Search
Search
About
Log in
Join
Experiences with
Leukaemia
Posts
Communities
3,276 public posts
Filter results
Evidence omicron risk is higher for blood cancer patients
after two vaccine doses, neutralising antibodies against omicron was detectable in 19% patients against delta was detetable in 39% against original SARS-CoV-2 in 89% patients (p<0.0001). After third vaccine dose, against omicron was 56% against delta 71% and original 86%. CLL patients may
after two vaccine doses, neutralising antibodies against omicron was detectable in 19% patients against delta was detetable in 39% against original SARS-CoV-2 in 89% patients (p<0.0001). After third vaccine dose, against omicron was 56% against delta 71% and original 86%. CLL patients may
Bartlet
in
CLL Support
2 years ago
Clinical trials for Richter's transformation
Hello. I would like to ask if you know of any current clinical trials for patients with Richter's Transformation who have already reached the Car-T and it did not work for them. We have in our group a very young 22-year-old boy whose Car-Ts didn't work for him in the UK. They have told him that they
Hello. I would like to ask if you know of any current clinical trials for patients with Richter's Transformation who have already reached the Car-T and it did not work for them. We have in our group a very young 22-year-old boy whose Car-Ts didn't work for him in the UK. They have told him that they
Priss69
in
CLL Support
2 years ago
The promise of Mix and Match COVID-19 vaccinations
For details, see our maintained pinned post on this topic: https://healthunlocked.com/cllsupport/posts/147571873/important-sars-cov-2-and-covid-19-information-for-chronic-lymphocytic-
leukaemia
-cll-patients The conclusion of
Homologous and Heterologous Covid-19 Booster Vaccinations:
https://www.nature.com
For details, see our maintained pinned post on this topic: https://healthunlocked.com/cllsupport/posts/147571873/important-sars-cov-2-and-covid-19-information-for-chronic-lymphocytic-
leukaemia
-cll-patients The conclusion of
Homologous and Heterologous Covid-19 Booster Vaccinations:
https://www.nature.com
AussieNeil
Partner
in
CLL Support
2 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Metformin and Ruxolitinib for PV?
Hello, Happy New Year (almost) to everyone. Maybe 2022 bring us all a good year of health and happiness. Has anyone researched using Metformin and Ruxolitinib for Polycythemia Vera? Or spoken to a doctor about it? https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5833553/ Listening to longevity expert
Hello, Happy New Year (almost) to everyone. Maybe 2022 bring us all a good year of health and happiness. Has anyone researched using Metformin and Ruxolitinib for Polycythemia Vera? Or spoken to a doctor about it? https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5833553/ Listening to longevity expert
Elizka
in
MPN Voice
2 years ago
Wishing you all a Happy Christmas and New Year
Support available over Christmas https://www.leukaemiacare.org.uk/support-and-information/latest-from-
leukaemia
-care/news/support-available-over-christmas-2/ As a patient community we are here for each other and do receive notifications, so don't be hesitant to post a message and reach out during the
Support available over Christmas https://www.leukaemiacare.org.uk/support-and-information/latest-from-
leukaemia
-care/news/support-available-over-christmas-2/ As a patient community we are here for each other and do receive notifications, so don't be hesitant to post a message and reach out during the
HAIRBEAR_UK
Administrator
in
Leukaemia CARE
2 years ago
DOES IVERMECTIN SLOW CLL
I previously posted that my absolute lymphocyte count was steadily growing then after I had both vaccinations my counts rose 50% in a few months. I later got covid and took ivermectin for a few days and my lymphocyte count went down from 30k to about 26.5k. I thought maybe a coincidence. Doing some
I previously posted that my absolute lymphocyte count was steadily growing then after I had both vaccinations my counts rose 50% in a few months. I later got covid and took ivermectin for a few days and my lymphocyte count went down from 30k to about 26.5k. I thought maybe a coincidence. Doing some
mleo123
in
CLL Support
2 years ago
This is not good enough !!!
