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Experiences with
Implantable cardioverter defibrillator (ICD)
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Being ill is very lonely
Feb this year was told I needed an
ICD
. Had it April. It went off once and I felt it "did the job". Then beginning of October it went off 5 times in succession. Was told it was "inappropriate " . Im as low as I've ever been. Life has stopped. I don't want to die but I'm literally scared to live.
Feb this year was told I needed an
ICD
. Had it April. It went off once and I felt it "did the job". Then beginning of October it went off 5 times in succession. Was told it was "inappropriate " . Im as low as I've ever been. Life has stopped. I don't want to die but I'm literally scared to live.
Islandlady57
in
British Heart Foundation
3 years ago
Endo diet
Hello how do people who follow the Endo diet or low for map diets, successfully cut out refined sugars I can cut out, gluten, dairy , meat, (cut down on caffeine) limit alcohol but sugar is hard! I didn’t notice a difference the last time I tried the diet but I did not cut out sugar. I am awaiting
Hello how do people who follow the Endo diet or low for map diets, successfully cut out refined sugars I can cut out, gluten, dairy , meat, (cut down on caffeine) limit alcohol but sugar is hard! I didn’t notice a difference the last time I tried the diet but I did not cut out sugar. I am awaiting
Prettythings1
in
Endometriosis UK
2 years ago
Normal cycle after having coil removed?
Hi all, I had my coil removed 21st March after having it for 6 years (no period during this time) and i had a 4 day bleed 2 days later. Unsure if this was a period or removal bleed. Anyone else who's had the coil removed know how long it can take for your cycle to get back to normal? Would love to
Hi all, I had my coil removed 21st March after having it for 6 years (no period during this time) and i had a 4 day bleed 2 days later. Unsure if this was a period or removal bleed. Anyone else who's had the coil removed know how long it can take for your cycle to get back to normal? Would love to
Holmax1
in
Endometriosis UK
2 years ago
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hormonal coil recommended 4 endo. help / advise please <3
Hi im 21 and seeking advice. Endo has been confirmed, an MRI scan found thickness at the back of my uterus, ive been told to get the hormonal coil to help symptoms and period severity to manage. alot of info online is about copper coil but i need advise on hormonal coil. is it worth it? does it help
Hi im 21 and seeking advice. Endo has been confirmed, an MRI scan found thickness at the back of my uterus, ive been told to get the hormonal coil to help symptoms and period severity to manage. alot of info online is about copper coil but i need advise on hormonal coil. is it worth it? does it help
simran555
in
Endometriosis UK
2 years ago
Feeling so down
I fight hard everyday to keep going, working, hanging out with friends, completing daily tasks. I struggle with negative obsessive thoughts, scaring myself about the future and just putting myself down. I get lots of support and it’s hard to feel it deeply. How do you keep going when you feel a lot
I fight hard everyday to keep going, working, hanging out with friends, completing daily tasks. I struggle with negative obsessive thoughts, scaring myself about the future and just putting myself down. I get lots of support and it’s hard to feel it deeply. How do you keep going when you feel a lot
allah1
in
Anxiety and Depression Support
2 years ago
How do we find out about our baseline hormones and treat them?
