Search
Search
About
Log in
Join
Experiences with
Immunodeficiencies and defective immune system
Posts
Communities
36,997 public posts
Filter results
How can one person be so Lucky?
Diagnosed in December 2022 with Stage 4 metastatic PC Gleason 4 + 3, due to a PSMA Pet Scan. Highest my PSA got was 7.4, Pet Scan discovered a small spot on my T2 vertebrae that the MRI and bone scan did not find. I subsequently started on a regimen of Lupron and Erleada, adjusted to the SE and
Diagnosed in December 2022 with Stage 4 metastatic PC Gleason 4 + 3, due to a PSMA Pet Scan. Highest my PSA got was 7.4, Pet Scan discovered a small spot on my T2 vertebrae that the MRI and bone scan did not find. I subsequently started on a regimen of Lupron and Erleada, adjusted to the SE and
Condor77
in
Advanced Prostate Cancer
4 months ago
Cancer sufferer T3 below range, T4 50%, TSH 1.6 advice
Hello wise caring people. On one result, looks like they are a poor converter. My best pal is probably loosing battle with cancer - mid 60s male. He had radiation treatment on throat cancer 3 1/2 years ago. Treatment now stopped and has a lymph node node issue that is not responding, after throat
Hello wise caring people. On one result, looks like they are a poor converter. My best pal is probably loosing battle with cancer - mid 60s male. He had radiation treatment on throat cancer 3 1/2 years ago. Treatment now stopped and has a lymph node node issue that is not responding, after throat
Sleepman
in
Thyroid UK
4 months ago
anyone opted for Watch and Wait with indeterminate nodules thy3f? Looking for people with similar previous experience to make up my mind
hi everyone just wondering if anyone ever had the courage to opt for wait and see tactic with indeterminate nodules? How often did manage it? How did you feel in the end? What made you make that decision? my situation is that I have two indeterminate nodules on either side. Doctors recommended total
hi everyone just wondering if anyone ever had the courage to opt for wait and see tactic with indeterminate nodules? How often did manage it? How did you feel in the end? What made you make that decision? my situation is that I have two indeterminate nodules on either side. Doctors recommended total
Indianyellow
in
Thyroid UK
4 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Patricia
Hi I'm a 3rd timer with BC. This time diagnosed June with stage 3 HER2+. Had surgery and chemo now on 3 weekly injections of Herceptin & 6monthly bone infusions and letrozole daily. Side effects fluctuate from day to day, fatigue, achey fluey, fuzzy head, indigestion, dizziness. In between I'm fine,
Hi I'm a 3rd timer with BC. This time diagnosed June with stage 3 HER2+. Had surgery and chemo now on 3 weekly injections of Herceptin & 6monthly bone infusions and letrozole daily. Side effects fluctuate from day to day, fatigue, achey fluey, fuzzy head, indigestion, dizziness. In between I'm fine,
ruskin10
in
My Breast Cancer Community
4 months ago
update on sore Nipple!
so did go to see the Dr who agreed my breasts were quite tricky to diagnose due to the amount of scar tissue from previous mammoplasty - initially felt the tenderness was maybe due to simple fibroadinoma but wasn’t certain - so I was fast tracked to Derriford and my appointment is this afternoon. Interestingly
so did go to see the Dr who agreed my breasts were quite tricky to diagnose due to the amount of scar tissue from previous mammoplasty - initially felt the tenderness was maybe due to simple fibroadinoma but wasn’t certain - so I was fast tracked to Derriford and my appointment is this afternoon. Interestingly
Sungolfer
in
PMRGCAuk
4 months ago
Heavy news today
Hi Everyone, I am feeling really bummed tonight…over the past 5 months I was on Enhertu, I qualified because of the destiny trials. Long story short it was a disaster, not only did I have infection after infection but I ended up with extensive uptake in bone Mets and spread to my liver again (originally
Hi Everyone, I am feeling really bummed tonight…over the past 5 months I was on Enhertu, I qualified because of the destiny trials. Long story short it was a disaster, not only did I have infection after infection but I ended up with extensive uptake in bone Mets and spread to my liver again (originally
