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Platelets up to 1500 since starting PEG interferon
Hello all, I hope you keeping well. I’m feeling pretty deflated, looking for some advice based on the huge amount of knowledge and experience on this forum. Had a call from haematology reg last night to say the bloods I had taken that day were abnormal- platelets up to 1500. I started on PEG interferon
Hello all, I hope you keeping well. I’m feeling pretty deflated, looking for some advice based on the huge amount of knowledge and experience on this forum. Had a call from haematology reg last night to say the bloods I had taken that day were abnormal- platelets up to 1500. I started on PEG interferon
Nickyanne
in
MPN Voice
2 years ago
New Member
Hi New to this but thought I would say hi and thank you to MPN voice for all that they are doing 😊. I was diagnosed with MF in 2007 aged 43 following a routine blood test which revealed high platelets and then followed by a bmt which revealed scarring on the bone marrow . Treated initially with hydroxycarbamide
Hi New to this but thought I would say hi and thank you to MPN voice for all that they are doing 😊. I was diagnosed with MF in 2007 aged 43 following a routine blood test which revealed high platelets and then followed by a bmt which revealed scarring on the bone marrow . Treated initially with hydroxycarbamide
jacquelineruth2000
in
MPN Voice
2 years ago
CD19 CAR-T cell therapy for B-ALL achieved remarkable efficacy with a complete remission of 70–90%
This looks interesting but way over my knowledge base. Perhaps some of you super brains can figure this out. In recent years, the increasing advancements and applications of cellular immunotherapy have enabled the use of chimeric antigen receptor (CAR) T cell therapy, and it has emerged as an efficacious
This looks interesting but way over my knowledge base. Perhaps some of you super brains can figure this out. In recent years, the increasing advancements and applications of cellular immunotherapy have enabled the use of chimeric antigen receptor (CAR) T cell therapy, and it has emerged as an efficacious
Scout4answers
in
Advanced Prostate Cancer
2 years ago
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BESREMi 4th dose
Hey, guys! I see other members are sharing their move to BESREMi, so I thought I'd add my experience. As background, I was diagnosed with polycythemia vera 8/2017 (at age 31) but waited until my kiddo was born to start treatment beyond daily aspirin. I'm JAK2+, TET2+, ASXL1+, AB at 55% in 2018. Since
Hey, guys! I see other members are sharing their move to BESREMi, so I thought I'd add my experience. As background, I was diagnosed with polycythemia vera 8/2017 (at age 31) but waited until my kiddo was born to start treatment beyond daily aspirin. I'm JAK2+, TET2+, ASXL1+, AB at 55% in 2018. Since
lynxfluff
in
MPN Voice
2 years ago
Pegylated Interferon
Hi I would like to ask if it is ok to take the Peg with a throat /viral infection, I am wary of skipping my fortnightly dose (45mg) LFT -ve Thankyou very much for any advice Bobbie
Hi I would like to ask if it is ok to take the Peg with a throat /viral infection, I am wary of skipping my fortnightly dose (45mg) LFT -ve Thankyou very much for any advice Bobbie
Bobadog
in
MPN Voice
2 years ago
Hepatitis A Ab positive due to interferon? Should I concern it and how to treat it?
