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Breakthrough science provides hope for lupus patients
DECEMBER 18, 2019
Breakthrough science provides hope for lupus patients
by
Monash University
Today the prestigious New England Journal of Medicine (NEJM) publishes research led by Monash University Professor Eric Morand that offers the first real hope for the treatment of lupus, a disease
DECEMBER 18, 2019
Breakthrough science provides hope for lupus patients
by
Monash University
Today the prestigious New England Journal of Medicine (NEJM) publishes research led by Monash University Professor Eric Morand that offers the first real hope for the treatment of lupus, a disease
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
5 years ago
Post 578 Why 20 Dec 2019
Why do I say what I say? Why do I put in writing and post it here for all who want to, to read and think about? The answer is long and easy, depending on how "YOU" look at it. Twenty plus years ago, when I was diagnosed (Dx'd). I was a younger man with a future ahead of me. I had plans, dreams
Why do I say what I say? Why do I put in writing and post it here for all who want to, to read and think about? The answer is long and easy, depending on how "YOU" look at it. Twenty plus years ago, when I was diagnosed (Dx'd). I was a younger man with a future ahead of me. I had plans, dreams
RoyceNewton
in
My MSAA Community
5 years ago
Christmas message 2019 from the team at MPN Voice
Hello everyone We really have had another fantastic year and would like to thank all of you for your support and involvement, not just in attending forums, completing surveys, organizing and taking part in fundraising events, but for your very kind and generous donations which we have received throughout
Hello everyone We really have had another fantastic year and would like to thank all of you for your support and involvement, not just in attending forums, completing surveys, organizing and taking part in fundraising events, but for your very kind and generous donations which we have received throughout
Mazcd
MPNVoice
in
MPN Voice
5 years ago
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Had JAK2 ET for 15 years now, with no symptoms and only being treated with Venesections. It is now changing to Myeloid Fibrosis, still with no symptoms - but nows the time to start taking Interferon to manage it . Wondering what people’s experience of taking this is
Had JAK2 ET for 15 years now, with no symptoms and only being treated with Venesections. It is now changing to Myeloid Fibrosis, still with no symptoms - but nows the time to start taking Interferon to manage it . Wondering what people’s experience of taking this is
Tylerdog1
in
MPN Voice
5 years ago
Post 575 You are responsible for you 16 Dec 2019 2
Not everybody wants to hear it, and not everybody wants to believe it. It is much easier to blame something or somebody else, but. My Relapsing-Relapsing ms (RRms) sibling for the most part, "YOU" are to blame\resposible for your life with this illness. Getting it, none of us is responsible for
Not everybody wants to hear it, and not everybody wants to believe it. It is much easier to blame something or somebody else, but. My Relapsing-Relapsing ms (RRms) sibling for the most part, "YOU" are to blame\resposible for your life with this illness. Getting it, none of us is responsible for
RoyceNewton
in
My MSAA Community
5 years ago
Availability of Interferon Scotland
I am currently on Pegylated Interferon and we are considering moving to Scotland, and wondered if this drug is readily available in hospitals there. I know that not all hospitals here in England provide it and hence the question regarding Scotland. Whilst this is a general query about Scotland we have
I am currently on Pegylated Interferon and we are considering moving to Scotland, and wondered if this drug is readily available in hospitals there. I know that not all hospitals here in England provide it and hence the question regarding Scotland. Whilst this is a general query about Scotland we have
AnitaJ
in
MPN Voice
5 years ago
Pegasys and breast feeding
Hi all, After some advice... I think that pegasys and breast feeding is contra indicated but I also think that peg is not fully approved in pregnancy? I injected interferon throughout pregnancy and thankfully all went well. I now need to start taking it again. I'm currently breast feeding and would
Hi all, After some advice... I think that pegasys and breast feeding is contra indicated but I also think that peg is not fully approved in pregnancy? I injected interferon throughout pregnancy and thankfully all went well. I now need to start taking it again. I'm currently breast feeding and would
hansyhand
in
MPN Voice
5 years ago
Positive effect of interferon alpha 2b???