Does anyone know where you can go to test your hormones/ baseline hormones? There's so many scam companies out there trying to make a quick buck with at home testing, and I have no idea where to start looking. I also find it so difficult to navigate any treatments other than the pill or the coil, and
Does anyone know where you can go to test your hormones/ baseline hormones? There's so many scam companies out there trying to make a quick buck with at home testing, and I have no idea where to start looking. I also find it so difficult to navigate any treatments other than the pill or the coil, and
Lilac01
in
Endometriosis UK
2 years ago
BESREMi 4th dose
Hey, guys! I see other members are sharing their move to BESREMi, so I thought I'd add my experience. As background, I was diagnosed with polycythemia vera 8/2017 (at age 31) but waited until my kiddo was born to start treatment beyond daily aspirin. I'm JAK2+, TET2+, ASXL1+, AB at 55% in 2018. Since
Hey, guys! I see other members are sharing their move to BESREMi, so I thought I'd add my experience. As background, I was diagnosed with polycythemia vera 8/2017 (at age 31) but waited until my kiddo was born to start treatment beyond daily aspirin. I'm JAK2+, TET2+, ASXL1+, AB at 55% in 2018. Since
lynxfluff
in
MPN Voice
2 years ago
Coming off decapeptyl injection
Hello all, Could anyone else share any light on how the body was after the last monthly injection of decapeptyl ? I have just had my last one and hopefully won’t being going back onto it for a long while. I also want to get my merina coil out and have a break and see what my body is like. Just wanted
Hello all, Could anyone else share any light on how the body was after the last monthly injection of decapeptyl ? I have just had my last one and hopefully won’t being going back onto it for a long while. I also want to get my merina coil out and have a break and see what my body is like. Just wanted
EQAC
in
Endometriosis UK
2 years ago
Adenomyosis NI
Stage 4 IDE/RVE, multiple laps, now feeling a different kind of pain for past 2 years and believe it is likely to be adenomyosis based on symptoms. Is there anyone with adeno who has found a consultant in Northern Ireland (NI) who knows about adenomyosis? Or even what tests I could be asking for? General
Stage 4 IDE/RVE, multiple laps, now feeling a different kind of pain for past 2 years and believe it is likely to be adenomyosis based on symptoms. Is there anyone with adeno who has found a consultant in Northern Ireland (NI) who knows about adenomyosis? Or even what tests I could be asking for? General
chronicpaingirl
in
Endometriosis UK
2 years ago
IUD copper coil
I had the copper coil for 5 years, I thought I had no problems with it until it came out very recently. I found that I had very low mood and was very anxious when I had it in, but I thought it was unrelated to the coil, however when it came out I felt loads better, I had it out for 5 weeks before getting
I had the copper coil for 5 years, I thought I had no problems with it until it came out very recently. I found that I had very low mood and was very anxious when I had it in, but I thought it was unrelated to the coil, however when it came out I felt loads better, I had it out for 5 weeks before getting
br393
in
BASHH
2 years ago
Pain after Coil
Hi everyone, I recently ( one week ago) had laparoscopy that removed a cyst and treated some areas of endometriosis and also they inserted the Mirena Coil. I'm recovering very well and feel great apart from a pain high in my vagina, what feels like my cervix. Has anyone else had this pain after getting
Hi everyone, I recently ( one week ago) had laparoscopy that removed a cyst and treated some areas of endometriosis and also they inserted the Mirena Coil. I'm recovering very well and feel great apart from a pain high in my vagina, what feels like my cervix. Has anyone else had this pain after getting
Em0000
in
Endometriosis UK
2 years ago
THANK YOU TO MY HF Nurse Helen.
I have to go to the mainland this morning to have my
ICD
tweeked (I'm sure that's the medical term 😷). And tbh I'm terrified of the journey. I'm not in a good place "mentally" so this sort of thing is a real test. It has to be done and I can't wait till I'm back home x!
I have to go to the mainland this morning to have my
ICD
tweeked (I'm sure that's the medical term 😷). And tbh I'm terrified of the journey. I'm not in a good place "mentally" so this sort of thing is a real test. It has to be done and I can't wait till I'm back home x!
Islandlady57
in
British Heart Foundation
3 years ago
Getting pregnant after pro stap and mirina coil x
Hi, I had 6 months of pro stap injections which finished in January, I’m just wondering how long it took people to get back to normal? I’m going to book to get my mirina coil out so I can try for baby number 2. I’m really hoping to be pregnant by the time the year ends🤞🏼🤞🏼
Hi, I had 6 months of pro stap injections which finished in January, I’m just wondering how long it took people to get back to normal? I’m going to book to get my mirina coil out so I can try for baby number 2. I’m really hoping to be pregnant by the time the year ends🤞🏼🤞🏼
ACLParkes73015
in
Endometriosis UK
2 years ago
Trying to conceive after Mirena coil
Hi everyone I’m planning to have the coil removed this summer to start a family. I’m just wondering how long it might take for things to settle down after having the coil removed? Also wondering for those who’ve fallen pregnant, how long after Mirena removal did it take to conceive?
