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Platelets and Family History - Familial (Malignant) versus Hereditary (Benign) Thrombocytosis
Just thought I would post something interesting I learned in a recent discussion with my MPN specialist regarding the connection between families and platelets. Many of you are familiar with my situation. Age 30, platelets mildly elevated 430-455 for last 10 years. Driver mutation tests all negative.
Just thought I would post something interesting I learned in a recent discussion with my MPN specialist regarding the connection between families and platelets. Many of you are familiar with my situation. Age 30, platelets mildly elevated 430-455 for last 10 years. Driver mutation tests all negative.
cmc_ufl
in
MPN Voice
3 years ago
Lack of energy
Hi All I have MF with low hb 90 and platelets 30 at moment I am tired all the time. Age 79 and been treated since 2007 on Ruxolitinib 5mg twice a day and injections exprex and zarzio 3 times a week. I have transfusion occasionally. Is there anything you could recommend to boast my energy?
Hi All I have MF with low hb 90 and platelets 30 at moment I am tired all the time. Age 79 and been treated since 2007 on Ruxolitinib 5mg twice a day and injections exprex and zarzio 3 times a week. I have transfusion occasionally. Is there anything you could recommend to boast my energy?
WeeHarry
in
MPN Voice
3 years ago
CCL tests
Before treatment I received the following medical record : Please advice me, which test are belonging to : Flow Cytometry Test FISH Test IgVH Mutation Status Test Radiology report Thank you - my precious advisers , Chính Note : I'm sorry , my Medical record in Vietnamese added with English
Before treatment I received the following medical record : Please advice me, which test are belonging to : Flow Cytometry Test FISH Test IgVH Mutation Status Test Radiology report Thank you - my precious advisers , Chính Note : I'm sorry , my Medical record in Vietnamese added with English
Chinhdo
in
CLL Support
3 years ago
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CLL with “normal” FISH
Hello so while I am diagnosed with CLL, my FISH was normal meaning any abnormalities were not present in amounts sufficient to be detected. And while my diagnosis is recent, I have probably had CLL for five years without knowing it because my lymphocyte count has been high enough all along. It’s only
Hello so while I am diagnosed with CLL, my FISH was normal meaning any abnormalities were not present in amounts sufficient to be detected. And while my diagnosis is recent, I have probably had CLL for five years without knowing it because my lymphocyte count has been high enough all along. It’s only
Luap001
in
CLL Support
3 years ago
Italfarmaco Announces Publication of Positive Long-term Data for Givinostat in Polycythemia Vera Patients in Blood Cancer Journal
« — Four-year mean follow-up data demonstrate an overall response rate (ORR) of over 80% throughout the follow-up period — — Randomized, double-blind Phase 3 study to assess the efficacy and safety of GIVinostat versus hydroxyurea IN JAK2V617F-positive high-risk Polycythemia Vera patients (GIV-IN PV
« — Four-year mean follow-up data demonstrate an overall response rate (ORR) of over 80% throughout the follow-up period — — Randomized, double-blind Phase 3 study to assess the efficacy and safety of GIVinostat versus hydroxyurea IN JAK2V617F-positive high-risk Polycythemia Vera patients (GIV-IN PV
Manouche
in
MPN Voice
3 years ago
post-vaccination antibody test
Hi have a question for people with CLL who have already had an RNA vaccine (Pfizer and Moderna) or other. have you done a serological test for antibodies in the laboratory? After what time did you do such a test? what was your result of this test? Greetings from Poland Thank you for your response
Hi have a question for people with CLL who have already had an RNA vaccine (Pfizer and Moderna) or other. have you done a serological test for antibodies in the laboratory? After what time did you do such a test? what was your result of this test? Greetings from Poland Thank you for your response
BART4
in
CLL Support
3 years ago
Webinar for blood cancer patients - 3.30pm 30th March - Next steps with shielding and vaccination for COVID-19
Please join us for this webinar discussion and Q&A with leading UK immunologists and haematologists. Registration is now open here: https://us02web.zoom.us/webinar/register/WN_rp5koCMlSOWgyNYdpoA8wQ The aim of this webinar is to provide information to help you transition from current government guidance
Please join us for this webinar discussion and Q&A with leading UK immunologists and haematologists. Registration is now open here: https://us02web.zoom.us/webinar/register/WN_rp5koCMlSOWgyNYdpoA8wQ The aim of this webinar is to provide information to help you transition from current government guidance
HAIRBEAR_UK
in
Leukaemia Support
3 years ago
CAR-NK and me
