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Parkinsons
Help! Suddenly my daughter is talking out of her head, random talking, not making sense, Just all over the place.......asked if she had taken anything extra besides the sinemet. She said no, but it’s very scary ..... just not herself. Is this normal??
Help! Suddenly my daughter is talking out of her head, random talking, not making sense, Just all over the place.......asked if she had taken anything extra besides the sinemet. She said no, but it’s very scary ..... just not herself. Is this normal??
Williemom
in
Cure Parkinson's
4 years ago
Bradykinesia
Is this bradykinesia? Three years ago the neuros decided I had MS. After two years on tysabri infusions they said maybe it's PD. I never felt I had either condition. Six months ago I planned to run the local marathon; The Run With the Wild Horses in Sweetwater County, Wyoming. It's a difficult
Is this bradykinesia? Three years ago the neuros decided I had MS. After two years on tysabri infusions they said maybe it's PD. I never felt I had either condition. Six months ago I planned to run the local marathon; The Run With the Wild Horses in Sweetwater County, Wyoming. It's a difficult
kaypeeoh
in
Cure Parkinson's
4 years ago
Neupro review
I try again: who has used Neupro in the uncomplicated phase of PD and wants to share his/her experience? I could not tolerate Sinemet or Madopar, even with extra Carbidopa. I have built up Neupro till 8 mg now. It helps with anxiety, stiffness, but not much on my tremor.
I try again: who has used Neupro in the uncomplicated phase of PD and wants to share his/her experience? I could not tolerate Sinemet or Madopar, even with extra Carbidopa. I have built up Neupro till 8 mg now. It helps with anxiety, stiffness, but not much on my tremor.
pinoka11
in
Cure Parkinson's
5 years ago
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Ways various PD treatments deplete essential chemicals.
https://www.dovepress.com/parkinsonrsquos-disease-managing-reversible-neurodegeneration-peer-reviewed-fulltext-article-NDT The above is an interesting read, including various pathways that are depleted with PD treatments. Also this was interesting: Should mucuna and 5-HTP be used instead of sinemet
https://www.dovepress.com/parkinsonrsquos-disease-managing-reversible-neurodegeneration-peer-reviewed-fulltext-article-NDT The above is an interesting read, including various pathways that are depleted with PD treatments. Also this was interesting: Should mucuna and 5-HTP be used instead of sinemet
LAJ12345
in
Cure Parkinson's
5 years ago
Medications improving my cardio?
I take ropinirole and amantadine. I've had PD for nearly two years. I was on Sinemet but discontinued it because of severe tiredness. The neuro switched me to the two drugs mentioned above. I've mentioned the HIIT that I do on a treadmill. I've done it for over two years. In the past it was close
I take ropinirole and amantadine. I've had PD for nearly two years. I was on Sinemet but discontinued it because of severe tiredness. The neuro switched me to the two drugs mentioned above. I've mentioned the HIIT that I do on a treadmill. I've done it for over two years. In the past it was close
kaypeeoh
in
Cure Parkinson's
5 years ago
DOES HDT EXTEND YOUR SINEMET ''ON'' PERIOD?
Hi friends, For those of you Pwp using HDT and sinemet,would you say it helps with extending the sinemet "'on'' time?If so what is your drug schedule like and how many hours do you get as ''on''' time with sinemet?Please respond as I am considering trying HDT.Thanks.
Hi friends, For those of you Pwp using HDT and sinemet,would you say it helps with extending the sinemet "'on'' time?If so what is your drug schedule like and how many hours do you get as ''on''' time with sinemet?Please respond as I am considering trying HDT.Thanks.
OREOLU
in
Cure Parkinson's
5 years ago
How much Sinemet can you take? Or do you take?
Currently my meds have been switched from stalevo, rasgaline to sinemet 150/32.5 x 6 daily every 3 hrs and 100mg of safinamide.... Am getting ON pretty quickly but dropping off about 1hr ish before next dose... Also take 200 mg cr sinemet at night up 2 3 50mg dispersable madopar and 100mg adamantine.
