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Good news story
Hi, I’ve been meaning to post this update for weeks but have been too well and busy! A shortish resume: Diagnosed 2018, paroxysmal AF treated with Bisopralol and Flecainide. Very symptomatic and intolerant of drugs. Feelings of passing out during episodes resulted in PM being fitted 2019. Episodes
Hi, I’ve been meaning to post this update for weeks but have been too well and busy! A shortish resume: Diagnosed 2018, paroxysmal AF treated with Bisopralol and Flecainide. Very symptomatic and intolerant of drugs. Feelings of passing out during episodes resulted in PM being fitted 2019. Episodes
SingingT
in
Atrial Fibrillation Support
3 months ago
~AV Node ablation update~
To my dear travelling companions who have been down this path - just wanted to share my situation thus far and wonder if this resonates with your journey....... would love to know. Been struggling with extreme fatigue, sometimes dizziness, unsteady on feet, weak in legs, swollen lower legs/ankles.
To my dear travelling companions who have been down this path - just wanted to share my situation thus far and wonder if this resonates with your journey....... would love to know. Been struggling with extreme fatigue, sometimes dizziness, unsteady on feet, weak in legs, swollen lower legs/ankles.
Megams
in
Atrial Fibrillation Support
3 months ago
weight gain
Morning everyone, I was told by a nurse practitioner this week that the fact my T4 level is low since they changed my Thyroxine dose from 100mg to 75mg has nothing to do with my recent weight gain - her argument being that she doesn’t have a thyroid and she’s not overweight. My diet hasn’t changed
Morning everyone, I was told by a nurse practitioner this week that the fact my T4 level is low since they changed my Thyroxine dose from 100mg to 75mg has nothing to do with my recent weight gain - her argument being that she doesn’t have a thyroid and she’s not overweight. My diet hasn’t changed
Jojozo
in
Thyroid UK
8 months ago
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I have significant stage 4 endometriosis and adenomyosis for which I’ve had multiple surgeries including two excision and removal of left ovary and both tubes. Since my last excision I’ve been in pain every day which is now much worse as the disease returns within months of surgery even when excised
I have significant stage 4 endometriosis and adenomyosis for which I’ve had multiple surgeries including two excision and removal of left ovary and both tubes. Since my last excision I’ve been in pain every day which is now much worse as the disease returns within months of surgery even when excised
Lily1986
in
Endometriosis UK
8 months ago
~AV Node ablation - 3 days post op~
~I would be most grateful to learn if anyone who may have had an av node ablation has found breathing a bit more difficult post op? If so will this just be part and parcel of the AV node ablation? Whilst I feel I am slowly healing I note that my pacemaker was reprogrammed to DDIR (whatever that means
~I would be most grateful to learn if anyone who may have had an av node ablation has found breathing a bit more difficult post op? If so will this just be part and parcel of the AV node ablation? Whilst I feel I am slowly healing I note that my pacemaker was reprogrammed to DDIR (whatever that means
Megams
in
Atrial Fibrillation Support
4 months ago
~Just seeking some solace please~
~I posted 2 months ago re dual pacemaker implant. Grateful to say wound/s have finally healed despite being left with numbness where lump from hematoma developed during surgery. My a/fib load has significantly increased and continues infinitum. Betaloc been doubled as has Losarten - knocking me
~I posted 2 months ago re dual pacemaker implant. Grateful to say wound/s have finally healed despite being left with numbness where lump from hematoma developed during surgery. My a/fib load has significantly increased and continues infinitum. Betaloc been doubled as has Losarten - knocking me
Megams
in
Atrial Fibrillation Support
4 months ago
Am I going the wrong way? ⬇️
Morning lovely people, my GP lowered my Thyroxin to 75mg from 100mg a month ago in order to get my TSH levels up, which have barely moved in ten years and were at 0.01 for ages and ages. This happened after I was prescribed T3 by a specialist just over ten years ago who has now even struck off. I can
Morning lovely people, my GP lowered my Thyroxin to 75mg from 100mg a month ago in order to get my TSH levels up, which have barely moved in ten years and were at 0.01 for ages and ages. This happened after I was prescribed T3 by a specialist just over ten years ago who has now even struck off. I can
Jojozo
in
Thyroid UK
8 months ago
Progression
Hello ThriversI was diagnosed last year stage 4 de-nova at 49. Er,pr + her 2 negative, pik3ca mutation. I started on Tamoxifin, Riboclicib and Lextrozle with zoledex and deconsumb injections. I got more progression, I then went on my first clinical trial xeolda and had an oophorectomy so I could stop
Hello ThriversI was diagnosed last year stage 4 de-nova at 49. Er,pr + her 2 negative, pik3ca mutation. I started on Tamoxifin, Riboclicib and Lextrozle with zoledex and deconsumb injections. I got more progression, I then went on my first clinical trial xeolda and had an oophorectomy so I could stop
Cherry38
in
SHARE Metastatic Breast Cancer
8 months ago
Ovarian mass continued...
