Search
Search
About
Log in
Join
Experiences with
Leukaemia
Posts
Communities
3,302 public posts
Filter results
Borderline TSH during cancer treatment
Haven't been on here for some time but in the interim I have been treated for Chronic Myeloid
Leukaemia
. Had chemo in September last year which was successful (minus a few hiccups like fungal pneumonia that put me in ICU!) and currently on home oral chemo, antifungals and antibiotics daily.
Haven't been on here for some time but in the interim I have been treated for Chronic Myeloid
Leukaemia
. Had chemo in September last year which was successful (minus a few hiccups like fungal pneumonia that put me in ICU!) and currently on home oral chemo, antifungals and antibiotics daily.
spongecat
in
Thyroid UK
1 month ago
Diagnosed 2015 complete CBC has changed
last phlebotomy was in June of 2023, since then my HCT is stuck @ 39, HGB is now @ 11.9, MCV,MCH,MCH are dropping each month, RBC is stable @ 5. My ferritin is now 7 with iron @ 21 and % sat @. 5. TIBC AND UIBC are elevated. Fecal test normal no blood. I am exhausted no energy sleeping way too
last phlebotomy was in June of 2023, since then my HCT is stuck @ 39, HGB is now @ 11.9, MCV,MCH,MCH are dropping each month, RBC is stable @ 5. My ferritin is now 7 with iron @ 21 and % sat @. 5. TIBC AND UIBC are elevated. Fecal test normal no blood. I am exhausted no energy sleeping way too
Pickleball11
in
MPN Voice
10 months ago
Should I be worried?
Hi All, my Haemo Lady, just called me with my Bone Marrow Biopsy results, She, said they were heavily infiltrated with CLL. A recent body scan also showed a large lump in my stomach, she is not sure if it is related to my CLL, or perhaps an aggressive lymphoma. She has ordered a needle biopsy of this
Hi All, my Haemo Lady, just called me with my Bone Marrow Biopsy results, She, said they were heavily infiltrated with CLL. A recent body scan also showed a large lump in my stomach, she is not sure if it is related to my CLL, or perhaps an aggressive lymphoma. She has ordered a needle biopsy of this
Vindicatrix
in
CLL Support
7 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
venetoclax and obinutuzumab treatment for cll
Hi, I have finished the above 12 months treatment for cll tp53 mutated, I now have 2 monthly checks and my lymphocytes are low, is this a cause for concern?
Hi, I have finished the above 12 months treatment for cll tp53 mutated, I now have 2 monthly checks and my lymphocytes are low, is this a cause for concern?
dellkota
in
CLL Support
7 months ago
Carnivore Keto Issues and Concerns Especially For Parkinson's.
Viruses- Bovine
Leukaemia
/ Bird Flu. 3. Vaccine & Antibiotic Overloads. 4. Bacteria Residues Inflammatory. 5. Prions / Mad Cow Disease CJD. 6. Iron Overload / Ferroptosis. 7. Saturated Fat / Cholesterol. 8. Kidney Dysfunctions. 9. Constipation & Bowel Disorders. 10.
Viruses- Bovine
Leukaemia
/ Bird Flu. 3. Vaccine & Antibiotic Overloads. 4. Bacteria Residues Inflammatory. 5. Prions / Mad Cow Disease CJD. 6. Iron Overload / Ferroptosis. 7. Saturated Fat / Cholesterol. 8. Kidney Dysfunctions. 9. Constipation & Bowel Disorders. 10.
Thal
in
Cure Parkinson's
2 months ago
First six-month blood test, and my lymphocytes have gone down!
I’m soon to be 55. I was diagnosed in the UK with MBL this summer. My lymphocytes were at six with over 50% of them monoclonal cells. I’ve just had my six-month check. I’ve come down to 4.8. I know that these numbers can move around quite a lot, but for now I’m really happy with the trend. I did change
I’m soon to be 55. I was diagnosed in the UK with MBL this summer. My lymphocytes were at six with over 50% of them monoclonal cells. I’ve just had my six-month check. I’ve come down to 4.8. I know that these numbers can move around quite a lot, but for now I’m really happy with the trend. I did change
Jazzandblues
in
CLL Support
7 months ago
mild struggles
Next
leukaemia
doctor chat in three months time. Had covid jab today on top of sinus infection. Tired! Feeling a bit low physically and emotionally. Just so hard to keep up with people who don’t have CLL felt like posting. Sorry to all the people who are really struggling.
