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Expert Answers to Frequently Asked Questions About Chronic Lymphocytic Leukemia and COVID-19, including vaccination
Interesting 'conversation' with CLL experts on a variety of topics including: Do patients with CLL have worse outcomes if they develop COVID‑19? Are data available on COVID-19 outcomes in younger patients with CLL? Would it be possible for CLL-associated lymphocytosis to counteract COVID-19–associated
Interesting 'conversation' with CLL experts on a variety of topics including: Do patients with CLL have worse outcomes if they develop COVID‑19? Are data available on COVID-19 outcomes in younger patients with CLL? Would it be possible for CLL-associated lymphocytosis to counteract COVID-19–associated
Jm954
Administrator
in
CLL Support
3 years ago
CLLAN/ALAN´s joint webinar on COVID-19 vaccination and immune challenges for leukemia - 11 Feb 2021
For those of you that are interested in the immune response in CLL. This is a joint webinar held on 11/2/2021 by CLL Advocates Network and the Acute Leukaemia Advocates Network so not exclusively CLL. Lots of good information here which is CORRECT AS OF DATE OF WEBINAR 11 Feb 2021. It appears from
For those of you that are interested in the immune response in CLL. This is a joint webinar held on 11/2/2021 by CLL Advocates Network and the Acute Leukaemia Advocates Network so not exclusively CLL. Lots of good information here which is CORRECT AS OF DATE OF WEBINAR 11 Feb 2021. It appears from
Jm954
Administrator
in
CLL Support
3 years ago
Interferon-alpha for treating polycythemia vera yields improved myelofibrosis-free and overall survival
« Interferon-alpha (rIFNα) is the only disease-modifying treatment for polycythemia vera (PV), but whether or not it prolongs survival is unknown. This large single center retrospective study of 470 PV patients compares the myelofibrosis-free survival (MFS) and overall survival (OS) with rIFNα to two
« Interferon-alpha (rIFNα) is the only disease-modifying treatment for polycythemia vera (PV), but whether or not it prolongs survival is unknown. This large single center retrospective study of 470 PV patients compares the myelofibrosis-free survival (MFS) and overall survival (OS) with rIFNα to two
Manouche
in
MPN Voice
3 years ago
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Inherited?
Jennifer Brown found that one in four CLL patients studied had a variance (mutation) in their ATM gene. https://cllsociety.org/2020/11/ash-2019-dr-jennifer-brown-on-atm-gene-variants-in-chronic-
lymphocytic
-
leukemia
-cll/
Jennifer Brown found that one in four CLL patients studied had a variance (mutation) in their ATM gene. https://cllsociety.org/2020/11/ash-2019-dr-jennifer-brown-on-atm-gene-variants-in-chronic-
lymphocytic
-
leukemia
-cll/
bkoffman
CLL CURE Hero
in
CLL Support
4 years ago
Are CLL patients are kept in priority for COVID vaccination?
My wife is living with CLL and she is 50 years old now and she is under w & w condition. We live in Ontario, Canada. She has to go to Asia in May 2021 for a month. So far my knowledge is a concern, I do not know about the special privileges for vaccination to CLL people in Canada. I heard the government
My wife is living with CLL and she is 50 years old now and she is under w & w condition. We live in Ontario, Canada. She has to go to Asia in May 2021 for a month. So far my knowledge is a concern, I do not know about the special privileges for vaccination to CLL people in Canada. I heard the government
Sagarcanada
in
CLL Support
3 years ago
New Diagnosis? Questions
Hi All Forgive me for the stupid question. I am newly diagnosed with CLL (?) I have a Flow Symmetry saying I have B-Cell CLL. Looked online at my just-in results from the FISH test that say: Negative So...it's Friday night, I won't be able to speak to my Doctor for several days, and wondering if its
Hi All Forgive me for the stupid question. I am newly diagnosed with CLL (?) I have a Flow Symmetry saying I have B-Cell CLL. Looked online at my just-in results from the FISH test that say: Negative So...it's Friday night, I won't be able to speak to my Doctor for several days, and wondering if its
Tracibfine
in
CLL Support
3 years ago
NICE Approves Acalabrutinib (Calquence) for specified groups of CLL patients in England
Thanks to Peggy4 for posting this yesterday, here's a bit more detail. NICE has determined that Acalabrutinib will be available to CLL patients in the following groups: * previously treated CLL patients. *untreated patients with 17p deletion or TP53 mutations. *untreated patients who are unsuitable
Thanks to Peggy4 for posting this yesterday, here's a bit more detail. NICE has determined that Acalabrutinib will be available to CLL patients in the following groups: * previously treated CLL patients. *untreated patients with 17p deletion or TP53 mutations. *untreated patients who are unsuitable
Jm954
Administrator
in
CLL Support
3 years ago
Cannabis and CLL?
