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Hi. I had a lobectomy 18mths ago for NSCLC, followed by 3 mths chemo. Had persistent shoulder problems and now have been diagnosed with secondary tumour in my shoulder. 5 days radiation finished a week ago and I now have excruciating pain and stiffness in my arm, shoulder and neck. I am losing the use
Hi. I had a lobectomy 18mths ago for NSCLC, followed by 3 mths chemo. Had persistent shoulder problems and now have been diagnosed with secondary tumour in my shoulder. 5 days radiation finished a week ago and I now have excruciating pain and stiffness in my arm, shoulder and neck. I am losing the use
Uber
in
Lung Conditions Community Forum
7 years ago
Good News Using Iressa
My friend was diagnosed with stage IV lung cancer in December 2016 and started Iressa in January 2017. She was put on Iressa after biopsy showed a gene mutation. At the 60 day mark we went in for update scan which showed main tumor in lung decreased in size by almost half. We were taking 250mg once
My friend was diagnosed with stage IV lung cancer in December 2016 and started Iressa in January 2017. She was put on Iressa after biopsy showed a gene mutation. At the 60 day mark we went in for update scan which showed main tumor in lung decreased in size by almost half. We were taking 250mg once
Ldk1
in
Lung Cancer Support
7 years ago
Health insurance for holidays
Hi - I am Stage IV with ALK Mutation and taking crizotinib. But since starting I have had two tumours in brain, one operated on 9 weeks ago and gamma knife treatment planned tomorrow on the other and some of the core left from the op. Can anyone advise if you are able to get health insurance to go
Hi - I am Stage IV with ALK Mutation and taking crizotinib. But since starting I have had two tumours in brain, one operated on 9 weeks ago and gamma knife treatment planned tomorrow on the other and some of the core left from the op. Can anyone advise if you are able to get health insurance to go
AWibberley
in
The Roy Castle Lung Cancer Foundation
7 years ago
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Now I'm scared!
Well... finally met with a lung specialist. He advised me that I have chronic emphysema and may want to get on a lung transplant list. After a long walk it was determined my oxygen saturation levels dropped to 55. So he put me on oxygen level 3 mostly when active or moving about. I was so overwhelmed
Well... finally met with a lung specialist. He advised me that I have chronic emphysema and may want to get on a lung transplant list. After a long walk it was determined my oxygen saturation levels dropped to 55. So he put me on oxygen level 3 mostly when active or moving about. I was so overwhelmed
Cherrhea60
in
Lung Conditions Community Forum
7 years ago
Carcinoid and lung ?
Hi my mum was diagnosed with carcinoid Tumor which was removed and staged 4 She has had a gallium scan and pet scan which have shown hotspots on lung consultant says it will be mets from bowel or new primary ? She's being rescanned this week then back to consultant in fees weeks for reveiw anyone
Hi my mum was diagnosed with carcinoid Tumor which was removed and staged 4 She has had a gallium scan and pet scan which have shown hotspots on lung consultant says it will be mets from bowel or new primary ? She's being rescanned this week then back to consultant in fees weeks for reveiw anyone
Avanancy
in
The Roy Castle Lung Cancer Foundation
7 years ago
Lung Cancer Prevention: Trigger For Squamous Cell Carcinoma Found, And Scientists Hope To Turn It Off
The discovery was led by Clare Weeden from the University of Melbourne, and results are now published online in Public Library of Science: Biology. Weeden found the stem cells that repair our lungs when they become damaged due to environmental pollution and cigarette smoke, reported Pursuit, a publication
The discovery was led by Clare Weeden from the University of Melbourne, and results are now published online in Public Library of Science: Biology. Weeden found the stem cells that repair our lungs when they become damaged due to environmental pollution and cigarette smoke, reported Pursuit, a publication
Hidden
in
Lung Cancer Support
7 years ago
Stage IV lung cancer
Just had my 23 chemo treatment. Cancer has not spread bit tumor grew. Now on to cyberknief. I am afraid but staying strong. God is good. As always Jackie
Just had my 23 chemo treatment. Cancer has not spread bit tumor grew. Now on to cyberknief. I am afraid but staying strong. God is good. As always Jackie
Jackiefilebacin
in
Lung Cancer Support
7 years ago
Feeling Scared husband been diagnose with Small Cell Lung Cancer Stage 3.
