Surgery: Hi everyone, its been a while... - Lung Conditions C...

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Surgery

josepboyes123 profile image
16 Replies

Hi everyone, its been a while since i posted anything on here so i hope everyone is getting on ok and feeling well. Following a visit with my Consultant respiratory physician today for my recent scan and xray results, and because of the severity of my condition it is likely that my only option is a double lung transplant, apart from being terrified of the idea i have done my research and am aware of the risks and implications and have come to terms with it, i would like to ask any members in your own words if you or know someone who has had this operation and how was the experience.

Thank you.

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josepboyes123
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16 Replies
Pam1952 profile image
Pam1952

Hi. I don't have any experience of this but hope that you get some good responses. May I wish you all the best with coming to your decision. Take care. Pam XXX

josepboyes123 profile image
josepboyes123 in reply toPam1952

Thank you.

sassy59 profile image
sassy59

No experience at all but just want to wish you well. Take care xxxxx

josepboyes123 profile image
josepboyes123 in reply tosassy59

Thank you.

healthunlocked.com/search/l...

josepboyes123 profile image
josepboyes123 in reply to

Thank you, i was up most of the night reading the posts from that link and found it very helpful :)

in reply tojosepboyes123

:)

aberdeenman profile image
aberdeenman

hi im same been told I will eventually need double lung transplant, I don't have a clue what I will do. I will decide when my consultant decides its time for him to refer me to transplant centre. its a tough decision to make.

josepboyes123 profile image
josepboyes123 in reply toaberdeenman

Thank you.

Badbessie profile image
Badbessie

Hi not came across anyone on this site. But I am a newbie. However on the copduk Facebook site there are are a few people awaiting the call for transplant and a few who have been transplanted. They do not post that often. There are a number of people who like you are approaching a decision on transplant and you may find posts on this site useful.

josepboyes123 profile image
josepboyes123 in reply toBadbessie

Thank you.

Toci profile image
Toci

There are quite a few here awaiting a lung transplant and a couple who have had it done. Try the search box to read what others have said.

josepboyes123 profile image
josepboyes123 in reply toToci

Thank you.

mrsmummy profile image
mrsmummy

Try here:

healthunlocked.com/blf/post...

josepboyes123 profile image
josepboyes123 in reply tomrsmummy

Thank you, i tried that link but it no longer exists

mrsmummy profile image
mrsmummy in reply tojosepboyes123

It does, I just tried it again. There are other posts about lung transplants here.

healthunlocked.com/search/l...

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