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Novel Combos Are Shaking Up the CLL Landscape but FCR still has its place
Published: Saturday, Sep 14, 2019 During a presentation at the 2019 Society of Haematological Oncology Annual Meeting, Dr Jain said recent clinical trial findings have helped clarify therapy choices based on the patient’s age, comorbid conditions, and mutation status but that questions about optimal
Published: Saturday, Sep 14, 2019 During a presentation at the 2019 Society of Haematological Oncology Annual Meeting, Dr Jain said recent clinical trial findings have helped clarify therapy choices based on the patient’s age, comorbid conditions, and mutation status but that questions about optimal
Jm954
Administrator
in
CLL Support
5 years ago
Duvelisib Dosing Modification Does Not Compromise Efficacy in Heavily Pretreated CLL/SLL
Reducing or interrupting duvelisib (Copiktra) treatment does not increase toxicity or reduce outcomes with relapsed/refractory chronic lymphocytic leukemia/small lymphocytic lymphoma (CLL/SLL). Furthermore, treatment with the PI3K inhibitor led to a superior median progression-free survival (PFS) compared
Reducing or interrupting duvelisib (Copiktra) treatment does not increase toxicity or reduce outcomes with relapsed/refractory chronic lymphocytic leukemia/small lymphocytic lymphoma (CLL/SLL). Furthermore, treatment with the PI3K inhibitor led to a superior median progression-free survival (PFS) compared
Jm954
Administrator
in
CLL Support
5 years ago
Bone marrow
My Bone marrow biopsy showed that I have 80% cancer in the marrow. Is this rather high for people with CLL? Do all CLL patients have a bone marrow biopsy
My Bone marrow biopsy showed that I have 80% cancer in the marrow. Is this rather high for people with CLL? Do all CLL patients have a bone marrow biopsy
tootsie2
in
CLL Support
5 years ago
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acalabrutinib gets Breakthrough Therapy Designation for CLL from FDA
https://www.astrazeneca.com/media-centre/press-releases/2019/calquence-granted-us-breakthrough-therapy-designation-for-chronic-lymphocytic-
leukaemia
-14082019.html Hopefully FDA approval will follow within a few months. When V+O got the BTD in March 2019, it was approved in May 2019.
https://www.astrazeneca.com/media-centre/press-releases/2019/calquence-granted-us-breakthrough-therapy-designation-for-chronic-lymphocytic-
leukaemia
-14082019.html Hopefully FDA approval will follow within a few months. When V+O got the BTD in March 2019, it was approved in May 2019.
avzuclav
in
CLL Support
5 years ago
CLL Society Support Group Member Resource Guide
This list was created by the LA Support Group of The CLL Society and would be useful primarily for USA residents. -
CLL Society Support Group Member Resource Guide
There are many resources for CLL patients and caregivers. This is not a complete list, but a curation of resources. [u]National
This list was created by the LA Support Group of The CLL Society and would be useful primarily for USA residents. -
CLL Society Support Group Member Resource Guide
There are many resources for CLL patients and caregivers. This is not a complete list, but a curation of resources. [u]National
lankisterguy
Volunteer
in
CLL Support
5 years ago
CLL, Spleen Recovery+recommendations
Hi All, I was hoping to draw on your knowledge, wisdom and experience in dealing with CLL. I was diagnosed in 7/2008 and for almost 11 years was doing quite well but 3 months ago my spleen started to get enlarged, wbc were 76K and swollen lymph nodes to say the least. I had my first dose of Gazyva or
Hi All, I was hoping to draw on your knowledge, wisdom and experience in dealing with CLL. I was diagnosed in 7/2008 and for almost 11 years was doing quite well but 3 months ago my spleen started to get enlarged, wbc were 76K and swollen lymph nodes to say the least. I had my first dose of Gazyva or
SCE2AUX
in
CLL Support
5 years ago
Marginal zone lymphoma Facebook support group
https://www.facebook.com/groups/1734968436810226/?ref=share Hi, Hope you don’t mind my sharing a link to the marginal zone lymphoma Facebook site for the members on this site who have been diagnosed with a combo of CLL and mzl or mzl. This is a rarer lymphoma with much less research done so it is
https://www.facebook.com/groups/1734968436810226/?ref=share Hi, Hope you don’t mind my sharing a link to the marginal zone lymphoma Facebook site for the members on this site who have been diagnosed with a combo of CLL and mzl or mzl. This is a rarer lymphoma with much less research done so it is
Judyanne
in
CLL Support
5 years ago
A Tool to Select Candidates for Allogeneic Hematopoietic Cell Transplant in CLL but do we need it?