Next
leukaemia
doctor chat in three months time. Had covid jab today on top of sinus infection. Tired! Feeling a bit low physically and emotionally. Just so hard to keep up with people who don’t have CLL felt like posting. Sorry to all the people who are really struggling.
Corin850
in
CLL Support
10 months ago
CLL Patients -- Venclexta
I am looking for CLL patients in the U.S. who have been diagnosed within 3-4 years and who are taking Venclexta as their treatment. I work with an organization (Patient Power) that shares patient stories to help advocate and educate others on various cancers. By sharing your journey, you can help support
I am looking for CLL patients in the U.S. who have been diagnosed within 3-4 years and who are taking Venclexta as their treatment. I work with an organization (Patient Power) that shares patient stories to help advocate and educate others on various cancers. By sharing your journey, you can help support
AlexCam
in
CLL Support
7 months ago
UK NICE Approves Ibrutinib +Venetoclax for First Line treatment for ALL Patients from today
This has been addressed by committee because ibrutinib plus venetoclax has been recommended for everyone with untreated chronic lymphocytic
leukaemia
.[/i] Please ask your doctor if this is suitable for you if you are approaching treatment for the first time. Jackie
This has been addressed by committee because ibrutinib plus venetoclax has been recommended for everyone with untreated chronic lymphocytic
leukaemia
.[/i] Please ask your doctor if this is suitable for you if you are approaching treatment for the first time. Jackie
Jm954
Administrator
in
CLL Support
1 year ago
Calquence / acalabrutinib and Brukinsa / zanubrutinib Adverse Event Comparison for Chronic Lymphocytic Leukaemia / CLL from clinical trials
Now that we have a growing choice of BTK inhibitor treatment options, naturally the question is which one is better? Based on this meta-analysis study of the incidence of 84 Adverse Events (AEs) reported in 61 clinical trials involving nearly 7,000 patients, that question should be better framed as
Now that we have a growing choice of BTK inhibitor treatment options, naturally the question is which one is better? Based on this meta-analysis study of the incidence of 84 Adverse Events (AEs) reported in 61 clinical trials involving nearly 7,000 patients, that question should be better framed as
AussieNeil
Partner
in
CLL Support
1 year ago
New to the group. Should I worry concerning my latest blood results?
New to the group. First post even if I regularly read what is posted. Dx in March 2023. But CLL for at least 2 years. Unmutated, triso 12 and q (14,19). On W&W. 53 years old. I had an appointment with my Cll doctor one month ago and a bit worried. Wbc 48 000 Monocytes 12000 ALC 29 000 LDH 550 I understood
New to the group. First post even if I regularly read what is posted. Dx in March 2023. But CLL for at least 2 years. Unmutated, triso 12 and q (14,19). On W&W. 53 years old. I had an appointment with my Cll doctor one month ago and a bit worried. Wbc 48 000 Monocytes 12000 ALC 29 000 LDH 550 I understood
povhgc
in
CLL Support
7 months ago
Interactive Tool for Managing BTK Inhibitor−Associated AEs in Hematologic Malignancies: A Global Perspective
The following is intended for medical professionals and uses moderate Med-Speak - you may need to register and download the app to use it as intended. -Len ++++++++++++++++++++++++++++ Interactive Tool for Managing BTK Inhibitor−Associated AEs in Hematologic Malignancies: A Global Perspective
The following is intended for medical professionals and uses moderate Med-Speak - you may need to register and download the app to use it as intended. -Len ++++++++++++++++++++++++++++ Interactive Tool for Managing BTK Inhibitor−Associated AEs in Hematologic Malignancies: A Global Perspective
lankisterguy
Volunteer
in
CLL Support
10 months ago
Transformation of Richter's Transformation Treatment to combination targeted therapy - tislelizumab +zanubrutinib (ASH 2023)
Richter's Transformation treatments are typically fixed term R-CHOP*, or modifications of that chemoimmunity therapy. So it's encouraging to hear that [i]"In a phase 2 trial, anti-PD-1 inibitor tislelizumab + next gen BTK inhibitor zanubrutinib had an overall response rate of 58.3% in patients with Richter's
Richter's Transformation treatments are typically fixed term R-CHOP*, or modifications of that chemoimmunity therapy. So it's encouraging to hear that [i]"In a phase 2 trial, anti-PD-1 inibitor tislelizumab + next gen BTK inhibitor zanubrutinib had an overall response rate of 58.3% in patients with Richter's
AussieNeil
Partner
in
CLL Support
7 months ago
AI and CLL
it hasn’t really been covered here yet, but AI and ML is beginning to influence medicine. With all the big techs chasing AI development, the ability for AI to discover new novel proteins at a rate beyond what could ever happen in a lab. We are likely to see an uptick in treatments and maybe even cures
it hasn’t really been covered here yet, but AI and ML is beginning to influence medicine. With all the big techs chasing AI development, the ability for AI to discover new novel proteins at a rate beyond what could ever happen in a lab. We are likely to see an uptick in treatments and maybe even cures
MovingForward4423
in
CLL Support
7 months ago
Is it or ain't it?
