Checking In

[PaigeyPaigeForLife]

I haven't been on here much lately, trying to deal with depression and anxiety without meds. I don't want to take the meds because they slow me down and makes me sleep most of the day. I changed insurance and I had to also change doctors, so I now have a new Nephrologist and thanks to my previous Nephrologist who was very helpful by contacting the new one with all my information so yay for me.

I also had to redo my blood work for taking Jynarque, I have a new issue, I was diagnosed with colitis in October given some meds which I have finished taking but because of that I couldn't start taking the Jynarque, I am scheduled to have a colonoscopy in November, and will be able to start the drug after...

I really hope that you guys are being assisted in some way, as this disease take a lot away from us. Be encouraged!

[Hidden]

I feel exactly the same way, just trying to get through being at 12% function with some pretty severe anxiety and depression and trying not to medicate with any chemicals. I just found this support group here and it’s really important to support each other because no one understands and it’s so easy to feel so alone. I hope you are doing well today.

[Susan_101 Moderator PKD Charity for Autosomal in reply to Hidden]

I am sure everyone affected by PKD at some stage finds the emotions that come with it overwhelming. The PKD Charity is every supportive for those in the UK. This link me help you understanding how your feeling pkdcharity.org.uk/about-adp...

[Wmspl in reply to Susan_101]

Yes it's true, presently I am 46% function, I am 48years, not sure how long it will take to reach 12%.

This group can share our emotions