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Irlen syndrome
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Left atrial enlargement
Hello!I was wondering if anyone has experience of this. What can be done about it, is it reversible with optimal levo? For context, I have Hashi's, I'm 51 and currently experiencing another bout of terrible anxiety ( last time was 5 years ago). Tests have discovered the enlarged LA. I don't have any
Hello!I was wondering if anyone has experience of this. What can be done about it, is it reversible with optimal levo? For context, I have Hashi's, I'm 51 and currently experiencing another bout of terrible anxiety ( last time was 5 years ago). Tests have discovered the enlarged LA. I don't have any
MPG1972
in
Thyroid UK
2 years ago
Shortage of Pramipexole 0.18mg? UK
Hi fellow sufferers, can I ask please if anyone else in the UK is finding it impossible to get Pramipexole 0.18mg? I didn’t have a problem until late January. My local pharmacy just tell me they cannot get it. The pharmacy attached to my GP surgery offered to prescribe Ropinerole instead and I
Hi fellow sufferers, can I ask please if anyone else in the UK is finding it impossible to get Pramipexole 0.18mg? I didn’t have a problem until late January. My local pharmacy just tell me they cannot get it. The pharmacy attached to my GP surgery offered to prescribe Ropinerole instead and I
Felixstowe
in
Restless Legs Syndrome
2 years ago
GBAPENTIN TIMES
Hi, Sue I take Madopor for Parkinsons 1200 mg split into 4 doses and evening I take 2 600mg Gabapentin 4 hrs before bed and 2 600mg Gabapentin and 2 Tramadol 2 hours before bed but waken every morning at 4am with restless legs and take 1 300mg Madapor to help me to getting up what times do
Hi, Sue I take Madopor for Parkinsons 1200 mg split into 4 doses and evening I take 2 600mg Gabapentin 4 hrs before bed and 2 600mg Gabapentin and 2 Tramadol 2 hours before bed but waken every morning at 4am with restless legs and take 1 300mg Madapor to help me to getting up what times do
auldreekie18
in
Restless Legs Syndrome
2 years ago
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6 weeks baby implanted on the low side of the womb
hi , I am 6 weeks pregnant, went through so much so far , started with no meds enough ( ivf abroad) , bleeding, …. I still have spotting, my doctor told me to start progynova ( estradiol) 2 times a day. I repeated hcg ( 9000 ) and done a scan . I was told I have a Subchorionic hematoma (SCH) next to
hi , I am 6 weeks pregnant, went through so much so far , started with no meds enough ( ivf abroad) , bleeding, …. I still have spotting, my doctor told me to start progynova ( estradiol) 2 times a day. I repeated hcg ( 9000 ) and done a scan . I was told I have a Subchorionic hematoma (SCH) next to
MariannaB
in
Fertility Network UK
2 years ago
kratom issues
my husband started using kratom about 6 months ago because we can’t get cbd where we live. It was working ok but it’s no longer Easy which has been my problem with it from the Start. We will go back to usa in about 6 weeks. Until then his only option is kratom. he can’t use opiods because he’s bipolar
my husband started using kratom about 6 months ago because we can’t get cbd where we live. It was working ok but it’s no longer Easy which has been my problem with it from the Start. We will go back to usa in about 6 weeks. Until then his only option is kratom. he can’t use opiods because he’s bipolar
RCHD
in
Restless Legs Syndrome
2 years ago
GABA Nutrientsupplement vs Gabapentin and other Prescription Drugs of the same order
I have had RLS for about 6 years. The first medication was Levodopa 100mg as usual. After about 2 years it didn‘t do anything for me anymore. My new medication was Pramipexol 0.088 mg, which for 6 months worked OK. Then continuesly insomnia set in and I was sleeping or better just dosing off for 1-2
I have had RLS for about 6 years. The first medication was Levodopa 100mg as usual. After about 2 years it didn‘t do anything for me anymore. My new medication was Pramipexol 0.088 mg, which for 6 months worked OK. Then continuesly insomnia set in and I was sleeping or better just dosing off for 1-2
Ohmg
in
Restless Legs Syndrome
2 years ago
ChatGPT and Restless legs
