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Interferon beta-1a
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Prof Harrison discussing significance of reducing % JAK2 AB
Many of us believe that using interferons to reduce JAK2 AB can yield a significant prognostic benefit for some. However it appears that this may also apply to Ruxo although whether to the same extent? https://youtu.be/WifYlSTmWn4
Many of us believe that using interferons to reduce JAK2 AB can yield a significant prognostic benefit for some. However it appears that this may also apply to Ruxo although whether to the same extent? https://youtu.be/WifYlSTmWn4
Paul123456
in
MPN Voice
2 years ago
HRT and Peg Interferon
hi I have PV diagnosed 7 years ago and started 2 months ago on Peg Interferon 90mcg Just wondering if anyone has thoughts or experience of being on HRT whilst taking interferon ? I have a heavy symptom burden which my current haem consultant feels maybe post menopause related ie hormones Thanks
hi I have PV diagnosed 7 years ago and started 2 months ago on Peg Interferon 90mcg Just wondering if anyone has thoughts or experience of being on HRT whilst taking interferon ? I have a heavy symptom burden which my current haem consultant feels maybe post menopause related ie hormones Thanks
Sanga
in
MPN Voice
2 years ago
Hello friend
Thanks for your insights about interferon very much appreciated and l will certainly read about the side effects of both myalgia and arthralgia. I'm happy to say my white blood cell count has finally returned to normal rage, and lm experiencing a major reduction in inflammation.It's true to say
Thanks for your insights about interferon very much appreciated and l will certainly read about the side effects of both myalgia and arthralgia. I'm happy to say my white blood cell count has finally returned to normal rage, and lm experiencing a major reduction in inflammation.It's true to say
Hidden
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MPN Voice
2 years ago
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Starting Pegasys Friday
Currently on Hydroxurea (1500mg per day) and transitioning to interferon on Friday. The plan is to still take one pill of Hydrea a day and start with an interferon dose of 45mcg. I'm staying positive because I'm 38 years old and I think this will benefit me in the long run when it comes to side effects
Currently on Hydroxurea (1500mg per day) and transitioning to interferon on Friday. The plan is to still take one pill of Hydrea a day and start with an interferon dose of 45mcg. I'm staying positive because I'm 38 years old and I think this will benefit me in the long run when it comes to side effects
Zeppelin11
in
MPN Voice
2 years ago
Pv and Pegusus interferon
Hello my dears lm struggling with body pain and it's been suggested to me that Ayurveda massage may help. Has anyone had this kind of massage is it OK ?Adiewon
Hello my dears lm struggling with body pain and it's been suggested to me that Ayurveda massage may help. Has anyone had this kind of massage is it OK ?Adiewon
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Women's Health
2 years ago
Pegusus Interferon
Hello hello MPN friends l have not been on the site for awhile as l began new meds interferon ten weeks ago and at the time needed to sit quitley with what this means for me. Three weeks in l struggled with intense migraine and spent most of my time on pain killers with my duvet over my head. The
Hello hello MPN friends l have not been on the site for awhile as l began new meds interferon ten weeks ago and at the time needed to sit quitley with what this means for me. Three weeks in l struggled with intense migraine and spent most of my time on pain killers with my duvet over my head. The
Hidden
in
MPN Voice
2 years ago
MPN Voice Christmas message 2022
Hello everyone It’s that time of year again for the round-up of the MPN Voice year, and once again it has been an amazing year, we started off the year with some uncertainty and trepidation about COVID and end it on a much more positive note. With the easing of the COVID restrictions life was able
Hello everyone It’s that time of year again for the round-up of the MPN Voice year, and once again it has been an amazing year, we started off the year with some uncertainty and trepidation about COVID and end it on a much more positive note. With the easing of the COVID restrictions life was able
Mazcd
MPNVoice
in
MPN Voice
2 years ago
dizzy, ET , aspirin and Peg interferon
Every so often I get bouts of dizziness. Often associated with nasal congestion so. I think it could be ear related. I am on Aspirin and pegasys. I have MPL ET. Could it be ET related ?? Any ideas.
