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#CLLSociety VACCINE CANDIDATE COVID-19 Vaccine News Pfizer and BioNTech’s big news this week set the CLL Community abuzz with hope!
As this is not a “live” vaccine, but rather a novel “RNA” vaccine, it should theoretically be safe for chronic
lymphocytic
leukemia
patients, though that is not yet proven. The big question remains: Will it be effective? Dr.
As this is not a “live” vaccine, but rather a novel “RNA” vaccine, it should theoretically be safe for chronic
lymphocytic
leukemia
patients, though that is not yet proven. The big question remains: Will it be effective? Dr.
bkoffman
CLL CURE Hero
in
CLL Support
4 years ago
Ropeginterferon-Treated Patients With Polycythemia Vera Significantly More Likely to Be Phlebotomy Free at 5 Years
« Additional results showed a pronounced difference in the molecular response (JAK2V617F burden) between the 2 treatment arms, with “striking superiority of ropeginterferon at month 60,” Gisslinger noted. Specifically, the median JAK2V617F allele burden at year 5 was 8.5 in the ropeginterferon arm vs
« Additional results showed a pronounced difference in the molecular response (JAK2V617F burden) between the 2 treatment arms, with “striking superiority of ropeginterferon at month 60,” Gisslinger noted. Specifically, the median JAK2V617F allele burden at year 5 was 8.5 in the ropeginterferon arm vs
Manouche
in
MPN Voice
3 years ago
CEV letter v2.0, NI edition.
So lots of posts on here from people getting CEV letters again. Mostly England I think however our wee country got to deal with the serious arguments about transfer tests (I guess they are, not if you're youngest is 20 though) before they issue the guidance and letters. Just yesterday, Friday 8th I received
So lots of posts on here from people getting CEV letters again. Mostly England I think however our wee country got to deal with the serious arguments about transfer tests (I guess they are, not if you're youngest is 20 though) before they issue the guidance and letters. Just yesterday, Friday 8th I received
Belfastbees
in
CLL Support
3 years ago
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CLL Society interview with Dr. Sameer Parikh: MBL is present in 5% of the population over age 40. Most will not develop CLL
Read here: https://cllsociety.org/2020/10/ash-2019-dr-sameer-parikh-on-monoclonal-b-cell-lymphocytosis-a-precursor-to-chronic-
lymphocytic
-
leukemia
-cll/
Read here: https://cllsociety.org/2020/10/ash-2019-dr-sameer-parikh-on-monoclonal-b-cell-lymphocytosis-a-precursor-to-chronic-
lymphocytic
-
leukemia
-cll/
bkoffman
CLL CURE Hero
in
CLL Support
4 years ago
ASH 2020 | Timing of driver mutations and clonal dynamics in MPNs: a new paradigm for blood cancer development
Post by MPN-MATE Admin » Fri Dec 18, 2020 12:27 am Evening all... This short You Tube is full of some very interesting theories, and one in particular that I know to be factual in my own case... ... that I have had my MPN for many years before diagnosis. Fascinating insight to be coming from a Specialist
Post by MPN-MATE Admin » Fri Dec 18, 2020 12:27 am Evening all... This short You Tube is full of some very interesting theories, and one in particular that I know to be factual in my own case... ... that I have had my MPN for many years before diagnosis. Fascinating insight to be coming from a Specialist
socrates_8
in
MPN Voice
3 years ago
RUXCOVID study (NCT04362137) ~ FAILED TO BENEFIT
Post by MPN-MATE Admin » Wed Dec 16, 2020 10:41 pm [i]Ruxolitinib fails to provide clinical benefit in patients with COVID-19-related cytokine storm[/i] [i]By Gizem Karakuleli Dec 15, 2020[/i] Evening all... :D Personally, I have found the commercial aspects of Big Pharma's race to earn the Prize
Post by MPN-MATE Admin » Wed Dec 16, 2020 10:41 pm [i]Ruxolitinib fails to provide clinical benefit in patients with COVID-19-related cytokine storm[/i] [i]By Gizem Karakuleli Dec 15, 2020[/i] Evening all... :D Personally, I have found the commercial aspects of Big Pharma's race to earn the Prize
socrates_8
in
MPN Voice
4 years ago
An Explosion of Options for MPNs Forthcoming
« The Virtual ASH Meeting was just held in early December. It demonstrated that although we missed the in-person interactions, the progress in the world of hematology was exceptional! Forward progress for Myeloproliferative neoplasms (myelofibrosis (MF), polycythemia vera (PV), and essential thrombocythemia
