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Experiences with
Intravenous immunoglobulin (IVIg)
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In Remission for a year
The first time I had less then 10 for a couple weeks which was brought back to normal with
IVIG
and promacta. I was on medication for a month then none at all. Platelets went back to normal for 14 months before less then 10 again. Shorter time to return to normal 2 weeks after
IVIG
and promacta.
The first time I had less then 10 for a couple weeks which was brought back to normal with
IVIG
and promacta. I was on medication for a month then none at all. Platelets went back to normal for 14 months before less then 10 again. Shorter time to return to normal 2 weeks after
IVIG
and promacta.
joecirillo
in
ITP Support Association
9 months ago
Early results of the Pirtobrutinib, Obinituzumab, Venetoclax trial I'm on have just been published
Per the trial protocol, I was admitted to my local hospital, and did IV antibiotics and
IVIG
. I was discharged after the fever cleared, and then resumed trial meds. =seymour=
Per the trial protocol, I was admitted to my local hospital, and did IV antibiotics and
IVIG
. I was discharged after the fever cleared, and then resumed trial meds. =seymour=
SeymourB
in
CLL Support
4 months ago
Recurrent implantation failure - please give me hope
Aspirin, hysteroscopy,
ivig
, pga, natural tfr etc etc. All is see is time and money.. .... I've one embryo left and then I need to decide on donor or another chance at my own eggs. But I'm worried that even donor won't ever work cause there's just something wrong with me.
Aspirin, hysteroscopy,
ivig
, pga, natural tfr etc etc. All is see is time and money.. .... I've one embryo left and then I need to decide on donor or another chance at my own eggs. But I'm worried that even donor won't ever work cause there's just something wrong with me.
Joeysjourney
in
Fertility Network UK
4 months ago
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arrhythmia and the flu and Covid vaccine
I feel like I get some protection through my
ivig
. I wonder if one can have too many antibodies?
I feel like I get some protection through my
ivig
. I wonder if one can have too many antibodies?
CoCoLuna11
in
CLL Support
7 months ago
FIRST IVIG
I was nervous about starting the
IVIG
, and was aware that some people get unpleasant side effects frequently including headaches that can last, dizziness, weakness, etc, and in some cases some dangerous ones.
I was nervous about starting the
IVIG
, and was aware that some people get unpleasant side effects frequently including headaches that can last, dizziness, weakness, etc, and in some cases some dangerous ones.
wizzard166
in
CLL Support
1 year ago
Dog bite not on my Xmas list
I’m on acalabrutinib and I get
ivig
every 6 weeks.
I’m on acalabrutinib and I get
ivig
every 6 weeks.
CoCoLuna11
in
CLL Support
9 months ago
Is there a risk of IGG atrophy when getting regular IVIG transfusions?
I am not currently on any medication… but I qualify for monthly
IVIG
based on old measurements. I like being able to get it, but not if it means I will become dependent on it forever. Does IGG recover with successful treatment on its own?
I am not currently on any medication… but I qualify for monthly
IVIG
based on old measurements. I like being able to get it, but not if it means I will become dependent on it forever. Does IGG recover with successful treatment on its own?
Kvb-texas
in
CLL Support
11 months ago
Autoimmune Encephilitis
They are treating her aggressively with 7 days of steroids and 7 days of PLEX, and talked about something called
IVIG
after those 2. She hasn’t talked in the past week, only opens her eyes every other day for a few seconds, and cannot communicate.
They are treating her aggressively with 7 days of steroids and 7 days of PLEX, and talked about something called
IVIG
after those 2. She hasn’t talked in the past week, only opens her eyes every other day for a few seconds, and cannot communicate.
emquinty
in
Encephalitis International
9 months ago
IVIG - how soon does it benefit?
I think what we were initially told is that
IVIG
is basically like pouring immunity into the body, but not sure if that’s overstating it a bit.
I think what we were initially told is that
IVIG
is basically like pouring immunity into the body, but not sure if that’s overstating it a bit.
OaktownA
in
CLL Support
1 year ago
Advice for managing adenomyosis
Instead, she pushed for the ERA test and
IVIG
instead of intralipids. I would like to down regulate for a longer period as the doctor who diagnosed me said that would help but my doctor wasn’t sure. Does anyone have any advice?
Instead, she pushed for the ERA test and
IVIG
instead of intralipids. I would like to down regulate for a longer period as the doctor who diagnosed me said that would help but my doctor wasn’t sure. Does anyone have any advice?