Currently my meds have been switched from stalevo, rasgaline to sinemet 150/32.5 x 6 daily every 3 hrs and 100mg of safinamide.... Am getting ON pretty quickly but dropping off about 1hr ish before next dose... Also take 200 mg cr sinemet at night up 2 3 50mg dispersable madopar and 100mg adamantine.
stanny7
in
Cure Parkinson's
5 years ago
Kineret
Has anyone tried this? What has your experience been?
Has anyone tried this? What has your experience been?
Stm252
in
Behçet's UK
5 years ago
Starting Sinemet
Hi all. Im 63, diagnosed a year ago and so far have just minor left arm tremors and the lovely bradykinesia. Ive been on ropinorole since. This week my neurologist wants me to switch over gradually to sinemet. Ive been reading the side effects and to tell ya the truth, Im scared to death. If I may
Hi all. Im 63, diagnosed a year ago and so far have just minor left arm tremors and the lovely bradykinesia. Ive been on ropinorole since. This week my neurologist wants me to switch over gradually to sinemet. Ive been reading the side effects and to tell ya the truth, Im scared to death. If I may
blazingsaddles
in
Cure Parkinson's
5 years ago
Advice on doctors
Dear Forum friends, First of all, thank you for all the responses to my previous post. Thank you for sharing your stories and for all the good advice. I had a short conversation with my husband and as I suspected, he is clueless and hopes to get better soon. I told him that he might not get better and
Dear Forum friends, First of all, thank you for all the responses to my previous post. Thank you for sharing your stories and for all the good advice. I had a short conversation with my husband and as I suspected, he is clueless and hopes to get better soon. I told him that he might not get better and
RunPeace
in
PSP Association
5 years ago
L tyrosine best treatment for dopamine
L tyrosine instead of levopoda. i ve difficulties to walk after taking sinemet. I ve tried l TYROSINE instead and can walk almost normally. before i used to take L tyrosine and sinemet. found not to take together. tried only sinemet couldn't walk. tried L tyrosine alone. it works perfectly. Try it
L tyrosine instead of levopoda. i ve difficulties to walk after taking sinemet. I ve tried l TYROSINE instead and can walk almost normally. before i used to take L tyrosine and sinemet. found not to take together. tried only sinemet couldn't walk. tried L tyrosine alone. it works perfectly. Try it
b-bar
in
Cure Parkinson's
5 years ago
Stopping Sinemet
Any advice on reducing or stopping to take Sinemet?
Any advice on reducing or stopping to take Sinemet?
senecaKS
in
Cure Parkinson's
5 years ago
Nasty cold. Even nastier: Parkinson's symptoms through the roof.
I've had 3 URI's in the last 6 months (exposures to grandkids), and am horrified at how much more severe my motor and non-motor symptoms got during these episodes. Increased tremor, back/ leg muscle spasms, weakness, fatigue (understandable) occur; but even worse were crushing depression and negativity
I've had 3 URI's in the last 6 months (exposures to grandkids), and am horrified at how much more severe my motor and non-motor symptoms got during these episodes. Increased tremor, back/ leg muscle spasms, weakness, fatigue (understandable) occur; but even worse were crushing depression and negativity
katherinecompton22
in
Cure Parkinson's
5 years ago
Agonist vs Dopamine
Being recently diagnosed with PD ( June 2019 ), I am confused. My first Neurologist prescribed Sinemet. 1 pill 2 x per day, upping this dosage after 2 weeks to 2 pills twice a day. I noticed a " fog clearing " after the first night. Encouraging. We sought a second opinion because of difficulties
Being recently diagnosed with PD ( June 2019 ), I am confused. My first Neurologist prescribed Sinemet. 1 pill 2 x per day, upping this dosage after 2 weeks to 2 pills twice a day. I noticed a " fog clearing " after the first night. Encouraging. We sought a second opinion because of difficulties
TR8Man
in
Cure Parkinson's
5 years ago
Live Daily Med Report