« The Virtual ASH Meeting was just held in early December. It demonstrated that although we missed the in-person interactions, the progress in the world of hematology was exceptional! Forward progress for Myeloproliferative neoplasms (myelofibrosis (MF), polycythemia vera (PV), and essential thrombocythemia
Manouche
in
MPN Voice
4 years ago
RUXOLITINIB & Pulmonary Hypertension (PH)
Post by MPN-MATE Admin » Mon Dec 14, 2020 9:34 am Morning all... :D Lately, or perhaps I should have said, more recently while cycling... I have noticed days when my heart rate really blows out past previous maximums... Some days, I would feel in awesome ability after a ride, but then others, (&
Post by MPN-MATE Admin » Mon Dec 14, 2020 9:34 am Morning all... :D Lately, or perhaps I should have said, more recently while cycling... I have noticed days when my heart rate really blows out past previous maximums... Some days, I would feel in awesome ability after a ride, but then others, (&
socrates_8
in
MPN Voice
4 years ago
Picture of blast cell
I took this picture from a cat who had leukemia. Their blood cells are identical to ours. As you can see the blast cell is huge compared to the other white blood cells. That is because it is immature and has been released from the bone marrow too soon. Blasts should not be seen circulating in the blood
I took this picture from a cat who had leukemia. Their blood cells are identical to ours. As you can see the blast cell is huge compared to the other white blood cells. That is because it is immature and has been released from the bone marrow too soon. Blasts should not be seen circulating in the blood
clubdino
in
MPN Voice
4 years ago
Interesting article on venetoclax obinutuzumab and Ibrutinib trial
https://www.cancertherapyadvisor.com/home/cancer-topics/chronic-
lymphocytic
-
leukemia
/chronic-leukemia-cll-triple-therapy-phase-2-trial
https://www.cancertherapyadvisor.com/home/cancer-topics/chronic-
lymphocytic
-
leukemia
/chronic-leukemia-cll-triple-therapy-phase-2-trial
Research123
in
CLL Support
4 years ago
Pot Belly
Hi Does anyone have a problem with a pot belly. I have found recently that my trousers are tight and I am sure my spleen is not the cause. I have MF on Ruxolitinib 5mg 2 per day, eprex injections once a week and zario 3 times a week.
Hi Does anyone have a problem with a pot belly. I have found recently that my trousers are tight and I am sure my spleen is not the cause. I have MF on Ruxolitinib 5mg 2 per day, eprex injections once a week and zario 3 times a week.
WeeHarry
in
MPN Voice
4 years ago
Webinar - 6pm Tuesday 15th December - "Accessing your GP"
Dear friends please join us for this free webinar Leukaemia Care and Lymphoma Action are hosting this webinar to bring GPs and those affected by blood cancers together to share perspectives of how to make best use of Primary Care services during the current pandemic. Registration: https://us02web.zoom.us
Dear friends please join us for this free webinar Leukaemia Care and Lymphoma Action are hosting this webinar to bring GPs and those affected by blood cancers together to share perspectives of how to make best use of Primary Care services during the current pandemic. Registration: https://us02web.zoom.us
HAIRBEAR_UK
Administrator
in
Leukaemia CARE
4 years ago
AOP Orphan announces 5-year results on BESREMi® in PV at the ASH Annual Meeting 2020
Besremi showed clear advantages in efficacy and safety/tolerability versus best-available-treatment (mostly hydroxyurea) in this long-term treatment analysis in the randomized-controlled setting. * Freedom of phlebotomy with hematocrit below 45% was achieved in 81.8% of patients receiving Besremi vs
Besremi showed clear advantages in efficacy and safety/tolerability versus best-available-treatment (mostly hydroxyurea) in this long-term treatment analysis in the randomized-controlled setting. * Freedom of phlebotomy with hematocrit below 45% was achieved in 81.8% of patients receiving Besremi vs
Manouche
in
MPN Voice
4 years ago
Interferon in Polycythemia Vera (PV) Yields Improved Myelofibrosis-Free and Overall Survival
« Conclusion: Our results support early use of rIFN-a as a safe, disease-modifying treatment of rigorously defined PV to delay and potentially prevent Post PV myelofibrosis, and prolong overall survival of PV pts » https://ash.confex.com/ash/2020/webprogram/Paper141796.html
« Conclusion: Our results support early use of rIFN-a as a safe, disease-modifying treatment of rigorously defined PV to delay and potentially prevent Post PV myelofibrosis, and prolong overall survival of PV pts » https://ash.confex.com/ash/2020/webprogram/Paper141796.html
Manouche
in
MPN Voice
4 years ago
Has anybody found that regular running helps with CLL?
