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Jynarque
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HAPPY NEW YEAR EVERYONE!!!
Its been a while since I've been on here, since I have been taking
Jynarque
I have been feeling really good no pain and my kidney function is doing great! That said, I have been dealing with extreme fatigue the doctors haven't been able to find the root cause and so I continue to struggle.
Its been a while since I've been on here, since I have been taking
Jynarque
I have been feeling really good no pain and my kidney function is doing great! That said, I have been dealing with extreme fatigue the doctors haven't been able to find the root cause and so I continue to struggle.
PaigeyPaigeForLife
in
PKD Charity for Autosomal Dominant PKD
4 years ago
It’s Been A While
Hello my warriors, its been a while since I’ve been on here, My
Jynarque
journey continues and i am doing well. I have i am now on a higher dose of the meds, new dose is 60mg and 30mg and still drinking a lot of water.
Hello my warriors, its been a while since I’ve been on here, My
Jynarque
journey continues and i am doing well. I have i am now on a higher dose of the meds, new dose is 60mg and 30mg and still drinking a lot of water.
PaigeyPaigeForLife
in
PKD Charity for Autosomal Dominant PKD
4 years ago
ITS BEEN A WHILE
Update on
Jynarque
: I have been taking 45mg and 15mg 11/30/2019 twice a day. I have adjusted well no problems with side effects and my labs are great yay! Yesterday we discuss moving to a higher dosage of 60mg and 30mg. I will start when I receive them.
Update on
Jynarque
: I have been taking 45mg and 15mg 11/30/2019 twice a day. I have adjusted well no problems with side effects and my labs are great yay! Yesterday we discuss moving to a higher dosage of 60mg and 30mg. I will start when I receive them.
PaigeyPaigeForLife
in
PKD Charity for Autosomal Dominant PKD
4 years ago
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This past Tuesday I had labs done as I have to since taking
Jynarque
, great news once again my liver continues to be good. I am about to get my third box of
Jynarque
which I will start taking next Tuesday.
This past Tuesday I had labs done as I have to since taking
Jynarque
, great news once again my liver continues to be good. I am about to get my third box of
Jynarque
which I will start taking next Tuesday.
PaigeyPaigeForLife
in
PKD Charity for Autosomal Dominant PKD
5 years ago
I am Coming Along
My labs for
Jynarque
is great as well. Liver function is very good...
My labs for
Jynarque
is great as well. Liver function is very good...
PaigeyPaigeForLife
in
PKD Charity for Autosomal Dominant PKD
5 years ago
Back In The Bed
I seem to be having no problems with
JYNARQUE
so far and hoping it stays that way... I stay drinking lots of water, tiring at times but I will take many toilet peeing time over kidney pain any day.
I seem to be having no problems with
JYNARQUE
so far and hoping it stays that way... I stay drinking lots of water, tiring at times but I will take many toilet peeing time over kidney pain any day.
PaigeyPaigeForLife
in
PKD Charity for Autosomal Dominant PKD
5 years ago
First Box Down
Today is i complete my first box of
Jynarque
, my last blood work and urine came back excellent! My Nephrologist is pleased and so am I. I should receive my second set today to be able to continue in a timely manner.
Today is i complete my first box of
Jynarque
, my last blood work and urine came back excellent! My Nephrologist is pleased and so am I. I should receive my second set today to be able to continue in a timely manner.
PaigeyPaigeForLife
in
PKD Charity for Autosomal Dominant PKD
5 years ago
Checking In
I also had to redo my blood work for taking
Jynarque
, I have a new issue, I was diagnosed with colitis in October given some meds which I have finished taking but because of that I couldn't start taking the
Jynarque
, I am scheduled to have a colonoscopy in November, and will be able to start the drug
I also had to redo my blood work for taking
Jynarque
, I have a new issue, I was diagnosed with colitis in October given some meds which I have finished taking but because of that I couldn't start taking the
Jynarque
, I am scheduled to have a colonoscopy in November, and will be able to start the drug
PaigeyPaigeForLife
in
PKD Charity for Autosomal Dominant PKD
5 years ago
Update
I signed up for the kidney meds
JYNARQUE
, my Nephrologist has to get back to me about some paperwork that needs to be signed the for thing to be processed, i hope to hear back from them soon.
I signed up for the kidney meds
JYNARQUE
, my Nephrologist has to get back to me about some paperwork that needs to be signed the for thing to be processed, i hope to hear back from them soon.
PaigeyPaigeForLife
in
PKD Charity for Autosomal Dominant PKD
5 years ago
Tolvaptan
In the US it's called
Jynarque
. Any feedback appreciated
In the US it's called
Jynarque
. Any feedback appreciated
Bunkin
in
Early CKD Support
6 years ago
FDA Approves Tolvaptan for Treatment of ADPKD
More here: https://www.businesswire.com/news/home/20180424006422/en/Otsuka%E2%80%99s-
JYNARQUE
%E2%84%A2-tolvaptan-Approved-U.S.-FDA-Treatment
More here: https://www.businesswire.com/news/home/20180424006422/en/Otsuka%E2%80%99s-
JYNARQUE
%E2%84%A2-tolvaptan-Approved-U.S.-FDA-Treatment
cmaxwell78
NKF Ambassador
in
Kidney Disease
6 years ago
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