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Joint hypermobility syndrome
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Pregabalin update
Hello and seasons greetings I’ve not posted on here for a while but thought I would end 2019 on a positive note. (For me anyway.) Anybody reading my back story will know the horrors of my experience of augmentation with ropinirole, followed by a tolerance of Tramadol. I moved onto Pregabalin 150mg
Hello and seasons greetings I’ve not posted on here for a while but thought I would end 2019 on a positive note. (For me anyway.) Anybody reading my back story will know the horrors of my experience of augmentation with ropinirole, followed by a tolerance of Tramadol. I moved onto Pregabalin 150mg
Pam34
in
Restless Legs Syndrome
4 years ago
Raising UK EDS-awareness: cause quite a of us 🦓s count a form of hypermobility among our comorbidities
Inquiry into treatment of Ehlers Danlos patients and its comorbidities
Ehlers-Danlos Syndromes (EDS) are part of a group of connective tissue disorders, of which there are 13 types. The most common type is hEDS, otherwise known as hypermobile Ehlers-Danlos Syndrome. This syndrome is at the top
Inquiry into treatment of Ehlers Danlos patients and its comorbidities
Ehlers-Danlos Syndromes (EDS) are part of a group of connective tissue disorders, of which there are 13 types. The most common type is hEDS, otherwise known as hypermobile Ehlers-Danlos Syndrome. This syndrome is at the top
Barnclown
in
LUPUS UK
5 years ago
Raising EDS awareness in the UK
Inquiry into treatment of Ehlers Danlos patients and its comorbidities
Ehlers-Danlos Syndromes (EDS) are part of a group of connective tissue disorders, of which there are 13 types. The most common type is hEDS, otherwise known as hypermobile Ehlers-Danlos Syndrome. This syndrome is at the top
Inquiry into treatment of Ehlers Danlos patients and its comorbidities
Ehlers-Danlos Syndromes (EDS) are part of a group of connective tissue disorders, of which there are 13 types. The most common type is hEDS, otherwise known as hypermobile Ehlers-Danlos Syndrome. This syndrome is at the top
Barnclown
in
Ehlers-Danlos Support UK
5 years ago
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Strange coffee relief
It’s been quite sometime since I’ve posted. I went through hell to wean off of the 0.75mg dose of pramipexole. Managed to stay off for approximately 2 months. After sleep deprivation and some embarrassing and dangerous episodes of sleep walking I started back on pramipexole 0.25mg. I have managed
It’s been quite sometime since I’ve posted. I went through hell to wean off of the 0.75mg dose of pramipexole. Managed to stay off for approximately 2 months. After sleep deprivation and some embarrassing and dangerous episodes of sleep walking I started back on pramipexole 0.25mg. I have managed
Moonpen
in
Restless Legs Syndrome
4 years ago
LETS GET YOU WELL no more RSL
These are the words Dr Glen Brooks used in NYC when he reached across the table and held my hand . And that is exactly what he did . I popped the tiny little wafer under my tongue . I go to sleep in under 3 minutes it is not a sleeping pill. No increase in dosage It also helps people with anxiety and
These are the words Dr Glen Brooks used in NYC when he reached across the table and held my hand . And that is exactly what he did . I popped the tiny little wafer under my tongue . I go to sleep in under 3 minutes it is not a sleeping pill. No increase in dosage It also helps people with anxiety and
Shumbah
in
Restless Legs Syndrome
4 years ago
Antidepressants and tirosint absorption
Does escitalopram or any antidepressant in general affects tirosint absorption in persons without thyroid?
Does escitalopram or any antidepressant in general affects tirosint absorption in persons without thyroid?
