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Lymphocytic leukemia
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Zanubrutinib or O&V
The CLL specialist that we are seeing is giving my husband the choice between O&V and Zanubrutinib. We are trying to make the best decision, but struggling. They also said he can do one and switch to the other or vice a versa, but my husband works full-time and we’re a bit concerned about What seems
The CLL specialist that we are seeing is giving my husband the choice between O&V and Zanubrutinib. We are trying to make the best decision, but struggling. They also said he can do one and switch to the other or vice a versa, but my husband works full-time and we’re a bit concerned about What seems
Cb1391
in
CLL Support
7 months ago
jakafi and Pegasys combination for Myelofibrosis
Does anyone have both Jakafi and Pegasys? My Mpn has hinted that this might be a good combination. I think there have been trials but I can’t find them now!
Does anyone have both Jakafi and Pegasys? My Mpn has hinted that this might be a good combination. I think there have been trials but I can’t find them now!
Yanico
in
MPN Voice
10 months ago
Patient Power 2022 ASH Conference Report: Deep Dive into CLL Dec 14, 2022 Nicole Lamanna, MD
ASH Conference Coverage - 2022 ASH Conference Report: Deep Dive into CLL Dec 14, 2022 Nicole Lamanna, MD Associate Clinical Professor of Medicine https://www.patientpower.info/chronic-
lymphocytic
-
leukemia
/2022-ash-conference-report-deep-dive-into-cll Patient Power host Michele Nadeem-Baker is joined
ASH Conference Coverage - 2022 ASH Conference Report: Deep Dive into CLL Dec 14, 2022 Nicole Lamanna, MD Associate Clinical Professor of Medicine https://www.patientpower.info/chronic-
lymphocytic
-
leukemia
/2022-ash-conference-report-deep-dive-into-cll Patient Power host Michele Nadeem-Baker is joined
lankisterguy
Volunteer
in
CLL Support
1 year ago
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New era for myelofibrosis treatment with novel agents beyond JAK2 -inhibitor monotherapy
There is an urgent unmet medical need for treatments with a novel mechanism of action that can modify the underlying pathophysiology and affect the disease course of myelofibrosis. This review highlights the role of B-cell lymphoma (BCL) protein BCL-extra large (BCL-XL) in disease pathogenesis and the
There is an urgent unmet medical need for treatments with a novel mechanism of action that can modify the underlying pathophysiology and affect the disease course of myelofibrosis. This review highlights the role of B-cell lymphoma (BCL) protein BCL-extra large (BCL-XL) in disease pathogenesis and the
Manouche
in
MPN Voice
10 months ago
Have I progressed to PV?
Hello everyone, I have had ET, Jak2+ for 5-1/2 years and my platelets have been rising the past 1-1/2 years above normal range. Recently, I had routine blood work ordered by my GP and the results showed an almost 200 thousand increase in platelets since May from 629 to 805. I messaged my MPN specialist
Hello everyone, I have had ET, Jak2+ for 5-1/2 years and my platelets have been rising the past 1-1/2 years above normal range. Recently, I had routine blood work ordered by my GP and the results showed an almost 200 thousand increase in platelets since May from 629 to 805. I messaged my MPN specialist
mbr8076
in
MPN Voice
10 months ago
Supportive wife
Hi there! My husband was diagnosed with CLL in 2015. He had zero issues, I was just concerned about esophageal issues (burping) and requested a 50-year full physical so we could get a scope. Within two weeks my husband had diagnosis for esophageal cancer at GE junction (14% survival rate) and CLL.
Hi there! My husband was diagnosed with CLL in 2015. He had zero issues, I was just concerned about esophageal issues (burping) and requested a 50-year full physical so we could get a scope. Within two weeks my husband had diagnosis for esophageal cancer at GE junction (14% survival rate) and CLL.
Cb1391
in
CLL Support
7 months ago
A new kid on the block? Nemtabrutinib
Hi All, There is a new targeted drug in Clinical Trials that may offer a new treatment option for us CLLers—Nemtabrutinib. For the entire article on this drug go to cancer.osu.edu and scroll down to “First in human trial of new drug raises hopes for patients with relapsed blood cancer” dated 11/06/
Hi All, There is a new targeted drug in Clinical Trials that may offer a new treatment option for us CLLers—Nemtabrutinib. For the entire article on this drug go to cancer.osu.edu and scroll down to “First in human trial of new drug raises hopes for patients with relapsed blood cancer” dated 11/06/
Varney
in
CLL Support
7 months ago
nutritional support/supplements for CLL
Hi we have just had recent diagnosis of CLL Any dietary or supplements tips? Have heard Green tea is helpful?
Hi we have just had recent diagnosis of CLL Any dietary or supplements tips? Have heard Green tea is helpful?
kingfishermountain
in
CLL Support
8 months ago
vaccines
hi everyone!! I’ve recently ( couple of weeks ago) been diagnosed with CLL waiting for bone marrow biopsy now as it’s not understood why I’m so poorly so no treatment yet until those biopsy results incase there’s more going on. I wanted to ask if anyone else isn’t comfortable or even refuses vaccines
hi everyone!! I’ve recently ( couple of weeks ago) been diagnosed with CLL waiting for bone marrow biopsy now as it’s not understood why I’m so poorly so no treatment yet until those biopsy results incase there’s more going on. I wanted to ask if anyone else isn’t comfortable or even refuses vaccines
Dragonfly766
in
CLL Support
8 months ago
Losing my hero and warning on pluvicto for the weak
He is dying weeks post pluvicto which Drs signed off on knowing he had chronic
lymphocytic
leukemia
.
He is dying weeks post pluvicto which Drs signed off on knowing he had chronic
lymphocytic
leukemia
.
