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British Transplant Games - King's families (UK)
Hi all, I hope everyone is doing ok ❤️ My son has had 2 liver transplants at King's College Hospital London, (at 22 months old and 19 years old). We have attended the British Transplant Games 10 times now and find them to be an amazing event for post transplant families to meet up, have fun, and
Hi all, I hope everyone is doing ok ❤️ My son has had 2 liver transplants at King's College Hospital London, (at 22 months old and 19 years old). We have attended the British Transplant Games 10 times now and find them to be an amazing event for post transplant families to meet up, have fun, and
ConsMum
in
Children's Liver Disease Foundation
2 years ago
kidney infection
I’m waiting on lab results for possible kidney infection. Doctor did urine dip test and says signs of infection . Have had my 3 days of anti biotics but pain in side is still really sore How long should pain be there ?
I’m waiting on lab results for possible kidney infection. Doctor did urine dip test and says signs of infection . Have had my 3 days of anti biotics but pain in side is still really sore How long should pain be there ?
Badgercat3
in
IBS Network
2 years ago
Study Finds: Drug typically used in cancer therapy emerges as powerful anti-aging remedy
Stud y Finds: Drug typically used in cancer therapy emerges as powerful anti-aging remedy Rapamycin is a cell growth inhibitor and immunosuppressant that people normally take while undergoing cancer treatment or after receiving an organ transplant. A team from the Max Planck Institute for
Stud y Finds: Drug typically used in cancer therapy emerges as powerful anti-aging remedy Rapamycin is a cell growth inhibitor and immunosuppressant that people normally take while undergoing cancer treatment or after receiving an organ transplant. A team from the Max Planck Institute for
cesces
in
Advanced Prostate Cancer
2 years ago
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Simple kidney cyst
Hi freids, Any one have ideas about simple kidney cyst? Last week ultrasound report showed simple (single) kidney cyst on my left kidney without any symptoms. My serum creatinine 1.3 and my urine albumin is 75 (normal range less than 30) My nephrologist says there is no need to do any thing and
Hi freids, Any one have ideas about simple kidney cyst? Last week ultrasound report showed simple (single) kidney cyst on my left kidney without any symptoms. My serum creatinine 1.3 and my urine albumin is 75 (normal range less than 30) My nephrologist says there is no need to do any thing and
Waise
in
Early CKD Support
2 years ago
looking for someone to look at my test results please.
hi, I have been a member of tge pernicious anemia site for my years and put my first post on today. Someone suggested I should also put in on this site as you are all so knowledgeable and helpful. Apologies this is a long post. I have copied what I put on the other site Hi, I am a long time member
hi, I have been a member of tge pernicious anemia site for my years and put my first post on today. Someone suggested I should also put in on this site as you are all so knowledgeable and helpful. Apologies this is a long post. I have copied what I put on the other site Hi, I am a long time member
Milsean
in
Thyroid UK
2 years ago
Stem Cell Transplant (stc) after care
Can someone who has been through a sct, or their carer, give me info about the time after hospital discharge please? We live more than 30 minutes from the transplant centre so the hospital is providing us with a flat in Bristol where my husband will be my carer. I know the early days he'll need to
Can someone who has been through a sct, or their carer, give me info about the time after hospital discharge please? We live more than 30 minutes from the transplant centre so the hospital is providing us with a flat in Bristol where my husband will be my carer. I know the early days he'll need to
Scaredy_cat
in
MPN Voice
1 year ago
Cipro and bactrim for Pseudomonas aeruginosa infection
I got a
kidney
transplant
18 days ago. Deceased donor, never on dialysis. Recently got fever and went back admitted to the hospital with an infection. After some testing, they found have Pseudomonas aeruginosa, and sent me home with some changes in the meds.