August 14, 2019 From this it's clear that transplant is not an easy decision to make and the new targeted treatments may have changed the landscape again. [i]"The past 5 years have seen the introduction of several new treatments that have significantly extended survival rates for patients with chronic
August 14, 2019 From this it's clear that transplant is not an easy decision to make and the new targeted treatments may have changed the landscape again. [i]"The past 5 years have seen the introduction of several new treatments that have significantly extended survival rates for patients with chronic
Jm954
Administrator
in
CLL Support
5 years ago
Time for a change!
After 20 years with myeloma and being well controlled with Lenalidamide for the last 5 years things have changed suddenly. A sudden dip in blood results necessitated a bone marrow and low and behold I now also have CLL. I have just started on Obinutuzomab and will add chlorambucil when I return from
After 20 years with myeloma and being well controlled with Lenalidamide for the last 5 years things have changed suddenly. A sudden dip in blood results necessitated a bone marrow and low and behold I now also have CLL. I have just started on Obinutuzomab and will add chlorambucil when I return from
Paul_Cabban
in
Leukaemia Support
5 years ago
MPN Voice needs your feedback to support an application to the Scottish Medicines Consortium (SMC)
We
URGENTLY
need your help and feedback to support an application to the Scottish Medicines Consortium (SMC) for the prescribing of Ruxolitinib (Jakavi) to PV patients living in Scotland. But we want to hear from you if you have PV regardless of where you live or whether you have had Ruxolitinib
We
URGENTLY
need your help and feedback to support an application to the Scottish Medicines Consortium (SMC) for the prescribing of Ruxolitinib (Jakavi) to PV patients living in Scotland. But we want to hear from you if you have PV regardless of where you live or whether you have had Ruxolitinib
Mazcd
MPNVoice
in
MPN Voice
5 years ago
Patient Power Video updates on Blood Testing and New Treatment updates
Patient Power email here: https://www.patientpower.info/index.cfm?objectid=0F37AC70-C38E-11E9-9C33000D3A30C4F8 - Includes video updates from two of my favorite doctors that can explain complex subjects using understandable language. Dr. Susan LeClair and Dr. Nicole Lamanna. - https://www.patientpower.info
Patient Power email here: https://www.patientpower.info/index.cfm?objectid=0F37AC70-C38E-11E9-9C33000D3A30C4F8 - Includes video updates from two of my favorite doctors that can explain complex subjects using understandable language. Dr. Susan LeClair and Dr. Nicole Lamanna. - https://www.patientpower.info
lankisterguy
Volunteer
in
CLL Support
5 years ago
Worsening symptoms of myelofibrosis
Hi Can anyone tell me the worsening symptoms of myleofibrosis as I am very concerned about my partner who has post ET myelofibrosis and since diagnosis has become more and more tired. He is on hydro (fluctuating dose) and Rux along with other medications for a heart condition and portal hypertension
Hi Can anyone tell me the worsening symptoms of myleofibrosis as I am very concerned about my partner who has post ET myelofibrosis and since diagnosis has become more and more tired. He is on hydro (fluctuating dose) and Rux along with other medications for a heart condition and portal hypertension
Goldfish212
in
MPN Voice
5 years ago
Sugar and cancer, in particular Chronic Lymphocytic Leukaemia (CLL/SLL) – what you need to know
We've had a few questions lately about whether we should avoid sugar after a diagnosis of CLL, from members concerned about the influence of sugar in their diet on their CLL progression and of course because of the simplistic claim that sugar feeds cancer cells, so starving ourselves of sugar will starve
We've had a few questions lately about whether we should avoid sugar after a diagnosis of CLL, from members concerned about the influence of sugar in their diet on their CLL progression and of course because of the simplistic claim that sugar feeds cancer cells, so starving ourselves of sugar will starve
AussieNeil
Partner
in
CLL Support
5 years ago
Relapsing after remission