Alternative treatment of CLL? I have been reading about the story of cannabis and its treatment on CLL. I will tell you why I am interested to know about this? since my wife is under W & W condition of CLL so I have been exploring different alternative methods so that I could stop her progression?
Alternative treatment of CLL? I have been reading about the story of cannabis and its treatment on CLL. I will tell you why I am interested to know about this? since my wife is under W & W condition of CLL so I have been exploring different alternative methods so that I could stop her progression?
Sagarcanada
in
CLL Support
3 years ago
Sad news
It has taken me some time to write this... but I hope my husband’s journey with MPN is perceived overall a message hope to others. He was diagnosed with PV aged 46 and had a great quality of life for 28 years ,needing only phlebotomy -initially weekly but eventually every six weeks or so . He progressed
It has taken me some time to write this... but I hope my husband’s journey with MPN is perceived overall a message hope to others. He was diagnosed with PV aged 46 and had a great quality of life for 28 years ,needing only phlebotomy -initially weekly but eventually every six weeks or so . He progressed
Fika500
in
MPN Voice
3 years ago
Webinar 3.30pm, Tuesday 6th April - Acute lymphoblastic leukaemia (ALL) treatment update
Please join us for the 3rd in the series of acute leukaemia treatment updates. This webinar will update on how ALL is treated today and what is on the horizon: how is a therapy chosen, how is prognosis determined and what level of involvement should patients expect in their care decisions. The webinar
Please join us for the 3rd in the series of acute leukaemia treatment updates. This webinar will update on how ALL is treated today and what is on the horizon: how is a therapy chosen, how is prognosis determined and what level of involvement should patients expect in their care decisions. The webinar
HAIRBEAR_UK
Administrator
in
Leukaemia CARE
3 years ago
Webinar 3.30pm, Thursday 11th March - Acute myeloid leukaemia (AML) treatment update
Please join us for our 2nd webinar in the acute leukaemia treatment updates series. This webinar will update on how AML is treated today and what is on the horizon: how is a therapy chosen, how is prognosis determined and what level of involvement should patients expect in their care decisions. The
Please join us for our 2nd webinar in the acute leukaemia treatment updates series. This webinar will update on how AML is treated today and what is on the horizon: how is a therapy chosen, how is prognosis determined and what level of involvement should patients expect in their care decisions. The
HAIRBEAR_UK
Administrator
in
Leukaemia CARE
3 years ago
Webinar 9.30am, Wednesday 3rd March - Acute promyelocytic leukaemia (APL) treatment update
Please join us for the 1st in our series of free treatment updates in acute leukaemia. This webinar will update on how APL is treated today and what is on the horizon: how is a therapy chosen, how is prognosis determined and what level of involvement should patients expect in their care decisions. The
Please join us for the 1st in our series of free treatment updates in acute leukaemia. This webinar will update on how APL is treated today and what is on the horizon: how is a therapy chosen, how is prognosis determined and what level of involvement should patients expect in their care decisions. The
HAIRBEAR_UK
Administrator
in
Leukaemia CARE
3 years ago
American Society of Hematology (ASH) 2020 Virtual meeting key updates in the treatment of CLL
showAllVideos&taxonomy_name=subject&term_name=chronic-
lymphocytic
-
leukemia
- William Wierda TRANSCEND CLL 04: 18-month follow up in R/R CLL https://www.vjhemonc.com/video/ps4nfnfrwfc-transcend-cll-04-18-month-follow-up-of-liso-cel-for-rr-cll/ - John Gribben Umbralisib + ublituximab in CLL https
showAllVideos&taxonomy_name=subject&term_name=chronic-
lymphocytic
-
leukemia
- William Wierda TRANSCEND CLL 04: 18-month follow up in R/R CLL https://www.vjhemonc.com/video/ps4nfnfrwfc-transcend-cll-04-18-month-follow-up-of-liso-cel-for-rr-cll/ - John Gribben Umbralisib + ublituximab in CLL https
lankisterguy
Volunteer
in
CLL Support
4 years ago
Anti inflammatory eating..
