago
New to Essential Thrombocythemia
I am a 44yr old woman and was diagnosed in February 2020 with essential thrombocythemia even though my bone marrow test and bloodwork said otherwise and no sign of MPN per the pathology report. Due to my high platelets my dr has started to treat me with hydroxyurea 500mg once daily for ET. On my last
I am a 44yr old woman and was diagnosed in February 2020 with essential thrombocythemia even though my bone marrow test and bloodwork said otherwise and no sign of MPN per the pathology report. Due to my high platelets my dr has started to treat me with hydroxyurea 500mg once daily for ET. On my last
Beths3
in
MPN Voice
4 years ago
Phyllis George dies of polycythemia Vera at age 70
https://www.nkytribune.com/2020/05/phyllis-george-former-miss-america-and-first-lady-of-kentucky-dies-of-rare-blood-disease-at-age-70/ George was diagnosed with polycythemia vera, a rare blood cancer that was diagnosed 35 years ago
https://www.nkytribune.com/2020/05/phyllis-george-former-miss-america-and-first-lady-of-kentucky-dies-of-rare-blood-disease-at-age-70/ George was diagnosed with polycythemia vera, a rare blood cancer that was diagnosed 35 years ago
Manouche
in
MPN Voice
4 years ago
Herpes infection within the body,couses platelets to go down even on nplate?
Hi there. My wife is diagnosed with ITP 2 years ago,she is on nplate and has her ups and down with increasing and decreasing the dose to stay round 100, she never had any bleading even when the platelets were 3000. Every time she gets a herpes on her lips or nose her platelets dive down and she has to
Hi there. My wife is diagnosed with ITP 2 years ago,she is on nplate and has her ups and down with increasing and decreasing the dose to stay round 100, she never had any bleading even when the platelets were 3000. Every time she gets a herpes on her lips or nose her platelets dive down and she has to
Jon1
in
ITP Support Association
4 years ago
Shielding, update
I'm JAK2+ PV under control... I got my letter 5 weeks ago and have been staying in besides walking my dog in remote fields etc, keeping well away from humans. This morning I decided to write to my consultant asking for confirmation re shielding, this was his reply.. "No, according to our Departmental
I'm JAK2+ PV under control... I got my letter 5 weeks ago and have been staying in besides walking my dog in remote fields etc, keeping well away from humans. This morning I decided to write to my consultant asking for confirmation re shielding, this was his reply.. "No, according to our Departmental
shiftzz
in
MPN Voice
4 years ago
Frontline Venetoclax/Obinutuzumab Approved in Europe for CLL
In some welcome good news[i], "The European Commission has approved a fixed-dose combination of venetoclax (Venclexta) and obinutuzumab (Gazyva) for the treatment of patients with previously untreated chronic
lymphocytic
leukemia
(CLL)"[/i] https://www.onclive.com/web-exclusives/frontline-venetoclaxobinutuzumab-approved-in-europe-in-cll
In some welcome good news[i], "The European Commission has approved a fixed-dose combination of venetoclax (Venclexta) and obinutuzumab (Gazyva) for the treatment of patients with previously untreated chronic
lymphocytic
leukemia
(CLL)"[/i] https://www.onclive.com/web-exclusives/frontline-venetoclaxobinutuzumab-approved-in-europe-in-cll
AussieNeil
Partner
in
CLL Support
4 years ago
BMB (Bone Marrow Biopsy)
I had a series of blood tests over the course of 12 months between gp and then my referral into my local hospital haemotology department . As all tests turned up negative for mutations, while my platelets continued to stay up/increase Haemotologist explained BMB (Bone Marrow Biopsy) was necessary
I had a series of blood tests over the course of 12 months between gp and then my referral into my local hospital haemotology department . As all tests turned up negative for mutations, while my platelets continued to stay up/increase Haemotologist explained BMB (Bone Marrow Biopsy) was necessary
Woodlandgarden
in
MPN Voice
4 years ago
Ibutrinib plus venetoclax?
As I told you my brother is in the rump up with venetoclax. Now he is in 100 mg now. This month he start relapsing his treatment with imbruvica monotherapy. He was 18 months with very good results with imbruvica, but as I said his cll start relapsing. And his doctors consider add venetoclax. He put
As I told you my brother is in the rump up with venetoclax. Now he is in 100 mg now. This month he start relapsing his treatment with imbruvica monotherapy. He was 18 months with very good results with imbruvica, but as I said his cll start relapsing. And his doctors consider add venetoclax. He put
Cgr2018
in
CLL Support
4 years ago
Dr. Sharman explains CLL and Coronavirus and personalized care
He also answers community questions about treatments and trials. https://patientpower.info/chronic-
lymphocytic
-
leukemia
/ask-the-expert/answers-about-the-coronavirus-and-personalized-cll-care
He also answers community questions about treatments and trials. https://patientpower.info/chronic-
lymphocytic
-
leukemia
/ask-the-expert/answers-about-the-coronavirus-and-personalized-cll-care
andrewschorr
in
CLL Support
4 years ago
Richter Transformation Survival in CLL Appears Better Among Treatment-Naive
A new nationwide study showed that the 5-year cumulative incidence of Richter transformation (RT) among patients with chronic
lymphocytic
leukemia
(CLL) was 2.8%. Of those patients whose disease transformed, about half (49%) were treatment-naive prior to transformation.
A new nationwide study showed that the 5-year cumulative incidence of Richter transformation (RT) among patients with chronic
lymphocytic
leukemia
(CLL) was 2.8%. Of those patients whose disease transformed, about half (49%) were treatment-naive prior to transformation.
Jm954
Administrator
in
CLL Support
4 years ago
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