Hi all still in limbo. I got my results recently of MRI repeated in October last one was March. The mass has only increased marginally in size. I have repeated CEA and CA125 so should get those results tomorrow. Last time they said it was solid but this time they said it is not solid component. I don't
Hi all still in limbo. I got my results recently of MRI repeated in October last one was March. The mass has only increased marginally in size. I have repeated CEA and CA125 so should get those results tomorrow. Last time they said it was solid but this time they said it is not solid component. I don't
Ova104
in
My Ovacome
8 months ago
Afib and Atrial tachycardia ...
Hi all, Long story short, I've had arrhythmia for years, Afib and SVT. 4 ablations later, last year they fitted me with a dual chamber pacemaker and had an AV Node ablation. I still have an ILR fitted and from the uploads of a night from my monitor, they have found I'm having Atrial Tachycardia,
Hi all, Long story short, I've had arrhythmia for years, Afib and SVT. 4 ablations later, last year they fitted me with a dual chamber pacemaker and had an AV Node ablation. I still have an ILR fitted and from the uploads of a night from my monitor, they have found I'm having Atrial Tachycardia,
Hidden
in
Atrial Fibrillation Support
4 months ago
Post Second Ablation help pls
HiBeen a while since I posted. AF episodes continued so was placed on waiting list for 2nd Ablation procedure which I had yesterday. I have been told all went well but post op notes are unclear so wondering if anyone can help understand it. Notes say: LA was small but had low voltage in it. Inducing
HiBeen a while since I posted. AF episodes continued so was placed on waiting list for 2nd Ablation procedure which I had yesterday. I have been told all went well but post op notes are unclear so wondering if anyone can help understand it. Notes say: LA was small but had low voltage in it. Inducing
Marvel3000
in
Atrial Fibrillation Support
4 months ago
Recent blood work, raised eosinophil count!
I'm going for a nasal polyp removal operation next week (Private) and I needed a blood test and cardioelectrogram prior. There were some minor values 0.01 up or down on 2 or 3 values mostly inflammation indicators. However, Eosinophil count was 0.5 x10*3ul which was beyond range according to the pdf
I'm going for a nasal polyp removal operation next week (Private) and I needed a blood test and cardioelectrogram prior. There were some minor values 0.01 up or down on 2 or 3 values mostly inflammation indicators. However, Eosinophil count was 0.5 x10*3ul which was beyond range according to the pdf
Glen68
in
Asthma Community Forum
8 months ago
2 lead pacemaker to CRT PM
HiHad a 2 lead PM fitted 21 months ago following AV node ablation and since then I have developed heart failure and AF. Had three visits to heart failure clinic and been prescribed ramipril, bisoprolol and dapagliflozin. Cardiologist has stated a short term therapy of amiodarone may help get me back
HiHad a 2 lead PM fitted 21 months ago following AV node ablation and since then I have developed heart failure and AF. Had three visits to heart failure clinic and been prescribed ramipril, bisoprolol and dapagliflozin. Cardiologist has stated a short term therapy of amiodarone may help get me back
Nomis21
in
British Heart Foundation
4 months ago
Hormone Replacement for Surgical Menopause
Hi dear ladies, have any of you used HRT to cope with the horrors of surgical menopause resulting from OC treatment, if that diagnosis happened to you prior to natural menopause? I find that there’s no discussion or warning about the effects of surgical menopause prior to treatment and that no one seems
Hi dear ladies, have any of you used HRT to cope with the horrors of surgical menopause resulting from OC treatment, if that diagnosis happened to you prior to natural menopause? I find that there’s no discussion or warning about the effects of surgical menopause prior to treatment and that no one seems
Doggies221
in
My Ovacome
9 months ago
Update and Plan
Well, I feel pretty good about my EP appt. today. He was really succinct about a plan, goals, and end game. So he has proposed in ascending order, four medications to try. He is starting with the mildest and going to the strongest. He is recommending to start with Bisoprolol, then Verapamil, then Sotolol
Well, I feel pretty good about my EP appt. today. He was really succinct about a plan, goals, and end game. So he has proposed in ascending order, four medications to try. He is starting with the mildest and going to the strongest. He is recommending to start with Bisoprolol, then Verapamil, then Sotolol
MeganMN
in
AF Association
5 months ago
Pressure on mid back causing AF to come on.
