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Summary Paper from Drs, Claire N. Harrison and Donal P. McLornan
Nice summary I just came across from some of the experts. I've included some outtakes I found notable. Lots more in there on R&D for MF. https://onlinelibrary.wiley.com/doi/pdf/10.1111/bjh.16573 From chart, HCT control matters. This was discovered ~2011 and is likely a big part of what we've discussed
Nice summary I just came across from some of the experts. I've included some outtakes I found notable. Lots more in there on R&D for MF. https://onlinelibrary.wiley.com/doi/pdf/10.1111/bjh.16573 From chart, HCT control matters. This was discovered ~2011 and is likely a big part of what we've discussed
EPguy
in
MPN Voice
3 years ago
Support leukaemia patients and sign our petition to keep universal access to free lateral flow tests
📜 In a recent poll by
Leukaemia
Care, 92% of patients said they benefitted from access to lateral flow tests, with 64% sharing that it benefitted their mental health.
📜 In a recent poll by
Leukaemia
Care, 92% of patients said they benefitted from access to lateral flow tests, with 64% sharing that it benefitted their mental health.
HAIRBEAR_UK
in
Leukaemia Support
3 years ago
Leukaemia Care webinar - COVID-19 and leukaemia; what more do we know?
Helen is a clinical lecturer leading research into optimising vaccination strategies and minimising infection risk in patients with
leukaemia
Webinar details
Date: Tuesday 28th September Time: 4:30pm Topic: COVID-19 and
leukaemia
; what more do we know?
Helen is a clinical lecturer leading research into optimising vaccination strategies and minimising infection risk in patients with
leukaemia
Webinar details
Date: Tuesday 28th September Time: 4:30pm Topic: COVID-19 and
leukaemia
; what more do we know?
HAIRBEAR_UK
in
Leukaemia Support
3 years ago
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3.30pm 14th October webinar - Immunisations and living with the challenges of a compromised immune system with CLL
Leukaemia
Care have organised this webinar to follow on from yesterday's webinar for people affected by a diagnosis of CLL .
Leukaemia
Care have organised this webinar to follow on from yesterday's webinar for people affected by a diagnosis of CLL .
HAIRBEAR_UK
in
Leukaemia Support
3 years ago
Venetoclax and calquence combo for Cll
Anyone have experience with V and Calquence together? My husband has been on calquence 4 months but Haemotolgist states his bone marrow still 80 to 90% full of cancerous lymphocytes. Doc wants V and R but husband has had no issues with Calquence and would prefer to stay on it along with Venetoclax. Lymphocytes
Anyone have experience with V and Calquence together? My husband has been on calquence 4 months but Haemotolgist states his bone marrow still 80 to 90% full of cancerous lymphocytes. Doc wants V and R but husband has had no issues with Calquence and would prefer to stay on it along with Venetoclax. Lymphocytes
smirnof
in
CLL Support
2 years ago
Mutations in MPNs to “interfere-on »
IFNα therapy has been shown to deplete the MPN HSPC pool through activation and exit from a quiescent state and induction of differentiation. These biological effects seem to be influenced by driver mutation status, JAK2V617F homozygosity, and dosing approach. The clinical implication of the findings
IFNα therapy has been shown to deplete the MPN HSPC pool through activation and exit from a quiescent state and induction of differentiation. These biological effects seem to be influenced by driver mutation status, JAK2V617F homozygosity, and dosing approach. The clinical implication of the findings
Manouche
in
MPN Voice
3 years ago
How do majority of CLL patients respond to Rituximab and venetoclax and what are common side effects?
Calquence not working to clear cll from bone marrow. Can person continue to do rather heavy work while on V and R?
Calquence not working to clear cll from bone marrow. Can person continue to do rather heavy work while on V and R?
smirnof
in
CLL Support
3 years ago
Shopping on AmazonSmile helps your CLL Charity!!!
I just received this for my CLL Society Charity: This is the quarterly notification to inform you that AmazonSmile has made a charitable donation to the charity you’ve selected, Leukemia & Lymphoma Society, in the amount of $79,087.73 as a result of qualifying purchases made by you and other customers
I just received this for my CLL Society Charity: This is the quarterly notification to inform you that AmazonSmile has made a charitable donation to the charity you’ve selected, Leukemia & Lymphoma Society, in the amount of $79,087.73 as a result of qualifying purchases made by you and other customers
WinJ3
in
CLL Support
3 years ago
The combinations are here...
Johnson today announced the submission of a Type II variation application to the European Medicines Agency (EMA) seeking approval of a new treatment option for IMBRUVICA® (ibrutinib) as a fixed-duration combination with venetoclax (I+V) for adult patients with previously untreated chronic lymphocytic
leukaemia
Johnson today announced the submission of a Type II variation application to the European Medicines Agency (EMA) seeking approval of a new treatment option for IMBRUVICA® (ibrutinib) as a fixed-duration combination with venetoclax (I+V) for adult patients with previously untreated chronic lymphocytic
leukaemia
MovingForward4423
in
CLL Support
3 years ago
Share with your contacts how they can become a spotty super hero during September for Blood Cancer Awareness Month! Or have a go yourself.
something to raise awareness for Spot
Leukaemia
.
something to raise awareness for Spot
Leukaemia
.
HAIRBEAR_UK
in
Leukaemia Support
3 years ago
Wednesday is the start of Blood Cancer Awareness Month - Help raise awareness of the signs and symptoms of leukaemia to save lives
Currently, patients with
leukaemia
have a significantly higher rate of emergency diagnosis than other forms of cancer. The highest emergency presentation rates for any cancer type occur in acute lymphoblastic
leukaemia
(ALL), at 66% of patients.