I came to MD Anderson to take part in the CAR-NK trial. I am a good candidate: in July my marrow involvement was 5%. Natural Killer cells don’t return to the marrow so CAR-NK doesn’t do much in the marrow. The lymphodepleting chemo given before the CAR-NK infusion might, however, clear the marrow a bit
I came to MD Anderson to take part in the CAR-NK trial. I am a good candidate: in July my marrow involvement was 5%. Natural Killer cells don’t return to the marrow so CAR-NK doesn’t do much in the marrow. The lymphodepleting chemo given before the CAR-NK infusion might, however, clear the marrow a bit
john-doe
in
CLL Support
3 years ago
Hi
Hi my partner has been diagnosed with TPLL which is a rare form of leukaemia, he is due to start chemo tomorrow and is really worried. I was wondering if anyone else here has been diagnosed with this and what their experience is. Thank you x
Hi my partner has been diagnosed with TPLL which is a rare form of leukaemia, he is due to start chemo tomorrow and is really worried. I was wondering if anyone else here has been diagnosed with this and what their experience is. Thank you x
Hiker_chick
in
Leukaemia Support
3 years ago
Roche launches SARS-CoV-2 variant test to help monitor emerging coronavirus mutations.
Roche today announced the launch of the cobas® SARS-CoV-2 Variant Set 1 Test to detect and differentiate mutations found in variants that originated in the UK (B.1.1.7), South Africa (B.1.351), and Brazil (P.1). This research use only laboratory test can be used to help scientists track mutation prevalence
Roche today announced the launch of the cobas® SARS-CoV-2 Variant Set 1 Test to detect and differentiate mutations found in variants that originated in the UK (B.1.1.7), South Africa (B.1.351), and Brazil (P.1). This research use only laboratory test can be used to help scientists track mutation prevalence
2greys
in
Lung Conditions Community Forum
3 years ago
Moderna Announces First Participants Dosed in Phase 2/3 Study of COVID-19 Vaccine Candidate in Paediatric Population.
Moderna Inc. (Nasdaq: MRNA), a biotechnology company pioneering messenger RNA (mRNA) therapeutics and vaccines, today announced that the first participants have been dosed in the Phase 2/3 study, called the KidCOVE study, of mRNA-1273, the Company’s vaccine candidate against COVID-19, in children ages
Moderna Inc. (Nasdaq: MRNA), a biotechnology company pioneering messenger RNA (mRNA) therapeutics and vaccines, today announced that the first participants have been dosed in the Phase 2/3 study, called the KidCOVE study, of mRNA-1273, the Company’s vaccine candidate against COVID-19, in children ages
2greys
in
Lung Conditions Community Forum
3 years ago
CLL and Numb Chin Syndrome
Hi everyone. I am 40 year old male in the UK and was diagnosed with CLL in Feb 2019. I have been on w&w for the entire time. I have had no real symptoms with the exception of swolen glands and fatigue. Also my Spleen is swollen. Over the last few days I'e noticed that the righ side of chin feels numb
Hi everyone. I am 40 year old male in the UK and was diagnosed with CLL in Feb 2019. I have been on w&w for the entire time. I have had no real symptoms with the exception of swolen glands and fatigue. Also my Spleen is swollen. Over the last few days I'e noticed that the righ side of chin feels numb
Devans81
in
CLL Support
3 years ago
CLL Specialist
Hi. I am new to this group, and newly diagnosed. My CLL was a blaring red flag since 2017 and went undiagnosed until now (another story)......... But, I have read a few posts on this forum that recommended seeing a Hematologist that specializes in CLL, and I can't Thank you enough! While awaiting the
Hi. I am new to this group, and newly diagnosed. My CLL was a blaring red flag since 2017 and went undiagnosed until now (another story)......... But, I have read a few posts on this forum that recommended seeing a Hematologist that specializes in CLL, and I can't Thank you enough! While awaiting the
Tracibfine
in
CLL Support
3 years ago
13Q Deletion and ATM Mutation
Hi All, While I wait for my appointment to see a specialist at Dana Farber (June 1) and have only been seen by a local to me Hematologist ( Diagnosed in January 21) I understand that the 13Q is the better of the the Marks but that the Loss of ATM ( 11? ) is not good. I read that having the ATM mutation
Hi All, While I wait for my appointment to see a specialist at Dana Farber (June 1) and have only been seen by a local to me Hematologist ( Diagnosed in January 21) I understand that the 13Q is the better of the the Marks but that the Loss of ATM ( 11? ) is not good. I read that having the ATM mutation
controlsct
in
CLL Support
3 years ago
Vaccines and CLL/SLL plus
Can people with CLL and an active SLL but also with other chronic conditions like Mast Cell activation syndrome,CFS and Hashimoto take the Pfizer vaccine, along with multiple allergies to foods and medicines, could take the vaccine ? What about if the Lymphatic system is congested with little tumors?
