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Imbruvica
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ANC very low
but the doctor took me off
imbruvica
for two weeks and Bactrim that I’ve been taken every other day.. due to low ANC .. absolute neutrophil count any thoughts are welcome! Thank you!!
but the doctor took me off
imbruvica
for two weeks and Bactrim that I’ve been taken every other day.. due to low ANC .. absolute neutrophil count any thoughts are welcome! Thank you!!
littledab
in
CLL Support
4 years ago
Covid-like symptoms every 5 months so far.
I have been on
Imbruvica
420mg for about 3 years, with no side effects. These symptoms just manifested about February of this year(2020). Otherwise no side effects from the medication.
I have been on
Imbruvica
420mg for about 3 years, with no side effects. These symptoms just manifested about February of this year(2020). Otherwise no side effects from the medication.
wondering1
in
CLL Support
4 years ago
Side effects from Imbruvica
Hello, I’m on
Imbruvica
for almost 3 years. Have some side effects: UTI, palpitation in my heart, gain wait, broken nails ( not growing), noise in my head. Did anyone experience the same side effects?
Hello, I’m on
Imbruvica
for almost 3 years. Have some side effects: UTI, palpitation in my heart, gain wait, broken nails ( not growing), noise in my head. Did anyone experience the same side effects?
farber
in
CLL Support
4 years ago
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Would Imbruvica lower immunity levels? For how long?
As I heard that one important side effect is that we are prone to serious infections
As I heard that one important side effect is that we are prone to serious infections
AshGS
in
CLL Support
4 years ago
Go off imbruvica
Because he relapsed on
imbruvica
, at the 50 mg dose, the doctors put him off
imbruvica
, in the 50 mg dose and in few days the nodes increased quickly and had fever. So the doctors gave him
imbruvica
again. As I told, he his now on the 400 mg full dose, and also with
imbruvica
, indeed its fails.
Because he relapsed on
imbruvica
, at the 50 mg dose, the doctors put him off
imbruvica
, in the 50 mg dose and in few days the nodes increased quickly and had fever. So the doctors gave him
imbruvica
again. As I told, he his now on the 400 mg full dose, and also with
imbruvica
, indeed its fails.
Cgr2018
in
CLL Support
4 years ago
Walking By Faith Not By Sight
My doctor said my
imbruvica
is still working but mentioned a possibility of adding Venetoclax if Id like. I’m curious if those of you that added the meds did it because
imbruvica
stopped working, or to help with some symptoms. Also, is it normal for your lymph nodes to swell sometimes?
My doctor said my
imbruvica
is still working but mentioned a possibility of adding Venetoclax if Id like. I’m curious if those of you that added the meds did it because
imbruvica
stopped working, or to help with some symptoms. Also, is it normal for your lymph nodes to swell sometimes?
Danid18
in
CLL Support
4 years ago
Joint Pain
I was on
Imbruvica
for 6 months and started having joint pain. My Dr switched me to Calquence to see if I would get any relief. Joint pain continues. It is affecting my sleep. PCP ran blood tests and saw nothing to cause joint pain. Any insights/advice? Thanks
I was on
Imbruvica
for 6 months and started having joint pain. My Dr switched me to Calquence to see if I would get any relief. Joint pain continues. It is affecting my sleep. PCP ran blood tests and saw nothing to cause joint pain. Any insights/advice? Thanks
Wahoowa
in
CLL Support
4 years ago
Imbruvica and hair loss
I’ve been taking
Imbruvica
for 5 months and at 4 months started losing my hair. At this point I’ve lost more than 60% and need to buy a wig. Does anyone know if this is permanent or temporary? Thanks.
I’ve been taking
Imbruvica
for 5 months and at 4 months started losing my hair. At this point I’ve lost more than 60% and need to buy a wig. Does anyone know if this is permanent or temporary? Thanks.
dancingqueenaa
in
CLL Support
4 years ago
Rottie 1934
Does anyone had anything like this on their body while on
imbruvica
?
Does anyone had anything like this on their body while on
imbruvica
?
Rottie1934
in
CLL Support
4 years ago
Forearm Pain from Imbruvica
I take 140mg of
Imbruvica
. Thanks
I take 140mg of
Imbruvica
. Thanks
brooklyn7672
in
CLL Support
4 years ago
Searching for patients using calquence
Will begin calquence in one more week after 24 months on
imbruvica
...heard that side effects are less severe. My only concern are headaches which I very rarely suffer from. Any of you members experienced this switch?
Will begin calquence in one more week after 24 months on
imbruvica
...heard that side effects are less severe. My only concern are headaches which I very rarely suffer from. Any of you members experienced this switch?
Redpower
in
CLL America Support
4 years ago
Imbruvica and low Hemoglobin
I started on
Imbruvica
April 13. After some weeks needed blood transfusion 3 bags to improve my hemoglobin which was at 66. Then I felt pretty good for some weeks and lately past few days don’t feel right . Kind of unsteady after a light activity .
