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Massage with Cll?
This could be a dumb question but do massages negatively impact people with Cll? Thoughts?
This could be a dumb question but do massages negatively impact people with Cll? Thoughts?
Koda1234
in
CLL Support
3 years ago
Melatonin and CLL
I ran across this article - https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6057911/ a bit technical but further down it talks about apoptosis of leukemia cells. Does anyone have any input on taking Melatonin - I am taking 10mg at night to help with sleep. Just a curious question. I am on W&W two years
I ran across this article - https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6057911/ a bit technical but further down it talks about apoptosis of leukemia cells. Does anyone have any input on taking Melatonin - I am taking 10mg at night to help with sleep. Just a curious question. I am on W&W two years
CBME
in
CLL Support
3 years ago
Dr. Koffman’s ASH 2021 Day 4 Highlights
Dr. Koffman’s ASH 2021 Day 4 Highlights: In this year’s Day 4 wrap-up, Dr. Koffman keeps us in touch with what currently stands front and center in the world of CLL-relevant clinical trials. His overview touches on combinations of novel agents, innovative treatment strategies, MRD status to guide therapy
Dr. Koffman’s ASH 2021 Day 4 Highlights: In this year’s Day 4 wrap-up, Dr. Koffman keeps us in touch with what currently stands front and center in the world of CLL-relevant clinical trials. His overview touches on combinations of novel agents, innovative treatment strategies, MRD status to guide therapy
bkoffman
CLL CURE Hero
in
CLL Support
3 years ago
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Blood tests this morning and then possibly a journalist in conjunction with
Leukaemia
Care calling to do an interview for Spot
Leukaemia
Early campaign month. Have already made a video which will go out this month on social media ... look out for it!
Blood tests this morning and then possibly a journalist in conjunction with
Leukaemia
Care calling to do an interview for Spot
Leukaemia
Early campaign month. Have already made a video which will go out this month on social media ... look out for it!
kitchengardener2
in
CLL Support
3 years ago
CLL Society ASH 2021 Highlights from Day 2 of ASH 2021! Dr. Brian Koffman gives up updates
ASH 2021 Highlights from Day 2 of ASH 2021! Dr. Brian Koffman gives up updates on the reversible non-covalently binding BTKi (Bruton’s tyrosine kinase inhibitor) pirtobrutinib (formerly LOXO-305), another reversable BTKi known as MK-1026 (formerly ARQ-531), 3-year follow-up data from the Ascend Trial
ASH 2021 Highlights from Day 2 of ASH 2021! Dr. Brian Koffman gives up updates on the reversible non-covalently binding BTKi (Bruton’s tyrosine kinase inhibitor) pirtobrutinib (formerly LOXO-305), another reversable BTKi known as MK-1026 (formerly ARQ-531), 3-year follow-up data from the Ascend Trial
bkoffman
CLL CURE Hero
in
CLL Support
3 years ago
Fancy your chances at winning some awesome prizes?
Get your tickets here: https://raffall.com/262791/enter-raffle-to-win-
leukaemia
-care-autumn-raffle-hosted-by-
leukaemia
-care
Get your tickets here: https://raffall.com/262791/enter-raffle-to-win-
leukaemia
-care-autumn-raffle-hosted-by-
leukaemia
-care
HAIRBEAR_UK
in
Leukaemia Support
3 years ago
Progression to aml
I’ve had pv for 12 years. 3 months ago it progressed to acute myeloid
leukaemia
with a statistical prognosis of 6 months. As I am 73, I decided not to have chemotherapy.
I’ve had pv for 12 years. 3 months ago it progressed to acute myeloid
leukaemia
with a statistical prognosis of 6 months. As I am 73, I decided not to have chemotherapy.
Hidden
in
MPN Voice
3 years ago
Biotin as a boost for hair thinninh
I have been told Biotin is good for thinning hair.does anyone know of any reason it may affect my blood test results.I am on weekly 90mg peginterferon?
I have been told Biotin is good for thinning hair.does anyone know of any reason it may affect my blood test results.I am on weekly 90mg peginterferon?
caroline_284
in
MPN Voice
3 years ago
Useful Webinar
A
Leukaemia
Care webinar last week 'Covid-19 and
Leukaemia
: what more do we know' is now available on YouTube and worth watching.
A
Leukaemia
Care webinar last week 'Covid-19 and
Leukaemia
: what more do we know' is now available on YouTube and worth watching.
clematis26
in
MPN Voice
3 years ago
Antibody test update. Good News!
