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High AST and alt levels
Hello, all, I just received a copy of my blood chemistry I had last week and it said my AST and AL T levels are high. Of course, I didn’t know what that was so I googled it and it said I could have liver damage. Does anyone know if this is a side effect of medication like hydroxy or jakafi? I am seeing
Hello, all, I just received a copy of my blood chemistry I had last week and it said my AST and AL T levels are high. Of course, I didn’t know what that was so I googled it and it said I could have liver damage. Does anyone know if this is a side effect of medication like hydroxy or jakafi? I am seeing
Cja1956
in
MPN Voice
5 years ago
Waiting for BMB results (gulp)
Between 10 to 20% of MF patients may develop acute myeloid
leukaemia
(AML), a type of blood and bone marrow cancer that progresses rapidly." http://www.mpnvoice.org.uk/about-mpns/questions-about-mpns/myelofibrosis.aspx Still adjusting to the PV Jak2 diagnosis at age 50: PLT 646 (down from 865 in a
Between 10 to 20% of MF patients may develop acute myeloid
leukaemia
(AML), a type of blood and bone marrow cancer that progresses rapidly." http://www.mpnvoice.org.uk/about-mpns/questions-about-mpns/myelofibrosis.aspx Still adjusting to the PV Jak2 diagnosis at age 50: PLT 646 (down from 865 in a
ilovetoastwithbutter
in
MPN Voice
5 years ago
Ighv mutated
I found out last week that I am IGHV mutated. (Apparently that’s a good thing) It means I respond really well to the chemo. I was also told by my specialist that next month she wants another CT scan & another bone marrow biopsy. She said if they come back with good results then we might stop a three
I found out last week that I am IGHV mutated. (Apparently that’s a good thing) It means I respond really well to the chemo. I was also told by my specialist that next month she wants another CT scan & another bone marrow biopsy. She said if they come back with good results then we might stop a three
Puckie
in
CLL Support
5 years ago
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chronic leukemia issues
I have stage 2 B chronic lymphocyte leukemia refractory, I have started chemo (leukeran) 2 months ago.2 weeks ago I started to have sharp pain in my right side, can this be cause by the chemo or the lymph nodes in my liver?
I have stage 2 B chronic lymphocyte leukemia refractory, I have started chemo (leukeran) 2 months ago.2 weeks ago I started to have sharp pain in my right side, can this be cause by the chemo or the lymph nodes in my liver?
dannydann
in
CLL Support
5 years ago
ET and blast cells - new here and overwhelmed
Hi there My husband is 32, and has just been diagnosed with ET (negative for JAK2, CALR, MPL and BCR ABL) and we are waiting on further info. His platelet count is very very high and not budging yet - around 1.7m despite taking high doses of Hydroxycarbomide for a week now (about 4g a day). All other
Hi there My husband is 32, and has just been diagnosed with ET (negative for JAK2, CALR, MPL and BCR ABL) and we are waiting on further info. His platelet count is very very high and not budging yet - around 1.7m despite taking high doses of Hydroxycarbomide for a week now (about 4g a day). All other
intothewoods
in
MPN Voice
5 years ago
CLLSA Cambridge Members Conference Mar 2019
The first talk of the day was a team presentation from the Psycho-Oncology Service, Liaison Psychiatry, Addenbrooke’s Hospital - Approaches to Psychological health in Cancer This was followed by Jackie talking about her diagnosis and treatment under the Flair trial. This was followed by an update on
The first talk of the day was a team presentation from the Psycho-Oncology Service, Liaison Psychiatry, Addenbrooke’s Hospital - Approaches to Psychological health in Cancer This was followed by Jackie talking about her diagnosis and treatment under the Flair trial. This was followed by an update on
Myrddin
in
CLL Support
5 years ago
Treatment ”options”
Hello all you wonderful people! I'm looking for hope and positive energy here... My dad was diagnosed with CLL just in December. He lives in Barcelona, Spain (edited as advised, thanks Bubnjay1) He was being treated as a private patient through his full comprehensive health insurance policy Very short