Every so often I get bouts of dizziness. Often associated with nasal congestion so. I think it could be ear related. I am on Aspirin and pegasys. I have MPL ET. Could it be ET related ?? Any ideas.
Sprat19
in
MPN Voice
2 years ago
would it matter if
hi everyone, we are spending Xmas in Italy for a couple of days, and just wondering…..if our flight back hits and cancellations coming back, would it matter if my interferon pegasys injections was delayed by a day or so? have a great Christmas everyone….
hi everyone, we are spending Xmas in Italy for a couple of days, and just wondering…..if our flight back hits and cancellations coming back, would it matter if my interferon pegasys injections was delayed by a day or so? have a great Christmas everyone….
Yvette49
in
MPN Voice
2 years ago
nausea feeling but in throat
just wanted to ask, over the last couple of days I have a ‘sicky feeling’ but in my throat. It’s like any food I have eaten has not gone down and is stuck in my throat as though you are going to be sick from it…. Not sure if it’s in relation to any other medication I take but not started any new meds
just wanted to ask, over the last couple of days I have a ‘sicky feeling’ but in my throat. It’s like any food I have eaten has not gone down and is stuck in my throat as though you are going to be sick from it…. Not sure if it’s in relation to any other medication I take but not started any new meds
Grendall
in
MPN Voice
2 years ago
Itchy patches
Since jabbing myself with Pegasys interferon alfa2a for CALR +ET diagnosis, I've noticed the appearance of several small itchy patches on my abdomen and back. The ones on the abdomen are not on the site of the jab. My GP prescribed the application of a moderate steroid cream and one other non-steroid
Since jabbing myself with Pegasys interferon alfa2a for CALR +ET diagnosis, I've noticed the appearance of several small itchy patches on my abdomen and back. The ones on the abdomen are not on the site of the jab. My GP prescribed the application of a moderate steroid cream and one other non-steroid
gilded
in
MPN Voice
2 years ago
Update 7.1 - Very Good News
Very good news from the Quantitative Analysis regarding JAK2v617f Variant Allele Frequency.
JAK2 V617F Mutation Analysis by Real-time PCR
INTERPRETATION: T
he Quantitative Real-Time PCR assay is positive for V617F JAK2 mutation and mutant V617F JAK2 represents
9% of total JAK2 alleles
Very good news from the Quantitative Analysis regarding JAK2v617f Variant Allele Frequency.
JAK2 V617F Mutation Analysis by Real-time PCR
INTERPRETATION: T
he Quantitative Real-Time PCR assay is positive for V617F JAK2 mutation and mutant V617F JAK2 represents
9% of total JAK2 alleles
hunter5582
in
MPN Voice
2 years ago
Switching to Interferon
Did my labs this week and my platelets were in the the 900,000's. Trying to factor in why they continue to go up but I have a feeling the Hydrea isn't doing the job anymore, especially with me taking 3 pills a day. I fear the long term side effects of the Hydrea and because if this community I'm no longer
Did my labs this week and my platelets were in the the 900,000's. Trying to factor in why they continue to go up but I have a feeling the Hydrea isn't doing the job anymore, especially with me taking 3 pills a day. I fear the long term side effects of the Hydrea and because if this community I'm no longer
Zeppelin11
in
MPN Voice
2 years ago
raised potassium levels
I have just seen this post from FB for ET patients…. Anyone see an increase in their potassium level? Have ET Jak 2 positive for 9 years. Been on Hydrea 500 mg 3 times a week. The last 3 blood tests show my potassium levels creeping up above normal. No changes in my diet. I am on my third blood
I have just seen this post from FB for ET patients…. Anyone see an increase in their potassium level? Have ET Jak 2 positive for 9 years. Been on Hydrea 500 mg 3 times a week. The last 3 blood tests show my potassium levels creeping up above normal. No changes in my diet. I am on my third blood
Grendall
in
MPN Voice
2 years ago
Rising platelet count whilst on hydroxy
Hi there, please could I ask for some advise on my situation. I have been on hydroxycarbomide for a few years . It initially brought my platelet count right down, but it also reduced my neutrophils and I have had neutropenia for at least 2 years. They have been experimentally reducing my HU each visit
Hi there, please could I ask for some advise on my situation. I have been on hydroxycarbomide for a few years . It initially brought my platelet count right down, but it also reduced my neutrophils and I have had neutropenia for at least 2 years. They have been experimentally reducing my HU each visit
UKZA
in
MPN Voice
2 years ago
ET and lumps?
