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LUNG TRANSPLANTATION SURVIVAL RATE
Mornin' everyone...thought my reply to a member on another site may be of some use to anyone waiting for a transplant.....G'day Mxxxxxxx..sensible reply to Pxxxx'S post...intrigued about your comments re...the survival rate after 1 year. My wife had a bilateral Tx in July last year, aged 65. We reside
Mornin' everyone...thought my reply to a member on another site may be of some use to anyone waiting for a transplant.....G'day Mxxxxxxx..sensible reply to Pxxxx'S post...intrigued about your comments re...the survival rate after 1 year. My wife had a bilateral Tx in July last year, aged 65. We reside
Hidden
in
Lung Conditions Community Forum
7 years ago
Stereotactic radiotherapy
Hi ,Since my recent dramas ,Stereotactic radiotherapy is heading my way high dose one hit .Obviously this is not brilliant so early after curative intent initial surgery and adjuvant chemo in In 2015 but some relief that I was treated promptly by my NHS in Plymouth and the ball is rolling .I am told
Hi ,Since my recent dramas ,Stereotactic radiotherapy is heading my way high dose one hit .Obviously this is not brilliant so early after curative intent initial surgery and adjuvant chemo in In 2015 but some relief that I was treated promptly by my NHS in Plymouth and the ball is rolling .I am told
Hidden
in
The Roy Castle Lung Cancer Foundation
7 years ago
A new drug for ALK-positive lung cancer approved today
The FDA has approved a new drug for patients with ALK-positive lung cancer. The drug is called brigatinib (brand name: Alunbrig) and is approved for treatment of patients whose tumor has the ALK mutation. Brigatinib is to be used after another drug targeting ALK stops working. The FDA press release
The FDA has approved a new drug for patients with ALK-positive lung cancer. The drug is called brigatinib (brand name: Alunbrig) and is approved for treatment of patients whose tumor has the ALK mutation. Brigatinib is to be used after another drug targeting ALK stops working. The FDA press release
MFH_Advocate
in
Lung Cancer Support
7 years ago
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Share your story about "scanxiety"
If you have been living with lung cancer, you most likely have faced “scanxiety.” To say that waiting to have a scan done and then waiting for the results is “stressful” feels like a huge understatement. A scan result can mean that your cancer is smaller or has disappeared. Or a scan can mean that
If you have been living with lung cancer, you most likely have faced “scanxiety.” To say that waiting to have a scan done and then waiting for the results is “stressful” feels like a huge understatement. A scan result can mean that your cancer is smaller or has disappeared. Or a scan can mean that
FtB_Travis
in
Lung Cancer Support
7 years ago
What are your thoughts?
In Feb 2016 I was diagnosed with stage 3b nsclc with right lower and middle lobectomy, chemo and radiation. I saw my oncologist in December with no evidence of disease. I am scheduled to see her in June. For the last couple of months I have had onset of low back pain with no injury. Two days ago
In Feb 2016 I was diagnosed with stage 3b nsclc with right lower and middle lobectomy, chemo and radiation. I saw my oncologist in December with no evidence of disease. I am scheduled to see her in June. For the last couple of months I have had onset of low back pain with no injury. Two days ago
SAdams
in
Lung Cancer Support
7 years ago
MORE Updated DNA REPORTS
What can a lay person like myself interpret FROM jigsaw that is my DNA. There for I'am ... Doing my research i have found WHEN DNA error occurs you body try's to fix one error but that one fix leads to more. But how and why CONNECTED as eluded me. Take one of my inherited conditions or DNA mutations
What can a lay person like myself interpret FROM jigsaw that is my DNA. There for I'am ... Doing my research i have found WHEN DNA error occurs you body try's to fix one error but that one fix leads to more. But how and why CONNECTED as eluded me. Take one of my inherited conditions or DNA mutations
Hidden
in
Lung Conditions Community Forum
7 years ago
And so it goes
Hi all, I started my clinical trial today and I found out I am the first patient to start this trial nation wide and the only patient in tennessee. When it's in full swing there will be just over a hundred participants . I have to admit letting them do radiation to my brain was the most uncomfortable
Hi all, I started my clinical trial today and I found out I am the first patient to start this trial nation wide and the only patient in tennessee. When it's in full swing there will be just over a hundred participants . I have to admit letting them do radiation to my brain was the most uncomfortable
RwHayes
Community Superhero
in
Lung Cancer Support
7 years ago
I'm new to this group
I was diagnosed with stage 4 NSCLC with EGFR mutation, September 2016, and started a clinical trial in October.