Ronapreve, Monupiravir, Sotrovimab, only for some - and only when infected? This does not sound like protecting the immunocompromised - more like shutting the stable door for some and leaving it wide open for others. (These new treatments are not approved in the UK forCML, CMML, MPNs (PV, ET, myelofibrosis
Ronapreve, Monupiravir, Sotrovimab, only for some - and only when infected? This does not sound like protecting the immunocompromised - more like shutting the stable door for some and leaving it wide open for others. (These new treatments are not approved in the UK forCML, CMML, MPNs (PV, ET, myelofibrosis
Hidden
in
MPN Voice
2 years ago
Join us tomorrow for webinar - COVID-19 and leukaemia; what more do we know?
Helen is a clinical lecturer leading research into optimising vaccination strategies and minimising infection risk in patients with
leukaemia
Webinar details Date: Tuesday 28th September Time: 4:30pm Topic: COVID-19 and
leukaemia
; what more do we know?
Helen is a clinical lecturer leading research into optimising vaccination strategies and minimising infection risk in patients with
leukaemia
Webinar details Date: Tuesday 28th September Time: 4:30pm Topic: COVID-19 and
leukaemia
; what more do we know?
HAIRBEAR_UK
Administrator
in
Leukaemia CARE
3 years ago
Anti vaccination
I now have post Myelofibrosis AML. I’m worried about relatives who are anti vaccinations. I should keep away from them??
I now have post Myelofibrosis AML. I’m worried about relatives who are anti vaccinations. I should keep away from them??
Mysi
in
MPN Voice
2 years ago
Access to treatment and priority PCRs again
Response from
Leukaemia
Care Advocacy. "Thank you for bringing that to my attention, I wasn’t aware this was happening that the CMDU were turning people away due to severity of symptoms.
Response from
Leukaemia
Care Advocacy. "Thank you for bringing that to my attention, I wasn’t aware this was happening that the CMDU were turning people away due to severity of symptoms.
Sumoldbloke
in
CLL Support
2 years ago
Update and thank you for your support
I would like to thank everyone who replied to my post about the doubts my haematologist raised about my SCT. The wisdom and support here really does make a difference in helping me cope at this frightening and stressful time. I have now had two conversations with my wonderful transplant nurse, who was
I would like to thank everyone who replied to my post about the doubts my haematologist raised about my SCT. The wisdom and support here really does make a difference in helping me cope at this frightening and stressful time. I have now had two conversations with my wonderful transplant nurse, who was
Otterfield
in
MPN Voice
2 years ago
Priority PCR test and SNOMED coding
Thank you for all your replies and empathy. my GP surgery is lovely but they don’t understand the coding! Etc But I will keep trying! I don’t have a nurse specialist and my consultant does not reply to my emails or respond to any telephone messages.Blood cancer UK have been very helpful and they are
Thank you for all your replies and empathy. my GP surgery is lovely but they don’t understand the coding! Etc But I will keep trying! I don’t have a nurse specialist and my consultant does not reply to my emails or respond to any telephone messages.Blood cancer UK have been very helpful and they are
Greencyclist
in
CLL Support
2 years ago
Uk What is the exact SNOMED code for CLL to get priority PCR test kit and letter?
In the continuing saga of trying to get a priority PCR test and letter does anybody know the exact SNOMED code For CLL that has to be on your medical records in the UK for you to get a priority PCR test and letter from NHS England? I am going round and round in circles being pushed from 119 back to
In the continuing saga of trying to get a priority PCR test and letter does anybody know the exact SNOMED code For CLL that has to be on your medical records in the UK for you to get a priority PCR test and letter from NHS England? I am going round and round in circles being pushed from 119 back to
Greencyclist
in
CLL Support
2 years ago
Accessing new treatments against COVID19 and priority PCR home test kits
Blood Cancer UK have sent me a survey "With an increase in Omicron cases, we know it's an understandably worrying time for people with blood cancer. That's why we've launched a new survey about blood cancer and vaccines, access to new treatments, and employment" I cannot direct you to this with a direct
Blood Cancer UK have sent me a survey "With an increase in Omicron cases, we know it's an understandably worrying time for people with blood cancer. That's why we've launched a new survey about blood cancer and vaccines, access to new treatments, and employment" I cannot direct you to this with a direct
Sumoldbloke
in
CLL Support
2 years ago
Cancer again
Has anyone gotten a secondary cancer while on W & W ? I had breast cancer two years ago and had a lumpectomy with no chemo or radiation. My cancer is now back in same breast. Thinking of a mastectomy this time but still concerned that the CLL might be an underlying cause. Any comments would be very
Has anyone gotten a secondary cancer while on W & W ? I had breast cancer two years ago and had a lumpectomy with no chemo or radiation. My cancer is now back in same breast. Thinking of a mastectomy this time but still concerned that the CLL might be an underlying cause. Any comments would be very
1962jns
in
CLL Support
2 years ago
Hija
We’ll I am on hydroxycarbamide, same thing , because I have Polycythemia Vera , also diagnosed in 2018, also very rare. I t belongs to the same group of blood cancer. I still get itchy skin, fatigue , feeling hot at night and have developed a fatty liver. I have done well on my meds overall. If you
We’ll I am on hydroxycarbamide, same thing , because I have Polycythemia Vera , also diagnosed in 2018, also very rare. I t belongs to the same group of blood cancer. I still get itchy skin, fatigue , feeling hot at night and have developed a fatty liver. I have done well on my meds overall. If you
Triergirl55
in
MPN Voice
2 years ago
Is there anyone with M.E. and CLL ?