Taking interferon 0.5ml/week since last mid August, I had blood test recently and found Hepatitis A Ab positive. other issues associated with taking interferon include low WBC(2.6 vs. 3.4), low Neutrophils (1.0 vs. 1.4) and high AST (45 vs. 40), ALT(58 vs. 44). I called my specialist and he told me should
Taking interferon 0.5ml/week since last mid August, I had blood test recently and found Hepatitis A Ab positive. other issues associated with taking interferon include low WBC(2.6 vs. 3.4), low Neutrophils (1.0 vs. 1.4) and high AST (45 vs. 40), ALT(58 vs. 44). I called my specialist and he told me should
Sam2022
in
MPN Voice
2 years ago
Raising Awareness for Polycythemia Vera is Key in Increasing Overall Survival
« The final point that we addressed was treatment and to see if certain treatment practices reduce the risk. We were particularly interested in interferon because we had published a study earlier on interferon belonging, myelofibrosis-free survival and overall survival. We also looked at hydroxyurea,
« The final point that we addressed was treatment and to see if certain treatment practices reduce the risk. We were particularly interested in interferon because we had published a study earlier on interferon belonging, myelofibrosis-free survival and overall survival. We also looked at hydroxyurea,
Manouche
in
MPN Voice
2 years ago
LUPRON vs FIRMAGON: Is The Debate About Superiority Over? With the December FDA approval of Relugolix the debate may now be moot
PCa Commentary #149 – LUPRON vs FIRMAGON: Is The Debate About Superiority Over? Just the Facts, Please, … but with the December FDA approval of Relugolix the debate may now be moot. by Dr. Ed Weber | Feb 3, 2021 | PCa Commentary | 0 comments A great deal has been written about the comparison between
PCa Commentary #149 – LUPRON vs FIRMAGON: Is The Debate About Superiority Over? Just the Facts, Please, … but with the December FDA approval of Relugolix the debate may now be moot. by Dr. Ed Weber | Feb 3, 2021 | PCa Commentary | 0 comments A great deal has been written about the comparison between
Scout4answers
in
Advanced Prostate Cancer
2 years ago
Gp says I don't have blood cancer and can't have 4th covid jab
Hi all the title of my post pretty much says it all. I rang my gp to find out about my 4th covid jab he says I'm not entitled to it as I don't have blood cancer. This is despite me being diagnosed with PV 15 months ago and being medicated with 90mg of pegasys interferon on a weekly basis. Is anybody
Hi all the title of my post pretty much says it all. I rang my gp to find out about my 4th covid jab he says I'm not entitled to it as I don't have blood cancer. This is despite me being diagnosed with PV 15 months ago and being medicated with 90mg of pegasys interferon on a weekly basis. Is anybody
Dottiedot
in
MPN Voice
2 years ago
Interferon possible side effects
Hi all, just wondering if any one has had the experience of shortness of breath and mild intermittent chest pains when commencing interferon treatment? I am 4 weeks into treatment (after being on Hydroxy Urea for 15 years) experiencing considerable increase in fatigue shortness of breath amd have
Hi all, just wondering if any one has had the experience of shortness of breath and mild intermittent chest pains when commencing interferon treatment? I am 4 weeks into treatment (after being on Hydroxy Urea for 15 years) experiencing considerable increase in fatigue shortness of breath amd have
Stay05
in
MPN Voice
2 years ago
By 5 years, about 14% of patients have undetectable JAK2 mutations.
« Now with this interferon tolerance improved, your abilities improve, response is excellent, and there is a potential for more. I highlighted in my presentation a molecular response. Molecular response is where you are decreasing the JAK2allele burden. That's the percent of cells in a sample of the
« Now with this interferon tolerance improved, your abilities improve, response is excellent, and there is a potential for more. I highlighted in my presentation a molecular response. Molecular response is where you are decreasing the JAK2allele burden. That's the percent of cells in a sample of the
Manouche
in
MPN Voice
2 years ago
Haemolytic anaemia
Does anyone know anything about haemolytic anaemia? (It's the result of red blood cells not functioning properly). My situation is I've had ET for 6 years, hydroxy , then pegasys for the last 18 months, finally my platelets are nearly down to normal, but haemoglobin has been steadily falling, now at
Does anyone know anything about haemolytic anaemia? (It's the result of red blood cells not functioning properly). My situation is I've had ET for 6 years, hydroxy , then pegasys for the last 18 months, finally my platelets are nearly down to normal, but haemoglobin has been steadily falling, now at
Joetcalr
in
MPN Voice
2 years ago
Recreational drugs
Does anyone use cannabis or other recreational drugs, who has PV and takes rivaroxyban and Pegasys interferon? I am curious, but think no point asking my doctor about this as they couldn't answer if it's safe or not.
Does anyone use cannabis or other recreational drugs, who has PV and takes rivaroxyban and Pegasys interferon? I am curious, but think no point asking my doctor about this as they couldn't answer if it's safe or not.
Dream23
in
MPN Voice
2 years ago
Interferon Travel Temps, Freezing Risk?
