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Patient Power 2022 ASH Conference Report: Deep Dive into CLL Dec 14, 2022 Nicole Lamanna, MD
ASH Conference Coverage - 2022 ASH Conference Report: Deep Dive into CLL Dec 14, 2022 Nicole Lamanna, MD Associate Clinical Professor of Medicine https://www.patientpower.info/chronic-
lymphocytic
-
leukemia
/2022-ash-conference-report-deep-dive-into-cll Patient Power host Michele Nadeem-Baker is joined
ASH Conference Coverage - 2022 ASH Conference Report: Deep Dive into CLL Dec 14, 2022 Nicole Lamanna, MD Associate Clinical Professor of Medicine https://www.patientpower.info/chronic-
lymphocytic
-
leukemia
/2022-ash-conference-report-deep-dive-into-cll Patient Power host Michele Nadeem-Baker is joined
lankisterguy
Volunteer
in
CLL Support
2 years ago
AI searches- be careful!
result: "Yes, chronic
lymphocytic
leukemia
(CLL) may develop heart conditions as well. Over half of people with CLL treated with Imbruvica (ibrutinib) may develop atrial fibrillation (AFib). During AFib, the heart beats irregularly.
result: "Yes, chronic
lymphocytic
leukemia
(CLL) may develop heart conditions as well. Over half of people with CLL treated with Imbruvica (ibrutinib) may develop atrial fibrillation (AFib). During AFib, the heart beats irregularly.
Rico49
in
CLL Support
1 year ago
Richters Transformation
I recently informed here that after nine therapy free years since 2014 (FCR) my CLL bounced back in 10/2022 with an DLBCL and a suspicion of Richters. Biopsy and Lab tests predicted that. Therefore I was immediately treated with R-CHOP 14 CI Therapy first in Hospital one week and then within the ambulance
I recently informed here that after nine therapy free years since 2014 (FCR) my CLL bounced back in 10/2022 with an DLBCL and a suspicion of Richters. Biopsy and Lab tests predicted that. Therefore I was immediately treated with R-CHOP 14 CI Therapy first in Hospital one week and then within the ambulance
seoul1949
in
CLL Support
10 months ago
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Jak2/tet2 mutation
Hello this is Ben from VA! I was diagnosed with MPN last year and use Besremi every 2 weeks. I have jak2/tet2 mutations which makes me feel confused and scared since the majority of PVs only have jak2(or other so-called driver mutations). I read a lot online and it seems tet2 is not the worst thing
Hello this is Ben from VA! I was diagnosed with MPN last year and use Besremi every 2 weeks. I have jak2/tet2 mutations which makes me feel confused and scared since the majority of PVs only have jak2(or other so-called driver mutations). I read a lot online and it seems tet2 is not the worst thing
Ben2022
in
MPN Voice
1 year ago
flow cytometry is showing about 74% CLL involvement.
Is it likely that treatment might be needed in the near future? Husband is trisomy 12, TP53 negative. Mutated. He has splenomegaly, and enlarged nodes. Fish is in process. INTERPRETATION A phenotypically abnormal population with forward and right-angle scatter features of small lymphocytes constitutes
Is it likely that treatment might be needed in the near future? Husband is trisomy 12, TP53 negative. Mutated. He has splenomegaly, and enlarged nodes. Fish is in process. INTERPRETATION A phenotypically abnormal population with forward and right-angle scatter features of small lymphocytes constitutes
juniper1975
in
CLL Support
10 months ago
CLL and mRNA Vaccines
Just saw this abstract, which is one of the papers being presented at the Boston CLL conference: https://journals.plos.org/plosmedicine/article?id=10.1371/journal.pmed.1004157 I don't understand most of it, but this is one of the "Findings": [i]CLL patients and other immunocompromised populations
Just saw this abstract, which is one of the papers being presented at the Boston CLL conference: https://journals.plos.org/plosmedicine/article?id=10.1371/journal.pmed.1004157 I don't understand most of it, but this is one of the "Findings": [i]CLL patients and other immunocompromised populations
BWHR
in
CLL Support
10 months ago
FDA APPROVAL FOR ZANUBRUTINIB
Here is the article: https://www.dana-farber.org/newsroom/news-releases/2023/dana-farber-led-study-leads-to-fda-approval-for-next-generation-drug-in-relapsed-chronic-
lymphocytic
-
leukemia
/ Carl
Here is the article: https://www.dana-farber.org/newsroom/news-releases/2023/dana-farber-led-study-leads-to-fda-approval-for-next-generation-drug-in-relapsed-chronic-
lymphocytic
-
leukemia
/ Carl
wizzard166
in
CLL Support
1 year ago
Relapsed CLL: New Approaches Prolong Survival
Credit to Medscape NEW YORK – Most patients with chronic
lymphocytic
leukemia
(CLL) who relapse after treatment with a single agent Bruton's tyrosine kinase (BTK) inhibitor have one of several high-risk characteristics, including complex karyotype, 17p-chromosome deletion, or a TP53 mutation.
