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Interferon beta-1a
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Interferon effects on Calr alleleborden
I have seen some people write that this drug does not have much effect on calr AB,it can control the platelets count, but it May have no effects on AB percentage So is there any chance for calr ET patients to have remission with this drug?and is it necessary to have max dose of it to achieve mullecular
I have seen some people write that this drug does not have much effect on calr AB,it can control the platelets count, but it May have no effects on AB percentage So is there any chance for calr ET patients to have remission with this drug?and is it necessary to have max dose of it to achieve mullecular
Violetaaa
in
MPN Voice
2 years ago
Peg jab
Thanks to everyone who offered tips on self-jabbing. It was a breeze although the only slight problem encountered was wrenching the caps off the needle and the interferon containers. They were screwed on very tightly.
Thanks to everyone who offered tips on self-jabbing. It was a breeze although the only slight problem encountered was wrenching the caps off the needle and the interferon containers. They were screwed on very tightly.
gilded
in
MPN Voice
2 years ago
Some Interesting Information - Parkin-mediated Mitophagy
While the clinical trial in the article does not target PD, some interesting facts that may be related to PD. (Inflammation). Will leave to you guys to infer, especially something related Parkin-mediated Mitophagy and how it is affected in PD patients https://www.cell.com/cell-reports-medicine/fulltext
While the clinical trial in the article does not target PD, some interesting facts that may be related to PD. (Inflammation). Will leave to you guys to infer, especially something related Parkin-mediated Mitophagy and how it is affected in PD patients https://www.cell.com/cell-reports-medicine/fulltext
John_morris71
in
Cure Parkinson's
2 years ago
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Tiny platelet drop.
Platelet drop was a meagre 40, it may be time to admit after a year interferon is not helping me. Speaking to Dr today she dismissed Night sweats as an ET symptom other mpns yes. Plenty on here would disagree. Got bmb on 1st June once those results back we can get on with referral for Prof Harrison
Platelet drop was a meagre 40, it may be time to admit after a year interferon is not helping me. Speaking to Dr today she dismissed Night sweats as an ET symptom other mpns yes. Plenty on here would disagree. Got bmb on 1st June once those results back we can get on with referral for Prof Harrison
ciye
in
MPN Voice
2 years ago
Phone Appointment with professor Harrison
I had appointment today. Was organised , sending her photo of my arm , blood test results and some thoughts I wanted to discuss. Waited from 11 till 12.45. Rang her secretary who is very helpful. He said she would ring soon but then got back saying 2pm ... Professor Harrison was lovely. Said
I had appointment today. Was organised , sending her photo of my arm , blood test results and some thoughts I wanted to discuss. Waited from 11 till 12.45. Rang her secretary who is very helpful. He said she would ring soon but then got back saying 2pm ... Professor Harrison was lovely. Said
Mostew
in
MPN Voice
2 years ago
Discovery of a signaling feedback circuit that defines interferon responses in MPN
« Interferons (IFNs) are key initiators and effectors of the immune response against malignant cells and also directly inhibit tumor growth. IFNα is highly effective in the treatment of myeloproliferative neoplasms (MPNs), but the mechanisms of action are unclear and it remains unknown why some patients
« Interferons (IFNs) are key initiators and effectors of the immune response against malignant cells and also directly inhibit tumor growth. IFNα is highly effective in the treatment of myeloproliferative neoplasms (MPNs), but the mechanisms of action are unclear and it remains unknown why some patients
Manouche
in
MPN Voice
2 years ago
Can Pv and peg interferon cause issues with your immune system
Morning Wondered if anyone else has had issues with immune system since being diagnosed with an Mpn and being treated with peg interferon I started on 45mcg of peg in Jan 2021 thus was increased to 90mcg in May 2021 In June I had a positive Ena profile and was diagnosed with Sjogrens syndrome - not
