On my last visit to clinic, my specialist said 'well done with your recompensated liver'. Anyone else had such a positive diagnosis said by their specialist? I haven't found it anywhere online. I've not had any alcohol in three and half years, since I suffered a liver failure, yellow skin, fainting, loss of energy, the whole thing. Great care and modern meds brought me back. Like many I felt I didn't have a problem, alcohol was a bad habit, watching telly, socialising, work parties, a constant. I don't miss it at all which I am so grateful for, I think the jaundice I feel at just a sniff of the stuff helps. So I embrace the recompensated liver with lashings of coffee, oh and biscuits. Some days I don't feel so positive, I mean I still have cirrhosis after all, but I come back here. It helps to read the positive msgs.
Hepatologist called my liver 'recompen... - British Liver Trust
Hepatologist called my liver 'recompensated'
Congratulations to you and so many others that have the courage to forego alcohol and get your life back. From everything I have read and heard, those that have cirrhosis from alcohol get better faster than those of us that get cirrhosis from fatty liver.
Many kudos to you and good health!
Is that true , not that I don't believe you , its encouraging for me can you , tell me where you got this information from , many thanks , Will.
It is known that once cessation of alcohol starts, all organs get better including cirrhosis provided that extensive damage has not been done. Here is a very interesting article on this:
ncbi.nlm.nih.gov/pmc/articl...
your story sounds similar to my partner who was diagnosed Xmas 21. He was decompensated Child Pugh C - was on the transplant list for a few months but now suspended as considered too well. Currently compensated and Child Pugh A with a normal liver function. I am so proud of him, he still has some complications but overall doing good.
Hello. Yes 4 years ago i was told I had a decompensated liver. Had fluid, a non bleeding varices, blood tests were abnormally sky high and cirrhosis. I stopped drinking then. I have 6 month scans and the scarring has stayed the same Child Pugh A. I saw my consultant in june face to face after two years. (not through lack of chasing!). I am now "well Compensated" and off fluid tablets. So there is hope. Remember googling at the beginning thinking the worst. I know when I look at my mainly normal blood results that it's all been so very much worth it. I'm in a much much better place than 4 years ago well I'm still here! Well done 😁.
HelloBlackcat49,
I was also diagnosed 4 years ago 6/13/2019 with decompensated alcoholic induced cirrhosis. Aw was I sick. Ascities, severe muscle wasting, severe malnutrition HE the list goes on.
Fast forward I haven’t had a drink since the night I was taken by ambulance to ER in hospital 16 days. Came home had Physical therapy occupational therapy. Etc etc.
Well by the Grace of God I haven’t touched a drop since 6/13/19 the night I was taken to ER,
Im well compensated off the water pills blood test every 6 month ultrasound every 6 month.
The Key is NO BOOZE EVER AGAIN.
Healthy diet, I walk just shy of 1 Mile everyday. Now knees hurt🙄
As we know the scaring stays on the liver but as my Dr. Said it can smooth a little as well with time.
There is hope and Recovery it’s tough but….if you want it bad enough to live there is really no other choice. I stay active with my recovery peer support group as well.
I congratulate you!
To all those out there try not to get down and spooked with google
Listen to your Drs, and those of US living and healing both body and soul!
All Best wishes from Boston USA
Susan
Hi SusanCongratulations to you as well!. I was the 21st June 19 so similar time different place. It was certainly the wake up call I needed. I to got into walking big time in 20/21 still walk daily but not as far due to work. It's great to hear positive stories and you are right no booze again. Fortunately my nose hates the smell of wine now when anyone has a glass which to be fair doesn't happen often as I realise how most of my main close small circle of friends do not drink that often so I am more than happy with my soft drinks.