There have been discussions here of travel with INF. I recently used the ice pack that comes with Besremi in a lunch cooler for my Dr office visit. After that I placed it in my office fridge for the day. I realized a possible hazard to that: if the ice pack were below freezing temp, and the lunch
There have been discussions here of travel with INF. I recently used the ice pack that comes with Besremi in a lunch cooler for my Dr office visit. After that I placed it in my office fridge for the day. I realized a possible hazard to that: if the ice pack were below freezing temp, and the lunch
EPguy
in
MPN Voice
2 years ago
Update 6.3 - Good News
Besremi dose 3 was on March 2. Still at 100mcg, which seems to be the right dose. On March 1, HCT was back down to 42.3%. PLT stable at 406. LYMPH sill low but up a bit to 0.91. CMP numbers all look good, so kidney/liver function is fine. Iron Panel reflects iron levels coming back up. Von Willebrand
Besremi dose 3 was on March 2. Still at 100mcg, which seems to be the right dose. On March 1, HCT was back down to 42.3%. PLT stable at 406. LYMPH sill low but up a bit to 0.91. CMP numbers all look good, so kidney/liver function is fine. Iron Panel reflects iron levels coming back up. Von Willebrand
hunter5582
in
MPN Voice
2 years ago
Besremi check with RN
Hi, Today, I had a check-in with my HEM's RN because I've had two Besremi shots. While she was pleasant enough, several of her comments have continued to drag me down about taking Besremi, even having PV! Now, I'm one of two patients using Besremi in their office, but her comments such as: "let's
Hi, Today, I had a check-in with my HEM's RN because I've had two Besremi shots. While she was pleasant enough, several of her comments have continued to drag me down about taking Besremi, even having PV! Now, I'm one of two patients using Besremi in their office, but her comments such as: "let's
Elizka
in
MPN Voice
2 years ago
Stubborn platelets
At the start of treatment nearly 2 years ago my platelet count was 725, I was responding to hydroxy but struggling with side effects, the lowest they got 425, been on interferon for 9 months and last blood count was 623 . Just been on phone with haemo and she thinks the hydroxy would be better 😢. We
At the start of treatment nearly 2 years ago my platelet count was 725, I was responding to hydroxy but struggling with side effects, the lowest they got 425, been on interferon for 9 months and last blood count was 623 . Just been on phone with haemo and she thinks the hydroxy would be better 😢. We
ciye
in
MPN Voice
2 years ago
Paper on Misc Mutations
-- Another study: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7465511/ <<Cytokines levels are higher in myelofibrosis compared to PV and ET, with higher IL-2, sIL-2Rα, IL-6 and tumour necrosis factor α (TNFa)>> NAC supplement improves IL-6, and TNFa in various studies. -- Triple Neg isn't: <<Previously
-- Another study: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7465511/ <<Cytokines levels are higher in myelofibrosis compared to PV and ET, with higher IL-2, sIL-2Rα, IL-6 and tumour necrosis factor α (TNFa)>> NAC supplement improves IL-6, and TNFa in various studies. -- Triple Neg isn't: <<Previously
EPguy
in
MPN Voice
2 years ago
Pegasys: oxidation (dividing a dose into two)
Hi! Does anyone know if Pegasys remains stable and biologically active if you divide the contents of a single syringe into two doses (by drawing off half of it into a new empty syringe). The question is - does interferon stay stable despite contact with oxygen and remains usable within one week?
Hi! Does anyone know if Pegasys remains stable and biologically active if you divide the contents of a single syringe into two doses (by drawing off half of it into a new empty syringe). The question is - does interferon stay stable despite contact with oxygen and remains usable within one week?
Dovakin
in
MPN Voice
2 years ago
Dr Silver, interferon and possible combos
See reference to NAC and statins near the bottom https://journals.lww.com/hemasphere/fulltext/2021/12000/new_perspectives_of_interferon_alpha2_and.7.aspx
See reference to NAC and statins near the bottom https://journals.lww.com/hemasphere/fulltext/2021/12000/new_perspectives_of_interferon_alpha2_and.7.aspx
Paul123456
in
MPN Voice
2 years ago
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