Hello all you wonderful people! I'm looking for hope and positive energy here... My dad was diagnosed with CLL just in December. He lives in Barcelona, Spain (edited as advised, thanks Bubnjay1) He was being treated as a private patient through his full comprehensive health insurance policy Very short
LurkerEmma
in
CLL Support
5 years ago
Curling 123
Imbruvica appears to be the preferred therapy from reading these posts. As a senior and in Ontario, I wonder if it is covered by OHIP or Ontario Drug Program. Seems drugs if not administered in hospital are not covered even though many cancer drugs are taken orally now. Anyone from Ontario with CLL,
Imbruvica appears to be the preferred therapy from reading these posts. As a senior and in Ontario, I wonder if it is covered by OHIP or Ontario Drug Program. Seems drugs if not administered in hospital are not covered even though many cancer drugs are taken orally now. Anyone from Ontario with CLL,
Curling123
in
CLL Support
5 years ago
Erythropoietin injections
Does anyone have experience or advice about erythropoietin injections? My husband has post PV Myelofibrosis and is taking Ruxolitinib. His hgb is drifting down -his haematologist does not think it’s caused by the Ruxolitinib but due to disease progression ( white cells are drifting up and platelets
Does anyone have experience or advice about erythropoietin injections? My husband has post PV Myelofibrosis and is taking Ruxolitinib. His hgb is drifting down -his haematologist does not think it’s caused by the Ruxolitinib but due to disease progression ( white cells are drifting up and platelets
Fika500
in
MPN Voice
5 years ago
I am CLL patient previusly treate with FR. I need to be treated again. I need some advice please.
I am a CLL patient. I have been previously treated with FR regimen for CLL. (Rituximaba plus Fludarabina) After 2.5 years, the WBC are around 30 K/ul, and platelets around 41 K. Doctors have decided to treat me again. Due to cost, unsufficient Insurance coverage, it is not possible to go to Imbruvica
I am a CLL patient. I have been previously treated with FR regimen for CLL. (Rituximaba plus Fludarabina) After 2.5 years, the WBC are around 30 K/ul, and platelets around 41 K. Doctors have decided to treat me again. Due to cost, unsufficient Insurance coverage, it is not possible to go to Imbruvica
tropicsurvivor
in
CLL Support
5 years ago
Ginseng & hydroxyurea
It's been over a month since I started taking Ginseng and it seems to be helping with the fatigue a little and every bit counts. 1,000 mg of Panax quinquefolius in the am. This is a ginseng that is grown locally and is also known as American ginseng. It was recommended over the Siberian ginseng because
It's been over a month since I started taking Ginseng and it seems to be helping with the fatigue a little and every bit counts. 1,000 mg of Panax quinquefolius in the am. This is a ginseng that is grown locally and is also known as American ginseng. It was recommended over the Siberian ginseng because
h2ogal
in
MPN Voice
5 years ago
Should "Remission" be accompanied by a Health Warning?
My
leukaemia
is not active, but I have a slew of lesser problems which have stopped me from regaining my vitality and joy of life. In retrospect I wish that my remission was not celebrated as a one dimensional success based on laboratory results.
My
leukaemia
is not active, but I have a slew of lesser problems which have stopped me from regaining my vitality and joy of life. In retrospect I wish that my remission was not celebrated as a one dimensional success based on laboratory results.
Hidden
in
CLL Support
5 years ago
In Limbo
I was diagnosed 7 years ago, at the age of 48, with Chronic Lymphocytic
Leukaemia
. Over the years I have become accustomed to the unfazed response of the haematologist at my regular blood check-ups: all stable, nothing to worry about.
I was diagnosed 7 years ago, at the age of 48, with Chronic Lymphocytic
Leukaemia
. Over the years I have become accustomed to the unfazed response of the haematologist at my regular blood check-ups: all stable, nothing to worry about.