I have just received my result for the Covid Cancer Antibody Survey which I posted about last week. I am very pleased to say I have antibodies. It doesn’t say in what percentage but I am relieved to know I have some protection as I was sure it would be negative. I was notified by email and text very
I have just received my result for the Covid Cancer Antibody Survey which I posted about last week. I am very pleased to say I have antibodies. It doesn’t say in what percentage but I am relieved to know I have some protection as I was sure it would be negative. I was notified by email and text very
azaelea
in
MPN Voice
3 years ago
SCT risks
My husband and I are just back from Southampton after another appointment with my SCT specialist. This was the one where he went through all the risks of the procedure, including the statistic that 20% die. Although I knew this already from Prof Harrison, it was difficult to be reminded. He did say that
My husband and I are just back from Southampton after another appointment with my SCT specialist. This was the one where he went through all the risks of the procedure, including the statistic that 20% die. Although I knew this already from Prof Harrison, it was difficult to be reminded. He did say that
Otterfield
in
MPN Voice
3 years ago
Treating autoimmune hemolytic anemia (AIHA)
Does anyone have autoimmune hemolytic anemia (AIHA) along with your chronic lymphocytic leukemia (CLL). I believe it occurs for around 10% of CLL patients. Any experience or knowledge about it would help. My Haptoglobin has gone from 39 in September to 14 this past week. As I understand it, when it
Does anyone have autoimmune hemolytic anemia (AIHA) along with your chronic lymphocytic leukemia (CLL). I believe it occurs for around 10% of CLL patients. Any experience or knowledge about it would help. My Haptoglobin has gone from 39 in September to 14 this past week. As I understand it, when it
SantaZia
in
CLL Support
3 years ago
Two things. White blood count creeping up. And waiting for results from spike protein test.
I just went for my regular hematologist appointment. My white blood count hovered between 18 and 20. Today it was 23. My doctor isn't worried but is having me come back in 3 months instead of 4. She said not to worry but I see a slight upward trend. Any advice? Also I'm waiting for my results from
I just went for my regular hematologist appointment. My white blood count hovered between 18 and 20. Today it was 23. My doctor isn't worried but is having me come back in 3 months instead of 4. She said not to worry but I see a slight upward trend. Any advice? Also I'm waiting for my results from
elm1
in
CLL Support
3 years ago
Rituxan
Hello everyone. I am 6 years with CLL. My skin issues keep getting worse and my Oncologist has just recommended a 4 week (once per week) infusion of Rituxan. Does anyone have experience with this? Thankful this is a minor issue. Thank you!
Hello everyone. I am 6 years with CLL. My skin issues keep getting worse and my Oncologist has just recommended a 4 week (once per week) infusion of Rituxan. Does anyone have experience with this? Thankful this is a minor issue. Thank you!
mkuhlman
in
CLL Support
3 years ago
COVID-19 and leukaemia - Leukaemia Care Webinar
On todays webinar regarding COVID-19 and
leukaemia
, it was mentioned that there was a recruiting study for Covid antibodies in patients where the results are passed back to individual. Anyone know of this study?
On todays webinar regarding COVID-19 and
leukaemia
, it was mentioned that there was a recruiting study for Covid antibodies in patients where the results are passed back to individual. Anyone know of this study?
RobertCLL
in
CLL Support
3 years ago
Good conduct
As someone with
leukaemia
I would be stupid not to be. What caused him to comment on that topic I do not know but his stance is in keeping with his recent posts.
As someone with
leukaemia
I would be stupid not to be. What caused him to comment on that topic I do not know but his stance is in keeping with his recent posts.
Hidden
Ambassador
in
Men's Health Forum (Penis Health)
3 years ago
Acalabrutinib Plus Venetoclax and Obinutuzumab Achieves High Bone Marrow uMRD Rate in Chronic Lymphocytic Leukemia - CLL
Acalabrutinib, venetoclax, and obinutuzumab as frontline treatment for chronic lymphocytic
leukaemia
: a single-arm, open-label, phase 2 study.
Acalabrutinib, venetoclax, and obinutuzumab as frontline treatment for chronic lymphocytic
leukaemia
: a single-arm, open-label, phase 2 study.
AussieNeil
Partner
in
CLL Support
3 years ago
Step out for Spot Leukaemia to help fund support for people affected by a diagnosis of leukaemia
September is Blood Cancer Awareness Month and the
Leukaemia
Care Spot
Leukaemia
campaign begins. Please consider joining us in fundraising activities to help support people affected by a diagnosis of
leukaemia
.
September is Blood Cancer Awareness Month and the
Leukaemia
Care Spot
Leukaemia
campaign begins. Please consider joining us in fundraising activities to help support people affected by a diagnosis of
leukaemia
.
HAIRBEAR_UK
in
Leukaemia Support
3 years ago
Antibody test, optimal timing
hi from Poland I have been on Zanubrutinib (small molecule inhibitor of Bruton's tyrosine kinase) for three years. I had a moderna booster two weeks ago. I wonder after how long to do the antibody test. I called 5 different labs and they suggested doing a blood test over a period of two weeks to six
hi from Poland I have been on Zanubrutinib (small molecule inhibitor of Bruton's tyrosine kinase) for three years. I had a moderna booster two weeks ago. I wonder after how long to do the antibody test. I called 5 different labs and they suggested doing a blood test over a period of two weeks to six
BART4
in
CLL Support
3 years ago
Abstract in regard to P-LL as a diagnosis entity is an interesting read and proposal
While there is no definitive decision, there is clinically-based validity to the suggestion. We have a few members who are diagnosed P-LL (P-LL is rarer than CLL, so numbers are few) who can relate to this as they are being treated much the same as we with CLL. https://mdanderson.elsevierpure.com
While there is no definitive decision, there is clinically-based validity to the suggestion. We have a few members who are diagnosed P-LL (P-LL is rarer than CLL, so numbers are few) who can relate to this as they are being treated much the same as we with CLL. https://mdanderson.elsevierpure.com
cllady01
Volunteer
in
CLL Support
3 years ago
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