Hi everyone I’m planning to have the coil removed this summer to start a family. I’m just wondering how long it might take for things to settle down after having the coil removed? Also wondering for those who’ve fallen pregnant, how long after Mirena removal did it take to conceive?
lem00003
in
Endometriosis UK
2 years ago
PAIN EVERYDAY - What to do
My pain has been so frequent recently making me vomit and dizzy. I’m under a lot of stress with uni atm and many so I know my body is exhausted. I’m trying to stop taking strong pain killers like tramadol but sometimes the pain is unbearable I can’t even walk or get up. I have not had an operation yet
My pain has been so frequent recently making me vomit and dizzy. I’m under a lot of stress with uni atm and many so I know my body is exhausted. I’m trying to stop taking strong pain killers like tramadol but sometimes the pain is unbearable I can’t even walk or get up. I have not had an operation yet
Littlebug77
in
The Endometriosis Foundation
2 years ago
Questions re: Mirena coil & surgery follow up! What check should be done?
Hello 👋 I had a laparoscopic surgery with excision of peritoneal/ superficial endometriosis 5 weeks ago. A Mirena coil was placed during the surgery. I’m still recovering ❤️🩹 but think I’m gradually doing better, though not been back to work. My questions: Does anyone know if the coil is meant
Hello 👋 I had a laparoscopic surgery with excision of peritoneal/ superficial endometriosis 5 weeks ago. A Mirena coil was placed during the surgery. I’m still recovering ❤️🩹 but think I’m gradually doing better, though not been back to work. My questions: Does anyone know if the coil is meant
BookBimbles
in
Endometriosis UK
2 years ago
Advice Please!!
Hi All, I’ve had a meeting with my gynae consultant today. After having the diagnostic 2 years ago, my periods have come back with vengeance. I’m either 10 days twice a month or nothing at all ( currently haven’t had one for 40+ days yet still getting immense pain). She scanned me and basically said
Hi All, I’ve had a meeting with my gynae consultant today. After having the diagnostic 2 years ago, my periods have come back with vengeance. I’m either 10 days twice a month or nothing at all ( currently haven’t had one for 40+ days yet still getting immense pain). She scanned me and basically said
GreenQueen-99
in
Endometriosis UK
2 years ago
Decapeptyl concerns
Hi all. Would welcome and shared experiences about decapeptyl v mini pill! And also I think I just need to write this down for folks who I know will get it!!! I have endo and adeno. Excision removed the endo but unfortunately the adeno is still causing pain. I have a coil which has stopped my periods
Hi all. Would welcome and shared experiences about decapeptyl v mini pill! And also I think I just need to write this down for folks who I know will get it!!! I have endo and adeno. Excision removed the endo but unfortunately the adeno is still causing pain. I have a coil which has stopped my periods
BikeRiderGirl
in
Endometriosis UK
2 years ago
Surgery Wounds
Hi All So I had my S-
ICD
implanted last Thursday and am slowly able to do more although it's all very surreal. I wondered if anyone had any advise about the healing of deep surgical wounds using degradable sutures.
Hi All So I had my S-
ICD
implanted last Thursday and am slowly able to do more although it's all very surreal. I wondered if anyone had any advise about the healing of deep surgical wounds using degradable sutures.
ToriP02
in
British Heart Foundation
3 years ago
Just some of your stories
Hello, Have had 2 surgies within 2 and half years and currently on my second round of 5 months Decapeptyl injections + merina coil. Got one more month then i am hoping i won't be having it again ( it does help but i still get very bad the week before the injection and the week after having it ) currently
Hello, Have had 2 surgies within 2 and half years and currently on my second round of 5 months Decapeptyl injections + merina coil. Got one more month then i am hoping i won't be having it again ( it does help but i still get very bad the week before the injection and the week after having it ) currently
EQAC
in
Endometriosis UK
2 years ago
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