Maramonro
in
Thyroid UK
4 years ago
Pred Hair (male) Head & Facial
I would like to point out to the Mods and others, that my post of OH's Christmas Beard was in no way a "Holiday Photo" and was posted some hours before the mods made the request re Decamber 22nd. In Aunty Bee's post I replied "No Christmas juper but OH is cultivating a Christmas Beard - obviouly not
I would like to point out to the Mods and others, that my post of OH's Christmas Beard was in no way a "Holiday Photo" and was posted some hours before the mods made the request re Decamber 22nd. In Aunty Bee's post I replied "No Christmas juper but OH is cultivating a Christmas Beard - obviouly not
Nuff1
in
PMRGCAuk
4 years ago
Trazodone, RLS, and pregnancy
Hi all! Hope everyone is well. I posted about my pregnancy and rls struggles a couple of days ago and just wanted to update and ask some questions and hear any experiences from you all. I went to see my OB and she prescribed me Trazodone 100mg to take as needed for sleep. Last night I took it for the
Hi all! Hope everyone is well. I posted about my pregnancy and rls struggles a couple of days ago and just wanted to update and ask some questions and hear any experiences from you all. I went to see my OB and she prescribed me Trazodone 100mg to take as needed for sleep. Last night I took it for the
Emmarielee
in
Restless Legs Syndrome
4 years ago
80 ice cold baths - UPDATE
Two months ago I started and tomorrow I will grit my teeth for the last time. I have managed one a day, occasionally two but not often 😳. They have become considerably colder as the weather gets frostier and so does my water tank in the attic!! I've made it, even though halfway I felt I couldn't go
Two months ago I started and tomorrow I will grit my teeth for the last time. I have managed one a day, occasionally two but not often 😳. They have become considerably colder as the weather gets frostier and so does my water tank in the attic!! I've made it, even though halfway I felt I couldn't go
Tuccatoo
in
Restless Legs Syndrome
4 years ago
Gabapentin with Ropinirole
I have been through 2 different neurologists over the last 10 years, as they keep moving elsewhere. I ended up seeing a PA, who of all things, recommended that I continue with Ropinirole and drink more tonic water! You'd think that she would have read my charts and see that I've been through all the
I have been through 2 different neurologists over the last 10 years, as they keep moving elsewhere. I ended up seeing a PA, who of all things, recommended that I continue with Ropinirole and drink more tonic water! You'd think that she would have read my charts and see that I've been through all the
wcp2008
in
Restless Legs Syndrome
4 years ago
Not the most pleasant of questions
I have cirrhosis and along with a multitude of other medication I take lactulose daily. Now as you may be aware one of the nice side effects of lactulose is flatulence, and I mean pretty much none stop. This is both embarrassing to me and irritating to my family, is there anything I can do? is it ok
I have cirrhosis and along with a multitude of other medication I take lactulose daily. Now as you may be aware one of the nice side effects of lactulose is flatulence, and I mean pretty much none stop. This is both embarrassing to me and irritating to my family, is there anything I can do? is it ok
Chris-harris
in
British Liver Trust
4 years ago
Friend took my story to his doctor
Friend of mine went to the doctors today he has struggled with RSL but never taken any meds , just all the natural alternatives hot water bottles , magnesium etc . Cutting a long story short he told the doctor my story and he was prescribed temgesic which is .2 or 200 micrograms of Buprenorphine straight
Friend of mine went to the doctors today he has struggled with RSL but never taken any meds , just all the natural alternatives hot water bottles , magnesium etc . Cutting a long story short he told the doctor my story and he was prescribed temgesic which is .2 or 200 micrograms of Buprenorphine straight
Shumbah
in
Restless Legs Syndrome
4 years ago
Pramipexole
I am in a war with pramipexole it really is a battle and I feel I'm being tortured. I was on .78mg per day but now I have knocked off the .26mg pramipexole I'm down to .52mg extended release formula per day but my neurologist put me on Gabapentin 100mg capsules taken three times per day morning,afternoon
I am in a war with pramipexole it really is a battle and I feel I'm being tortured. I was on .78mg per day but now I have knocked off the .26mg pramipexole I'm down to .52mg extended release formula per day but my neurologist put me on Gabapentin 100mg capsules taken three times per day morning,afternoon
Hoochybaby
in
Restless Legs Syndrome
4 years ago
Hey all looking like I have Eds
Please can you tell me if you can have brain lesions with eds xx
Please can you tell me if you can have brain lesions with eds xx
Buckley123
in
Ehlers-Danlos Support UK
4 years ago
Is a combination of drugs the answer?
