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My PBC is getting worse. ascites causing me SOB, confusion, falls. skin is so itchy despite phototherapy. My symptoms are of late stages.
Can anyone help to elevate some symptoms. It's so effecting my life.
Can anyone help to elevate some symptoms. It's so effecting my life.
Oakleypup
in
British Liver Trust
3 months ago
Uncertainty of living with Cirrhosis
Hi Everyone. I'm so sorry to bother you all again, but I've had a very down day. I just thought I'd post a reply I sent to one of the lovely members of this group, with the hope that maybe someone could share with me and the rest of this lovely group how they cope with this condition. I wrote to him
Hi Everyone. I'm so sorry to bother you all again, but I've had a very down day. I just thought I'd post a reply I sent to one of the lovely members of this group, with the hope that maybe someone could share with me and the rest of this lovely group how they cope with this condition. I wrote to him
puddy68
in
British Liver Trust
3 months ago
AST to ALT ratio has become greater than 1 after decades of elevated levels
My ALT and AST have been elevated for decades. For second time in a row now, my AST has becomevhigher than ALT ; they are currently in 60ish range. A very nice article i read on the DiRitiis ratio from around 2013 says my new current ratio of 1.1 suggests fibrosis and ir bad prognosis to cirrhosis
My ALT and AST have been elevated for decades. For second time in a row now, my AST has becomevhigher than ALT ; they are currently in 60ish range. A very nice article i read on the DiRitiis ratio from around 2013 says my new current ratio of 1.1 suggests fibrosis and ir bad prognosis to cirrhosis
SkinNBones
in
British Liver Trust
3 months ago
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Cirrhosis and very scared - please help!
Hi. I'm so glad I stumbled on this site and I'm hoping that someone could be kind enough to reach out to me? I'm so very, very scared, and it's all my own fault. I have suffered from an anxiety disorder for 15 - 20 years and used wine to cope....and lots of it. I was diagnosed with compensated cirrhosis
Hi. I'm so glad I stumbled on this site and I'm hoping that someone could be kind enough to reach out to me? I'm so very, very scared, and it's all my own fault. I have suffered from an anxiety disorder for 15 - 20 years and used wine to cope....and lots of it. I was diagnosed with compensated cirrhosis
puddy68
in
Liver4Life
3 months ago
New fatty liver diagnosis
Hi All, today I had a fibro scan which revealed that my liver has no scarring with a score of 3.9kpa which was good news, however, the cap score was 307 which was worrying. I gave up alcohol 6 months ago following an attack of acute pancreatitis and being hospitalised for 4 days, this event was enough
Hi All, today I had a fibro scan which revealed that my liver has no scarring with a score of 3.9kpa which was good news, however, the cap score was 307 which was worrying. I gave up alcohol 6 months ago following an attack of acute pancreatitis and being hospitalised for 4 days, this event was enough
WalterFred
in
British Liver Trust
3 months ago
Short fuse temper and mood swings
Sorry to ask for help but some days I am at my wits end caring for my hubby, he has been home about 3 weeks after 10 weeks in hospital and this week we went to Kidney specialist they are of the opinion he may not need simultaneous kidney as well as Liver transplant after biopsy they are erring on the
Sorry to ask for help but some days I am at my wits end caring for my hubby, he has been home about 3 weeks after 10 weeks in hospital and this week we went to Kidney specialist they are of the opinion he may not need simultaneous kidney as well as Liver transplant after biopsy they are erring on the
MilliganHorse
in
British Liver Trust
3 months ago
Decompensated cirrhosis of the liver
My husband was recently diagnosed with decompensated cirrhosis of the liver in April of 2024 after 2 weeks in the hospital. He was discharged with some medications. Since then he was readmitted in May for a week, and in June for a week. He has ascites and everything else that comes with the disease
My husband was recently diagnosed with decompensated cirrhosis of the liver in April of 2024 after 2 weeks in the hospital. He was discharged with some medications. Since then he was readmitted in May for a week, and in June for a week. He has ascites and everything else that comes with the disease
Rxgurl
in
Living with Fatty Liver and NASH
3 months ago
Really good news
I just wanted to share my story in case it helps others. In December last year I had an ultrasound scan and the results were probable cirrhosis, portal vein hypertension and varices. There were also "suspicious lesions". Fast Forward to a biopsy I had last month (following over six months of abstinence
I just wanted to share my story in case it helps others. In December last year I had an ultrasound scan and the results were probable cirrhosis, portal vein hypertension and varices. There were also "suspicious lesions". Fast Forward to a biopsy I had last month (following over six months of abstinence
Ruthless247
in
British Liver Trust
3 months ago
Palpatations
I attended emergency dept on sunday with palpitations i had all night . But while i was there they stopped . Lots of blood tests but 1 raised a bit ? Heart failure . Ecg showed ectopic beats. Doctor reassured me x said wouldnt change medication bisoprolol 5 mgms twice aday x edoxaban once aday .
I attended emergency dept on sunday with palpitations i had all night . But while i was there they stopped . Lots of blood tests but 1 raised a bit ? Heart failure . Ecg showed ectopic beats. Doctor reassured me x said wouldnt change medication bisoprolol 5 mgms twice aday x edoxaban once aday .
Sawny15
in
AF Association
9 months ago
TACE procedure
Hello all, an update my husband has cirrhosis NAL and 2 tumours were found. He had the above procedure a few weeks ago and good news yesterday the procedure has been successful, no cancer lighting up. Now it’s regular CT/MRI. To all of you awaiting this procedure I truly hope you have this outcome
Hello all, an update my husband has cirrhosis NAL and 2 tumours were found. He had the above procedure a few weeks ago and good news yesterday the procedure has been successful, no cancer lighting up. Now it’s regular CT/MRI. To all of you awaiting this procedure I truly hope you have this outcome
Campervan29
in
British Liver Trust
3 months ago
update
Because I have varices he wants and endoscope done ASAP so that booked next week in case I need banding as he said if I have a bleed that can bring me back done to
liver
failure
again. I’m dreading that cause I really gag and it’s booked for Friday 13th a little superticious I admit.