I have been struggling with pelvic pain for 2 years... My idea of its origin is the pelvic inflammatory disease from an unidentified pathogen (20% of cases, although u. urealiticum was isolated from urine at one point). It was a classical case - I was not dressed appropriately for the surrounding temperature
I have been struggling with pelvic pain for 2 years... My idea of its origin is the pelvic inflammatory disease from an unidentified pathogen (20% of cases, although u. urealiticum was isolated from urine at one point). It was a classical case - I was not dressed appropriately for the surrounding temperature
Tarragon83
in
Pelvic Pain Support Network
5 years ago
Change from Interferon to Pegasys
At last my trust has approved the change from basic Interferon to Pegasys. I have only been allowed standard Interferon for the past year, but the last few months my platlets have risen from 350 to nearly 700, and I have had to increase my injections to every other day. My heamo wants me to start Pegasys
At last my trust has approved the change from basic Interferon to Pegasys. I have only been allowed standard Interferon for the past year, but the last few months my platlets have risen from 350 to nearly 700, and I have had to increase my injections to every other day. My heamo wants me to start Pegasys
swimswam
in
MPN Voice
5 years ago
Post 536 side effects 8 Oct 2019
I put up with headaches, painful injections and a basic feeling of crap for years on
interferon
Beta
1B
(Betaseron). Even worse for my month on Rebif
Interferon
Beta
1A. None on Tecfidera, and it is a tablet so no needles. Yaay as I have a needle phobia.
I put up with headaches, painful injections and a basic feeling of crap for years on
interferon
Beta
1B
(Betaseron). Even worse for my month on Rebif
Interferon
Beta
1A. None on Tecfidera, and it is a tablet so no needles. Yaay as I have a needle phobia.
RoyceNewton
in
My MSAA Community
5 years ago
Hydroxy to Pegasys switch
Hello - couldn’t find this on a search and wonder if you can help. Here’s the context: Partner is 33, ET triple negative with acquired Von willebrand on 1.5mg hydroxy a day after heart attack and platelets approaching 2m. All under control now after a lot of time adjusting the dose. We’re thinking of
Hello - couldn’t find this on a search and wonder if you can help. Here’s the context: Partner is 33, ET triple negative with acquired Von willebrand on 1.5mg hydroxy a day after heart attack and platelets approaching 2m. All under control now after a lot of time adjusting the dose. We’re thinking of
intothewoods
in
MPN Voice
5 years ago
Dr Silver update re PV/MF and Interferons
https://youtu.be/XGEAlov50mY Well worth watching. Dr Silver has used INF as first choice line of attack for over 20 years, hence significant experience re efficacy although critics argue that limited clinical data. He believes that patients should start INF as early into their disease as possible
https://youtu.be/XGEAlov50mY Well worth watching. Dr Silver has used INF as first choice line of attack for over 20 years, hence significant experience re efficacy although critics argue that limited clinical data. He believes that patients should start INF as early into their disease as possible
Paul123456
in
MPN Voice
5 years ago
Once a week recombinant interferon injections
This is interesting ... I was having 3 x standard interferon injections per week and stopped taking it for 5 weeks when I couldn't handle the side effects any more. Had specialist appt & decided to trial once a week from 27.10.19. Platelet counts were 311 then went up to 461. After a month of weekly
This is interesting ... I was having 3 x standard interferon injections per week and stopped taking it for 5 weeks when I couldn't handle the side effects any more. Had specialist appt & decided to trial once a week from 27.10.19. Platelet counts were 311 then went up to 461. After a month of weekly
fee13
in
MPN Voice
5 years ago
Et progression to mf and bone marrow biopsy.
