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Joint hypermobility syndrome
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More Methadone?
I have had RLS for decades with real relief pretty well only from the now - forbidden Pramipexole. I have been on Methadone 15 mg at bedtime for about 2 years now which has been pretty good, allowing me approximately 5 hours of sleep some nights. Recently it has worked less well. I’ve been up frequently
I have had RLS for decades with real relief pretty well only from the now - forbidden Pramipexole. I have been on Methadone 15 mg at bedtime for about 2 years now which has been pretty good, allowing me approximately 5 hours of sleep some nights. Recently it has worked less well. I’ve been up frequently
wairoa36
in
Restless Legs Syndrome
10 months ago
Ubiquinol
Hello ladies, so I should hopefully be starting my first round of IVF next week staring with a AFC scan as soon as AF arrives. Do you think it would be worth upping my dosage of ubiquinol CoQ10 between now and egg collection? Not sure if it might be too late. I’m currently taking 100mg a day. Thanks
Hello ladies, so I should hopefully be starting my first round of IVF next week staring with a AFC scan as soon as AF arrives. Do you think it would be worth upping my dosage of ubiquinol CoQ10 between now and egg collection? Not sure if it might be too late. I’m currently taking 100mg a day. Thanks
mumma_in_the_making
in
Fertility Network UK
1 year ago
Seeking advice for London private fertility clinics
Hi everyone, I’m now 36, living in NW London. Previously diagnosed abroad with PCOS and prescribed oral clomiphene citrate with an unsatisfactory result. Only conducted basic tests and screening requested by GP for the sake of secondary care referral in NHS. While waiting for my first appointment at
Hi everyone, I’m now 36, living in NW London. Previously diagnosed abroad with PCOS and prescribed oral clomiphene citrate with an unsatisfactory result. Only conducted basic tests and screening requested by GP for the sake of secondary care referral in NHS. While waiting for my first appointment at
fupafupa
in
Fertility Network UK
1 year ago
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3pd5t and cabergoline for prolactin
hello everyone! Hope u are all doing great. Today is day 3 of my frozen embryo transfer and because i have hyperprolactinemia i have being taken cabergoline weekly. So im supposed to take my weekly dosage (cabergoline 0.5) today but i was sceptical though my Dr said i can take it, i took it but im so
hello everyone! Hope u are all doing great. Today is day 3 of my frozen embryo transfer and because i have hyperprolactinemia i have being taken cabergoline weekly. So im supposed to take my weekly dosage (cabergoline 0.5) today but i was sceptical though my Dr said i can take it, i took it but im so
Babygirllllll
in
Fertility Network UK
1 year ago
Methadone withdrawal?
I am asking for a member on the fb page i am co-admin of. This lady is having a methadone drug holiday as instructed by her doctor. Her methadone isn’t working after being on it for several years. She is weaning off it but nothing she has tried to help with withdrawals is helping including medicinal
I am asking for a member on the fb page i am co-admin of. This lady is having a methadone drug holiday as instructed by her doctor. Her methadone isn’t working after being on it for several years. She is weaning off it but nothing she has tried to help with withdrawals is helping including medicinal
Hidden
in
Restless Legs Syndrome
11 months ago
Upset after consultation
Hi everyone. Sorry for long post but I think it helped me writing this out. I just had a consultation with rheumatologist which didn't go well. I had antibiotics back in Feb and came off the Baricitinib for a week and then was referred for colonoscopy/biopsies. I spoke to helpline and nurse said
Hi everyone. Sorry for long post but I think it helped me writing this out. I just had a consultation with rheumatologist which didn't go well. I had antibiotics back in Feb and came off the Baricitinib for a week and then was referred for colonoscopy/biopsies. I spoke to helpline and nurse said
Mozart150
in
NRAS
1 year ago
Personal Sleep PR
This is the first time I have passed 8 hours of sleep in the almost 8 years of keeping track. I usually score 80 or 81. 89 is an all time record for me. So what happened. First off, I could feel my RLS earlier in the evening. Little things were beginning to trigger my RLS, nothing strong but