I was diagnosed with af maybe 4 years ago. Because mefications made me unwell i was finally fitted with a pacemaker in prepation for AV node ablation. Once the pm was fitted i was able to forgo the node ablation. In the last few months ive been getting especially at night short breathed and coughing
I was diagnosed with af maybe 4 years ago. Because mefications made me unwell i was finally fitted with a pacemaker in prepation for AV node ablation. Once the pm was fitted i was able to forgo the node ablation. In the last few months ive been getting especially at night short breathed and coughing
Alphakiwi
in
AF Association
5 months ago
CRT-P
I am due to have a CRT-P implant and an AV node ablation. If others out there have had this I would like to know what is what like and did it improve their quality of life. It is so difficult to ask the professionals question, so left feeling very nervous about these procedures.. All the posts are
I am due to have a CRT-P implant and an AV node ablation. If others out there have had this I would like to know what is what like and did it improve their quality of life. It is so difficult to ask the professionals question, so left feeling very nervous about these procedures.. All the posts are
paintbook
in
British Heart Foundation
5 months ago
Advice please On thyroxine & HRT with abnormal very low oestrogen levels.
Feeling very exhausted of late, more than usual and very achy all over . I have fibromyalgia so symptoms all overlap so difficult to know what issue is causing these symptoms. Last thyroid results in June within range, no change in dose and still on 75mcg thyroxine. GP has since checked my Oestrogen
Feeling very exhausted of late, more than usual and very achy all over . I have fibromyalgia so symptoms all overlap so difficult to know what issue is causing these symptoms. Last thyroid results in June within range, no change in dose and still on 75mcg thyroxine. GP has since checked my Oestrogen
Maynan17
in
Thyroid UK
9 months ago
Prostrap & dry eye
Hello, I’m on month 5 of prostrap with tibolone whilst I await excision surgery for endometriosis. I’m experiencing the worst dry eye / blepharis. In having to cleanse my eyelids, hot flannel massage, eye rinse, and drops and then eyelid cream multiple times a day and it’s really getting me down.
Hello, I’m on month 5 of prostrap with tibolone whilst I await excision surgery for endometriosis. I’m experiencing the worst dry eye / blepharis. In having to cleanse my eyelids, hot flannel massage, eye rinse, and drops and then eyelid cream multiple times a day and it’s really getting me down.
CrochetCrayola
in
Endometriosis UK
9 months ago
Dual chamber pacemaker and HF
Hi, had a dual chamber pacemaker fitted back in July 2022 following AV node ablation.Now have HF, told by HF nurse possible cause may be due to the pacing of the R/H chambers causing strain to the L/H as it needs work harder Had symptoms of HF since being paced, HF just confirmed in the last week through
Hi, had a dual chamber pacemaker fitted back in July 2022 following AV node ablation.Now have HF, told by HF nurse possible cause may be due to the pacing of the R/H chambers causing strain to the L/H as it needs work harder Had symptoms of HF since being paced, HF just confirmed in the last week through
Nomis21
in
British Heart Foundation
6 months ago
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