hi, this is my first time posting and new to this site. I was diagnosed with ET in May 2020 after finding my platelets were high whilst pregnant with my second daughter. I was just put on aspirin daily until my platelets shot up to 1500 and stayed that high for a few week/a month in February/March of
hi, this is my first time posting and new to this site. I was diagnosed with ET in May 2020 after finding my platelets were high whilst pregnant with my second daughter. I was just put on aspirin daily until my platelets shot up to 1500 and stayed that high for a few week/a month in February/March of
Lena1992
in
MPN Voice
2 years ago
Interesting Presentation by Dr Silver re long term survival on Interferons
https://www.vjhemonc.com/video/interferon-in-polycythemia-vera-long-term-experience-from-a-single-center/ He says he would take Colchicine as well as interferons! I’ll ask my Hems next appointment, I have JAK2 and TET2 (which reduces Pegasys efficacy) so always on the look out for something that might
https://www.vjhemonc.com/video/interferon-in-polycythemia-vera-long-term-experience-from-a-single-center/ He says he would take Colchicine as well as interferons! I’ll ask my Hems next appointment, I have JAK2 and TET2 (which reduces Pegasys efficacy) so always on the look out for something that might
Paul123456
in
MPN Voice
2 years ago
Interferon side effects of
HelloI recently stopped taking Hydroxy after 2 years and changed to Pegusus Interferon and in many ways feel better. I had my first dose of 30 micrograms on the 13th of October and every 2 weeks since the. However l have appalling headache/Migraine and wonder if there are others with this side effect
HelloI recently stopped taking Hydroxy after 2 years and changed to Pegusus Interferon and in many ways feel better. I had my first dose of 30 micrograms on the 13th of October and every 2 weeks since the. However l have appalling headache/Migraine and wonder if there are others with this side effect
Hidden
in
MPN Voice
2 years ago
CATCH-UP ET JAK2+
Hello my friends. It’s a while since I wrote about my various problems and said aid report back. My main problem was pain under ribs in right abdomen, which caused bad nausea and ache in pelvic area. First Ultrasound scan did not reveal anything untoward, apart from prominence in the collecting system
Hello my friends. It’s a while since I wrote about my various problems and said aid report back. My main problem was pain under ribs in right abdomen, which caused bad nausea and ache in pelvic area. First Ultrasound scan did not reveal anything untoward, apart from prominence in the collecting system
azaelea
in
MPN Voice
2 years ago
Fascinating Results different drugs
My journey on different drugs shows the reaction they can have in short periods. I am ET Jak2 positive diagnosed March 2022. Took Hydroxy 500mg daily 5 days week .My body reacted very badly to it but platelet’s of 590 dropped to 420 in 6 weeks. Off everything from May until September stuck to Mediterranean
My journey on different drugs shows the reaction they can have in short periods. I am ET Jak2 positive diagnosed March 2022. Took Hydroxy 500mg daily 5 days week .My body reacted very badly to it but platelet’s of 590 dropped to 420 in 6 weeks. Off everything from May until September stuck to Mediterranean
Exeter21
in
MPN Voice
2 years ago
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