I got a
kidney
transplant
18 days ago. Deceased donor, never on dialysis. Recently got fever and went back admitted to the hospital with an infection. After some testing, they found have Pseudomonas aeruginosa, and sent me home with some changes in the meds.
vision22
in
Kidney Transplant
2 years ago
liver transplant
Good day has anyone's child undergone an operation of a liver transplant and how was the child now doing and its been how long
Good day has anyone's child undergone an operation of a liver transplant and how was the child now doing and its been how long
Ririza-31
in
Children's Liver Disease Foundation
2 years ago
Lump in abdominal area above belly button
So in april 2020 i started getting pain in my left lower kidney area. I went to the doctor and was sent for a ultrasound,it shows a blockage obstructions. Now under urology and have had a CT scan and a renogram, it shows my kidney is inflamed and there is a PUJ obstruction. Currently on waiting list
So in april 2020 i started getting pain in my left lower kidney area. I went to the doctor and was sent for a ultrasound,it shows a blockage obstructions. Now under urology and have had a CT scan and a renogram, it shows my kidney is inflamed and there is a PUJ obstruction. Currently on waiting list
SuttonUnitedNo1Fan
in
Men's Health Forum
2 years ago
I'm a bit Scared, to be honest😥
However I am Immune Suppressed, due to BOTH Vasculitis AND a
Kidney
Transplant
(in July 2013).Clearly IF I DO contract, this disease, I will HAVE to then contact my own Doctor As Quickly As Possible.
However I am Immune Suppressed, due to BOTH Vasculitis AND a
Kidney
Transplant
(in July 2013).Clearly IF I DO contract, this disease, I will HAVE to then contact my own Doctor As Quickly As Possible.
AndrewT
in
Vasculitis UK
2 years ago
There Is Hope For CKD — My Story
I wanted to share my experience and journey with CKD with you all. I was diagnosed with CKD stage 3 about four years ago when my eGFR went to 57. I saw two nephrologists over the course of four years and had many renal tests done as well as blood work every six months. My eGFR numbers kept decreasing
I wanted to share my experience and journey with CKD with you all. I was diagnosed with CKD stage 3 about four years ago when my eGFR went to 57. I saw two nephrologists over the course of four years and had many renal tests done as well as blood work every six months. My eGFR numbers kept decreasing
HisLittleOne
in
Early CKD Support
2 years ago
provenge in the metastatic hormone sensitive PCa patient
Provenge has been flagged to me on more than one occasion now so thanks to those. I was wondering if anyone could point to clinical trials in its use for the metastatic hormone sensitive APCa patient such as me. Considering all options for whilst PSA now undetectable ( third month) on ADT and Apa combo
Provenge has been flagged to me on more than one occasion now so thanks to those. I was wondering if anyone could point to clinical trials in its use for the metastatic hormone sensitive APCa patient such as me. Considering all options for whilst PSA now undetectable ( third month) on ADT and Apa combo
Brysonal
in
Advanced Prostate Cancer
2 years ago
Increase in creatinine at the beginning of the use of tolvaptan ?
Hi, I'm Piotr from Poland. Please write how your blood creatinine increased after starting Tolvaptan treatment? I have been taking tolvaptan for less than two months. when I started my creatinine was 1.7 mg / dl and now it is 1.94 mg / dl. In the meantime, I did tests 3 times and there was a creatinine
Hi, I'm Piotr from Poland. Please write how your blood creatinine increased after starting Tolvaptan treatment? I have been taking tolvaptan for less than two months. when I started my creatinine was 1.7 mg / dl and now it is 1.94 mg / dl. In the meantime, I did tests 3 times and there was a creatinine
gorczes
in
PKD Charity for Autosomal Dominant PKD
2 years ago
Peritoneal Carcinomatosis
Spent two days in the hospital. CT A/P mod volume Ascites. Had 4700ml of bloody fluid drained from abdomen. New peritoneal carcinomatosis. Last round of chemo Jan./22, PSA 1.1, now 557. Tried Nubequa, no help. Started Keytruda 8/17, second infusion postponed. If you access my history, you will see
Spent two days in the hospital. CT A/P mod volume Ascites. Had 4700ml of bloody fluid drained from abdomen. New peritoneal carcinomatosis. Last round of chemo Jan./22, PSA 1.1, now 557. Tried Nubequa, no help. Started Keytruda 8/17, second infusion postponed. If you access my history, you will see
SF22
in
Advanced Prostate Cancer
2 years ago
Positive crossmatch ?