Morning Wondered if anyone else has had issues with immune system since being diagnosed with an Mpn and being treated with peg interferon I started on 45mcg of peg in Jan 2021 thus was increased to 90mcg in May 2021 In June I had a positive Ena profile and was diagnosed with Sjogrens syndrome - not
Dottiedot
in
MPN Voice
2 years ago
Liver Issues on Inf (Peg) (apologies for long post)
So spoke with my MPN specialist last night about my recent CBC results. The good news is that the 90mcg of Peg (bi-weekly) appears to be doing a good job keeping my blood chemistry in check. Platelets continue their slow downward trend (most recent reading at 574 coming most recently from 725, 643, 595
So spoke with my MPN specialist last night about my recent CBC results. The good news is that the 90mcg of Peg (bi-weekly) appears to be doing a good job keeping my blood chemistry in check. Platelets continue their slow downward trend (most recent reading at 574 coming most recently from 725, 643, 595
Solyesh
in
MPN Voice
2 years ago
Interferon alpha
I am now 64 and was diagnosed with polycethmia Vera in January 2021. I have the JAK 2 mutation) My haematocrit was very high at 0.8 . Since then I have had a lot or venesections and it is now 0.5 .my target is 0.45. It has been suggested that I start on interferon alpha. Does anyone have experience
I am now 64 and was diagnosed with polycethmia Vera in January 2021. I have the JAK 2 mutation) My haematocrit was very high at 0.8 . Since then I have had a lot or venesections and it is now 0.5 .my target is 0.45. It has been suggested that I start on interferon alpha. Does anyone have experience
Paul1214
in
MPN Voice
2 years ago
A bit of drama on Besremi
(there's a sort of survey question near the end) I've been on it for 3 months now. From starting dose of 50mcg for HU transition my dose last week was ~110. -That evening I had high sensitivity to light, looking at the overhead kitchen light was nearly like looking at the sun. Even the white sink
(there's a sort of survey question near the end) I've been on it for 3 months now. From starting dose of 50mcg for HU transition my dose last week was ~110. -That evening I had high sensitivity to light, looking at the overhead kitchen light was nearly like looking at the sun. Even the white sink
EPguy
in
MPN Voice
2 years ago
Lower dose versus lower frequency of Peg Interferon
On the Facebook MPN Interferon forum today, a member posted that he had been on Peg Interferon 45 every two weeks for two years but was having some problems, so was considering taking a break from it. I replied that, if the Peg was actually working for him, then maybe he should consider a lower dose,
On the Facebook MPN Interferon forum today, a member posted that he had been on Peg Interferon 45 every two weeks for two years but was having some problems, so was considering taking a break from it. I replied that, if the Peg was actually working for him, then maybe he should consider a lower dose,
DottyDaisy
in
MPN Voice
2 years ago
Meralgia paraesthetica?
Hi my GP thinks I have this and I am waiting results of an MRI. Does anyone else on interferon also suffer with this? Mine only comes on when I’m out walking and I didn’t have it before I started on interferon. My right leg goes numb in the upper thigh area and I lose sensation. I would be interested
Hi my GP thinks I have this and I am waiting results of an MRI. Does anyone else on interferon also suffer with this? Mine only comes on when I’m out walking and I didn’t have it before I started on interferon. My right leg goes numb in the upper thigh area and I lose sensation. I would be interested
Jonnymitts
in
MPN Voice
2 years ago
Change of clinic
I had a telephone appointment with my haematologist on Monday but instead it was with a nurse led clinic. I have apparently been handed over to this clinic. I was not told this was happening nor was it discussed at my last haematology appointment. Has this happened to anyone else? It has quite upset
I had a telephone appointment with my haematologist on Monday but instead it was with a nurse led clinic. I have apparently been handed over to this clinic. I was not told this was happening nor was it discussed at my last haematology appointment. Has this happened to anyone else? It has quite upset
Balser
in
MPN Voice
2 years ago
Immune System..