Hi, I'm 49 and have et ( jak2 pos) for 7yrs. Been on hydroxycarbamide and anagrelide ,but transferring to interferon. Diagnosed with mf this week and very scared. Need fortnightly transfusions and bone marrow biopsy. Any support would be gratefully welcome. Also am self employed and concerned re finances
Hi, I'm 49 and have et ( jak2 pos) for 7yrs. Been on hydroxycarbamide and anagrelide ,but transferring to interferon. Diagnosed with mf this week and very scared. Need fortnightly transfusions and bone marrow biopsy. Any support would be gratefully welcome. Also am self employed and concerned re finances
soomoo
in
MPN Voice
5 years ago
Alternative treatments for Busulfan
My wife was diagnosed with E.T. five and half years ago, she is 78 and lives in the UK. At the time, the main treatments were Hydroxycarbamide, followed by Anagrelide and Busulfan as a last resort. She was first treated with Hydrox but the side effects were severe and she was then treated with Anagrelide
My wife was diagnosed with E.T. five and half years ago, she is 78 and lives in the UK. At the time, the main treatments were Hydroxycarbamide, followed by Anagrelide and Busulfan as a last resort. She was first treated with Hydrox but the side effects were severe and she was then treated with Anagrelide
Folly41
in
MPN Voice
5 years ago
Interferon and Hydroxea
I visited an ET specialist who has recommended I keep waiting for Interferon to kick in ( I’ve been injecting for six months with limited results) and add in Hydroxea to bring my platelets down quickly due to symptoms. What are your experiences of taking both at the same time? I’d be grateful to hear
I visited an ET specialist who has recommended I keep waiting for Interferon to kick in ( I’ve been injecting for six months with limited results) and add in Hydroxea to bring my platelets down quickly due to symptoms. What are your experiences of taking both at the same time? I’d be grateful to hear
Charlieapple2018
in
MPN Voice
5 years ago
Post 567 Newbies and newbies 21 Nov 2019
Newbies new diagnosed. An obvious position to be in and rather self-explanatory, but the big question is when does it end? Is there a time when I am not a newbie, when am I something else, when do I start to just live with Relapsing-Remitting ms (RRms)? There is no timeline, and there is no set
Newbies new diagnosed. An obvious position to be in and rather self-explanatory, but the big question is when does it end? Is there a time when I am not a newbie, when am I something else, when do I start to just live with Relapsing-Remitting ms (RRms)? There is no timeline, and there is no set
RoyceNewton
in
My MSAA Community
5 years ago
Can People with Diabetes Eat Carrots?
The article below was medically reviewed by Miho Hatanaka, RDN, LD on March 25, 2019 — Written by Eleesha Lockett.
People with diabetes may find themselves wondering what the best dietary recommendations are. One common question that pops up is, can people with diabetes eat carrots? The short
The article below was medically reviewed by Miho Hatanaka, RDN, LD on March 25, 2019 — Written by Eleesha Lockett.
People with diabetes may find themselves wondering what the best dietary recommendations are. One common question that pops up is, can people with diabetes eat carrots? The short
suramo
Star
in
Diabetes India
5 years ago
People of HealthUnlocked | Meet Ryan
[i] Hello everyone :-) I hope you're all doing well this Friday. This week, I want you all to meet Ryan, a young man who's story I read months ago and what led me to want to do this project in the first place: People of HealthUnlocked. If you can relate to Ryan's experiences, leave him a note in the
[i] Hello everyone :-) I hope you're all doing well this Friday. This week, I want you all to meet Ryan, a young man who's story I read months ago and what led me to want to do this project in the first place: People of HealthUnlocked. If you can relate to Ryan's experiences, leave him a note in the
MarketingHU
in
HealthUnlocked Blog
5 years ago
Travelling with Interferon
Does anyone know if Frio cooling insulated packs are suitable for keeping interferon injections cool whilst travelling. I noe that Interferon data sheet says to store at 2 - 8 C whereas the Frio products just guarantee a temperature of 18 to 25 C, a vast difference.
Does anyone know if Frio cooling insulated packs are suitable for keeping interferon injections cool whilst travelling. I noe that Interferon data sheet says to store at 2 - 8 C whereas the Frio products just guarantee a temperature of 18 to 25 C, a vast difference.
dishcell
in
MPN Voice
5 years ago
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