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Any opinions on these results before I see the specialist next week?
[i]I had a bone marrow biopsy done and the flow cytometry results were posted on the hospital website today. I don't see my doctor until next week so I thought that I would post the results here to get some opinions before I see him. I know that the CD38 positive at 41% is not good. Anything else
[i]I had a bone marrow biopsy done and the flow cytometry results were posted on the hospital website today. I don't see my doctor until next week so I thought that I would post the results here to get some opinions before I see him. I know that the CD38 positive at 41% is not good. Anything else
hhk50
in
CLL Support
6 years ago
My new CLL Treatment
My oncologist is recommending a drip of Rituxan and Bendamustine for my CLL treatment to replace Imbruvica since I had heart issues with this drug. Is anyone else getting this treatment? If so, any serious side effects?
My oncologist is recommending a drip of Rituxan and Bendamustine for my CLL treatment to replace Imbruvica since I had heart issues with this drug. Is anyone else getting this treatment? If so, any serious side effects?
umpireman
in
CLL Support
6 years ago
LDH level 525 anaemia
Hai sir my wife LDH level 525and severe anaemia hb6.2 only..20 days before 3 unit blood transfusion over but again hb down..ferrittin test 1100...how to control hb..this is cancer or not
Hai sir my wife LDH level 525and severe anaemia hb6.2 only..20 days before 3 unit blood transfusion over but again hb down..ferrittin test 1100...how to control hb..this is cancer or not
abinjosephranni
in
CLL Support
6 years ago
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CLL Society Alert- Toronto Support Group Poll, Dr. Hallek interview, European Hematology Assoc. & Patient meetings in person and online.
While the CLL Society has a USA foundation ( just as the HU CLL SA started in UK) this month's email update has some articles that may be of interest to Canadian and European readers: http://campaign.r20.constantcontact.com/render?m=1120967015548&ca=6fce9f05-a2ef-417d-ac35-2545753a8d95 https://cllsociety.org
While the CLL Society has a USA foundation ( just as the HU CLL SA started in UK) this month's email update has some articles that may be of interest to Canadian and European readers: http://campaign.r20.constantcontact.com/render?m=1120967015548&ca=6fce9f05-a2ef-417d-ac35-2545753a8d95 https://cllsociety.org
lankisterguy
Volunteer
in
CLL Support
6 years ago
My own Watch Wait and Worry CLL story
The day lukaemia changed my life: http://wp.production.patheos.com/blogs/sites/298/2018/04/The-day-
leukaemia
-changed-my-life.pdf
The day lukaemia changed my life: http://wp.production.patheos.com/blogs/sites/298/2018/04/The-day-
leukaemia
-changed-my-life.pdf
AdrianUK
in
Leukaemia CARE
6 years ago
Mbl cll like
Hello ! This is my first post !! 1 and a half year ago at the age of 29 i had a blood test that showed my wbc around 13000 and alc around 7000. After a flow cytometry test i was diagnosed with monoclonal b lympocytosis (mbl cll like). I have no other symptoms till then only raised wbc and alc. I do
Hello ! This is my first post !! 1 and a half year ago at the age of 29 i had a blood test that showed my wbc around 13000 and alc around 7000. After a flow cytometry test i was diagnosed with monoclonal b lympocytosis (mbl cll like). I have no other symptoms till then only raised wbc and alc. I do
Ioti
in
CLL Support
6 years ago
SCT just got real.