Credit to Medscape NEW YORK – Most patients with chronic
lymphocytic
leukemia
(CLL) who relapse after treatment with a single agent Bruton's tyrosine kinase (BTK) inhibitor have one of several high-risk characteristics, including complex karyotype, 17p-chromosome deletion, or a TP53 mutation.
Jm954
Administrator
in
CLL Support
1 year ago
Epipen - Serious Nut Allergy
EpiPen - Serious Nut Allergy Good afternoon, My daughter got tested today at Preston Hospital, she tested positive for all types of nuts and was told she has Serious Nut Allergy which is Life Threatening without the Use of an Injectable EpiPen. My daughter was given one today at Hospital. Her Question
EpiPen - Serious Nut Allergy Good afternoon, My daughter got tested today at Preston Hospital, she tested positive for all types of nuts and was told she has Serious Nut Allergy which is Life Threatening without the Use of an Injectable EpiPen. My daughter was given one today at Hospital. Her Question
Joseph260268
in
Lung Conditions Community Forum
1 year ago
p17 deletion. Can anyone advise or cheer me up?!
Hi! I’m 79, living in UK and 18 months into being diagnosed with Chronic lymphocytic leukaemia (CLL) and suspected Chronic myelomonocytic leukaemia (CMML), I have been still at early stage and not needing treatment. However, yesterday I received a copy of my consultant’s latest report with new blood
Hi! I’m 79, living in UK and 18 months into being diagnosed with Chronic lymphocytic leukaemia (CLL) and suspected Chronic myelomonocytic leukaemia (CMML), I have been still at early stage and not needing treatment. However, yesterday I received a copy of my consultant’s latest report with new blood
Fogey
in
CLL Support
10 months ago
Ruxolitinib
Hi all, I have PV and AB is high , around 81% , spleen size slightly increased but if I didn’t know I have PV I would think I am the healthiest person around as I have no symptoms. I was diagnosed end of 2018 but had it al least since 2015. I am considering taking a part in clinical trial for Ruxo and
Hi all, I have PV and AB is high , around 81% , spleen size slightly increased but if I didn’t know I have PV I would think I am the healthiest person around as I have no symptoms. I was diagnosed end of 2018 but had it al least since 2015. I am considering taking a part in clinical trial for Ruxo and
Ameliav
in
MPN Voice
1 year ago
Promising research is currently underway to use humanized bispecific single-domain antibodies
These antibodies engage different sub-types of T-lymphocytes to treat chronic
lymphocytic
leukemia
/small
lymphocytic
leukemia
CLL/SLL.
These antibodies engage different sub-types of T-lymphocytes to treat chronic
lymphocytic
leukemia
/small
lymphocytic
leukemia
CLL/SLL.
spi3
in
CLL Support
2 years ago
ASH 2022 | Key highlights in CLL: clinical trial updates combination therapies novel BTKis Lindsey Roeker and Matthew Davids • 10 Dec 2022
leukemia
(CLL) is constantly evolving, with novel Bruton’s tyrosine kinase (BTK) inhibitors transforming the field.
leukemia
(CLL) is constantly evolving, with novel Bruton’s tyrosine kinase (BTK) inhibitors transforming the field.