This is the first time I have passed 8 hours of sleep in the almost 8 years of keeping track. I usually score 80 or 81. 89 is an all time record for me. So what happened. First off, I could feel my RLS earlier in the evening. Little things were beginning to trigger my RLS, nothing strong but
WideBody
in
Restless Legs Syndrome
9 months ago
Coming off Pramipexole
I'm a 65 year old female in Norfolk in the UK, with hereditary RLS for which I was prescribed X1 every evening 0.088mg Pramipexole some 10 (possibly?) years ago. A year ago I had a single mastectomy, am on Anastrazole oestrogen suppressant hormone treatment and a Calcium/D3 supplement for that, along
I'm a 65 year old female in Norfolk in the UK, with hereditary RLS for which I was prescribed X1 every evening 0.088mg Pramipexole some 10 (possibly?) years ago. A year ago I had a single mastectomy, am on Anastrazole oestrogen suppressant hormone treatment and a Calcium/D3 supplement for that, along
GreyMaus
in
Restless Legs Syndrome
11 months ago
Dopamine Agonist withdrawal syndrome
On what would have been Robin Williams' 72nd birthday, a reminder of how dangerous dopamine agonists can be. If you mention DAWS to a UK doctor, they have no idea what we are talking about. They mistakenly say it only happens if the patient had Impulse Control Disorder. It can affect anyone taking these
On what would have been Robin Williams' 72nd birthday, a reminder of how dangerous dopamine agonists can be. If you mention DAWS to a UK doctor, they have no idea what we are talking about. They mistakenly say it only happens if the patient had Impulse Control Disorder. It can affect anyone taking these
Joolsg
in
Restless Legs Syndrome
11 months ago
RLS Ropinirole withrawl
My husband who is 79 yrs old is suffering from RLS and has all his life. The last 10 yrs have been almost unbearable. Ropinirole 8mg @ day is the only drug that gave him some relief but they have stopped making them and we have been weaning off of them for 2 mos now, are down to 2mg a day for 7 more
My husband who is 79 yrs old is suffering from RLS and has all his life. The last 10 yrs have been almost unbearable. Ropinirole 8mg @ day is the only drug that gave him some relief but they have stopped making them and we have been weaning off of them for 2 mos now, are down to 2mg a day for 7 more
Nahfranz
in
Restless Legs Syndrome
11 months ago
Tingling sensation in my fingers and hands. Is it caused by augmentation ?
Hello everyone my RLS is getting worse. I live in Mexico. I wanted everyone to know before I got started because there are certain drugs like buprenorphine I can’t get here. I’m finding that my arms and hands have this funny tingling in them when I go to bed. No jumping like my legs. It’s just a tingling
Hello everyone my RLS is getting worse. I live in Mexico. I wanted everyone to know before I got started because there are certain drugs like buprenorphine I can’t get here. I’m finding that my arms and hands have this funny tingling in them when I go to bed. No jumping like my legs. It’s just a tingling
Jrskyhook32
in
Restless Legs Syndrome
11 months ago
Tortuous
I'm now in my 4th week (feels like years!) of reducing Ropinirole and taking Pregabalin. GP prescribed 50mg which I quickly increased to 100 and I am now taking that with 0.5mg Ropinirole instead of 0.15mg. The moment I sit and 'settle' (no chance!)for the evening off go the legs. I'm already very low
I'm now in my 4th week (feels like years!) of reducing Ropinirole and taking Pregabalin. GP prescribed 50mg which I quickly increased to 100 and I am now taking that with 0.5mg Ropinirole instead of 0.15mg. The moment I sit and 'settle' (no chance!)for the evening off go the legs. I'm already very low
Firenze1
in
Restless Legs Syndrome
11 months ago
Advice on codeine v tramadol
I'm hoping for some advice because my doctor and the neurologists have been no help. For the past few years I have been taking 50mg tramadol, 300mg Gabapentin and 50mg sertraline. Prior to this I managed to wean off Pramipexole. I haven't increased the dosage of any of my current meds because I had hoped
I'm hoping for some advice because my doctor and the neurologists have been no help. For the past few years I have been taking 50mg tramadol, 300mg Gabapentin and 50mg sertraline. Prior to this I managed to wean off Pramipexole. I haven't increased the dosage of any of my current meds because I had hoped