Doing a bit of research into B12 deficiency I find that the condition can look very like
leukaemia
. A part of me wonders where I would be now if I had been tested five years ago for B12. Anyone else in a similar situation? John
Doing a bit of research into B12 deficiency I find that the condition can look very like
leukaemia
. A part of me wonders where I would be now if I had been tested five years ago for B12. Anyone else in a similar situation? John
niceone01
in
CLL Support
11 months ago
Relative risk for secondary bone marrow cancer within 5 years after initial CLL chemoimmunotherapy treatment (typically BR or FCR)
Unfortunately, the chemo constituents of FCR bring with them around a 10% risk of the subsequent development of Acute Myeloid
Leukaemia
(AML) or a Myelodysplastic Syndrome (MDS), where your bone marrow increasingly struggles to make blood cells.
Unfortunately, the chemo constituents of FCR bring with them around a 10% risk of the subsequent development of Acute Myeloid
Leukaemia
(AML) or a Myelodysplastic Syndrome (MDS), where your bone marrow increasingly struggles to make blood cells.
AussieNeil
Partner
in
CLL Support
1 year ago
Statin use, survival and incidence of thrombosis among older patients with polycythemia vera and essential thrombocythemia
Conclusions These findings suggest that it may be important to incorporate statins into the therapeutic strategy for older adults with PV and ET. https://onlinelibrary.wiley.com/doi/10.1002/cam4.6528
Conclusions These findings suggest that it may be important to incorporate statins into the therapeutic strategy for older adults with PV and ET. https://onlinelibrary.wiley.com/doi/10.1002/cam4.6528
Manouche
in
MPN Voice
10 months ago
How you can help make ibrutinib plus venetoclax fixed duration therapy a reality for Australians with previously untreated CLL
In Australia, no new medicine can be listed on the Pharmaceutical Benefits Scheme (PBS) unless it has first been recommended by the Pharmaceutical Benefits Advisory Committee (PBAC). In March 2024, PBAC will again consider a submission to recommend a 15-month combination therapy of ibrutinib plus venetoclax
In Australia, no new medicine can be listed on the Pharmaceutical Benefits Scheme (PBS) unless it has first been recommended by the Pharmaceutical Benefits Advisory Committee (PBAC). In March 2024, PBAC will again consider a submission to recommend a 15-month combination therapy of ibrutinib plus venetoclax
CLLerinOz
Administrator
in
CLL Support
7 months ago
symptoms of CLL
I was diagnosed w CLL in Dec 2019. I’m on a watch and wait protocol with blood work every 6 months. My question is if I’m not on any meds yet, can I still have symptoms of occasional extreme fatigue, recurrent infections and sometimes feeling like I’m always fighting off something? Is this caused by
I was diagnosed w CLL in Dec 2019. I’m on a watch and wait protocol with blood work every 6 months. My question is if I’m not on any meds yet, can I still have symptoms of occasional extreme fatigue, recurrent infections and sometimes feeling like I’m always fighting off something? Is this caused by
RockymtnTexan
in
CLL Support
7 months ago
new to Group
hello, I’m New to this group. I’m hoping for some basic information regarding how you live with leukemia. I have chronic kidney disease. I received a deceased donor transplant 13 months ago. My transplant team has had real difficulty dealing with dangerously low white blood cell count. I’ve received
hello, I’m New to this group. I’m hoping for some basic information regarding how you live with leukemia. I have chronic kidney disease. I received a deceased donor transplant 13 months ago. My transplant team has had real difficulty dealing with dangerously low white blood cell count. I’ve received
Jayhawker
in
CLL Support
7 months ago
1
...
8
9
10
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
CLL Support
1816 results
MPN Voice
841 results
Leukaemia Support
270 results
View top 10 communities
Sort by
Most Relevant
Newest