I had my bone marrow trephine 2 weeks ago and, having not recieved a follow up appointment, decided to call the hospital this morning. Imagine my surprise when the nurse not only tells me that I have a date for the pre transplant tests, but an admission date for the SCT too. All became very real suddenly
I had my bone marrow trephine 2 weeks ago and, having not recieved a follow up appointment, decided to call the hospital this morning. Imagine my surprise when the nurse not only tells me that I have a date for the pre transplant tests, but an admission date for the SCT too. All became very real suddenly
KAS8
in
CLL Support
6 years ago
Dilated Cardiomyopathy at 33
It appears it’s been caused by chemotherapy I had for
Leukaemia
12 years ago. I’m absolutely terrified and would love to hear from anyone else living well with dilated cardiomyopathy, any tips or support will be hugely appreciated, Thank you xxx
It appears it’s been caused by chemotherapy I had for
Leukaemia
12 years ago. I’m absolutely terrified and would love to hear from anyone else living well with dilated cardiomyopathy, any tips or support will be hugely appreciated, Thank you xxx
CharlieLNicholls
in
British Heart Foundation
6 years ago
Newcomer
Hi everyone I've recently been diagnosed with cll and tomorrow..I have my ct scan...I can't help feeling I'm going to die..it came as a shock as I only went for cholesterol test. My doctor ordered more tests and within a week I had marrow biopsy and results. I have no real symptoms.. and work really
Hi everyone I've recently been diagnosed with cll and tomorrow..I have my ct scan...I can't help feeling I'm going to die..it came as a shock as I only went for cholesterol test. My doctor ordered more tests and within a week I had marrow biopsy and results. I have no real symptoms.. and work really
Feelsolow
in
CLL Support
6 years ago
MPN New Zealand Information and Support and MPN Australia & NZ Myeloproliferative Neoplasm Support Community - Facebook Groups
Hi everyone, For those of you on here that are are in Australia and New Zealand I just wanted to let you know that are now two great Facebook Groups for people with MPNs, survivors of MPNs, and their families and carers. They are closed groups so only members can see posts. Some of you may already know
Hi everyone, For those of you on here that are are in Australia and New Zealand I just wanted to let you know that are now two great Facebook Groups for people with MPNs, survivors of MPNs, and their families and carers. They are closed groups so only members can see posts. Some of you may already know
Wentry
in
MPN Voice
6 years ago
FDA Approves Venetoclax (VENCLEXTA) For CLL or SLL with or without 17p deletion, who have received at least one prior therapy
FDA Approves Venetoclax (VENCLEXTA) For Chronic Lymphocytic Leukemia or Small Lymphocytic Leukemia http://support.lymphoma.org/site/MessageViewer?em_id=2683.0&dlv_id=5995 On June 8, 2018, the U.S. Food and Drug Administration (FDA) approved the use of venetoclax (VENCLEXTA) for the treatment of
FDA Approves Venetoclax (VENCLEXTA) For Chronic Lymphocytic Leukemia or Small Lymphocytic Leukemia http://support.lymphoma.org/site/MessageViewer?em_id=2683.0&dlv_id=5995 On June 8, 2018, the U.S. Food and Drug Administration (FDA) approved the use of venetoclax (VENCLEXTA) for the treatment of
lankisterguy
Volunteer
in
CLL Support
6 years ago
LIVE and OBSERVE
As a CLL patient the past 6 years and reading this encouraging and productive forum the past 3 years, I keep hearing the words WATCH and WAIT. It's about time everyone with this blood disorder whether you are in treatment or not have the medical profession embrace 3 better words LIVE and OBSERVE for
As a CLL patient the past 6 years and reading this encouraging and productive forum the past 3 years, I keep hearing the words WATCH and WAIT. It's about time everyone with this blood disorder whether you are in treatment or not have the medical profession embrace 3 better words LIVE and OBSERVE for
bacimio
in
CLL Support
6 years ago
Cardiff Innovation and Impact Awards 2018, Cancer prognostic testing innovation is nominated as finalist, your vote counts.
' [i] It can forecast the outcome of common cancer types like breast cancer and Chronic Lymphocytic
Leukaemia
(CLL), and help identify patients who do, and do not, require early treatment.
' [i] It can forecast the outcome of common cancer types like breast cancer and Chronic Lymphocytic
Leukaemia
(CLL), and help identify patients who do, and do not, require early treatment.