After all the waiting games my husband is now been diagnos with stage 3 Small Cell Lung Cancer. Next week hes going to have his Chemo and Radio for almost 12 weeks. Hoping he will cope with all this treatment... He's trying to be positive at the same time his scared. I'm scared too knowing I'm the
After all the waiting games my husband is now been diagnos with stage 3 Small Cell Lung Cancer. Next week hes going to have his Chemo and Radio for almost 12 weeks. Hoping he will cope with all this treatment... He's trying to be positive at the same time his scared. I'm scared too knowing I'm the
salakot
in
The Roy Castle Lung Cancer Foundation
7 years ago
Sharing Our Personal News About Lung Cancer
If you are a lung cancer patient or survivor who is getting periodic scans, you are guaranteed to have news from time to time. How do you share the news? Who do you share it with? What about bad news versus good news - does that affect how you share your scan results and other news? As a person who
If you are a lung cancer patient or survivor who is getting periodic scans, you are guaranteed to have news from time to time. How do you share the news? Who do you share it with? What about bad news versus good news - does that affect how you share your scan results and other news? As a person who
scifiknitter
Blogger
in
Lung Cancer Support
7 years ago
oxygen advice
I'm new my names David I have IPF need double lung transplant.
I'm new my names David I have IPF need double lung transplant.
beattied
in
Lung Conditions Community Forum
7 years ago
Ask Us Anything | Talk with Dr. Howard Jack West and Janet Freeman-Daily about precision medicine on May 4
We are excited to be hosting the 2nd official Free to Breathe Ask Us Anything on HealthUnlocked. On May 4, Dr. Howard Jack West, Medical Director of the Thoracic Oncology Program at the Swedish Cancer Institute, and Janet Freeman-Daily, lung cancer patient (currently NED) and co-moderator of the Lung
We are excited to be hosting the 2nd official Free to Breathe Ask Us Anything on HealthUnlocked. On May 4, Dr. Howard Jack West, Medical Director of the Thoracic Oncology Program at the Swedish Cancer Institute, and Janet Freeman-Daily, lung cancer patient (currently NED) and co-moderator of the Lung
FtB_Travis
in
Lung Cancer Support
7 years ago
Surgery
Hi everyone, its been a while since i posted anything on here so i hope everyone is getting on ok and feeling well. Following a visit with my Consultant respiratory physician today for my recent scan and xray results, and because of the severity of my condition it is likely that my only option is a double
Hi everyone, its been a while since i posted anything on here so i hope everyone is getting on ok and feeling well. Following a visit with my Consultant respiratory physician today for my recent scan and xray results, and because of the severity of my condition it is likely that my only option is a double
josepboyes123
in
Lung Conditions Community Forum
7 years ago
support
This community is such an amazing one! When my mom was diagnosed back in 2013, I was so shocked at how little awareness was out there, how few support groups, etc... Lung cancer was all new to me & I didn't have many people to turn to for support. Many didn't know what to say or hadn't experienced
This community is such an amazing one! When my mom was diagnosed back in 2013, I was so shocked at how little awareness was out there, how few support groups, etc... Lung cancer was all new to me & I didn't have many people to turn to for support. Many didn't know what to say or hadn't experienced
DeeDeeLips
in
Lung Cancer Support
7 years ago
Hello
I am glad that I found this site, I followed a link and it brought me to you. I am 77 years old and I have multiple health problems. I have recently come out of hospital after an eleven day stay with pneumonia. Amongst other health problems I have a very rare inherited blood disorder called porphyria
I am glad that I found this site, I followed a link and it brought me to you. I am 77 years old and I have multiple health problems. I have recently come out of hospital after an eleven day stay with pneumonia. Amongst other health problems I have a very rare inherited blood disorder called porphyria
MaryLip
in
Lung Conditions Community Forum
7 years ago
Need a breath of fresh air...