Lapo
in
CLL Support
5 years ago
NICE approves venetoclax (VENCLYXTO) with rituximab for previously treated chronic lymphocytic leukaemia (CLL) patients
Leukaemia
Care information on chronic lymphocytic
leukaemia
(CLL), is available here. https://www.leukaemiacare.org.uk/support-and-information/information-about-blood-cancer/blood-cancer-information/
leukaemia
/chronic-lymphocytic-
leukaemia
/?
Leukaemia
Care information on chronic lymphocytic
leukaemia
(CLL), is available here. https://www.leukaemiacare.org.uk/support-and-information/information-about-blood-cancer/blood-cancer-information/
leukaemia
/chronic-lymphocytic-
leukaemia
/?
HAIRBEAR_UK
in
Leukaemia Support
6 years ago
Symptom hopping...anyone else?
Of course I was convinced it was something horrible-MS,
leukaemia
or another nasty. Last night I was lying on my arm and got woken up by a shooting pain deep in my shoulder and this morning my arm feels much better so I think my nerve has been freed from where it was trapped.
Of course I was convinced it was something horrible-MS,
leukaemia
or another nasty. Last night I was lying on my arm and got woken up by a shooting pain deep in my shoulder and this morning my arm feels much better so I think my nerve has been freed from where it was trapped.
gemp54
in
Anxiety Support
5 years ago
A Funny PIP assessment tale!
Yesterday I attended my induction day for a pain management program. It was an excellent day and the staff were excellent. During the the breaks all the course members talked about their conditions, problems, PIP etc. Roger (not real name) stated that the nurse wrote on his PIP assessment that Roger
Yesterday I attended my induction day for a pain management program. It was an excellent day and the staff were excellent. During the the breaks all the course members talked about their conditions, problems, PIP etc. Roger (not real name) stated that the nurse wrote on his PIP assessment that Roger
Badbessie
in
Lung Conditions Community Forum
5 years ago
venetoclax now listed on Australian PBS
New anti-cancer drug, venetoclax which has the power to ‘melt away’ advanced forms of chronic lymphocytic
leukaemia
(CLL) was granted approval by the Australian Therapeutic Goods Administration (TGA) in January 2017.
New anti-cancer drug, venetoclax which has the power to ‘melt away’ advanced forms of chronic lymphocytic
leukaemia
(CLL) was granted approval by the Australian Therapeutic Goods Administration (TGA) in January 2017.
HannahHugo
in
CLL Support
5 years ago
Discontinue Hydroxyurea
Had a visit with a new Hematologist who is a recognized expert in MPNs. He has recommended a different tx approach for my Polycythemia Vera. Based on my profile, he recommends discontinuing hydroxyurea and going with phlebotomy only. I am having troublesome side effects and the new doc says risks
Had a visit with a new Hematologist who is a recognized expert in MPNs. He has recommended a different tx approach for my Polycythemia Vera. Based on my profile, he recommends discontinuing hydroxyurea and going with phlebotomy only. I am having troublesome side effects and the new doc says risks
hunter5582
in
MPN Voice
5 years ago
Phlebotomy and heart rate
For those having polycythemia. Does your heart rate increased after phlebotomy.?
For those having polycythemia. Does your heart rate increased after phlebotomy.?
Amma12
in
MPN Voice
5 years ago
Leukaemia Matters winter 2018/19 edition - Leukaemia Care charity activities, community news and patient stories
Leukaemia
Matters is a patient magazine published four times a year. [i]'It’s been a busy year for
Leukaemia
Care, highlighted by the success of our Spot
Leukaemia
campaign, which reached over 125 million people and helped to educate them on the symptoms of
leukaemia
.
Leukaemia
Matters is a patient magazine published four times a year. [i]'It’s been a busy year for
Leukaemia
Care, highlighted by the success of our Spot
Leukaemia
campaign, which reached over 125 million people and helped to educate them on the symptoms of
leukaemia
.
HAIRBEAR_UK
in
Leukaemia Support
6 years ago
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