DAILY MED RPT Patient: Mark Report for Dec 1st 2019 Patient Diagnoses' 1)Parkinsons Disease 2)Dyskinesia 3)Hypertension 4)Anxiety Neurosis(GAD) 5)Chronic Insomnia ________________________________________________ Meds Schedule for Sunday 12/01 (Live Updates) 0500am Lisinopril
DAILY MED RPT Patient: Mark Report for Dec 1st 2019 Patient Diagnoses' 1)Parkinsons Disease 2)Dyskinesia 3)Hypertension 4)Anxiety Neurosis(GAD) 5)Chronic Insomnia ________________________________________________ Meds Schedule for Sunday 12/01 (Live Updates) 0500am Lisinopril
TheLordsWeapon
in
Cure Parkinson's
5 years ago
Leg Cramps when taking Sinemet
My husband has had Parkinson’s disease for 10 years. He gets terrible cramps in his upper legs when he takes Sinemet. Has anyone found an alternative to Sinemet or something else to stop the pain? I read a post that mentions Mucuna Pruriens. Has anyone tried it ? If so, what would be the equivalent dosage
My husband has had Parkinson’s disease for 10 years. He gets terrible cramps in his upper legs when he takes Sinemet. Has anyone found an alternative to Sinemet or something else to stop the pain? I read a post that mentions Mucuna Pruriens. Has anyone tried it ? If so, what would be the equivalent dosage
Crescendo
in
Cure Parkinson's
5 years ago
Does novacaine interact badly with Parkinson's drugs ? I need dental work done..
I currently take Sinemet, gabapentin and clonopin on a daily basis. Please post any side effects experienced when mixing novacaine with these drugs. I propose to take extra gabapentin and clonopin for the procedure so as not to move about, plus whatever novacaine the dentist uses. I will ask the dentist
I currently take Sinemet, gabapentin and clonopin on a daily basis. Please post any side effects experienced when mixing novacaine with these drugs. I propose to take extra gabapentin and clonopin for the procedure so as not to move about, plus whatever novacaine the dentist uses. I will ask the dentist
jenniferdunstan
in
Cure Parkinson's
5 years ago
BRAIN FOG IN PD,WHAT HELPS?
Hi pals, I was diagnosed with PD roughly 3yrs ago,and currently on sinemet. Before diagnosis,I have been having brain fog daily but not constant.But after diagnosis and starting treatment,the brain fog seems to have increased.It is worse early in the mornings after waking up.Kindly tell me how you clear
Hi pals, I was diagnosed with PD roughly 3yrs ago,and currently on sinemet. Before diagnosis,I have been having brain fog daily but not constant.But after diagnosis and starting treatment,the brain fog seems to have increased.It is worse early in the mornings after waking up.Kindly tell me how you clear
OREOLU
in
Cure Parkinson's
5 years ago
What helps
So Sinemet helps but not for me. U-tube videos by neuros all say exercise helps. Right now it's 20 degrees and snowing sideways. I can't see my neighbor's house. Before getting sick I was an ultra runner. Ultras are anything longer than a marathon. My favorite distance was 50 mile races. So
So Sinemet helps but not for me. U-tube videos by neuros all say exercise helps. Right now it's 20 degrees and snowing sideways. I can't see my neighbor's house. Before getting sick I was an ultra runner. Ultras are anything longer than a marathon. My favorite distance was 50 mile races. So
kaypeeoh
in
Cure Parkinson's
5 years ago
Atypical PD
I just watched a long video on the subject of atypical Parkinsonism. One sign is that tremor doesn't respond well to sinemet. Of the diseases that mimic PD, it's a short list but all of them are lethal and preceded by dementia. Yikes! [i] I thought I had atypical PD because I don't have signs like
I just watched a long video on the subject of atypical Parkinsonism. One sign is that tremor doesn't respond well to sinemet. Of the diseases that mimic PD, it's a short list but all of them are lethal and preceded by dementia. Yikes! [i] I thought I had atypical PD because I don't have signs like
kaypeeoh
in
Cure Parkinson's
5 years ago
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