In my last post I shared how I have not been feeling well, to date there has been no change in my condition. Moving around is very difficult for me right now, just going to the bathroom is literally taking up all my energy. I am waiting on an appointment date with my Nephrologist until then it’s the bed life for me.
This past Tuesday I had labs done as I have to since taking Jynarque, great news once again my liver continues to be good. I am about to get my third box of Jynarque which I will start taking next Tuesday.
Recently discovered cysts on kidneys and liver during CAT scan for fibroids.
I am having a hard time accepting that I have this, I am so scared
I am a 47 female with PKD and my kidneys are working at 35%. I struggle on a daily basis with tiredness, fatigued, headaches, etc. 
Hiding my pkd
