Experiences with

Ketotifen

My son was diagnosed at 4 months by great ormond street, given ketotifen, and seemed to “grow out” of it as the suggested he would. But from 14 onwards has really struggled with hives, excema, abdominal cramps, sever stomach issues, and anxiety/ocd.

I have tried to come off Ketotifen as I question if I do actually have MCAS and hate being on unnecessary drugs but I am now breaking out in itchy rashes (a symptom I never had before!!) Has anyone else experienced this trying to come off Ketotifen?!

I desperately need it as I have central hypothyroidism but can't take it Also I need hrt but also can't tolerate estrogen I take growth hormone with no issues It's just a vicious circle and I'm sick of it, what can I do I already take maximum ketotifen. Mast cells are a nightmare 😫

I am on cetirizine and ketotifen and take quercetin and Histamine X and Aller Aid supplements daily. Any ideas or opinions anyone please? Thanks

I'm aware of this site: https://ukmasto.org/ketotifen/ with current ETA as "expected back in mid-April according to the producers" but I admit I am fed up waiting for a drug to come back in stock.

I have been diagnosed with lupus 2.5 years ago, on hydroxychloroquine, ketotifen, synapsin and LDN. thanks!

My doctor has prescribed ketotifen for me to trial which I have been taking for a day now, so I think it is too early to see if it will help at all. I already use a steroid inhaler twice daily, a steroid nasal spray daily., and allergic eye drops when my eyes itch and swell.

I have just been phoning round pharmacies (without success), looking for Ketotifen 1mg tablets as there seem to be supply problems yet again. I've lost track of how many time this has happened and each time I eat into the small stock I had somehow managed to accumulate at some point in the past.

Prof K has asked my GP to prescribe Ketotifen but none of my local pharmacies are able to obtain this mediation. The management and treatment of the chronic and recurring infections is overseen by Dr S who is at a different London Hospital.

On the asthma front though I think the increase of my Ketotifen has made an impact, the amount of nebs has lessened and the improvement in my symptoms overall is way better! I'm hopeful that we've cracked this admission-failed discharge cycle!

I went to collect my monthly prescription of zaditen/ketotifen this evening and the pharmacy said they can't get any supplies from the 5 companies they deal with. Has anyone else experienced supply problems, does anyone know why there is a shortage?

She takes Ketotifen and Nalcrom. Her intolerance problem is severe and unpredictable. She's run all sorts of tests but according to her (Professor) Doctor Dermatologist/Allergologist there is no top expert in Belgium. He has referred her to Dr.

Zaditen (ketotifen) tablets continue to be in stock at Alloga UK. The code is USP0697.

Currently on 1mg of ketotifen capsules. Can this be upped to higher dose? It helps but doesn't last long .

As with ketotifen, these imported supplies would be unlicensed in the UK but licensed in another EU country, should they find a source. Ketotifen is an H1 antihistamine that seems to also have some mast cell stabilising properties. (https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3764846/).

Shaky temp up and down sore throat swelling of mouth hives at same time every nite 6 30pm 930pm 1100pm 130 am .so strange allways same time try taking to many antihistamines doesn't help paracetamol doesn't touch side of bone pain but all I can take ketotifen doesn't seem help as much I want it to I

The identification Information is: USP0697 ZADITEN 1 MG KETOTIFEN 60 TABLETS Ketotifen Liquid Ketotifen liquid is not yet available through the normal channels, as the licensed supplier does not yet have supplies. It can still be imported unlicensed.

Please check in at www.ukmasto.org/ketotifen to get the latest updates.

My nose always Flux , Sometimes no flux but i feel my nose obstructed I go top doctor in our country but nothing happen... last year when i was my home i was take faxo 120 and ketotifen 1 mg. it help me some. but now i am like as before. ANYBODY HERE SUFFER LIKE ME ?

immuno suppressive medication in the most serious cases, some of those used are: Anti-Histamine - These are used in most allergic conditions such as Hayfever, Asthma Eczma etc… They are used to help relieve the symptoms by stopping the body from reacting to allergens, Examples used are Ceterizine / Ketotifen