HAIRBEAR_UK
Administrator
in
Leukaemia CARE
6 years ago
which Chronic leukemia
is worse? none is worse, right? different, but the same in that sense, right? Also, anyone a good CML forum? last Dr wanted to treat CLL, he missed the CML. second, this time a specialist in both, said no, we'll treat the CML. Fyi, my CML blasts are, by bmb, 2%. Don't you think I should W&W that
is worse? none is worse, right? different, but the same in that sense, right? Also, anyone a good CML forum? last Dr wanted to treat CLL, he missed the CML. second, this time a specialist in both, said no, we'll treat the CML. Fyi, my CML blasts are, by bmb, 2%. Don't you think I should W&W that
tedrog
in
CLL Support
6 years ago
ASH 2017: Dr. Richard Furman on the importance of MCL-1 in CLL (chronic lymphocytic leukemia)
Just watched a video on MCL-1 and thought our group might be interested (if not already aware!). From the CLL Society website: As good as venetoclax is as a single agent, there are now many studies that show even more remarkable responses occur when it is used in combination with ibrutinib or rituximab
Just watched a video on MCL-1 and thought our group might be interested (if not already aware!). From the CLL Society website: As good as venetoclax is as a single agent, there are now many studies that show even more remarkable responses occur when it is used in combination with ibrutinib or rituximab
hsouter
in
CLL Support
6 years ago
So Very Blessed
Good Morning fellow CLL sufferers , I have recently received the results from my latest six month blood work and exam. My white count only went from 29,000 to 33,000 so no where near doubling. Doc said my other numbers are all still looking good. He had told me six months ago that we might be looking
Good Morning fellow CLL sufferers , I have recently received the results from my latest six month blood work and exam. My white count only went from 29,000 to 33,000 so no where near doubling. Doc said my other numbers are all still looking good. He had told me six months ago that we might be looking
BlueGillfisherman
in
CLL Support
6 years ago
Prefibrotic Primary Myelofibrosis
Has anyone been diagnosed or know how quickly prefibrotic Primary Myelofibrosis will develop to Myelofibrosis. I am new here and been diagnosed couple days ago....I am trying not to panic but ending up crying all the time. Need to find some positivity in my life soon. Sorry for very negative post
Has anyone been diagnosed or know how quickly prefibrotic Primary Myelofibrosis will develop to Myelofibrosis. I am new here and been diagnosed couple days ago....I am trying not to panic but ending up crying all the time. Need to find some positivity in my life soon. Sorry for very negative post
Elab
in
MPN Voice
6 years ago
IMPORTANT Update on Developments in UK regarding Access to Ibrutinib for R/R patients in line with NICE.
*Note this is an unlocked post*
There have been several developments since the last update. As of this morning, this is the current situation. * There is now a petition - please circulate to your family and friends https://petition.parliament.uk/petitions/220038 * In an answer to Parliamentary
*Note this is an unlocked post*
There have been several developments since the last update. As of this morning, this is the current situation. * There is now a petition - please circulate to your family and friends https://petition.parliament.uk/petitions/220038 * In an answer to Parliamentary
Jm954
Administrator
in
CLL Support
6 years ago
MF (an acronym I often used, It'll never mean the same again!).
So finally I have gotten round to writing this post, it's about the third attempt! the last one got most the way through and my finger twitched left on the magic mouse and poof it was all gone :( Ok, so Monday was the results of my BMB. Unfortunately, they have confirmed that I have Myelofibrosis! "Low
So finally I have gotten round to writing this post, it's about the third attempt! the last one got most the way through and my finger twitched left on the magic mouse and poof it was all gone :( Ok, so Monday was the results of my BMB. Unfortunately, they have confirmed that I have Myelofibrosis! "Low
P-O-T-S
in
MPN Voice
6 years ago
Need Help Understanding New Gene Mutation in CLL/SLL
Hello to everyone! Thanks to all for providing a safe, positive place to read about like souls sharing this same nasty journey. Every time I feel a cancer panic coming on, this is the first place I turn for comfort. I am a long time lurker but first time poster. I was first diagnosed with CLL/SLL in
Hello to everyone! Thanks to all for providing a safe, positive place to read about like souls sharing this same nasty journey. Every time I feel a cancer panic coming on, this is the first place I turn for comfort. I am a long time lurker but first time poster. I was first diagnosed with CLL/SLL in
PCara90
in
CLL Support
6 years ago
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