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Experiences with
Intravenous immunoglobulin (IVIg)
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Update
I was on high dose predisolone which made me feel awful and I didn't respond to it, I was then given
ivig
to buy me some time. Basically it was all going pearshaped !! Anyway I was started on rituximab treatment and had to continue with the steroids.
I was on high dose predisolone which made me feel awful and I didn't respond to it, I was then given
ivig
to buy me some time. Basically it was all going pearshaped !! Anyway I was started on rituximab treatment and had to continue with the steroids.
Olivia2812
in
ITP Support Association
7 years ago
The British Society for Rheumatology guideline for the management of systemic lupus erythematosus in adults
IVIG
(2-/D) and plasmapheresis (3/D) may be considered in patients with refractory cytopaenias, thrombotic thrombocytopaenic purpura (1+/B), rapidly deteriorating acute confusional state and the catastrophic variant of APS (SOA 93%).
IVIG
(2-/D) and plasmapheresis (3/D) may be considered in patients with refractory cytopaenias, thrombotic thrombocytopaenic purpura (1+/B), rapidly deteriorating acute confusional state and the catastrophic variant of APS (SOA 93%).
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
7 years ago
Lupus? ITP?
I was given 3 dosages of
IVIG
through August. I started steroids yesterday, 150 mg/4 days. I got tested for lupus because my joints hurt and I crack a lot. He thinks it's just ITP but I'm so scared! Prednisone is the steroid i'm on. No bad reactions yet.
I was given 3 dosages of
IVIG
through August. I started steroids yesterday, 150 mg/4 days. I got tested for lupus because my joints hurt and I crack a lot. He thinks it's just ITP but I'm so scared! Prednisone is the steroid i'm on. No bad reactions yet.
16ITP
in
ITP Support Association
7 years ago
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Questions about stopping Imbruvica due to infection
ago after struggling with a 6 month respiratory infections his cancer was back and around the same time he had a complete immune system collapse he had no neutrophils and incredibly low WBC's, it was a frightening time and he battled back restoring his immune system with neupogen shots and monthly
IVIG
ago after struggling with a 6 month respiratory infections his cancer was back and around the same time he had a complete immune system collapse he had no neutrophils and incredibly low WBC's, it was a frightening time and he battled back restoring his immune system with neupogen shots and monthly
IVIG
bellasmom
in
CLL Support
7 years ago
Recent Diagnosis
My platelets have been 13, up to 44 with
IVIG
, down to 22, up to 48 with
IVIG
, down to 15, up to 40 and 18 the last time I checked. That was a few days ago and I know it dropped. Is it chronic because I'm so low? Am I going to die? I'm only 16 and this is all so new to me and it's crazy.
My platelets have been 13, up to 44 with
IVIG
, down to 22, up to 48 with
IVIG
, down to 15, up to 40 and 18 the last time I checked. That was a few days ago and I know it dropped. Is it chronic because I'm so low? Am I going to die? I'm only 16 and this is all so new to me and it's crazy.
16ITP
in
ITP Support Association
7 years ago
FCR 18 months later
Except for infection issues, for which I receive
IVIG
, I am doing great. I am wondering if anyone else who is unmutated received FCR and my big question is, how long did your response last? I know it will be shorter than if I were mutated. Thank you, Kathy
Except for infection issues, for which I receive
IVIG
, I am doing great. I am wondering if anyone else who is unmutated received FCR and my big question is, how long did your response last? I know it will be shorter than if I were mutated. Thank you, Kathy
beanlake14
in
CLL Support
7 years ago
Life or death... Or IVIG.
Anyway, thank all of you that suggested
IVIG
. I don't know why I am so sick. But heres to
IVIG
working to ward off bacterial infections in the hospital and life and death hanging over my head at 51. Have you every heard of someone in remission so sick, one illness after another?
Anyway, thank all of you that suggested
IVIG
. I don't know why I am so sick. But heres to
IVIG
working to ward off bacterial infections in the hospital and life and death hanging over my head at 51. Have you every heard of someone in remission so sick, one illness after another?
Kimsome
in
CLL Support
7 years ago
Stay positive x
Predisolone no good,
ivig
no good , platelets at 9 .so starting rituximab, hopefully it will do the job. I want to get better for myself but more so for my husband and daughter who have been superb support. Anyway kind thoughts to you all and wish you a speedy recovery. X
Predisolone no good,
ivig
no good , platelets at 9 .so starting rituximab, hopefully it will do the job. I want to get better for myself but more so for my husband and daughter who have been superb support. Anyway kind thoughts to you all and wish you a speedy recovery. X
Olivia2812
in
ITP Support Association
7 years ago
Itp verses sle
I have primary sle and secondary Itp, recently my sle had been in remission but my Itp had been uncontrollable I have tried every treatment medication, rituximab nothing works and my body now rejects prednisalone, so I have to have
ivig
, I had my last one last week and my platelets are up to 93 which
I have primary sle and secondary Itp, recently my sle had been in remission but my Itp had been uncontrollable I have tried every treatment medication, rituximab nothing works and my body now rejects prednisalone, so I have to have
ivig
, I had my last one last week and my platelets are up to 93 which
Manclady61
in
LUPUS UK
7 years ago
Results
My platelets are now 42 after having bloods today ( dropped since
ivig
as it was a short term solution ) I am not too concerned my hemotologist mentioned we need to look at options I am quite happy to just get monitered but she mentioned holigistic approach as I had bad reactions with
ivig
drip and steroids
My platelets are now 42 after having bloods today ( dropped since
ivig
as it was a short term solution ) I am not too concerned my hemotologist mentioned we need to look at options I am quite happy to just get monitered but she mentioned holigistic approach as I had bad reactions with
ivig
drip and steroids
Topography52_-
in
ITP Support Association
7 years ago
FISH test result changed post chemo
He has
IVIG
infusions for repeated infections. Anyone else been in this situation. Was a total shock to find these deletions and am very worried re prognosis. Any input gratefully received. We live in UK.
