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Lemtrada
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Lemtrada
Is anyone taking
Lemtrada
? What has been your experience with it and what type of MS do you have?
Is anyone taking
Lemtrada
? What has been your experience with it and what type of MS do you have?
DIsneyQueen
in
My MSAA Community
3 years ago
Hello, I have been asked to weigh up treatments for Graves Disease. I am being offered either RAI or a thyroidectomy. Advise appreciated
Having had
lemtrada
treatment I developed Graves’ disease and have taken 20 mg of carbimazole for 2 years but things are still not settling down
Having had
lemtrada
treatment I developed Graves’ disease and have taken 20 mg of carbimazole for 2 years but things are still not settling down
Mrsegg
in
Thyroid UK
4 years ago
When can I stop wearing a mask and gloves?
Took
Lemtrada
a few years ago. Thanks!
Took
Lemtrada
a few years ago. Thanks!
sashaming1
in
My MSAA Community
4 years ago
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Thanks for Lemtrada
Took
Lemtrada
a few years ago....The best thing I did for myself. I feel great can do many things I hadn't done in years no relapses no new lesions. I can once again get on a motorcycle, walk up stairs without holding on to railing AND I can zip my pants again That is a big deal.
Took
Lemtrada
a few years ago....The best thing I did for myself. I feel great can do many things I hadn't done in years no relapses no new lesions. I can once again get on a motorcycle, walk up stairs without holding on to railing AND I can zip my pants again That is a big deal.
Shiloh48066
in
My MSAA Community
4 years ago
Lemtrada and COVID-19
Do my past infusions with
Lemtrada
(2015) have any impact on my response to COVID-19?
Do my past infusions with
Lemtrada
(2015) have any impact on my response to COVID-19?
sashaming1
in
My MSAA Community
4 years ago
Coronavirus Preventative Guidelines-revised
CDC and NMSS stated that virus is at a higher risk for people on MS infusions (Tysabri, OcRevus,
Lemtrada
, etc.).
Here are CDC guidelines to be safe:
Wash your hands” often while out in public or use anti-bacterial hand gels/wipes. When you come home, wash your hands with soap first thing.
CDC and NMSS stated that virus is at a higher risk for people on MS infusions (Tysabri, OcRevus,
Lemtrada
, etc.).
Here are CDC guidelines to be safe:
Wash your hands” often while out in public or use anti-bacterial hand gels/wipes. When you come home, wash your hands with soap first thing.
nicoly3467
in
My MSAA Community
4 years ago
Lemtrada-recurrent zoster virus
Hey MS community! No energy, recurrent zoster virus lesion right face(so painful). In my ear, my nose, lip, eye scalp. I will have all at once then heal up then return with sections .
Hey MS community! No energy, recurrent zoster virus lesion right face(so painful). In my ear, my nose, lip, eye scalp. I will have all at once then heal up then return with sections .
Mshelton
in
My MSAA Community
5 years ago
Vaccines FYI
If you take
Lemtrada
, be sure to get your flu shot six weeks prior to your infusion. This will optimize your body's ability to form antibodies against the flu virus.
If you take
Lemtrada
, be sure to get your flu shot six weeks prior to your infusion. This will optimize your body's ability to form antibodies against the flu virus.
sashaming1
in
My MSAA Community
5 years ago
Lemtrada?
Anyone on
Lemtrada
? Being suggested to mje after 18 mons on Ocrevus with no results.
Anyone on
Lemtrada
? Being suggested to mje after 18 mons on Ocrevus with no results.
scouty
in
My MSAA Community
5 years ago
Half Dose two done !!
It’s was quite nice actually there was 4 us 1x lady on first half dose , 1 x lady on 2nd half dose and another lady going on to
lemtrada
( she brought the supply’s ) .
It’s was quite nice actually there was 4 us 1x lady on first half dose , 1 x lady on 2nd half dose and another lady going on to
lemtrada
( she brought the supply’s ) .
Annabal82
in
My MSAA Community
5 years ago
Need an Endocrinologist
I am on
Lemtrada
for my MS and am looking for a new Endocrinologist to follow me for my PCOS and Thyroid levels especially. The
Lemtrada
can have massive effects on the thyroid glad and am in need of treatment. Any suggestions are appreciated. Thank you in advance.
I am on
Lemtrada
for my MS and am looking for a new Endocrinologist to follow me for my PCOS and Thyroid levels especially. The
Lemtrada
can have massive effects on the thyroid glad and am in need of treatment. Any suggestions are appreciated. Thank you in advance.
Redskinfan1977
in
Women's Health
6 years ago
Looking for a new Endocrinologist in MD
I am on
Lemtrada
for my MS and am looking for a new Endocrinologist to follow me for my PCOS and Thyroid levels especially. The
Lemtrada
can have massive effects on the thyroid glad and am in need of treatment. Any suggestions are appreciated. Thank you in advance.
