Platelet drop was a meagre 40, it may be time to admit after a year interferon is not helping me. Speaking to Dr today she dismissed Night sweats as an ET symptom other mpns yes. Plenty on here would disagree.
Got bmb on 1st June once those results back we can get on with referral for Prof Harrison.
Hope you get what you need from the BMB. A consult with Dr, Harrison certainly seems in order. Hope you get on to a better treatment plan.
Hi ciye. Have been waiting for my results before replying to post about your platelets being stubborn. Have been on peg now for a year and 2 months and they are now showing a trend of coming down. May 2021 846, oct 2021 754, had covid jab and they went up to 785, then since January this year slowly dropping to 702 (3 less and would be 699 which sounds so much better and haven’t been in the 600’s since aug 19. )The main point is that they are trending down very slowly. I am et now by the way. Called me in cos was changing to pv but since on the peg has reverted back to et I am glad to say. Just wanted to mention it as it can help to know others are in same position and that for some of us peg takes a while to work. I hope your bmb goes well. Please let us know how you get on
That's good to know I will give it but longer before making any changes. Glad your count is going the right way.
Platelets and haemoglobin
Myelofibrosis and platelets
Increase in platelets 
Platelet levels coming down!