Take good care 😀
Michelle
Thank You!😎
Great news, I was doing well until Hep E hit me 18 months back so starting again , just make sure you look after yourself and enjoy the news and good days ahead
Well done on your briĺiant achievement 👏 I myself was diagnosed with decompensated cirrhosis due to alcohol and cigarettes in September 2021. My liver was struggling jaundice, cramps but no other symptoms. I haven't touched any alcohol or cigarettes from then on. Consultant is very pleased with my progress and also with my weight loss (4 stone) lost through diet and healthy eating and exercise. He said my liver function is normal, MRI scans for HCC no features of concern but hasn't said if I am at recompensed state. I am due a phone consultation with my consultant soon so I will ask the question.
Again Well done and take care 🙂
Definitely ask that question. It was a great word to hear. The other thing I noticed was a huge improvement in my skin. I have had rosacea in some form since I was young but I had no idea how bad alcohol was making it. The weight loss as you say has been great too, so much easier to stay fit when you feel fresher. Stay well and have a good consultation. I actually look forward to those now!
Yes it will be the first of many questions I need to ask. I was also surprised with my complection too, people saying how well I look after stopping drinking alcohol and losing weight. Some have also commented on how younger and fresher I look which gives me more reason to carry on with my progress. I too look forward to my consultations and hope that I get the answers I need. Thanks for your reply and good luck with your journey.
hi well done! It has happened to me I think, I went from my consultant saying I’d got Decompensated liver with 2 weeks to live then it was was 3 months if I was lucky to I need a transplant but need to be stronger or I’d die having the op, to I’m too well now and may not need a transplant. It’s been a hell of a rollercoaster of emotions today the least, I’m still not as good as I could be, still fatigued, bloods low ie hb platlets ect. My liver disease was also alcohol related. I really don’t know how I got through it, just took it day by day. I am lucky enough to have support from an “ICON” team where a psychologist a mental health nurse and a alcohol support worker visits my home every week to keep an eye on me. If it weren’t for that I’m sure I would be dead by now. Now I also too bless myself with what I call a ‘posh coff” (I brought a coffee machine as a treat and have what I call posh coffees lol)
Stay positive wipe those bad days away by just accepting them and shrug at it, that’s what I do, and think well at least I’m alive and life still has something in stall for me. Liver disease is awful to have but it makes me appreciate life much more now, good luck in your future recovery, day by day, week by week xxx
What a great positive message Harriet-Sarah. I've been considering a bean to cup machine. I think today is the day to buy one! Stay well and thank you for your lovely uplifting words.
defo get one lol 😀
Lovely, inspiring story. Thank you for sharing it. By the way, when you say your hemoglobin and platelets are low, what are they? Some doctors are now saying that 75 to 100 is "moderate" thrombocytopenia (low platelets), so if we are between 75 to100, we no longer have to be as afraid for our future. Best to you!
I’ve asked my GP to monitor my bloods on a two weekly period, now I’ve changed it to monthly as I wanted to see if my bloods would dramatically change after my NG was removed since from about Feb my platlets has been between 38-45 at its most no matter how much I eat or protein drinks i take. And I seem to get along with life fine, sometimes if I feel like crap I pin prick my finger if it bleeds a lot I know my platlets are probably on the low end of the scale and I top myself up with a protein drink. The policy is @ my hospital is that they will not transfuse unless my bloods are below 20 so I have some wriggle room. And the rest of bloods are low as expected so no dramas there. I don’t get hung up on it cause if they get too low they can only go one way way and that’s back up. Get that coffee machine and treat yourself 👌
Brilliant news, congratulations.
Well done to you! 🏆🌟🥳That is wonderful news and I'm glad you don't miss alcohol, it seems to cause more harm than good and it's very addictive.
Keep up the good work, you liver is thanking you for it! ❤️
Congratulations on your briĺiant achievement. I myself have been told that my liver has recompensated and is completly healed. I was diagnosed with decompensated cirrhosis back in September 2021, I had jaundice but no other symptoms. It's been a long 2 years but worth all the hard work to hear my results. I drank and smoked almost every day, was overweight and never thought I would end up being told to stop drinking because I was very poorly. I know that the scarring is still there but I am happy to be able to live a normal life even with cirrhosis. I hope our posts will help to encourage more people to be more positive in their journey ahead. There's always hope. Onwards and upwards
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