Can people with CLL and an active SLL but also with other chronic conditions like Mast Cell activation syndrome,CFS and Hashimoto take the Pfizer vaccine, along with multiple allergies to foods and medicines, could take the vaccine ? What about if the Lymphatic system is congested with little tumors?
CarmenLuisa
in
CLL Support
3 years ago
Watch & Wait versus the risk of Richter’s
I am newly diagnosed. No “B symptoms”. I have probably had this for a few years already given that my lymphocytes have been sufficiently high to “qualify”. So time to play Tevye (forgive the brief intrusion by Michael Buble): On the one hand, so long as I am feelin’ good, I can continue to W&W. On the
I am newly diagnosed. No “B symptoms”. I have probably had this for a few years already given that my lymphocytes have been sufficiently high to “qualify”. So time to play Tevye (forgive the brief intrusion by Michael Buble): On the one hand, so long as I am feelin’ good, I can continue to W&W. On the
Luap001
in
CLL Support
3 years ago
Blood work suddenly normal
Hello everyone, I was just diagnosed this Feb as stage 0 and on watch and wait. When I had my first follow up appointment with my Hematologist last week, the blood work wasn’t ready. We have a program at the hospital where I can see the blood work as soon as it’s ready and I was really shocked. My Abs
Hello everyone, I was just diagnosed this Feb as stage 0 and on watch and wait. When I had my first follow up appointment with my Hematologist last week, the blood work wasn’t ready. We have a program at the hospital where I can see the blood work as soon as it’s ready and I was really shocked. My Abs
Can2021
in
CLL Support
3 years ago
Update after BMB
It's been awhile since my first BMB, but have been recovering & processing the results. I had a hard time with sedation & took me some time to reset myself from that ordeal (getting sick, having two veins blow out with blood draws & iv). I lost weight & only weighed at 104 lbs that day! I was diagnosed
It's been awhile since my first BMB, but have been recovering & processing the results. I had a hard time with sedation & took me some time to reset myself from that ordeal (getting sick, having two veins blow out with blood draws & iv). I lost weight & only weighed at 104 lbs that day! I was diagnosed
Androg
in
MPN Voice
3 years ago
Hydroxyurea side effects?
I have PV and I am Jak2+.Currently on Phlebotomy and baby aspirin.I usually have Phlebotomy about every 6 weeks to keep my Hematocrit below 45.Platelets around 600. Hemoglobin 13 and WBC on high side at 1750. I am considering Hydroxyurea or Busulfan oral. I know this has been discussed previously but
I have PV and I am Jak2+.Currently on Phlebotomy and baby aspirin.I usually have Phlebotomy about every 6 weeks to keep my Hematocrit below 45.Platelets around 600. Hemoglobin 13 and WBC on high side at 1750. I am considering Hydroxyurea or Busulfan oral. I know this has been discussed previously but
Ridenez
in
MPN Voice
3 years ago
Acalabrutinib Plus Obinutuzumab Prolongs Progression Free Survival Compared to Other Targeted Agents in Chronic Lymphocytic Leukaemia (CLL)
[i]First-line acalabrutinib plus obinutuzumab prolongs progression-free survival (PFS) compared to ibrutinib-obinutuzumab and venetoclax-obinutuzumab for patients with chronic
lymphocytic
leukemia
(CLL), according to a study published in Clinical Lymphoma, Myeloma, & Leukemia (2020 Oct 29;S2152-2650(
[i]First-line acalabrutinib plus obinutuzumab prolongs progression-free survival (PFS) compared to ibrutinib-obinutuzumab and venetoclax-obinutuzumab for patients with chronic
lymphocytic
leukemia
(CLL), according to a study published in Clinical Lymphoma, Myeloma, & Leukemia (2020 Oct 29;S2152-2650(
AussieNeil
Partner
in
CLL Support
4 years ago
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