I started on
Imbruvica
April 13. After some weeks needed blood transfusion 3 bags to improve my hemoglobin which was at 66. Then I felt pretty good for some weeks and lately past few days don’t feel right . Kind of unsteady after a light activity .
Kmegood
in
CLL Support
4 years ago
Ibutrinib plus venetoclax?
And give again
imbruvica
and 100 mg of venetoclax. The doctor said today that when they put off
imbruvica
with this low dose of venetoclax sometimes the cll progression is rapidly. As I said, they put again
imbruvica
and rump up 100 mg of venetoclax. And will put all the labels ok.
And give again
imbruvica
and 100 mg of venetoclax. The doctor said today that when they put off
imbruvica
with this low dose of venetoclax sometimes the cll progression is rapidly. As I said, they put again
imbruvica
and rump up 100 mg of venetoclax. And will put all the labels ok.
Cgr2018
in
CLL Support
4 years ago
ANC is zero
I'm on
imbruvica
and have rituxan infusions 1x per month. They wouldn't give me my infusion last Friday because of the low ANC and told me to stop taking
imbruvica
. I go back Friday to see what they're going to do with me. I'm really bummed because
imbruvica
was making me feel so much better.
I'm on
imbruvica
and have rituxan infusions 1x per month. They wouldn't give me my infusion last Friday because of the low ANC and told me to stop taking
imbruvica
. I go back Friday to see what they're going to do with me. I'm really bummed because
imbruvica
was making me feel so much better.
yellowgreentc
in
CLL Support
4 years ago
Imbruvica side effects
I started 420mg
Imbruvica
June of 2019 and lasted 2 months because of bad side effects. Dr lowered to 280mg Oct 2019 and lasted 7 months, with some side effects diminishing. Dr now lowered it to 140 because my spleen was good along with other tests, however; my platelets and WBC are too low.
I started 420mg
Imbruvica
June of 2019 and lasted 2 months because of bad side effects. Dr lowered to 280mg Oct 2019 and lasted 7 months, with some side effects diminishing. Dr now lowered it to 140 because my spleen was good along with other tests, however; my platelets and WBC are too low.
brooklyn7672
in
CLL Support
4 years ago
CLL and Reumatoid Athuritis
I have been on
Imbruvica
for six months. My joints are really starting to ache and stiffen. My shoulders, hips, back and hands. Is there any relationship between CLL and RA? Thanks, Jim
I have been on
Imbruvica
for six months. My joints are really starting to ache and stiffen. My shoulders, hips, back and hands. Is there any relationship between CLL and RA? Thanks, Jim
Wahoowa
in
CLL Support
4 years ago
Hear Heartbeat in Ear
I have CLL, been taking
Imbruvica
since November of 2018. WBC down to 40,000 from 247,000, just recently started hearing heartbeat in right ear when laying down, Feels like water in your ear after swimming, anybody else ever had this?
I have CLL, been taking
Imbruvica
since November of 2018. WBC down to 40,000 from 247,000, just recently started hearing heartbeat in right ear when laying down, Feels like water in your ear after swimming, anybody else ever had this?
Die-Hard
in
CLL Support
4 years ago
Joint pain and Imbruvica
I know some people have had to quit
Imbruvica
for that very reason. I have already talked to my doctor about this problem but they don’t seem too interested in helping me. I already take a low dose pain medicine for my back but it doesn’t help much. Anybody have any suggestions?
I know some people have had to quit
Imbruvica
for that very reason. I have already talked to my doctor about this problem but they don’t seem too interested in helping me. I already take a low dose pain medicine for my back but it doesn’t help much. Anybody have any suggestions?
BATony
in
CLL Support
4 years ago
How effective is venetoclax for 17p tp53?
His treatments with
imbruvica
stops working and he relapsed. He is 17p to53zHe is now on the rump up in 50 mg per week. His node in the neck wents down at the first day on 20 mg. But still a little bit inflamate. Will it totally dessapear when he increase the dose during the next weeks?
His treatments with
imbruvica
stops working and he relapsed. He is 17p to53zHe is now on the rump up in 50 mg per week. His node in the neck wents down at the first day on 20 mg. But still a little bit inflamate. Will it totally dessapear when he increase the dose during the next weeks?
Cgr2018
in
CLL Support
4 years ago
Bloodwork and FaceTime With oncologist
I’m so happy I’ve been on
Imbruvica
for almost 5 months, with 230,000 w/b Now mine is almost normal 11,000.. just amazing how these pills are working!!! I am so grateful!! I have more energy now than the past 2 years.. Thank you all for taking the time out to read this great news!!
I’m so happy I’ve been on
Imbruvica
for almost 5 months, with 230,000 w/b Now mine is almost normal 11,000.. just amazing how these pills are working!!! I am so grateful!! I have more energy now than the past 2 years.. Thank you all for taking the time out to read this great news!!
littledab
in
CLL Support
4 years ago
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