is there anyone especially in the UK , with Myalgic Encephalomyelitis. (M E ) and. CLL ? As you can see on my profile I was diagnosed with ME a long time ago and then in 2013 also with CLL. I am still on watch and wait but particularly interested if anyone with ME and CLL has had treatment as I
is there anyone especially in the UK , with Myalgic Encephalomyelitis. (M E ) and. CLL ? As you can see on my profile I was diagnosed with ME a long time ago and then in 2013 also with CLL. I am still on watch and wait but particularly interested if anyone with ME and CLL has had treatment as I
Greencyclist
in
CLL Support
2 years ago
COVID-19 Mortality, Hospitalization Risk Higher in Patients With Blood Cancers
We've discussed this often here. This is the latest from ASH 2021. Of interest: <<Patients with MPN and plasma cell dyscrasia had less severe COVID-19 illness overall compared to patients with CLL, leukemia, MDS, or lymphoma.>> https://www.pharmacytimes.com/view/covid-19-mortality-hospitalization-risk-higher-in-patients-with-blood-cancers
We've discussed this often here. This is the latest from ASH 2021. Of interest: <<Patients with MPN and plasma cell dyscrasia had less severe COVID-19 illness overall compared to patients with CLL, leukemia, MDS, or lymphoma.>> https://www.pharmacytimes.com/view/covid-19-mortality-hospitalization-risk-higher-in-patients-with-blood-cancers
EPguy
in
MPN Voice
2 years ago
ASH 2021 -- cytopenic myelofibrosis
I've been checking out the Hematology conference. For cytopenic myelofibrosis a Phase 3 trial PERSIST-2 reports pacritinib has advantages over Rux. https://www.cancernetwork.com/view/treatment-with-tafasitamab-lenalidomide-and-r-chop-yields-promising-activity-in-untreated-dlbcl <<Among the 43 patients
I've been checking out the Hematology conference. For cytopenic myelofibrosis a Phase 3 trial PERSIST-2 reports pacritinib has advantages over Rux. https://www.cancernetwork.com/view/treatment-with-tafasitamab-lenalidomide-and-r-chop-yields-promising-activity-in-untreated-dlbcl <<Among the 43 patients
EPguy
in
MPN Voice
2 years ago
Leukaemia Care webinar - COVID-19 and leukaemia; what more do we know?
Helen is a clinical lecturer leading research into optimising vaccination strategies and minimising infection risk in patients with
leukaemia
Webinar details
Date: Tuesday 28th September Time: 4:30pm Topic: COVID-19 and
leukaemia
; what more do we know?
Helen is a clinical lecturer leading research into optimising vaccination strategies and minimising infection risk in patients with
leukaemia
Webinar details
Date: Tuesday 28th September Time: 4:30pm Topic: COVID-19 and
leukaemia
; what more do we know?
HAIRBEAR_UK
Administrator
in
Leukaemia CARE
3 years ago
1
...
32
33
34
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
CLL Support
1803 results
MPN Voice
832 results
Leukaemia CARE
268 results
View top 10 communities
Sort by
Most Relevant
Newest