Having been on Prami for years, I tried Ropinerole which did not work for me so the Rotigotine (3mg) Neupropatch was great for a while until this summer when clearly augmentation set in again. I had a lot of sleepless nights until I discovered it worked well with 2 co-dydramol (plus one Senekot to help
Having been on Prami for years, I tried Ropinerole which did not work for me so the Rotigotine (3mg) Neupropatch was great for a while until this summer when clearly augmentation set in again. I had a lot of sleepless nights until I discovered it worked well with 2 co-dydramol (plus one Senekot to help
Felicity21
in
Restless Legs Syndrome
4 years ago
Ubiquinol (pure form)
Hi Ladies I read it starts with the egg in June so I bought one of the recommended brands (Jarrow Formula) and took 400mg per day for just under 3 months before ivf egg collection. In that cycle, 8 eggs were collected and 5 fertilised. All fertilised eggs made it to day 5 but just one blastocyst, which
Hi Ladies I read it starts with the egg in June so I bought one of the recommended brands (Jarrow Formula) and took 400mg per day for just under 3 months before ivf egg collection. In that cycle, 8 eggs were collected and 5 fertilised. All fertilised eggs made it to day 5 but just one blastocyst, which
LadyM2019
in
Fertility Network UK
4 years ago
Vitex and Myo inositol
Hi I have SLE over the past 9 years. I have PCOD and hormonal imbalance. I am trying to conceive for the past 3 years. But all the treatments failed. I tried IUI also. Now I am planning to take vitex and Myo Inositol supplements to cure hormonal imbalance. Is it good or bad to try them with lupus?
Hi I have SLE over the past 9 years. I have PCOD and hormonal imbalance. I am trying to conceive for the past 3 years. But all the treatments failed. I tried IUI also. Now I am planning to take vitex and Myo Inositol supplements to cure hormonal imbalance. Is it good or bad to try them with lupus?
Vinodha
in
LUPUS UK
4 years ago
Thank you for all the responses
I didn't mean to upset anyone. Yes I am from the US. This term, end stage, is new to me also. I have one of the best and well known RA docs. He as everyone else can or will not give precise enough explanation (for me) of what is coming. (I want to know worst case - best case) All ra patients are
I didn't mean to upset anyone. Yes I am from the US. This term, end stage, is new to me also. I have one of the best and well known RA docs. He as everyone else can or will not give precise enough explanation (for me) of what is coming. (I want to know worst case - best case) All ra patients are
alwayshome
in
NRAS
5 years ago
Help :(
So I applied this lidocaine gel that I got prescribed to see if it would help my vaginal Itching. Well I woke up an hour later with the worst itching and sensitivity of my life. Then it turned into my vagina burning. But the part thats bothering me the most is I'm having bad clitoral discomfort, its
So I applied this lidocaine gel that I got prescribed to see if it would help my vaginal Itching. Well I woke up an hour later with the worst itching and sensitivity of my life. Then it turned into my vagina burning. But the part thats bothering me the most is I'm having bad clitoral discomfort, its
Ambernicole
in
Pelvic Pain Support Network
5 years ago
Has this article on Steroid injections been shared?
https://www.theatlantic.com/health/archive/2019/10/steroid-injections-joint-pain/600193/?utm_campaign=the-atlantic&utm_content=5db8bd8b4c15b80001492820_ta&utm_medium=social&utm_source=facebook&fbclid=IwAR3FVR3NtsaG48FH05jnmkOPNX9Ka8WmzKqH9cq_qxZqzIUcBZaxk5zkxPE A Warning From a Doctor Who Has Done
https://www.theatlantic.com/health/archive/2019/10/steroid-injections-joint-pain/600193/?utm_campaign=the-atlantic&utm_content=5db8bd8b4c15b80001492820_ta&utm_medium=social&utm_source=facebook&fbclid=IwAR3FVR3NtsaG48FH05jnmkOPNX9Ka8WmzKqH9cq_qxZqzIUcBZaxk5zkxPE A Warning From a Doctor Who Has Done
OutdoorsyGal
in
PMRGCAuk
5 years ago
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