Morning.. I am a MF patient, (52 working full time), and for a while have been interested in how nutrition can help me. I can be very good about a varied diet, and then get bored of it, or the perceived effort of planning and doing etc.... However lockdown has made eating well harder, shopping online
Morning.. I am a MF patient, (52 working full time), and for a while have been interested in how nutrition can help me. I can be very good about a varied diet, and then get bored of it, or the perceived effort of planning and doing etc.... However lockdown has made eating well harder, shopping online
Mrs_Average
in
MPN Voice
3 years ago
CLL under W&W and Covid Vaccine
I live in B.C. Canada and I am trying to figure out if I qualify for the Covid vaccine at the time of the "clinically extremely vulnerable" phase. I have CLL and I am on W&W. Under the clinically extremely vulnerable it says "People with cancers of the blood or bone marrow such as leukemia, lymphoma
I live in B.C. Canada and I am trying to figure out if I qualify for the Covid vaccine at the time of the "clinically extremely vulnerable" phase. I have CLL and I am on W&W. Under the clinically extremely vulnerable it says "People with cancers of the blood or bone marrow such as leukemia, lymphoma
TheMah
in
CLL Support
3 years ago
ET OR MYELOFIBROSIS
Hi! I am new to this. You guys Who have ET, did you have any raising levels in LDH? Or anything else other than high platelets? How is the prognosis with prefibrotic myelofibrosis? Do everyone get myelofibrosis? Thank you!
Hi! I am new to this. You guys Who have ET, did you have any raising levels in LDH? Or anything else other than high platelets? How is the prognosis with prefibrotic myelofibrosis? Do everyone get myelofibrosis? Thank you!
Johan2021
in
MPN Voice
3 years ago
BRUIN Study: phase 1/2 study of Pirtobrutinib (formerly Loxo 305) in relapsed or refractory B-cell malignancies
Patients discontinue BTKi's due to resistance and intolerance. We evaluated the safety and efficacy of Pirtobrutinib (working name; formerly known as LOXO-305), a highly selective, reversible BTK inhibitor, in these patients. The study started recruiting November 16, 2018 and follow up is expected to
Patients discontinue BTKi's due to resistance and intolerance. We evaluated the safety and efficacy of Pirtobrutinib (working name; formerly known as LOXO-305), a highly selective, reversible BTK inhibitor, in these patients. The study started recruiting November 16, 2018 and follow up is expected to
Jm954
Administrator
in
CLL Support
3 years ago
CLL FISH tests results
I have been diagnosed and joined the CLL club recently. I have been doing my research here and also with Dr. Google etc. I just got my FLOW and FISH test results and it is very complicated. I am hoping someone here can give me the layman terms and what the results mean. I have a follow up appointment
I have been diagnosed and joined the CLL club recently. I have been doing my research here and also with Dr. Google etc. I just got my FLOW and FISH test results and it is very complicated. I am hoping someone here can give me the layman terms and what the results mean. I have a follow up appointment
controlsct
in
CLL Support
3 years ago
First Time Post: CLL in full relapse mode + vaccines and Calquence next line of defense.
Hi all - my name is Tim and Im from Seattle. This is my first post here though I’ve been following HealthUnlocked for my CLL diagnosis back in 2018. Unfortunately my leukemia is back after nearly 2 years of remission with FCR. I’ve undergone the typical CLL tests and was ‘relieved’ to find it had not
Hi all - my name is Tim and Im from Seattle. This is my first post here though I’ve been following HealthUnlocked for my CLL diagnosis back in 2018. Unfortunately my leukemia is back after nearly 2 years of remission with FCR. I’ve undergone the typical CLL tests and was ‘relieved’ to find it had not
TimDeeSeattle
in
CLL Support
3 years ago
Ricther Transformation - Derek May has left us.
Hello everyone. It is always my turn to deliver the bad news. Tonight Derek May left us. Two weeks ago Derek made the difficult decision to continue treatment or discontinue it. Derek underwent a cell transplant and had graft-versus-host complications. He was in treatment but his body could not bear
Hello everyone. It is always my turn to deliver the bad news. Tonight Derek May left us. Two weeks ago Derek made the difficult decision to continue treatment or discontinue it. Derek underwent a cell transplant and had graft-versus-host complications. He was in treatment but his body could not bear
Priss69
in
CLL Support
3 years ago
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