SoulJourney
in
SHARE Metastatic Breast Cancer
4 months ago
Cardiac open heart surgery
Hi to all Has anyone with metastatic breast cancer had open heart cardiac surgery and might you share your experience with me please? I only saw my surgeon yesterday and am now scheduled for Monday. How amazing is that but I'm just a bit scared. It's one of those 'be careful what you wish for' situations
Hi to all Has anyone with metastatic breast cancer had open heart cardiac surgery and might you share your experience with me please? I only saw my surgeon yesterday and am now scheduled for Monday. How amazing is that but I'm just a bit scared. It's one of those 'be careful what you wish for' situations
bikebabe
in
SHARE Metastatic Breast Cancer
4 months ago
Advice please
Due to my dads low red blood cell count his treament has been stopped his been off all meds except pain killler, now since september 2023. He was due to start radium 223 january 24 but its been postponed until his better, but how can he get better when his PSA is increasing weekly and his red bloods
Due to my dads low red blood cell count his treament has been stopped his been off all meds except pain killler, now since september 2023. He was due to start radium 223 january 24 but its been postponed until his better, but how can he get better when his PSA is increasing weekly and his red bloods
Hidden
in
Advanced Prostate Cancer
4 months ago
cross road
At a crossroad! My liver biopsy last November came back that my cancer mutated from HER2 low to HER2+. I have started THP because of it. I saw my MO yesterday who told me that my molecular study is not showing the HER2. So I have 2 contradictory tests! She also said she presented my case to the
At a crossroad! My liver biopsy last November came back that my cancer mutated from HER2 low to HER2+. I have started THP because of it. I saw my MO yesterday who told me that my molecular study is not showing the HER2. So I have 2 contradictory tests! She also said she presented my case to the
Kcap430
in
SHARE Metastatic Breast Cancer
4 months ago
Anal Cancer - after effects
I had chemo/radiotherapy for Anal Cancer in 2015 and was signed-off in 2021. Several times post treatment I have had spells of anal aching and soreness that mirrored what I experienced prior to diagnosis and treatment. Also I experienced quite a bit of discomfort in my perineum when sitting, this has
I had chemo/radiotherapy for Anal Cancer in 2015 and was signed-off in 2021. Several times post treatment I have had spells of anal aching and soreness that mirrored what I experienced prior to diagnosis and treatment. Also I experienced quite a bit of discomfort in my perineum when sitting, this has
BlueDun
in
Men's Health Forum
4 months ago
Hip pain - related to radiotherapy?
I had chemo/radiotherapy for anal cancer in 2015 and was given the all-clear in 2021. There have been a number of side effects since but 12 weeks ago I developed pain in my right hip at the end of a walk (keen walker). GP doesn't know what the cause is (no surprise there!), but arranged an X-ray, which
I had chemo/radiotherapy for anal cancer in 2015 and was given the all-clear in 2021. There have been a number of side effects since but 12 weeks ago I developed pain in my right hip at the end of a walk (keen walker). GP doesn't know what the cause is (no surprise there!), but arranged an X-ray, which
BlueDun
in
Pelvic Pain Support Network
4 months ago
Fuervesant shots
Hi everyone! I’m new to this stream. I have stage 4 medistatic breast cancer in the bones. I’m on Ibrance and Letrozole but will be getting Fuervsant on Friday 2-2-24. So I won’t be taking the Letrozole. My oncologist is changing the medicine because my cancer markers are climbing. Has anyone done the
Hi everyone! I’m new to this stream. I have stage 4 medistatic breast cancer in the bones. I’m on Ibrance and Letrozole but will be getting Fuervsant on Friday 2-2-24. So I won’t be taking the Letrozole. My oncologist is changing the medicine because my cancer markers are climbing. Has anyone done the
Barreds
in
SHARE Metastatic Breast Cancer
4 months ago
Hip pain from faslodex?