many. of us now use ChatGPT to answer any questions we might. have. I asked ChatGPT about restless leg syndrome. Below are the answers. How do you deal with a severe case of a patient with restless leg syndrome? How can you help them with the discomfort and sleepless nights? 1. Use medication
many. of us now use ChatGPT to answer any questions we might. have. I asked ChatGPT about restless leg syndrome. Below are the answers. How do you deal with a severe case of a patient with restless leg syndrome? How can you help them with the discomfort and sleepless nights? 1. Use medication
thorp
in
Restless Legs Syndrome
2 years ago
length of time for biopsy results
Hi, had a partial lung lobectomy and lymph node removal, was told biopsy results would be back in 7-10 days. It’s now been 41 days and I’ve heard nothing. When I contact various people I’m just being told this length of timeframe is not uncommon.. this does not sound right to me… Anyone else had to wait
Hi, had a partial lung lobectomy and lymph node removal, was told biopsy results would be back in 7-10 days. It’s now been 41 days and I’ve heard nothing. When I contact various people I’m just being told this length of timeframe is not uncommon.. this does not sound right to me… Anyone else had to wait
Hidden
in
Lung Conditions Community Forum
2 years ago
Caffeine / pregabalin / conflicting advice
I am under Professor Walker at Queen Square, a specialist for RLS. I am on Pregabalin (300mg before bedtime). But also on Citalopram for HRT, which he said should be switched to Bupropion as it worsens RLS. Unfortunately he did not give an amount, so my GP had to phone the "hot line" to a bank of
I am under Professor Walker at Queen Square, a specialist for RLS. I am on Pregabalin (300mg before bedtime). But also on Citalopram for HRT, which he said should be switched to Bupropion as it worsens RLS. Unfortunately he did not give an amount, so my GP had to phone the "hot line" to a bank of
67Waterman
in
Restless Legs Syndrome
2 years ago
Hell: Weaning off pramipexole
I need your help: I am on my transiation from pramipexole to Gabapentin. I'm now at 300mg gabapentin at 6pm and 600mg gabapentin at 10pm. My maximum dose of prami was 0.125. I am almost off it. Every couple of days (first: weeks) I am reducing the dose which was not easy because I can't divide the tablet
I need your help: I am on my transiation from pramipexole to Gabapentin. I'm now at 300mg gabapentin at 6pm and 600mg gabapentin at 10pm. My maximum dose of prami was 0.125. I am almost off it. Every couple of days (first: weeks) I am reducing the dose which was not easy because I can't divide the tablet
Happyfriday123
in
Restless Legs Syndrome
2 years ago
Syringe
A recently change of my biologic arrived requiring syringe application where previous biologic was via pen applicator which was easy and fine to self administer.Administering the first dose of new biologic was awkward and unpleasant to do with its longer needle and pushing the plunger with a swollen
A recently change of my biologic arrived requiring syringe application where previous biologic was via pen applicator which was easy and fine to self administer.Administering the first dose of new biologic was awkward and unpleasant to do with its longer needle and pushing the plunger with a swollen
Wantplaytennis
in
NRAS
2 years ago
Opioids
Good morning one & all I am, as you know, now on 2,100 gabapentin taken in divided doses in the evenings to no avail. Today I spoke to my GP and to my amazement he is happy to start me on low dose oxycodone (to take at night). Thank you so much Sue & Jools for suggesting I sent him all the articles
Good morning one & all I am, as you know, now on 2,100 gabapentin taken in divided doses in the evenings to no avail. Today I spoke to my GP and to my amazement he is happy to start me on low dose oxycodone (to take at night). Thank you so much Sue & Jools for suggesting I sent him all the articles
Simkin
in
Restless Legs Syndrome
2 years ago
Glycine
is glycine powder safe for Rls ? To use at night before bed? It helps me as well as magnesium glycinate but I am not using for rls. Anyone know?
is glycine powder safe for Rls ? To use at night before bed? It helps me as well as magnesium glycinate but I am not using for rls. Anyone know?
