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Lymphocytic leukemia
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Switching Drs
In July, I was notified by my oncology clinic that my oncologist was on an emergency leave of absence with his return undetermined. š¢ I was absolutely devastated, not only because there was no information that could be given on his status, but also for the void it left not knowing where to proceed
In July, I was notified by my oncology clinic that my oncologist was on an emergency leave of absence with his return undetermined. š¢ I was absolutely devastated, not only because there was no information that could be given on his status, but also for the void it left not knowing where to proceed
K-itty
in
MPN Voice
10 months ago
Richter's Transformation: standardized therapy or clinical trial
My father was diagnosed CLL 4 years ago and hasn't been treated. Recently he did a PET CT because of enlarged lmpth nodes and doctor said it's very possible he has Richter's Transformation. May I know if any one has same experience with Richters but not treated before? Could you share the treatment and
My father was diagnosed CLL 4 years ago and hasn't been treated. Recently he did a PET CT because of enlarged lmpth nodes and doctor said it's very possible he has Richter's Transformation. May I know if any one has same experience with Richters but not treated before? Could you share the treatment and
janeychen5712
in
CLL Support
7 months ago
update: Zanabrutinib vs Obenven (O&V)
We are praying for Gods wisdom (James1:5), and weāre leaning toward the Zanabrutinib. The infusions and time and distance will be impactful to my husbands work and heās prefer to go the simpler route. We learned heās still 13Q and TP53 negative and his lymph nodes are reduced (we have used ALT for
We are praying for Gods wisdom (James1:5), and weāre leaning toward the Zanabrutinib. The infusions and time and distance will be impactful to my husbands work and heās prefer to go the simpler route. We learned heās still 13Q and TP53 negative and his lymph nodes are reduced (we have used ALT for
Cb1391
in
CLL Support
7 months ago
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CLL leukemia
What does it mean when your white blood count increases from 27 to 30.6 10^9/L 4.0-10.0 10^9/L
What does it mean when your white blood count increases from 27 to 30.6 10^9/L 4.0-10.0 10^9/L
Bobby13
in
CLL Support
7 months ago
Answers Now: Should I Still Watch and Wait?Wednesday, January 25th, 2023 at 3:00pm ET/12:00pm PT
Wednesday, January 25th, 2023 at 3:00pm ET/12:00pm PT Register here: https://www.patientpower.info/events/answers-now-should-i-still-watch-and-wait Join us Wednesday, January 25, 2023 at 3:00pm ET/12:00pm PT for a live, virtual, chronic
lymphocytic
leukemia
(CLL) Answers Now program.
Wednesday, January 25th, 2023 at 3:00pm ET/12:00pm PT Register here: https://www.patientpower.info/events/answers-now-should-i-still-watch-and-wait Join us Wednesday, January 25, 2023 at 3:00pm ET/12:00pm PT for a live, virtual, chronic
lymphocytic
leukemia
(CLL) Answers Now program.
lankisterguy
Volunteer
in
CLL Support
1 year ago
FDA Investigating 'Serious Risk' of Malignancy After CAR-T Therapy - Applies to all approved therapies, but benefits still outweigh risks
From MedPage Today, by Charles Bankhead, Senior Editor, MedPage Today November 28, 2023, Last Updated November 29, 2023. Posted FYI without comment: [i]
FDA Investigating 'Serious Risk' of Malignancy After CAR-T Therapy - Applies to all approved therapies, but benefits still outweigh risks, agency
From MedPage Today, by Charles Bankhead, Senior Editor, MedPage Today November 28, 2023, Last Updated November 29, 2023. Posted FYI without comment: [i]
FDA Investigating 'Serious Risk' of Malignancy After CAR-T Therapy - Applies to all approved therapies, but benefits still outweigh risks, agency
cujoe
in
CLL Support
7 months ago
Fatigue issues taking Eltroxin combined with Hydroxy for ET
Wonder if anyone else with ET on this forum has had additional challenge managing intense fatigue when taking Levothyroxine, trade name Eltroxin, a thyroid hormone supplement, combined with Hydroxy 500mg daily? Started Eltroxin February this year. Previously well managed situation. Now life is more of
Wonder if anyone else with ET on this forum has had additional challenge managing intense fatigue when taking Levothyroxine, trade name Eltroxin, a thyroid hormone supplement, combined with Hydroxy 500mg daily? Started Eltroxin February this year. Previously well managed situation. Now life is more of
Norma1831
in
MPN Voice
10 months ago
CLL and now very elevated Monocytes
I am under treatment for CLL using Venetoclax. It has been going well and my lymphocytes are controlled with a minimal dosage of Venetoclax of 50 mg.I just had labs yesterday and in 3 weeks my monocytes shot p from 5% to 15% and absolute count from. 08 to over 1000. I am so concerned I am developing
I am under treatment for CLL using Venetoclax. It has been going well and my lymphocytes are controlled with a minimal dosage of Venetoclax of 50 mg.I just had labs yesterday and in 3 weeks my monocytes shot p from 5% to 15% and absolute count from. 08 to over 1000. I am so concerned I am developing
ralphfelo
in
CLL Support
7 months ago
HCT Jumped 3%.