I did post this on a reply to another post but I’m not sure if anyone will see it……..does anyone have hip pain after faslodex. . I have been on this for a handful of years and the hip pain just started within the last 4 months. No problems at the injection site. This is specially my hip. Initially it
I did post this on a reply to another post but I’m not sure if anyone will see it……..does anyone have hip pain after faslodex. . I have been on this for a handful of years and the hip pain just started within the last 4 months. No problems at the injection site. This is specially my hip. Initially it
Fight2016
in
SHARE Metastatic Breast Cancer
4 months ago
confused about treatment options
I keep going back and forth between various treatment options. In the next week or so, I’m having appointments with a surgeon (tomorrow) and a radiation oncologist (February 6). Basic story: cancer on left side of prostate and in my pelvic lymph nodes (“hyper avid lymph node in the left external iliac
I keep going back and forth between various treatment options. In the next week or so, I’m having appointments with a surgeon (tomorrow) and a radiation oncologist (February 6). Basic story: cancer on left side of prostate and in my pelvic lymph nodes (“hyper avid lymph node in the left external iliac
Jpburns
in
Advanced Prostate Cancer
4 months ago
Fibro my wifes diagnosis
Hi there my wife had the diagnosis yesterday fibromyalgia as she had been having pain everywhere for about 2 years My wife around 5 years ago had a tumour removed from her tummy which when the hospital removed it found it to be nearly 5 stone in weight hence why my wife felt that it was the repercussions
Hi there my wife had the diagnosis yesterday fibromyalgia as she had been having pain everywhere for about 2 years My wife around 5 years ago had a tumour removed from her tummy which when the hospital removed it found it to be nearly 5 stone in weight hence why my wife felt that it was the repercussions
Ang4john
in
Fibromyalgia Action UK
4 months ago
FDA Clearance of FK-PC101, a Novel Personalized Prostate Cancer Immunotherapy
not for stage 4 fighters...but still... "The trial, CELLVX-230, is a randomized, multicenter, open-label study of irradiated autologous cellular vaccine in men with high-risk prostate cancer post-radical prostatectomy. It will be conducted through a partnership with the Society of Urologic Oncology
not for stage 4 fighters...but still... "The trial, CELLVX-230, is a randomized, multicenter, open-label study of irradiated autologous cellular vaccine in men with high-risk prostate cancer post-radical prostatectomy. It will be conducted through a partnership with the Society of Urologic Oncology
Maxone73
in
Advanced Prostate Cancer
4 months ago
Update on dads visit with his MO today
Took dad to his MO today, the appointment I was dreading, I was thinking they would say, were done since he has suspected LMD . This was not the case at all. His labs were all better than they have ever been, psa was 2 and kidney functions, testosterone everything was better than they have ever been
Took dad to his MO today, the appointment I was dreading, I was thinking they would say, were done since he has suspected LMD . This was not the case at all. His labs were all better than they have ever been, psa was 2 and kidney functions, testosterone everything was better than they have ever been
Radtech40
in
Advanced Prostate Cancer
4 months ago
Retzius Sparing surgeon recommendations
Hello everyone. I’m 49 years old. I was diagnosed with PCa in 2018. It was determined Gleason 3+3 after biopsy, so we decided on Active Surveillance. I checked PSA religiously every 6 months and it hovered around 5 the whole time since the diagnosis. Last year during summer I believe I started experiencing
Hello everyone. I’m 49 years old. I was diagnosed with PCa in 2018. It was determined Gleason 3+3 after biopsy, so we decided on Active Surveillance. I checked PSA religiously every 6 months and it hovered around 5 the whole time since the diagnosis. Last year during summer I believe I started experiencing
UnexpectedPC
in
Prostate Cancer Network
4 months ago
HRT after Thyroid Cancer
Hi everyone this is my first post. I had papillary thyroid cancer 12 years ago when I was 26. Radical neck dissection full thyroidectomy dozen lymph nodes removed. I've been on a rollercoaster with thyroxine for all that time struggling to feel well. Just got a new diagnosis of significant endometriosis
Hi everyone this is my first post. I had papillary thyroid cancer 12 years ago when I was 26. Radical neck dissection full thyroidectomy dozen lymph nodes removed. I've been on a rollercoaster with thyroxine for all that time struggling to feel well. Just got a new diagnosis of significant endometriosis
DarkStar85
in
Thyroid UK
4 months ago
Add Nubeqa to Orgovyx?
Age 81. I had prostate radiation in 2021, and pelvic node radiation in 2023. PSA was 3.78 in Dec 2023. PSMA PET then showed cancer growing in prostate, shrinking in pelvic node, but spread to an abdominal node. I have started ADT with Orgovyx (relugolix) and want to add an ARI. The urologist wants
Age 81. I had prostate radiation in 2021, and pelvic node radiation in 2023. PSA was 3.78 in Dec 2023. PSMA PET then showed cancer growing in prostate, shrinking in pelvic node, but spread to an abdominal node. I have started ADT with Orgovyx (relugolix) and want to add an ARI. The urologist wants
vintage42
in
Advanced Prostate Cancer
4 months ago
1
...
20
21
22
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Advanced Prostate Cancer
3257 results
My Ovacome
2891 results
Thyroid UK
2773 results
View top 10 communities
Sort by
Most Relevant
Newest