Sophia_Mama
in
Fertility Network UK
7 months ago
Follow up T3 question
They tried to treat my immune deficiency (which was generalized--low antibody levels of all kinds, lowish T cells, lowish lymphocytes generally & the labs didn't really go with the clinical picture with
IVIG
(actually subQ) until it almost killed me by allergic reaction & also didn't help). 2) Assuming
They tried to treat my immune deficiency (which was generalized--low antibody levels of all kinds, lowish T cells, lowish lymphocytes generally & the labs didn't really go with the clinical picture with
IVIG
(actually subQ) until it almost killed me by allergic reaction & also didn't help). 2) Assuming
BlueGreenWordyDoc
in
Thyroid UK
5 months ago
ZANUBRUTINIB TREATMENT STARTS IN JANUARY
She also wanted me to start immediately upon getting home on
IVIG
, and that I did give in to and had my first Infusion on October 1. Thank God I started the
IVIG
, as I haven't gotten sick yet since that first monthly infusion.
She also wanted me to start immediately upon getting home on
IVIG
, and that I did give in to and had my first Infusion on October 1. Thank God I started the
IVIG
, as I haven't gotten sick yet since that first monthly infusion.
62Panhead
in
CLL Support
9 months ago
Brukinsa and Skin
I started Brukinsa on January 1, and I'm also on
IVIG
infusions once every four weeks since October 1.
I started Brukinsa on January 1, and I'm also on
IVIG
infusions once every four weeks since October 1.
wizzard166
in
CLL Support
8 months ago
Getting IVIG prophylactically?
In 2021, he got
IVIG
after a bout with immunthrombocytopenia, and it was event-free and successful. During recent hospital stay for the staph infection, an
IVIG
was started. However, about an hour into the infusion he had a fairly strong reaction (rigors) and it had to be stopped.
In 2021, he got
IVIG
after a bout with immunthrombocytopenia, and it was event-free and successful. During recent hospital stay for the staph infection, an
IVIG
was started. However, about an hour into the infusion he had a fairly strong reaction (rigors) and it had to be stopped.
OaktownA
in
CLL Support
1 year ago
First IVIG infusion
I've been on W&W for almost 7 years and I can't say im not concerned/anxious about starting
ivig
this coming Tuesday 8/8. This is the first time my immunoglobulins have been exceptionaaly low instead of borderline.
I've been on W&W for almost 7 years and I can't say im not concerned/anxious about starting
ivig
this coming Tuesday 8/8. This is the first time my immunoglobulins have been exceptionaaly low instead of borderline.
Lo16
in
CLL Support
1 year ago
covid vaccine
It took about 3 weeds of promacta and on
IVig
treatment to get them back to normal where I have remained for the last 10 months. So I do not want to mess that up by taking the vaccines again even though my hematologist is not sure that is what trigger a reccurence.
It took about 3 weeds of promacta and on
IVig
treatment to get them back to normal where I have remained for the last 10 months. So I do not want to mess that up by taking the vaccines again even though my hematologist is not sure that is what trigger a reccurence.
joecirillo
in
ITP Support Association
1 year ago
Immunology when using donor eggs
I had tests which showed high NK cells and cytokines and had tried intralipids and
IVIG
to address it (to be fair, my transfer still didn't work in spite of using them).
I had tests which showed high NK cells and cytokines and had tried intralipids and
IVIG
to address it (to be fair, my transfer still didn't work in spite of using them).
Skittles11
in
Fertility Network UK
11 months ago
IVIG while having ET?
One idea was to try
IVIG
.. Articles have been published about how pegulated interferons have caused CIDP when used for treatment in hepatitis and
IVIG
was used to resolve it. My neuropathy is not CIDP but I was told by a couple doctors to try
IVIG
anyway.
One idea was to try
IVIG
.. Articles have been published about how pegulated interferons have caused CIDP when used for treatment in hepatitis and
IVIG
was used to resolve it. My neuropathy is not CIDP but I was told by a couple doctors to try
IVIG
anyway.
George1976
in
MPN Voice
11 months ago
Mylo Fibrosis, et al
My Oncologist recently mentioned the possibility of
IVIG
treatments depending on how my Immunoglobulins check out. Sounds like a monthly IV treatment to bolster my Immune System. Does anyone have any experience with
IVIG
, or any other treatments to bolster the Immune System?
My Oncologist recently mentioned the possibility of
IVIG
treatments depending on how my Immunoglobulins check out. Sounds like a monthly IV treatment to bolster my Immune System. Does anyone have any experience with
IVIG
, or any other treatments to bolster the Immune System?
luvinretirement
in
MPN Voice
1 year ago
lymphocytes/neutrophils
After 5 of 6 of fludarabine cyclophosphamide rituximab I went into semi remission and now after many hospitalizations with infection have
IVIG
once a month that works quite well at keeping me out of the hospital.
After 5 of 6 of fludarabine cyclophosphamide rituximab I went into semi remission and now after many hospitalizations with infection have
IVIG
once a month that works quite well at keeping me out of the hospital.
Kimsome
in
CLL Support
1 year ago
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