Hi everyone,: Hi everyone, great to find... - Hepatitis C Trust

Hepatitis C Trust

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Hi everyone,

β€’10 Replies

Hi everyone, great to find this supportive and informative forum!

I'm starting Maviret in 2 weeks time. Could be up to 16 weeks as I have type 3a and have had treatment before. (Although I'm hoping for the 8 treatment). I'm waiting to find out if I'll be taking riberveron too.

I've had the virus for 24 years but perhaps helped by a healthy sober lifestyle for 20 years, I have minimal liver damage, just exhaustion on some days due to the virus.

I really am glad to find this group because I feel afraid and anxious to start the treatment and want to connect with people who understand. I'm grateful for the opportunity to have free treatment...in Europe and America people have to pay extortionate amounts for this.

And it blows my mind to think that I can be free of hep at the end of this treatment. But my body remembers what it was like to take interferon treatment 17 years ago, because it was so awful! I guess I'm anxious that it will be like that again, and just the whole not knowing how I will cope with work etc, when the treatment starts.

I can see from all the info and what the doctor has said, that Maviret is a totally different drug with a different function, so logically I know it won't be the same as the interferon.

So In the meantime I'm just trying to reassure my body that this treatment will be different and prepare as best I can. I'm very glad to find this forum and read about everyones experiences. I have a supportive partner and family, which is a blessing. And in the bigger perspective, the time it takes to do the treatment is nothing compared to being hep free for the rest of my life. 😊

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10 Replies
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Sillysausage234 profile image
Sillysausage234

Hiya sky welcome to our group and good luck with your treatment πŸ™‹πŸ»β€β™‚οΈ

β€’ in reply toSillysausage234

Thank you Alan, I appreciate this.

Sillysausage234 profile image
Sillysausage234β€’ in reply to

Your welcome it will be be good to watch you finally get rid of the virus and get yourself well again πŸ‘

navigatinglife profile image
navigatinglife

Hi sky. Good to hear you are getting re treatment. maviret is a doddle compared to the old regimes. If they give you 16 weeks grab it although anything from 12 is super for past treated. I had the 8 weeks of it, genotype 3a. Not long enough for my personal circumstances so I am hoping for another shot and I hope it's maviret again, that's how easy it is on the system. I felt better on it than my hepc symptoms, hoping to get it for 12 weeks or more asap but may be waiting some time. You will be amazed at how smooth it is & how much better you feel after taking it for only a few weeks 😊 Your care sounds spot on, great as it WILL clear the virus , best wishes you're only a few months away from freedom πŸ˜ƒπŸ˜πŸ˜

Hi Navigatinglife, Wow thank you so much for this encouragement! I'm really glad to hear that the treatment even gave you relief from your Hep c symptoms. I thought 16 weeks might be something to dread, but I will take your words on that it could be a blessing, and wait to see what the doctor decides. It helps to get a better perspective on the treatment, rather than just preparing to be ill. I hope you can begin treatment again soon. Thank you again x

navigatinglife profile image
navigatinglifeβ€’ in reply to

You've been ill long enough time to reclaim your body 😊 I have reclaimed mine despite having temporary tenants. Nothing to dread with maviret, worst is very slight nausea but I got on top of that almost immediately. a little tired here and there but certainly not ill. I prepared myself well like you & also take things 1 day at a time. I carried on a normal life just went to bed earlier πŸ’€πŸ’€πŸ’€ 😊No interferon. No comparison, you will be waiting for those horrible side effects & waiting forever πŸ˜‚ I am excited for you, best wishes, navs 😍 😍 😘

Cara78 profile image
Cara78

We don't know long-term effects but I'm 5 weeks on maviret and feeling clearer. Please take your medication with high fat snack.

Wish you well

Cara

Mizzkent profile image
Mizzkent

Hi Sky welcome I finished Maviret 8 weeks last week type 3a I’ve not heard of anyone having to take anything else besides Maviret as in most cases the mighty Maviret does the trick on it’s own. If you have done treatment previously then this will be a walk in the park for you.The only side effect I had was fatigue and I’d virtually cleared the virus after 2 weeks.Try not to worry you are gonna be absolutely fine!😊 As in most things the thought of it is always worse than when you come to do it. Fingers and toes crossed you only have to do the Maviret. Best wishes ❀️xx

That’s the spirit poppet x some of our members are sailing through treatment with the medication you said. Onwards and upwards xxx

Cara78 profile image
Cara78

hello and GO FOR IT. im week 5 genotype 1a. i get my blood test at end of treatment and im starting to feel better from years of fog and generally feeling like shit.

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