I am on
Lemtrada
for my MS and am looking for a new Endocrinologist to follow me for my PCOS and Thyroid levels especially. The
Lemtrada
can have massive effects on the thyroid glad and am in need of treatment. Any suggestions are appreciated. Thank you in advance.
Redskinfan1977
in
My MSAA Community
6 years ago
Lemtrada
A couple years ago, my second opinion MS doctor mentioned
Lemtrada
to me. (That was before Ocrevus.) I just saw that, like Ocrevus,
Lemtrada
kills B-cells and T-cells. What is the difference between the two (other than the price -
Lemtrada
is $300K a year)?
A couple years ago, my second opinion MS doctor mentioned
Lemtrada
to me. (That was before Ocrevus.) I just saw that, like Ocrevus,
Lemtrada
kills B-cells and T-cells. What is the difference between the two (other than the price -
Lemtrada
is $300K a year)?
IFwczs
in
My MSAA Community
6 years ago
Lemtrada's lethal side effects just never end
https://multiplesclerosisnewstoday.com/2018/12/05/
lemtrada
-linked-to-lung-hemorrhage-in-ms-patient-1-of-5-known-worldwide-cases-study-says/?utm_source=Multiple+Sclerosis&utm_campaign=bebdaa1170-RSS_US_EMAIL_CAMPAIGN&utm_medium=email&utm_term=0_b5fb7a3dae-bebdaa1170-73067309
https://multiplesclerosisnewstoday.com/2018/12/05/
lemtrada
-linked-to-lung-hemorrhage-in-ms-patient-1-of-5-known-worldwide-cases-study-says/?utm_source=Multiple+Sclerosis&utm_campaign=bebdaa1170-RSS_US_EMAIL_CAMPAIGN&utm_medium=email&utm_term=0_b5fb7a3dae-bebdaa1170-73067309
IFwczs
in
My MSAA Community
6 years ago
Family Issues
My path has taken a detour this past week and now I decided to start a different IV infusion treatment-
Lemtrada
. This Tx is supposed to help reduce frequent relapses for people w/ aggressive RRMS.
My path has taken a detour this past week and now I decided to start a different IV infusion treatment-
Lemtrada
. This Tx is supposed to help reduce frequent relapses for people w/ aggressive RRMS.
nicoly3467
in
My MSAA Community
6 years ago
Consecutive Use of Gilenya and Lemtrada Causes Disease Activity in MS Patient....really do you trust DMD's?
https://multiplesclerosisnewstoday.com/2018/08/21/high-ms-activity-seen-patient-after-consecutive-use-immunotherapies-case-report/ I swear they are trying to make us worse!
https://multiplesclerosisnewstoday.com/2018/08/21/high-ms-activity-seen-patient-after-consecutive-use-immunotherapies-case-report/ I swear they are trying to make us worse!
dogdaddy
in
My MSAA Community
6 years ago
Hey, new to community. Just a bit about me. 😎
Oh lastly for MS over the 18 years I've done just about every injectable DMT and found out few months ago I was 20 years out of being wheel chair bound and disease was becoming more aggressive so I am about 2 months post my first
Lemtrada
infusion treatment, again fingers crossed!
Oh lastly for MS over the 18 years I've done just about every injectable DMT and found out few months ago I was 20 years out of being wheel chair bound and disease was becoming more aggressive so I am about 2 months post my first
Lemtrada
infusion treatment, again fingers crossed!
BabygirlGiulianna
in
My MSAA Community
6 years ago
Lemtrada vs ocrevus
Which one is better. Its clear I cant swallow big pills, so tecfidera is out. Here we go again
Which one is better. Its clear I cant swallow big pills, so tecfidera is out. Here we go again
jkdavid99
in
My MSAA Community
6 years ago
Lemtrada, anyone?
Anyone on
Lemtrada
for more than a year? Im new here - :) Thanks!
Anyone on
Lemtrada
for more than a year? Im new here - :) Thanks!
jennymb8675309
in
My MSAA Community
6 years ago
LEMTRADA/OCREVUS
Has anyone done Ocrevus after having
Lemtrada
, I have been told that I cannot have any new med till after 5 years of
Lemtrada
, I do not have any active lesions.
Lemtrada
made my walking a lot worse then it was. Was thinking that maybe Ocrevus would help. I see my Nuro. on 4/17.
Has anyone done Ocrevus after having
Lemtrada
, I have been told that I cannot have any new med till after 5 years of
Lemtrada
, I do not have any active lesions.
Lemtrada
made my walking a lot worse then it was. Was thinking that maybe Ocrevus would help. I see my Nuro. on 4/17.
REDLIPS44
in
My MSAA Community
6 years ago
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