He has
IVIG
infusions for repeated infections. Anyone else been in this situation. Was a total shock to find these deletions and am very worried re prognosis. Any input gratefully received. We live in UK.
lemsford
in
CLL Support
7 years ago
ITP , 6000 - 23000 platelet count, Age 69
Platelets count 4000, Got
IVIG
now able to speak (2 weeks before) 2. Had 30 units of Platelet transfusion in 10 days. 5 units Single Donor Platelet 3.
Platelets count 4000, Got
IVIG
now able to speak (2 weeks before) 2. Had 30 units of Platelet transfusion in 10 days. 5 units Single Donor Platelet 3.
RONALD-DASON-P
in
ITP Support Association
7 years ago
Ivig
I read all the time of peoples counts going up by the hundreds after
ivig
drip mine only went to 210 any thoughts please obviously mine have now dropped I am just curious why some people see a significant boost and others not : (
I read all the time of peoples counts going up by the hundreds after
ivig
drip mine only went to 210 any thoughts please obviously mine have now dropped I am just curious why some people see a significant boost and others not : (
Topography52_-
in
ITP Support Association
7 years ago
My mom and son both have ITP. Anyone else?
He was admitted to the hospital with platelets of 5000, given 3 courses of
IVIG
and started on steroids before his body responded. Last platelet count was 300,000 (woohoo!!!). This past week, my mother was also admitted with platelets of 5000.
He was admitted to the hospital with platelets of 5000, given 3 courses of
IVIG
and started on steroids before his body responded. Last platelet count was 300,000 (woohoo!!!). This past week, my mother was also admitted with platelets of 5000.
Kelly109
in
ITP Support Association
7 years ago
High fever as side effect of Ibrutinib ?
For the last 2 years I am on monthly
IVIG
because of frequent pneumonias. Helped really good. Now my CLL has returned . 4 months ago a low grade fever started , about 37.5C .
For the last 2 years I am on monthly
IVIG
because of frequent pneumonias. Helped really good. Now my CLL has returned . 4 months ago a low grade fever started , about 37.5C .
GIDI
in
CLL Support
7 years ago
Vacation
I do tend to get infections a great deal, and
IVIG
helps tremendously. Here is my question. We are heading to Idaho for the lakes and mountains. I worry about infections obtained from lake swimming. Does anyone continue to do that? i haven't been in the ocean yet since diagnosis.
I do tend to get infections a great deal, and
IVIG
helps tremendously. Here is my question. We are heading to Idaho for the lakes and mountains. I worry about infections obtained from lake swimming. Does anyone continue to do that? i haven't been in the ocean yet since diagnosis.
beanlake14
in
CLL Support
7 years ago
Migratory joint pain.
I have only been on Imbruvica other than
IVIG
, doing great other than the migratory joint pain. Suggestions?
I have only been on Imbruvica other than
IVIG
, doing great other than the migratory joint pain. Suggestions?
usapajgy
in
CLL Support
7 years ago
Fall i platelets count after ivig treatment
My platelates fall upto 2000 then after transfusion treated with
ivig
treatment. My platelates level rises upto 1.4 lakh with in a month but after that falls to 40 thouand. I m on depsone 100 mg. Im worried now please comment is this fall and rise is common in itp
My platelates fall upto 2000 then after transfusion treated with
ivig
treatment. My platelates level rises upto 1.4 lakh with in a month but after that falls to 40 thouand. I m on depsone 100 mg. Im worried now please comment is this fall and rise is common in itp
Vika0001
in
ITP Support Association
7 years ago
IVIG with Imbruvica
I have been on
IVIG
10+ years, starting with only cold seasonal treatment. I have been on
IVIG
30 grams q 28 days continuously for almost 6 years. I started Imbruvica 14 days ago due to my first leukemia recurrence since remission, 2011.
I have been on
IVIG
10+ years, starting with only cold seasonal treatment. I have been on
IVIG
30 grams q 28 days continuously for almost 6 years. I started Imbruvica 14 days ago due to my first leukemia recurrence since remission, 2011.
W00dfin
in
CLL Support
7 years ago
My daughter is doing well. Thanks for your blessings
As you all know , in Nov,16.. her hematologist made her stopped all medications after gradually tapering her steroid doses from Aug .. when she was diagnosed with ITP at 4000 count and got
IVIG
infusion.
As you all know , in Nov,16.. her hematologist made her stopped all medications after gradually tapering her steroid doses from Aug .. when she was diagnosed with ITP at 4000 count and got
IVIG
infusion.
Toughytoughy
in
ITP Support Association
7 years ago
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