I was diagnosed with stage 4 NSCLC with EGFR mutation, September 2016, and started a clinical trial in October.
JSnarey
in
Lung Cancer Support
7 years ago
Possible return of endometriosis
Hi. I have just joined so this is all new to me. I was diagnosed with endometriosis in 2003 and had two surgeries between then and 2005. I was told the endometriosis couldn't be cured. However, up until now with the use of a Mirena coil and more recently an implant I have had no bleeding or sign of a
Hi. I have just joined so this is all new to me. I was diagnosed with endometriosis in 2003 and had two surgeries between then and 2005. I was told the endometriosis couldn't be cured. However, up until now with the use of a Mirena coil and more recently an implant I have had no bleeding or sign of a
Greyhound1974
in
Endometriosis UK
7 years ago
Small cell lung cancer patients with lupus and possible while brain radiotherapy
Hi all My mum was diagnosed with small cell lung cancer and just finished her 4 cycles of chemo. Today we had a consultation to speak about radiotherapy but as she may have lupus ( tests keep coming back as positive and negative ) the consultant said that because small cell lung cancer usually spreads
Hi all My mum was diagnosed with small cell lung cancer and just finished her 4 cycles of chemo. Today we had a consultation to speak about radiotherapy but as she may have lupus ( tests keep coming back as positive and negative ) the consultant said that because small cell lung cancer usually spreads
Kellymw
in
Lung Conditions Community Forum
7 years ago
Small cell lung cancer and possible preventative whole brain radiotherapy for someone who has lupus
Hi all My mum was diagnosed with small cell lung cancer and just finished her 4 cycles of chemo. Today we had a consultation to speak about radiotherapy but as she may have lupus ( tests keep coming back as positive and negative ) the consultant said that because small cell lung cancer usually spreads
Hi all My mum was diagnosed with small cell lung cancer and just finished her 4 cycles of chemo. Today we had a consultation to speak about radiotherapy but as she may have lupus ( tests keep coming back as positive and negative ) the consultant said that because small cell lung cancer usually spreads
Kellymw
in
The Roy Castle Lung Cancer Foundation
7 years ago
T4 n2 squarmus
Hi there I'm new to this feed but hoping someone can give me more Info. Mum had her pet scan tues but was diagnosed with lung cancer about 6 wks ago it seems like such a waiting game does anyone know if we should get to see consultant this wk? And what kind of questions should I/we ask them?
Hi there I'm new to this feed but hoping someone can give me more Info. Mum had her pet scan tues but was diagnosed with lung cancer about 6 wks ago it seems like such a waiting game does anyone know if we should get to see consultant this wk? And what kind of questions should I/we ask them?
