Search
Search
About
Log in
Join
Experiences with
Liver failure
Posts
Communities
9,358 public posts
Filter results
cirrhosis and Pip
Hi everyone, I was just wondering if anyone had experience of giving up work and claiming pip with compensated cirrhosis. My story is I’ve been in quite a stressful role for nearly 24 years and was diagnosed with cirrhosis about 18 months ago. I am feeling increasingly tired with considerable joint
Hi everyone, I was just wondering if anyone had experience of giving up work and claiming pip with compensated cirrhosis. My story is I’ve been in quite a stressful role for nearly 24 years and was diagnosed with cirrhosis about 18 months ago. I am feeling increasingly tired with considerable joint
0range5520
in
British Liver Trust
3 months ago
Severe Dilated Cardiomyopathy with heart failure - and now AF - anyone else out there like me?
I have severe dilated cardiomyopathy and heart failure but had been doing well despite the inner chaos. I played tennis 5 times a week, kicked a football with my children, took long walks, and was able to run up the stairs to my flat. After the metapneumovirus triggered AF 6 weeks ago I stopped being
I have severe dilated cardiomyopathy and heart failure but had been doing well despite the inner chaos. I played tennis 5 times a week, kicked a football with my children, took long walks, and was able to run up the stairs to my flat. After the metapneumovirus triggered AF 6 weeks ago I stopped being
Jishuang44
in
AF Association
9 months ago
to anyone new to the group.....
Hi - and welcome! My name is Donna - I facilitate this support group for The PBC Foundation - Health Unlocked. If you are new to your diagnosis, first of all, take a breath. It’s ok. We all, myself included, have been exactly where you are right now…. scared, unsure, mad, sad, and so much more. Stop
Hi - and welcome! My name is Donna - I facilitate this support group for The PBC Foundation - Health Unlocked. If you are new to your diagnosis, first of all, take a breath. It’s ok. We all, myself included, have been exactly where you are right now…. scared, unsure, mad, sad, and so much more. Stop
DonnaBoll
Administrator
in
PBC Foundation
3 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Wednesday's Word
[i]
encephalopathy
[/i] This is a term used for a condition of toxic brain dysfunction. In those with PBC, it is known as hepatic encephalopathy. This occurs in advanced cirrhosis as the liver fails to filter the toxins. It occurs rarely, a liver transplant being the only help. HE (Hepatic Encephalopathy
[i]
encephalopathy
[/i] This is a term used for a condition of toxic brain dysfunction. In those with PBC, it is known as hepatic encephalopathy. This occurs in advanced cirrhosis as the liver fails to filter the toxins. It occurs rarely, a liver transplant being the only help. HE (Hepatic Encephalopathy
DonnaBoll
Administrator
in
PBC Foundation
3 months ago
Organ Donation for Transplant and Research
This post is talking about Organ Donation upon Death, so please take care to choose to read on further.
I recently went down to the Blood and Transplant Service Head Office in Bristol and attended a workshop on the importance of organ research. There were four of us fellow liver transplantees
This post is talking about Organ Donation upon Death, so please take care to choose to read on further.