Daddyishealing
in
Advanced Prostate Cancer
1 year ago
Update re ASCT relapse
Due to my cll returning and having had several new lines of treatment my consultants both my Cll specialist and my transplant specialist have offered me Rchop chemotherapy as one of my few options. This treatment I believe is not used to treat cll but used to treat lymphomas. Apparently it has been
Due to my cll returning and having had several new lines of treatment my consultants both my Cll specialist and my transplant specialist have offered me Rchop chemotherapy as one of my few options. This treatment I believe is not used to treat cll but used to treat lymphomas. Apparently it has been
Kraskie1915
in
CLL Support
8 months ago
Promising research is currently underway to use humanized bispecific single-domain antibodies
These antibodies engage different sub-types of T-lymphocytes to treat chronic
lymphocytic
leukemia
/small
lymphocytic
leukemia
CLL/SLL.
These antibodies engage different sub-types of T-lymphocytes to treat chronic
lymphocytic
leukemia
/small
lymphocytic
leukemia
CLL/SLL.
spi3
in
CLL Support
2 years ago
B CELL lymphoma
Hello friends, Question- had a fish test done and the test revealed negative for B Cell lymphoma has anyone had this reading before and still have CLL? lol I’m totally confused.. nothing new there! I did call the Doc to see what he thinks haven’t heard anything yet. Thought I would ask to see if you
Hello friends, Question- had a fish test done and the test revealed negative for B Cell lymphoma has anyone had this reading before and still have CLL? lol I’m totally confused.. nothing new there! I did call the Doc to see what he thinks haven’t heard anything yet. Thought I would ask to see if you
Tchapman
in
CLL Support
8 months ago
Chronic lymphocytic leukemia treatment algorithm 2022
Chronic
lymphocytic
leukemia
treatment algorithm 2022. Blood Cancer J. 12, 161 (2022). https://doi.org/10.1038/s41408-022-00756-9 Note: not all of the therapies recommended in this algorithm are available to patients in all places.
Chronic
lymphocytic
leukemia
treatment algorithm 2022. Blood Cancer J. 12, 161 (2022). https://doi.org/10.1038/s41408-022-00756-9 Note: not all of the therapies recommended in this algorithm are available to patients in all places.
CLLerinOz
Administrator
in
CLL Support
2 years ago
FDA APPROVAL FOR ZANUBRUTINIB
Here is the article: https://www.dana-farber.org/newsroom/news-releases/2023/dana-farber-led-study-leads-to-fda-approval-for-next-generation-drug-in-relapsed-chronic-
lymphocytic
-
leukemia
/ Carl
Here is the article: https://www.dana-farber.org/newsroom/news-releases/2023/dana-farber-led-study-leads-to-fda-approval-for-next-generation-drug-in-relapsed-chronic-
lymphocytic
-
leukemia
/ Carl
wizzard166
in
CLL Support
1 year ago
Petechia
I have been treated with Ibrutinib for 16 months and have responded to treatment really well. My white blood count was 148.7 when I started treatment now I am 14.7. I have Petechia on arms and legs. My platelets are 278. Just wondering what could be causing this. This is my first time to post and
I have been treated with Ibrutinib for 16 months and have responded to treatment really well. My white blood count was 148.7 when I started treatment now I am 14.7. I have Petechia on arms and legs. My platelets are 278. Just wondering what could be causing this. This is my first time to post and
Glasstop
in
CLL Support
8 months ago
Agios and Alnylam sign agreement for siRNA candidate
« We are pleased to license this programme from Alnylam, the leading RNAi therapeutics company, with the goal of delivering a convenient, disease-modifying treatment option that addresses the underlying pathophysiology of PV and reduces or eliminates the need for phlebotomy. “We look forward to initiating
« We are pleased to license this programme from Alnylam, the leading RNAi therapeutics company, with the goal of delivering a convenient, disease-modifying treatment option that addresses the underlying pathophysiology of PV and reduces or eliminates the need for phlebotomy. “We look forward to initiating
Manouche
in
MPN Voice
11 months ago
CLL/SLL and ischemic bowel death
My brother had untreated SLL. He died March 2022, after a week of omicron Covid infection that seemed to pass mid January of that year. We have heard rumors that many with CLL/SLL die of blood clot/ischemia, but I have been unable to confirm. Are there data to confirm this? I myself have CLL, which
My brother had untreated SLL. He died March 2022, after a week of omicron Covid infection that seemed to pass mid January of that year. We have heard rumors that many with CLL/SLL die of blood clot/ischemia, but I have been unable to confirm. Are there data to confirm this? I myself have CLL, which
prichman
in
CLL Support
8 months ago
ASH 2022 | Key highlights in CLL: clinical trial updates combination therapies novel BTKis Lindsey Roeker and Matthew Davids • 10 Dec 2022
leukemia
(CLL) is constantly evolving, with novel Bruton’s tyrosine kinase (BTK) inhibitors transforming the field.
leukemia
(CLL) is constantly evolving, with novel Bruton’s tyrosine kinase (BTK) inhibitors transforming the field.
lankisterguy
Volunteer
in
CLL Support
1 year ago
tasquinimod in myelofibrosis (MF)
»The data showed that treatment with this drug results in normal blood counts, reduction of fibrosis in the bone marrow and normalization of spleen size in this mouse model. That suggests that tasquinimod can act as a disease modifying agent in MF » « The now planned study will investigate tasquinimod
»The data showed that treatment with this drug results in normal blood counts, reduction of fibrosis in the bone marrow and normalization of spleen size in this mouse model. That suggests that tasquinimod can act as a disease modifying agent in MF » « The now planned study will investigate tasquinimod
Manouche
in
MPN Voice
11 months ago
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