I haven't had to have a phlebotomy for months and my HCT was hanging in at 45 or below. I switch from HU to Pegasus 2 1/2 months ago and all of a sudden my HCT jumped up 3%. It must be because of the very low dose I started with which was 45mcgs. I went up to 60mcgs after 6 weeks and now he wants me
I haven't had to have a phlebotomy for months and my HCT was hanging in at 45 or below. I switch from HU to Pegasus 2 1/2 months ago and all of a sudden my HCT jumped up 3%. It must be because of the very low dose I started with which was 45mcgs. I went up to 60mcgs after 6 weeks and now he wants me
russkatt
in
MPN Voice
10 months ago
Zanubrutinib or O&V
The CLL specialist that we are seeing is giving my husband the choice between O&V and Zanubrutinib. We are trying to make the best decision, but struggling. They also said he can do one and switch to the other or vice a versa, but my husband works full-time and weāre a bit concerned about What seems
The CLL specialist that we are seeing is giving my husband the choice between O&V and Zanubrutinib. We are trying to make the best decision, but struggling. They also said he can do one and switch to the other or vice a versa, but my husband works full-time and weāre a bit concerned about What seems
Cb1391
in
CLL Support
7 months ago
Lymphoma & CLL Highlights Virtual Workshop Jan 19, 2023 03:00 PM in London
Post-ASH 2022 Lymphoma & CLL Highlights Virtual Workshop Time Jan 19, 2023 03:00 PM in London 10:00ā13:00 EST/ 15:00ā18:00 GMT/ 16:00ā19:00 CET The Post-ASH 2022 Lymphoma & CLL Highlights Virtual Workshop will feature a series of short presentations on lymphoma and chronic
lymphocytic
leukemia
(CLL
Post-ASH 2022 Lymphoma & CLL Highlights Virtual Workshop Time Jan 19, 2023 03:00 PM in London 10:00ā13:00 EST/ 15:00ā18:00 GMT/ 16:00ā19:00 CET The Post-ASH 2022 Lymphoma & CLL Highlights Virtual Workshop will feature a series of short presentations on lymphoma and chronic
lymphocytic
leukemia
(CLL
lankisterguy
Volunteer
in
CLL Support
1 year ago
jakafi and Pegasys combination for Myelofibrosis
Does anyone have both Jakafi and Pegasys? My Mpn has hinted that this might be a good combination. I think there have been trials but I canāt find them now!
Does anyone have both Jakafi and Pegasys? My Mpn has hinted that this might be a good combination. I think there have been trials but I canāt find them now!
Yanico
in
MPN Voice
10 months ago
Supportive wife
Hi there! My husband was diagnosed with CLL in 2015. He had zero issues, I was just concerned about esophageal issues (burping) and requested a 50-year full physical so we could get a scope. Within two weeks my husband had diagnosis for esophageal cancer at GE junction (14% survival rate) and CLL.
Hi there! My husband was diagnosed with CLL in 2015. He had zero issues, I was just concerned about esophageal issues (burping) and requested a 50-year full physical so we could get a scope. Within two weeks my husband had diagnosis for esophageal cancer at GE junction (14% survival rate) and CLL.
