In my last post I shared how I have not been feeling well, to date there has been no change in my condition. Moving around is very difficult for me right now, just going to the bathroom is literally taking up all my energy. I am waiting on an appointment date with my Nephrologist until then it’s the bed life for me.
This past Tuesday I had labs done as I have to since taking Jynarque, great news once again my liver continues to be good. I am about to get my third box of Jynarque which I will start taking next Tuesday.
Not a Death Sentence!
Daughter just diagnosed at 20, should we have genetic testing done?
Was Diagnosed at age 20 with PKD I’m 53 now
Living on a narrowboat
Travel insurance advice