I recently went down to the Blood and Transplant Service Head Office in Bristol and attended a workshop on the importance of organ research. There were four of us fellow liver transplantees
Richard-Allen
in
British Liver Trust
3 months ago
Confusion on fibroscan results
Hi All, my husband was recently told he had an enlarged liver ( spotted when having a gastroscopy ) and that he would get a follow up fibroscan - this took a few weeks and then we got the results by letter which completely shocked and scared us! It stated he had F4 liver cirrhosis and S3 fatty liver
Hi All, my husband was recently told he had an enlarged liver ( spotted when having a gastroscopy ) and that he would get a follow up fibroscan - this took a few weeks and then we got the results by letter which completely shocked and scared us! It stated he had F4 liver cirrhosis and S3 fatty liver
Tmrw
in
British Liver Trust
3 months ago
Some 'tips' for new/already diagnosed members
If at all possible, see a knowledgable hepatologist Only use trusted and reputable sources for information Don’t google unless the article is current and from a reputable source such as The American Liver Foundation, Canadian PBC Society,The PBC Foundation, LivingWithPBC, Cleveland and Mayo Clinics
If at all possible, see a knowledgable hepatologist Only use trusted and reputable sources for information Don’t google unless the article is current and from a reputable source such as The American Liver Foundation, Canadian PBC Society,The PBC Foundation, LivingWithPBC, Cleveland and Mayo Clinics
DonnaBoll
Administrator
in
PBC Foundation
3 months ago
Part 1 of my liver assessment
Finally got put forward for part 1 of my liver assessment for a possible transplant, it's going to be a very long day on Monday and I will be 7 days post drain, so I will be like a beached whale again, grateful to be finally put forward for it and a bit nervous, any advice on what to expect or what to
Finally got put forward for part 1 of my liver assessment for a possible transplant, it's going to be a very long day on Monday and I will be 7 days post drain, so I will be like a beached whale again, grateful to be finally put forward for it and a bit nervous, any advice on what to expect or what to
bushburywolf
in
British Liver Trust
3 months ago
Pain After Paracentesis
My partner had his ascites drained last week. He has had 2 previous drains but this time he has experienced a lot of pain afterwards. It’s sometimes quite acute - and gets worse when he eats. Then he feels 100% better - only for the pain to start again. Has anyone else had this experience? Any advice
My partner had his ascites drained last week. He has had 2 previous drains but this time he has experienced a lot of pain afterwards. It’s sometimes quite acute - and gets worse when he eats. Then he feels 100% better - only for the pain to start again. Has anyone else had this experience? Any advice
Ladypinkdoor
in
British Liver Trust
3 months ago
Amino acid urine test finds taurine “wasting”, elevated beta alanine and anserine - anyone else?
hi. Input much appreciated on a mystery . First background: I have had elevated ALT, AST, and GGT for decades along with poor health and some little recognized chronic conditions. I would like to know if anyone else with liver disease has or has heard of the following odd metabolic derangement. I
hi. Input much appreciated on a mystery . First background: I have had elevated ALT, AST, and GGT for decades along with poor health and some little recognized chronic conditions. I would like to know if anyone else with liver disease has or has heard of the following odd metabolic derangement. I
SkinNBones
in
British Liver Trust
3 months ago
Using Travel Insurance
Has anyone here ever needed to use their Emergency Travel Medical insurance for a hospital stay related to their cirrhosis?Hubby wants to travel but he doesn’t go more than 6 months without ending up in hospital. Just spent 10 days due to sepsis. The week before he was 100% normal. I also worry about
Has anyone here ever needed to use their Emergency Travel Medical insurance for a hospital stay related to their cirrhosis?Hubby wants to travel but he doesn’t go more than 6 months without ending up in hospital. Just spent 10 days due to sepsis. The week before he was 100% normal. I also worry about
MississaugaLiver
in
British Liver Trust
3 months ago
Liver cancer
finally got to talk to a very knowledgeable liver specialist having been trying to get some answers for months. He understood why I wanted to know and given some idea how long I can expect too live. He went into a lot of detail fully explaining all the scenarios, which is exactly what my wife and I wanted
finally got to talk to a very knowledgeable liver specialist having been trying to get some answers for months. He understood why I wanted to know and given some idea how long I can expect too live. He went into a lot of detail fully explaining all the scenarios, which is exactly what my wife and I wanted
oap74
in
British Liver Trust
3 months ago
Yet another question about cirrhosis.
I'm so sorry to bother everyone again. I promise this will be my last post for quite some time [hopefully]. I'm taking some advice from a couple of lovely members from this forum who have advised me to try and not worry so much over every detail of my condition, and live each day to its fullest. Just
I'm so sorry to bother everyone again. I promise this will be my last post for quite some time [hopefully]. I'm taking some advice from a couple of lovely members from this forum who have advised me to try and not worry so much over every detail of my condition, and live each day to its fullest. Just
puddy68
in
British Liver Trust
3 months ago
Questions about Cirrhosis Prognosis
Hi Everyone. I have yet another question[s] [I'm sorry!] I just read a post from 6 years ago that gave me a bit of a fright, and I'm wondering if anyone has any thoughts or advice on this? The post stated that cirrhosis patients can do "remarkably well provided they can keep clean, & early stage cirrhosis
Hi Everyone. I have yet another question[s] [I'm sorry!] I just read a post from 6 years ago that gave me a bit of a fright, and I'm wondering if anyone has any thoughts or advice on this? The post stated that cirrhosis patients can do "remarkably well provided they can keep clean, & early stage cirrhosis
puddy68
in
British Liver Trust
3 months ago
Liver Biopsy Soon.