Cb1391
in
CLL Support
8 months ago
New era for myelofibrosis treatment with novel agents beyond JAK2 -inhibitor monotherapy
There is an urgent unmet medical need for treatments with a novel mechanism of action that can modify the underlying pathophysiology and affect the disease course of myelofibrosis. This review highlights the role of B-cell lymphoma (BCL) protein BCL-extra large (BCL-XL) in disease pathogenesis and the
There is an urgent unmet medical need for treatments with a novel mechanism of action that can modify the underlying pathophysiology and affect the disease course of myelofibrosis. This review highlights the role of B-cell lymphoma (BCL) protein BCL-extra large (BCL-XL) in disease pathogenesis and the
Manouche
in
MPN Voice
10 months ago
A new kid on the block? Nemtabrutinib
Hi All, There is a new targeted drug in Clinical Trials that may offer a new treatment option for us CLLersāNemtabrutinib. For the entire article on this drug go to cancer.osu.edu and scroll down to āFirst in human trial of new drug raises hopes for patients with relapsed blood cancerā dated 11/06/
Hi All, There is a new targeted drug in Clinical Trials that may offer a new treatment option for us CLLersāNemtabrutinib. For the entire article on this drug go to cancer.osu.edu and scroll down to āFirst in human trial of new drug raises hopes for patients with relapsed blood cancerā dated 11/06/
Varney
in
CLL Support
8 months ago
Have I progressed to PV?
Hello everyone, I have had ET, Jak2+ for 5-1/2 years and my platelets have been rising the past 1-1/2 years above normal range. Recently, I had routine blood work ordered by my GP and the results showed an almost 200 thousand increase in platelets since May from 629 to 805. I messaged my MPN specialist
Hello everyone, I have had ET, Jak2+ for 5-1/2 years and my platelets have been rising the past 1-1/2 years above normal range. Recently, I had routine blood work ordered by my GP and the results showed an almost 200 thousand increase in platelets since May from 629 to 805. I messaged my MPN specialist
mbr8076
in
MPN Voice
10 months ago
Fresh article on Berberine's positive effect on CLL
"Anti-tumor effect of berberine on chronic
lymphocytic
leukemia
cells." Couldn't read the whole article without paying for it (should be a law), but the abstract discusses beneficial changes to CLL cells from taking the supplement berberine. Thought might be of some interest.
"Anti-tumor effect of berberine on chronic
lymphocytic
leukemia
cells." Couldn't read the whole article without paying for it (should be a law), but the abstract discusses beneficial changes to CLL cells from taking the supplement berberine. Thought might be of some interest.
Vlaminck
in
CLL Support
1 year ago
nutritional support/supplements for CLL
Hi we have just had recent diagnosis of CLL Any dietary or supplements tips? Have heard Green tea is helpful?
Hi we have just had recent diagnosis of CLL Any dietary or supplements tips? Have heard Green tea is helpful?
kingfishermountain
in
CLL Support
8 months ago
vaccines
hi everyone!! Iāve recently ( couple of weeks ago) been diagnosed with CLL waiting for bone marrow biopsy now as itās not understood why Iām so poorly so no treatment yet until those biopsy results incase thereās more going on. I wanted to ask if anyone else isnāt comfortable or even refuses vaccines
hi everyone!! Iāve recently ( couple of weeks ago) been diagnosed with CLL waiting for bone marrow biopsy now as itās not understood why Iām so poorly so no treatment yet until those biopsy results incase thereās more going on. I wanted to ask if anyone else isnāt comfortable or even refuses vaccines
Dragonfly766
in
CLL Support
8 months ago
Update re ASCT relapse
Due to my cll returning and having had several new lines of treatment my consultants both my Cll specialist and my transplant specialist have offered me Rchop chemotherapy as one of my few options. This treatment I believe is not used to treat cll but used to treat lymphomas. Apparently it has been
Due to my cll returning and having had several new lines of treatment my consultants both my Cll specialist and my transplant specialist have offered me Rchop chemotherapy as one of my few options. This treatment I believe is not used to treat cll but used to treat lymphomas. Apparently it has been
Kraskie1915
in
CLL Support
8 months ago
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