Some of them refused this option as her body could make a new antibodies after the
transplant
and reject the
kidney
. She has some other midical issues such as “thyroid, heart, diabetes, high blood pressure and cholesterol” thats what i can recall.
Some of them refused this option as her body could make a new antibodies after the
transplant
and reject the
kidney
. She has some other midical issues such as “thyroid, heart, diabetes, high blood pressure and cholesterol” thats what i can recall.
MAK88
in
Kidney Disease
2 years ago
Hi, this is a post for all.
My son had a sucessfull heart transplant in March 2022, he's 48 and doing very well. Do you know anyone who has had a heart transplant and how they're getting on? 💖
My son had a sucessfull heart transplant in March 2022, he's 48 and doing very well. Do you know anyone who has had a heart transplant and how they're getting on? 💖
icd22
in
Women's Health
2 years ago
occluded portal vein
Hello I would be interested to know whether any one has had a Liver Transplant with an occluded portal vein. if so what procedure was followed to by-pass the occlusion and what (if any) were the complications and side effects post Tranplant? I realises this question may not be allowed under current
Hello I would be interested to know whether any one has had a Liver Transplant with an occluded portal vein. if so what procedure was followed to by-pass the occlusion and what (if any) were the complications and side effects post Tranplant? I realises this question may not be allowed under current
Porcupine_Tree
in
British Liver Trust
2 years ago
COVID: Staying Safe As The Virus Evolves - LLS Podcast / CLL Society’s COVID-19 Update December 5th, 2022 / Dec 15 2022 end Antibody Study
The Bloodline with LLS has a new episode!
https://thebloodline.org/TBL/132e134/?c_src=email&c_src2=sfmc&utm_source=sfmc&utm_medium=email&utm_campaign=Podcast+Episode+Announcement+-+COVID+-+December2022&utm_term COVID: Staying Safe As The Virus Evolves Join us as we speak to Dr. Lee Greenberger
The Bloodline with LLS has a new episode!
https://thebloodline.org/TBL/132e134/?c_src=email&c_src2=sfmc&utm_source=sfmc&utm_medium=email&utm_campaign=Podcast+Episode+Announcement+-+COVID+-+December2022&utm_term COVID: Staying Safe As The Virus Evolves Join us as we speak to Dr. Lee Greenberger
lankisterguy
Volunteer
in
CLL Support
1 year ago
diabetes and dialysis
hello, the other day i was scrolling on here and seen a post about someone being diabetic and they can’t make it the full session with not eating but the nurses are giving them a hard time i was going to suggest a boost or ensure as well as eating right before you go … i try to eat at least 10-
hello, the other day i was scrolling on here and seen a post about someone being diabetic and they can’t make it the full session with not eating but the nurses are giving them a hard time i was going to suggest a boost or ensure as well as eating right before you go … i try to eat at least 10-
renalrose
in
Kidney Dialysis
2 years ago
travel insurance - am I in remission
The sticky question for me attempting to book travel insurance is “ Am I in remission?” I had GPA diagnosed 8years ago and was extremely unwell initially. Poor renal function then but no dialyses and GFR normal for my age now. I am 73. I am very well usually. I have continued on treatment but unable
The sticky question for me attempting to book travel insurance is “ Am I in remission?” I had GPA diagnosed 8years ago and was extremely unwell initially. Poor renal function then but no dialyses and GFR normal for my age now. I am 73. I am very well usually. I have continued on treatment but unable
Rodelinda
in
Vasculitis UK
2 years ago
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