Then I posted something on a Facebook page for people with CLL and the moderator linked to a medical journal article which found that exercise helps people who have CLL:
https://ashpublications.org/blood/article/132/Supplement%201/5540/263135/Exercise-and-Chronic-
-
Leukemia
-CLL So you
Then I posted something on a Facebook page for people with CLL and the moderator linked to a medical journal article which found that exercise helps people who have CLL:
https://ashpublications.org/blood/article/132/Supplement%201/5540/263135/Exercise-and-Chronic-
-
Leukemia
-CLL So you
HowardR
in
CLL Support
4 years ago
Inconclusive results from BMB
My bone narrow biopsy results were inconclusive. Positive in Jak 2. Negative tests results for lymphoma and leukemia. Red blood cell, white blood cell and platelets are all high. They cannot determine what exact disorder I have. As a result, there has been no recommendation on what to do with medication
My bone narrow biopsy results were inconclusive. Positive in Jak 2. Negative tests results for lymphoma and leukemia. Red blood cell, white blood cell and platelets are all high. They cannot determine what exact disorder I have. As a result, there has been no recommendation on what to do with medication
margaritampn
in
MPN Voice
4 years ago
"It will change everything" - two scientific blockbusters we'll all benefit from
Mainly of interest to geeks, but of import to everyone. Blockbuster # 1: CRISPR-Cas9 Within weeks we expect to have several effective vaccines against the coronavirus, vaccines made from scratch and rushed to market within 12 months. Hitherto, such a development schedule for a new vaccine was unthinkable
Mainly of interest to geeks, but of import to everyone. Blockbuster # 1: CRISPR-Cas9 Within weeks we expect to have several effective vaccines against the coronavirus, vaccines made from scratch and rushed to market within 12 months. Hitherto, such a development schedule for a new vaccine was unthinkable
bennevisplace
in
CLL Support
4 years ago
Is there a link between PV and Alopecia areata (AA)?
Hi, Back in Summer 2019 I was diagnosed with Alopecia areata (AA). Then in Feb 2020 a blood test picked up high red blood cells / haemoglobin and haematocrits. In October just gone I was told I almost certainly have PV despite being negative for JAK2. (I have low EPO too). I see my consultant later
Hi, Back in Summer 2019 I was diagnosed with Alopecia areata (AA). Then in Feb 2020 a blood test picked up high red blood cells / haemoglobin and haematocrits. In October just gone I was told I almost certainly have PV despite being negative for JAK2. (I have low EPO too). I see my consultant later
Lettie_WP
in
MPN Voice
4 years ago
Help deciding about Transplant
I was diagnosed with Primary MF aged 49, 6 years ago. I am well managed on Ruxolitinib 30 mg daily, Aspirin and Acyclovir. My consuhas recently referred me to a transplant construct discuss a possible transplant. I am trying make my decision, which I am finding so difficult. As I am well controlled
I was diagnosed with Primary MF aged 49, 6 years ago. I am well managed on Ruxolitinib 30 mg daily, Aspirin and Acyclovir. My consuhas recently referred me to a transplant construct discuss a possible transplant. I am trying make my decision, which I am finding so difficult. As I am well controlled
Cazbolac
in
MPN Voice
4 years ago
Ibrutinib for chronic lymphocytic leukemia in the setting of respiratory failure from severe COVID‐19 infection: Case report and literature
Ibrutinib for chronic
lymphocytic
leukemia
in the setting of respiratory failure from severe COVID‐19 infection: Case report and literature review . I have seen parallels with other studies related to supplementation (NAC, EGCG, Quercetin, Vitamin D) for COVID19 and CLL.
Ibrutinib for chronic
lymphocytic
leukemia
in the setting of respiratory failure from severe COVID‐19 infection: Case report and literature review . I have seen parallels with other studies related to supplementation (NAC, EGCG, Quercetin, Vitamin D) for COVID19 and CLL.
velderve
in
CLL Support
4 years ago
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