Came across with a good article on Boosting your immune system… 4 ways to strengthen your body’s natural defenses By Stephen Kopecky, M.D. In early 2020, life as most of the world knew it came to a screeching halt. That’s when a previously unknown virus began spreading like wildfire, forcing businesses
Came across with a good article on Boosting your immune system… 4 ways to strengthen your body’s natural defenses By Stephen Kopecky, M.D. In early 2020, life as most of the world knew it came to a screeching halt. That’s when a previously unknown virus began spreading like wildfire, forcing businesses
DRH-sangli
Star
in
Diabetes India
2 years ago
Besremi
I see a lot of references to Besremi. Is Besremi also an interferon medication? In Australia we only have access to hydroxyurea or Pegasys.
I see a lot of references to Besremi. Is Besremi also an interferon medication? In Australia we only have access to hydroxyurea or Pegasys.
Phantasia
in
MPN Voice
2 years ago
Suggestions to help manage fatigue
Hi everyone, I've not posted much before but after an appointment with my consultant today I'm feeling rather deflated and a wee bit lost. I was diagnosed with ET (Jak 2) 3 years ago after a spell of being very unwell with what they eventually found to be Budd Chiari Syndrome (blood clots in the liver
Hi everyone, I've not posted much before but after an appointment with my consultant today I'm feeling rather deflated and a wee bit lost. I was diagnosed with ET (Jak 2) 3 years ago after a spell of being very unwell with what they eventually found to be Budd Chiari Syndrome (blood clots in the liver
Bea_W
in
MPN Voice
2 years ago
Novel COVID-19 Vaccine Shows Promise for People with Leukemia and Lymphoma
Following on from https://healthunlocked.com/cllsupport/posts/private/147878379/hope-for-a-universal-t-cell-vaccine-against-sarbecoviruses-i.e.-sars-cov-1-sars-cov-2-and-all-variants-sars-cov-3-and-so-on?responses=147880773&utm_source=notification&utm_medium=email&utm_campaign=email_individual_response
Following on from https://healthunlocked.com/cllsupport/posts/private/147878379/hope-for-a-universal-t-cell-vaccine-against-sarbecoviruses-i.e.-sars-cov-1-sars-cov-2-and-all-variants-sars-cov-3-and-so-on?responses=147880773&utm_source=notification&utm_medium=email&utm_campaign=email_individual_response
bennevisplace
in
CLL Support
2 years ago
Interferon beta 1b
Hola alguien sabe quién me podrá ayudar a conseguir tratamiento para esclerosis múltiple interferon beta 1b soy de México y nuestro seguro tiene más de 6 meses sin otorgarlo
Hola alguien sabe quién me podrá ayudar a conseguir tratamiento para esclerosis múltiple interferon beta 1b soy de México y nuestro seguro tiene más de 6 meses sin otorgarlo
Jesusensenadamexico
in
My MSAA Community
2 years ago
To antivirals or not to antivirals
ET with CALR, on warfarin and 45mcg Pegasys every 4 weeks. 3 vaccines, last one in November. Just when I started hoping I was going to remain one of the few... COVID got me. I brought my dogs on a long walk on Friday and was convinced I cought a hay fever ln Saturday... as my nose was blocked and I
ET with CALR, on warfarin and 45mcg Pegasys every 4 weeks. 3 vaccines, last one in November. Just when I started hoping I was going to remain one of the few... COVID got me. I brought my dogs on a long walk on Friday and was convinced I cought a hay fever ln Saturday... as my nose was blocked and I
flamboyant_hawking
in
MPN Voice
2 years ago
Fed up
Interferon not bringing platelets down, 135mcg, haemo does not believe that it will on its own. Adding 500mg of HU to see if that will help, urgh not happy but do have to admit after 11 months she has a point. Wasn't happy on that before.
Interferon not bringing platelets down, 135mcg, haemo does not believe that it will on its own. Adding 500mg of HU to see if that will help, urgh not happy but do have to admit after 11 months she has a point. Wasn't happy on that before.
ciye
in
MPN Voice
2 years ago
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