Chel09
in
The Roy Castle Lung Cancer Foundation
7 years ago
Stage IV lung cancer CEA Marker
Husband had lung cancer in 2014, half lung removed. No chemo or radiation. Cancer came back Stage IV mestasis. He went through 26 radiation treatments, two different types of chemo, and is now on Obdiva since Dec. My question is, his CEA markers are steadily going up, is this normal? Any info would greatly
Husband had lung cancer in 2014, half lung removed. No chemo or radiation. Cancer came back Stage IV mestasis. He went through 26 radiation treatments, two different types of chemo, and is now on Obdiva since Dec. My question is, his CEA markers are steadily going up, is this normal? Any info would greatly
Chrmob608
in
Lung Cancer Support
7 years ago
COPD V STAGE, ALPHA-1ANTITYPSN,CGD
Hi my name is Connie Im 45-year-old with Aplha-1 Antitypsn zz Genetic disorder and Chronic Granumotous Disease (CGD) with several other health issues that seem to be connected with two major diseases. Im in my last stage of COPD V. I use oxygen 24/7 My O2 levels are 96-98 with oxygen yet I struggle to
Hi my name is Connie Im 45-year-old with Aplha-1 Antitypsn zz Genetic disorder and Chronic Granumotous Disease (CGD) with several other health issues that seem to be connected with two major diseases. Im in my last stage of COPD V. I use oxygen 24/7 My O2 levels are 96-98 with oxygen yet I struggle to
Cywebber
in
Lung Conditions Community Forum
7 years ago
Introducing myself
I was diagnosed with advanced non-small cell lung cancer (NSCLC) in May 2011. After two chemotherapy regimes and two radiation protocols, my cancer became metastatic. I used information obtained in online forums to get my tumor tissue tested for newer molecular markers and find a precision medicine
I was diagnosed with advanced non-small cell lung cancer (NSCLC) in May 2011. After two chemotherapy regimes and two radiation protocols, my cancer became metastatic. I used information obtained in online forums to get my tumor tissue tested for newer molecular markers and find a precision medicine
JFreemanDaily
Special Guest
in
Lung Cancer Support
7 years ago
Steroid infusion treatment
Hello everyone I am diagnosed with pulmonary fibrosis, so am about to begin 3 days of steriod infusions treatment to help stabilise the deterioration of my lungs.lncase this procedure doesn't stabilise the scarring in my lungs, then the next step would be a lung transplant. Wishing to hear from
Hello everyone I am diagnosed with pulmonary fibrosis, so am about to begin 3 days of steriod infusions treatment to help stabilise the deterioration of my lungs.lncase this procedure doesn't stabilise the scarring in my lungs, then the next step would be a lung transplant. Wishing to hear from
Godgrace
in
Lung Conditions Community Forum
7 years ago
Finding a Balance - 7 Ideas for Not Being All Lung Cancer All the Time
Does it seem like every conversation you have ends up being about your lung cancer? Is it the first thing you think about in the morning, the last thing you think about at night? Are your social media feeds one cancer related item after another? Do you wish sometimes that you could just live, and not
Does it seem like every conversation you have ends up being about your lung cancer? Is it the first thing you think about in the morning, the last thing you think about at night? Are your social media feeds one cancer related item after another? Do you wish sometimes that you could just live, and not
scifiknitter
Blogger
in
Lung Cancer Support
7 years ago
My husband and his thyroid problem
A brief history in case it is useful: ocular melanoma in 1989, spread to his
lung
in 2007 with partial
lobectomy
. Cancer now in his heart, pancreas, psoas muscle, lymph glands, eye and lungs.
A brief history in case it is useful: ocular melanoma in 1989, spread to his
lung
in 2007 with partial
lobectomy
. Cancer now in his heart, pancreas, psoas muscle, lymph glands, eye and lungs.
Nee22
in
Thyroid UK
7 years ago
hope courage strength
hello everyone, I hope this finds everyone ok! I have just joined, and feel this a place of safety! I was diagnosed with stage 4 nsclc adenocarcinoma in October 2014. One met to occipital lobe. Anyways to cut a long story short, I remain clear following gamma knife radio surgery, lobectomy and chemotherapy
hello everyone, I hope this finds everyone ok! I have just joined, and feel this a place of safety! I was diagnosed with stage 4 nsclc adenocarcinoma in October 2014. One met to occipital lobe. Anyways to cut a long story short, I remain clear following gamma knife radio surgery, lobectomy and chemotherapy
Sarah-Helen
in
The Roy Castle Lung Cancer Foundation
7 years ago
No detectable Cancer as of April 3 2016.
Hello All, Diagnosed in November 11 2016 with SCLC Stage 4 Extensive Left Lung, lymph nodes, three sections of my liver 3,5,8 and spot on T-7 in my spine. After four rounds of Chemo and a bag and 1/2 of an immunotherapy drug I have been declared no evidence of detectable disease. I have a Brain MRI on
Hello All, Diagnosed in November 11 2016 with SCLC Stage 4 Extensive Left Lung, lymph nodes, three sections of my liver 3,5,8 and spot on T-7 in my spine. After four rounds of Chemo and a bag and 1/2 of an immunotherapy drug I have been declared no evidence of detectable disease. I have a Brain MRI on
Kym105
in
Lung Cancer Support
7 years ago
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