Hey everyone, I have a Liver Biopsy next week, as my blood tests have shown that my body is attacking my liver as it thinks it's "Foreign". I'm going under general for it. Does anyone know why my body is attacking my liver? Thanks,
Hey everyone, I have a Liver Biopsy next week, as my blood tests have shown that my body is attacking my liver as it thinks it's "Foreign". I'm going under general for it. Does anyone know why my body is attacking my liver? Thanks,
Lmm4
in
British Liver Trust
3 months ago
potential DILI - advice?
hi everyone, I’m 29F, at the end of April I was hospitalised for e-coli, given anti biotics and PPI’s through my IV line for 3 days, then continued on oral anti biotics with PPI’s for 5 days My symptoms continued and my ALT/AST are at 952/370 and continuing to rise still today, I feel awful, nauseous
hi everyone, I’m 29F, at the end of April I was hospitalised for e-coli, given anti biotics and PPI’s through my IV line for 3 days, then continued on oral anti biotics with PPI’s for 5 days My symptoms continued and my ALT/AST are at 952/370 and continuing to rise still today, I feel awful, nauseous
eljd
in
British Liver Trust
3 months ago
Just a few more questions about Cirrhosis
Hello, it's me [again]. Only one more day until I go for my endoscopy as they picked up varices on my cat scan. May [or most definitely will, according to my gastroenterologist] have to band them. This whole procedure has got me thinking again, and I inevitably then end up with more questions [sorry]
Hello, it's me [again]. Only one more day until I go for my endoscopy as they picked up varices on my cat scan. May [or most definitely will, according to my gastroenterologist] have to band them. This whole procedure has got me thinking again, and I inevitably then end up with more questions [sorry]
puddy68
in
British Liver Trust
3 months ago
Exercise
Hi all, I'm due for repeat liver enzyme tests next week for slightly elevated GGT and ALT, I've stopped drinking since Feb ( apart from a beer last weekend) and I've started weight training at the gym. I'm starting to lose weight but I've read weight training can cause elevated liver enzymes and to not
Hi all, I'm due for repeat liver enzyme tests next week for slightly elevated GGT and ALT, I've stopped drinking since Feb ( apart from a beer last weekend) and I've started weight training at the gym. I'm starting to lose weight but I've read weight training can cause elevated liver enzymes and to not
DiamondSparkles
in
British Liver Trust
3 months ago
Tuesday's 'Tip'
I've decided to incorporate some of Dr. Jones's wisdom into our Tuesday's 'Tips' These are all from his book [u][i]The Definitive Guide for Patients Who Have Primary Biliary Cholangitis.[/i][/u] This an amazing source of information on PBC from a world leading expert. I strongly encourage everyone
I've decided to incorporate some of Dr. Jones's wisdom into our Tuesday's 'Tips' These are all from his book [u][i]The Definitive Guide for Patients Who Have Primary Biliary Cholangitis.[/i][/u] This an amazing source of information on PBC from a world leading expert. I strongly encourage everyone
DonnaBoll
Administrator
in
PBC Foundation
3 months ago
Do you have cirrhosis (or care for someone who does) and want to help prioritise what research is done in the UK?
The British Liver Trust is working with UK CLIF Network and supported by the James Lind Alliance on a project called the Liver Cirrhosis James Lind Alliance Priority Setting Partnership (JLA PSP). The group includes patients, carers, and health professionals with expertise in liver cirrhosis.
Why
The British Liver Trust is working with UK CLIF Network and supported by the James Lind Alliance on a project called the Liver Cirrhosis James Lind Alliance Priority Setting Partnership (JLA PSP). The group includes patients, carers, and health professionals with expertise in liver cirrhosis.
Why
BritishLiverTrust1
Partner
in
British Liver Trust
3 months ago
1
...
11
12
13
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
British Liver Trust
5217 results
PBC Foundation
998 results
Atrial Fibrillation Support
376 results
View top 10 communities
Sort by
Most Relevant
Newest