My name is Victoria, 49 yrs old from Long Island, NY. I am in the end stage of COPD/Emphysema and looking to apply for a lung transplant. I have 2 sweet daughters, who are my soul. Jessica (Jecca, 25) and (Haille, 10) My Pulmonary doctor has informed me that my breathing function is at 17% from 80%.
My name is Victoria, 49 yrs old from Long Island, NY. I am in the end stage of COPD/Emphysema and looking to apply for a lung transplant. I have 2 sweet daughters, who are my soul. Jessica (Jecca, 25) and (Haille, 10) My Pulmonary doctor has informed me that my breathing function is at 17% from 80%.
JeccaHaisMom
in
Lung Conditions Community Forum
7 years ago
The Miracle
I need to share my story. It not only goes to praise the advancements in cancer research, but to praise the Miracle of Prayer and Positive Thinking. Yes. I was not going to die, even though the odds were not in my favor. I was diagnosed with Stage 4, inoperable Lung Cancer in both lungs, and sentenced
I need to share my story. It not only goes to praise the advancements in cancer research, but to praise the Miracle of Prayer and Positive Thinking. Yes. I was not going to die, even though the odds were not in my favor. I was diagnosed with Stage 4, inoperable Lung Cancer in both lungs, and sentenced
MaggieRose13
in
Lung Cancer Support
7 years ago
My Mam diagnosed with lung cancer with COPD
Im writing on here as feel a bit hopeless currently im crying my eyes out without my mam knowing. Im so worried about her recent diagnosis as my mam has COPD. She goes to the gym 3 x times weekly , she is very fit and is a x smoker of 30yrs. This has been going on since Jan when she had a xray which
Im writing on here as feel a bit hopeless currently im crying my eyes out without my mam knowing. Im so worried about her recent diagnosis as my mam has COPD. She goes to the gym 3 x times weekly , she is very fit and is a x smoker of 30yrs. This has been going on since Jan when she had a xray which
Hope1972
in
The Roy Castle Lung Cancer Foundation
7 years ago
Lung transplant
Hi everyone, My chest specialist recently told me that the next best course of treatment for me would be a lung transplant. Although it has so many positives the sheer size of that kind of operation is a huge negative in my head. Has anyone else had to go through this decision? Regards Joseph
Hi everyone, My chest specialist recently told me that the next best course of treatment for me would be a lung transplant. Although it has so many positives the sheer size of that kind of operation is a huge negative in my head. Has anyone else had to go through this decision? Regards Joseph
Joseph260268
in
Lung Conditions Community Forum
7 years ago
Essiac Tea and Tarceva
Does anyone use this tea and are on Tarceva? I hear its good for liver detox but I know Tarceva is a toxin that I need to keep my cancer at bay. I want to keep my body as healthy as possible but unsure about this tea. Any suggestions?
Does anyone use this tea and are on Tarceva? I hear its good for liver detox but I know Tarceva is a toxin that I need to keep my cancer at bay. I want to keep my body as healthy as possible but unsure about this tea. Any suggestions?
cammfam4
in
Lung Cancer Support
7 years ago
Small cell cancer with complications
I wish I knew what is wrong with me besides having small cell cancer. I developed a Neuro problem whereby my nerves are taking over my whole body and causing such terrible pain and unhappiness. I've had my lung surgery, my Chemo didn't go well and now I'm waiting to be seen at the City of Hope. I hope
I wish I knew what is wrong with me besides having small cell cancer. I developed a Neuro problem whereby my nerves are taking over my whole body and causing such terrible pain and unhappiness. I've had my lung surgery, my Chemo didn't go well and now I'm waiting to be seen at the City of Hope. I hope
Hidden
in
Lung Cancer Support
7 years ago
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