I've been in remission for about two years now. Just came from a routine 6 month check-up. My Hematologist noticed that my platelets have dropped below normal and that my absolute lymphocytes are above normal. I will checked again in three months. Has anyone relapsed from remission? If so, did they
I've been in remission for about two years now. Just came from a routine 6 month check-up. My Hematologist noticed that my platelets have dropped below normal and that my absolute lymphocytes are above normal. I will checked again in three months. Has anyone relapsed from remission? If so, did they
dianejoyce
in
CLL Support
5 years ago
Association of gene mutations with time‐to‐first treatment in 384 treatment‐naive chronic lymphocytic leukaemia patients
First published: 26 June 2019 in BJH - full paper behind a paywall unfortunately This study correlated somatic mutation results and known prognostic factors with time‐to‐first treatment (TTFT) in 384 treatment‐naïve (TN) chronic lymphocytic
leukaemia
(CLL) patients to help determine disease‐specific
First published: 26 June 2019 in BJH - full paper behind a paywall unfortunately This study correlated somatic mutation results and known prognostic factors with time‐to‐first treatment (TTFT) in 384 treatment‐naïve (TN) chronic lymphocytic
leukaemia
(CLL) patients to help determine disease‐specific
Jm954
Administrator
in
CLL Support
5 years ago
2nd Update on Possible Richters Transformation
The upside is I don’t have RT, but I did pick up some more high risk markers in addition to : 11q and unmutated. I learned in July the results of the DNA sequencing study. I picked up TP53, Notch1, ATM and few other ones that predispose me to head and neck cancer and cognitive decline. They did not
The upside is I don’t have RT, but I did pick up some more high risk markers in addition to : 11q and unmutated. I learned in July the results of the DNA sequencing study. I picked up TP53, Notch1, ATM and few other ones that predispose me to head and neck cancer and cognitive decline. They did not
ReneeSusan
in
CLL Support
5 years ago
Growth dynamics in naturally progressing chronic lymphocytic leukaemia
[i]"We used the indolent growth dynamics of chronic lymphocytic
leukaemia
(CLL) to analyse the growth rates and corresponding genomic patterns of
leukaemia
cells from 107 patients with CLL, spanning decades-long disease courses.
[i]"We used the indolent growth dynamics of chronic lymphocytic
leukaemia
(CLL) to analyse the growth rates and corresponding genomic patterns of
leukaemia
cells from 107 patients with CLL, spanning decades-long disease courses.
Jm954
Administrator
in
CLL Support
5 years ago
Nitric-Oxide-Donating NSAIDs.
In studies in vitro, NO-ASA inhibits the growth of colon, pancreatic, prostate, lung, skin,
leukaemia
and breast cancer cells, and is up to 6000-fold more potent than traditional ASA."
In studies in vitro, NO-ASA inhibits the growth of colon, pancreatic, prostate, lung, skin,
leukaemia
and breast cancer cells, and is up to 6000-fold more potent than traditional ASA."
pjoshea13
in
Advanced Prostate Cancer
5 years ago
Saga continued.......
Well, Neuro didn't have great news but has decided to get me to have an ambulatory EMG over 3 days. I will stop anti seizure meds 1 week before and *maybe* pick up an anomaly during the 3 days I'm wired up. Still off driving for 6 months and has strongly advised against my planned trip to KL in 4
Well, Neuro didn't have great news but has decided to get me to have an ambulatory EMG over 3 days. I will stop anti seizure meds 1 week before and *maybe* pick up an anomaly during the 3 days I'm wired up. Still off driving for 6 months and has strongly advised against my planned trip to KL in 4
Ozchick
in
Hughes Syndrome APS Forum
5 years ago
Tiredness and essential thrombocythemia
Hi. Hoping for some advice and pointers. My mother has ET and is on chemo pills. All seems to be going well except for her being constantly tired. She is 77 but otherwise fit and well and has always been active and walking dogs etc. The tiredness gets her down and depressed. Her consultants just
Hi. Hoping for some advice and pointers. My mother has ET and is on chemo pills. All seems to be going well except for her being constantly tired. She is 77 but otherwise fit and well and has always been active and walking dogs etc. The tiredness gets her down and depressed. Her consultants just
Monkobutlers
in
MPN Voice
5 years ago
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