Currently, patients with
leukaemia
have a significantly higher rate of emergency diagnosis than other forms of cancer. The highest emergency presentation rates for any cancer type occur in acute lymphoblastic
leukaemia
(ALL), at 66% of patients.
HAIRBEAR_UK
in
Leukaemia Support
3 years ago
Just diagnosed
42 year old speech therapist diagnosed with large granular lymphocytic leukemia day after thanksgiving 2021. Haven’t had my first appointment yet. No idea what to ask or what treatments will he recommended.
42 year old speech therapist diagnosed with large granular lymphocytic leukemia day after thanksgiving 2021. Haven’t had my first appointment yet. No idea what to ask or what treatments will he recommended.
basketballmom645_US
in
Leukaemia Support
3 years ago
Myelofibrosis and nausea
Hi everyone. I was diagnosed with Prefibrotic Myelofibrosis 3 years ago and current take asprin and 500mg Hu 8 times a week. I take the medication in the mornings with breakfast. The last few weeks I have been waking feeling nauseous- once I have eaten it eases but if I am late having lunch it returns
Hi everyone. I was diagnosed with Prefibrotic Myelofibrosis 3 years ago and current take asprin and 500mg Hu 8 times a week. I take the medication in the mornings with breakfast. The last few weeks I have been waking feeling nauseous- once I have eaten it eases but if I am late having lunch it returns
kiwitraveller
in
MPN Voice
3 years ago
Step Out For Spot Leukaemia during Blood Cancer Awareness Month
There's still time to sign up for this September's Step Out for Spot
Leukaemia
challenge!
There's still time to sign up for this September's Step Out for Spot
Leukaemia
challenge!
HAIRBEAR_UK
in
Leukaemia Support
3 years ago
SAVE the date and prepare to get involved only 5 days to go until World Leukaemia Day.
It’s the one day of the year people from all around the world can come together to help raise awareness of
leukaemia
and educate the world on the signs and symptoms of the condition, we can work together to help
leukaemia
patients get diagnosed sooner to improve outcomes.
It’s the one day of the year people from all around the world can come together to help raise awareness of
leukaemia
and educate the world on the signs and symptoms of the condition, we can work together to help
leukaemia
patients get diagnosed sooner to improve outcomes.
HAIRBEAR_UK
in
Leukaemia Support
3 years ago
HELP—Positive COVID test
Hi all, I’m thankful for this community, I’m a long time reader, I don’t comment often but I need some advice tonight. My mom was diagnosed with CLL in Spring 2019. She is on ibrutinib and her lymphocytes have come down from 711 (!) in May 2019 to 98 a few months ago at her last appointment. She developed
Hi all, I’m thankful for this community, I’m a long time reader, I don’t comment often but I need some advice tonight. My mom was diagnosed with CLL in Spring 2019. She is on ibrutinib and her lymphocytes have come down from 711 (!) in May 2019 to 98 a few months ago at her last appointment. She developed
DaughterofCLLfighter
in
CLL Support
3 years ago
Which monoclonal antibody would work with omicron covid 19?
Which monoclonal antibody would work with omicron covid 19? Reposted from CLLSLL@groups.io : https://groups.io/g/CLLSLL/message/32338 with permission from the author - [i] From: Rick Furman Date: Sat, 18 Dec 2021 19:29:29 EST Right now, the majority of variants isolated in the US are still delta
Which monoclonal antibody would work with omicron covid 19? Reposted from CLLSLL@groups.io : https://groups.io/g/CLLSLL/message/32338 with permission from the author - [i] From: Rick Furman Date: Sat, 18 Dec 2021 19:29:29 EST Right now, the majority of variants isolated in the US are still delta
lankisterguy
Volunteer
in
CLL Support
3 years ago
Webinar tomorrow - Leukaemia Care & ACAS – I have leukaemia: what are my rights at work?
Webinar details
Date: Wednesday 15th September Time: 3:30pm Topic: I have
leukaemia
: what are my rights at work? Host:
Leukaemia
Care & ACAS
How do I join the webinar?
The webinar is being hosted on Zoom and Facebook, meaning you can choose a platform to suit you.
Webinar details
Date: Wednesday 15th September Time: 3:30pm Topic: I have
leukaemia
: what are my rights at work? Host:
Leukaemia
Care & ACAS
How do I join the webinar?
The webinar is being hosted on Zoom and Facebook, meaning you can choose a platform to suit you.
HAIRBEAR_UK
in
Leukaemia Support
3 years ago
Night Sweats
I was diagnosed in March 2020 and have had treatment with both Ibrutinib and Venetoclax. I am currently on no chemo drugs and may restart Venetoclax late January 2022. My blood counts have been continuously low and particulary in 2021 I had to spend time in hospital while I received anti-biotics and
I was diagnosed in March 2020 and have had treatment with both Ibrutinib and Venetoclax. I am currently on no chemo drugs and may restart Venetoclax late January 2022. My blood counts have been continuously low and particulary in 2021 I had to spend time in hospital while I received anti-biotics and
Dym230109
in
CLL Support
3 years ago
Webinar - 3.30pm 17th December - Making the best of your CLL medical appointments
This webinar will focus on how CLL patients can get the most out of their medical appointments, regardless of purpose, format and at whatever stage of your pathway. You can join us and register here: https://us02web.zoom.us/webinar/register/WN_5vLIQeuNQSi2os7pGy1VtQ The aims of the webinar are: · To
This webinar will focus on how CLL patients can get the most out of their medical appointments, regardless of purpose, format and at whatever stage of your pathway. You can join us and register here: https://us02web.zoom.us/webinar/register/WN_5vLIQeuNQSi2os7pGy1VtQ The aims of the webinar are: · To
HAIRBEAR_UK
in
Leukaemia Support
3 years ago
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