RCHD
in
Restless Legs Syndrome
2 years ago
Help with school support
My son has a diagnosed learning disability, adhd, visual and auditory processing difficulties, speech and language disorder (not fully diagnosed yet), huge sensory issues, pica,
irlen
syndrome
plus some others. He is struggling in school and not being correctly supported.
My son has a diagnosed learning disability, adhd, visual and auditory processing difficulties, speech and language disorder (not fully diagnosed yet), huge sensory issues, pica,
irlen
syndrome
plus some others. He is struggling in school and not being correctly supported.
mrsg999
in
Mencap
2 years ago
Surgery
I have had parkinsons for 5 years and need a hip replacement, I fear how the anesthesia will affect my symptons. I have an appointment with a new neurologist, but it's not until the end of March. My surgeon can only tell me that it's my decision,
I have had parkinsons for 5 years and need a hip replacement, I fear how the anesthesia will affect my symptons. I have an appointment with a new neurologist, but it's not until the end of March. My surgeon can only tell me that it's my decision,
davissw
in
Cure Parkinson's
2 years ago
Augmentation
I have been taking 0.26mg of Pramapexole plus 100mg Tramadol for around 8 years. This is my second bout of Pramapexole, first time around after a good few years I augmented, had a break then started again. It really has been a good drug for me but of course I am paying the price again. My question is
I have been taking 0.26mg of Pramapexole plus 100mg Tramadol for around 8 years. This is my second bout of Pramapexole, first time around after a good few years I augmented, had a break then started again. It really has been a good drug for me but of course I am paying the price again. My question is
keiralee
in
Restless Legs Syndrome
2 years ago
Mild Sjogrens? Is that a thing?
I've googled it and I still have no idea. Lots of cross over symptoms with thyroid but I've started pondering on my dry eyes and mouth. Neither are dry to the point of pain but my husband has noticed I've developed an eye 'tic'. I'm sort of rolling my eyes and opening my eyes wide; I've realised
I've googled it and I still have no idea. Lots of cross over symptoms with thyroid but I've started pondering on my dry eyes and mouth. Neither are dry to the point of pain but my husband has noticed I've developed an eye 'tic'. I'm sort of rolling my eyes and opening my eyes wide; I've realised
Hidden
in
Thyroid UK
2 years ago
Catastrophic APS
Please help!! My APS has turned catastrophi catastrophic. It has shut down my adrenal gland & now my kidneys. I started dialysis last week. They have tried plasma exchange, high dose steriods to no avail. Im still on Warfarin. Has anybody found a way to get it back under control?
Please help!! My APS has turned catastrophi catastrophic. It has shut down my adrenal gland & now my kidneys. I started dialysis last week. They have tried plasma exchange, high dose steriods to no avail. Im still on Warfarin. Has anybody found a way to get it back under control?
Lind8
in
Hughes Syndrome APS Forum
2 years ago
My experience with Ropinirole
Hi All I wanted to let people know of my experience with RLS, what I thought was augmentation, changing medications and seeing a Consultant. So it all started when the 0.5mg Ropinirole I was on did not have the same effect. Doing my own research I considered that augmentation was happening. When
Hi All I wanted to let people know of my experience with RLS, what I thought was augmentation, changing medications and seeing a Consultant. So it all started when the 0.5mg Ropinirole I was on did not have the same effect. Doing my own research I considered that augmentation was happening. When
SimonMorriss
in
Restless Legs Syndrome
2 years ago
Using Lactulose long term
Does anyone know if it is safe to use Lactulose long term? I have IBS-C and have tried all the other remedies such as kiwis, psyllium, prunes ,linseeds, chia seeds and I drink plenty of water but find they either don’t work or give me terrible griping pains. Although I’d prefer to take a natural product
Does anyone know if it is safe to use Lactulose long term? I have IBS-C and have tried all the other remedies such as kiwis, psyllium, prunes ,linseeds, chia seeds and I drink plenty of water but find they either don’t work or give me terrible griping pains. Although I’d prefer to take a natural product
Ella59
in
IBS Network
1 year ago
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