Night_raven
in
Restless Legs Syndrome
11 months ago
Cannabis and Restless Leg
Hi all, I was told recently that cannabis, in whichever form you choose, may be helpful in relieving restless leg. Do any of you try this with any success? I had a weed cookie last night, very low dose, and it SEEMED to help, but I had only reduced my Mirapexin, not refrained completely, so I'm not
Hi all, I was told recently that cannabis, in whichever form you choose, may be helpful in relieving restless leg. Do any of you try this with any success? I had a weed cookie last night, very low dose, and it SEEMED to help, but I had only reduced my Mirapexin, not refrained completely, so I'm not
Farmgurl1
in
Restless Legs Syndrome
11 months ago
RLS-UK New Film - Ropinirole/Pramipexole/Neupro Patch
RLS-UK is commissioning a new film by a documentary company called SuperFolk Films. They have worked with other charities, including Parkinson's UK. The team would like to interview and film UK patients currently reducing Dopamine Agonists. Preferably, near the last stage of reduction. If you are
RLS-UK is commissioning a new film by a documentary company called SuperFolk Films. They have worked with other charities, including Parkinson's UK. The team would like to interview and film UK patients currently reducing Dopamine Agonists. Preferably, near the last stage of reduction. If you are
Kaarina
Administrator
in
Restless Legs Syndrome
11 months ago
finished Neupro taper and looking for guidance on increasing my Gabapentin dosage
I’ve been taking Neupro 1mg and 400mg x 2 Gabapentin daily for my RLS. In the last 3 months I tapered off Neupro (1mg to 0.75 to 0.5 to 0.25 to 0) with my neurologist since I was experiencing more RLS symptoms despite being on Neupro. My RLS symptoms appeared most nights during the taper and I managed
I’ve been taking Neupro 1mg and 400mg x 2 Gabapentin daily for my RLS. In the last 3 months I tapered off Neupro (1mg to 0.75 to 0.5 to 0.25 to 0) with my neurologist since I was experiencing more RLS symptoms despite being on Neupro. My RLS symptoms appeared most nights during the taper and I managed
Discopage
in
Restless Legs Syndrome
11 months ago
This might be found useful?
I was on here quite a bit after a total knee replacement two years ago. Nothing much seemed to help that wasn't either an opoid or some other harsh drug. I decided to load up on Fenugreek water each day (one quart from simmering 2 Tablesp. seed in one quart of water, cooling, then straining-seeds can
I was on here quite a bit after a total knee replacement two years ago. Nothing much seemed to help that wasn't either an opoid or some other harsh drug. I decided to load up on Fenugreek water each day (one quart from simmering 2 Tablesp. seed in one quart of water, cooling, then straining-seeds can
Dedou
in
Restless Legs Syndrome
11 months ago
Lyrica pregabalin
Since Horizant is now breaking down before 24 hours, I’m thinking of switching to Pregabalin/Lyrica. What is the group’s experience with pregabalin? Has it helped people?
Since Horizant is now breaking down before 24 hours, I’m thinking of switching to Pregabalin/Lyrica. What is the group’s experience with pregabalin? Has it helped people?
tagaxel
in
Restless Legs Syndrome
11 months ago
Aids post knee replacement
I'm due a total knee replacement next month. I already have an easy reach grabber, a leg raiser and a raised toilet seat from when I had a new hip last year. Are there other things that people have found helpful? Thanks 😊 x
I'm due a total knee replacement next month. I already have an easy reach grabber, a leg raiser and a raised toilet seat from when I had a new hip last year. Are there other things that people have found helpful? Thanks 😊 x
greynot
in
NRAS
11 months ago
22pagents22
Dear everyone is it just me or the media and government talking about economically inactive people feel they are talking about disabled people in chronic pain etc getting the persecution again with pip renewal awards cut or refused and being told nothing wrong with you go get a job etc ie 2014 change
Dear everyone is it just me or the media and government talking about economically inactive people feel they are talking about disabled people in chronic pain etc getting the persecution again with pip renewal awards cut or refused and being told nothing wrong with you go get a job etc ie 2014 change
22pagets22
in
Fibromyalgia Action UK
1 year ago
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