lankisterguy
Volunteer
in
CLL Support
2 years ago
Ruxalitinib and Peg interferon
AS previously mentioned my husband {He has PV and MPN} has for the past 6 years been on Ruxolitinib . He has now been advised that owing to quite a few skin cancers the last one being Squamous skin cancer with extensive scalp debridement. All in all in past 3 years he has had approx 7/8 basil cell
AS previously mentioned my husband {He has PV and MPN} has for the past 6 years been on Ruxolitinib . He has now been advised that owing to quite a few skin cancers the last one being Squamous skin cancer with extensive scalp debridement. All in all in past 3 years he has had approx 7/8 basil cell
waddles22
in
MPN Voice
1 year ago
Chronic lymphocytic leukemia treatment algorithm 2022
Chronic
lymphocytic
leukemia
treatment algorithm 2022. Blood Cancer J. 12, 161 (2022). https://doi.org/10.1038/s41408-022-00756-9 Note: not all of the therapies recommended in this algorithm are available to patients in all places.
Chronic
lymphocytic
leukemia
treatment algorithm 2022. Blood Cancer J. 12, 161 (2022). https://doi.org/10.1038/s41408-022-00756-9 Note: not all of the therapies recommended in this algorithm are available to patients in all places.
CLLerinOz
Administrator
in
CLL Support
2 years ago
"Three-drug combination highly effective in patients with high-risk forms of chronic lymphocytic leukemia"
Three-drug combination highly effective in patients with high-risk forms of chronic
lymphocytic
leukemia
- https://www.news-medical.net/news/20221212/Three-drug-combination-highly-effective-in-patients-with-high-risk-forms-of-chronic-lymphocytic-leukemia.aspx - small USA trial (68) with acalabrutinib
Three-drug combination highly effective in patients with high-risk forms of chronic
lymphocytic
leukemia
- https://www.news-medical.net/news/20221212/Three-drug-combination-highly-effective-in-patients-with-high-risk-forms-of-chronic-lymphocytic-leukemia.aspx - small USA trial (68) with acalabrutinib
JIDD
in
CLL Support
2 years ago
Update.
Had my last infusion of Rituximab today. A doctor came to speak with me, apparently my cll is not responding to the infusions. They are hoping that this last dose will trigger a reaction but she is doubtful. She asked if I had ever taken acalabrutinib to which I said no and I think i have heard that
Had my last infusion of Rituximab today. A doctor came to speak with me, apparently my cll is not responding to the infusions. They are hoping that this last dose will trigger a reaction but she is doubtful. She asked if I had ever taken acalabrutinib to which I said no and I think i have heard that
Jacksc06
in
CLL Support
10 months ago
Lymphatic drainage massages
After reading CLL is dormant in the blood stream but active in the lymph nodes I wondered if it might be be beneficial to keep the cells circulating out of the lymph nodes as much as possible. It seems intuitive exercise and hydration would be good for this potentially but should have no real negative
After reading CLL is dormant in the blood stream but active in the lymph nodes I wondered if it might be be beneficial to keep the cells circulating out of the lymph nodes as much as possible. It seems intuitive exercise and hydration would be good for this potentially but should have no real negative
Rando21
in
CLL Support
10 months ago
Research Evaluating Risk of Richter Syndrome
Abstract is as follows: "Complex karyotype (CK) at chronic
lymphocytic
leukemia
(CLL) diagnosis is a negative biomarker of adverse outcome.
Abstract is as follows: "Complex karyotype (CK) at chronic
lymphocytic
leukemia
(CLL) diagnosis is a negative biomarker of adverse outcome.
jonathan7176
in
CLL Support
1 year ago
A ‘wobble’ caused by subset 6 CLL.
Hi all, a very ocasional póster here but avid reader of the many highly informed contributors that make this site what it is. I was diagnosed with stage ‘A’ CLL in 2021 and continue to be on W & W. I have many of the classic symptoms but not severe enough to warrant treatment - yet! I’ve recently been
Hi all, a very ocasional póster here but avid reader of the many highly informed contributors that make this site what it is. I was diagnosed with stage ‘A’ CLL in 2021 and continue to be on W & W. I have many of the classic symptoms but not severe enough to warrant treatment - yet! I’ve recently been
Petroc
in
CLL Support
10 months ago
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