Because I have varices he wants and endoscope done ASAP so that booked next week in case I need banding as he said if I have a bleed that can bring me back done to
liver
failure
again. I’m dreading that cause I really gag and it’s booked for Friday 13th a little superticious I admit.
Harriet-sarah
in
British Liver Trust
1 year ago
Finding my way
I am still new to Kidney issues and looking for some guidance. Post liver transplant in Sept 2022, i had CMV virus, but over the last year my kidney function is declining. I think it was about 22% this time last year, but is now 19%- and probably continuing to fall. I am being monitored, my next
I am still new to Kidney issues and looking for some guidance. Post liver transplant in Sept 2022, i had CMV virus, but over the last year my kidney function is declining. I think it was about 22% this time last year, but is now 19%- and probably continuing to fall. I am being monitored, my next
taar
in
Kidney Transplant
3 months ago
Enlarged liver and spleen
I'm so sorry to bother everyone again, it's just that I have [yet another] question. My liver and spleen are enlarged as a result of my cirrhosis - by not drinking, exercising and eating cleanly, is there any chance of the liver and spleen shrinking back to close to the size they should be? Thank you
I'm so sorry to bother everyone again, it's just that I have [yet another] question. My liver and spleen are enlarged as a result of my cirrhosis - by not drinking, exercising and eating cleanly, is there any chance of the liver and spleen shrinking back to close to the size they should be? Thank you
puddy68
in
British Liver Trust
3 months ago
Varices
Hi Everyone. I cannot thank all of you enough for being such a supportive forum. Sometimes I need to read your positive posts to get through the day. I am going in next Friday for a gastroscopy. My specialist said it was urgent, and is already assuming that I will need banding. I just wanted to ask is
Hi Everyone. I cannot thank all of you enough for being such a supportive forum. Sometimes I need to read your positive posts to get through the day. I am going in next Friday for a gastroscopy. My specialist said it was urgent, and is already assuming that I will need banding. I just wanted to ask is
puddy68
in
British Liver Trust
3 months ago
Driving
I do hope that I’ll be able to help others on this forum, even just with a few encouraging words. As a new member I do feel it’s welcoming and supportive. I was diagnosed with Ascites in Feb this year. The doctor sent me home with lactose (just explaining was for constipation) and an appointment was
I do hope that I’ll be able to help others on this forum, even just with a few encouraging words. As a new member I do feel it’s welcoming and supportive. I was diagnosed with Ascites in Feb this year. The doctor sent me home with lactose (just explaining was for constipation) and an appointment was
SirRobert
in
British Liver Trust
3 months ago
GGT Marker
When i was first diagnosed with PBC, my GGT was very elevated, at 570 U/L . Would this go back to normal with URSO? They did not test for it last time, but next bloods it is Marked to be tested
When i was first diagnosed with PBC, my GGT was very elevated, at 570 U/L . Would this go back to normal with URSO? They did not test for it last time, but next bloods it is Marked to be tested
Gaspereaux
in
British Liver Trust
3 months ago
Exercise
I was diagnosed with decompensated liver cirrhosis a few months ago. I came out of hospital about a month ago, from Ascites, jaundice and pneumonia. I am extremely upset by this and very scared. I have completely stopped drinking since my time in hospital. I could barely walk after leaving hospital
I was diagnosed with decompensated liver cirrhosis a few months ago. I came out of hospital about a month ago, from Ascites, jaundice and pneumonia. I am extremely upset by this and very scared. I have completely stopped drinking since my time in hospital. I could barely walk after leaving hospital
SirRobert
in
British Liver Trust
3 months ago
Hepatologist called my liver 'recompensated'
I've not had any alcohol in three and half years, since I suffered a
liver
failure
, yellow skin, fainting, loss of energy, the whole thing. Great care and modern meds brought me back.
I've not had any alcohol in three and half years, since I suffered a
liver
failure
, yellow skin, fainting, loss of energy, the whole thing. Great care and modern meds brought me back.
Camdenite
in
British Liver Trust
1 year ago
Why I stopped metoprolol
Quick summary: I’ve had one ablation, for A-fib, August 2022. All was well A-flutter began in August 2023. I’ve had five cardioversions since then, lasting from three weeks to three days. I am now in A-flutter awaiting an ablation on February 6. Success rate statistically is around 95%. Fingers crossed
Quick summary: I’ve had one ablation, for A-fib, August 2022. All was well A-flutter began in August 2023. I’ve had five cardioversions since then, lasting from three weeks to three days. I am now in A-flutter awaiting an ablation on February 6. Success rate statistically is around 95%. Fingers crossed
Sweetmelody
in
Atrial Fibrillation Support
9 months ago
decompensated to compensated
hi as you know I have had decompensated cirrhosis diagnosed march 23, in January 24 I had a bleed from varices and have had 7 bands, next camera august, my next scan on liver is 18th June so next week, has anyone had this and after there liver went to compensated ? Thanks Leanne (King Billy is my
hi as you know I have had decompensated cirrhosis diagnosed march 23, in January 24 I had a bleed from varices and have had 7 bands, next camera august, my next scan on liver is 18th June so next week, has anyone had this and after there liver went to compensated ? Thanks Leanne (King Billy is my
Kingbilly3
in
British Liver Trust
4 months ago
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