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Experiences with
Ibrutinib
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Bruising
Back again for the next infusion on the 27th Feb but in the meantime taking
Ibrutinib
daily. I was told this might happen. Has anybody else noticed extra bruising Sanphil
Back again for the next infusion on the 27th Feb but in the meantime taking
Ibrutinib
daily. I was told this might happen. Has anybody else noticed extra bruising Sanphil
Sanphil
in
CLL Support
6 years ago
Treatment for cll stage 4 with 17p deletion for 63 year old women?
She also recommended
ibrutinib
. But very expensive. Actually I cannot afford. Shall I continue with chlorambucil? Or suggest any treatment etc.
She also recommended
ibrutinib
. But very expensive. Actually I cannot afford. Shall I continue with chlorambucil? Or suggest any treatment etc.
Poojaa
in
CLL Support
6 years ago
Z Pak and Tamiflu
I’m on
Ibrutinib
and it’s doing a good job so far.
I’m on
Ibrutinib
and it’s doing a good job so far.
SunnyCA
in
CLL Support
6 years ago
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Ibrutinib
Hi folks, I start my
Ibrutinib
treatment (part of the FLAIR trial) tomorrow, I was due to begin last week but had a nasty viral infection. Does anyone else take this and how long have they been off work?
Hi folks, I start my
Ibrutinib
treatment (part of the FLAIR trial) tomorrow, I was due to begin last week but had a nasty viral infection. Does anyone else take this and how long have they been off work?
Daveyo
in
CLL Support
6 years ago
What Does the Spleen Do
https://youtu.be/aEi_4Cyx4Uw Dennis, 71,
Ibrutinib
https://youtu.be/aEi_4Cyx4Uw Dennis, 71,
Ibrutinib
Fant1924
in
CLL Support
6 years ago
Cll n Ibrutinib
In December he mentioned about starting
Ibrutinib
next visit. In Dec. my WBC went up from 11 to 19. My hemoglobin from 14.3 to 13.3. I'm a little nervous because of the side affects. I think I need some encouragement from those of you who are on this.
In December he mentioned about starting
Ibrutinib
next visit. In Dec. my WBC went up from 11 to 19. My hemoglobin from 14.3 to 13.3. I'm a little nervous because of the side affects. I think I need some encouragement from those of you who are on this.
Cindi73
in
CLL Support
6 years ago
Pleasure to be with all of you
I've been treated with different drugs for all these years, now, i'm since aug 2017 treated first with Ciclofosfamida and now, since November with
IBRUTINIB
. It's a pleasure to be with all of you with the same disease and change experiences . Thanks
I've been treated with different drugs for all these years, now, i'm since aug 2017 treated first with Ciclofosfamida and now, since November with
IBRUTINIB
. It's a pleasure to be with all of you with the same disease and change experiences . Thanks
Deta1961
in
CLL Support
6 years ago
Venetoclax plus Rituximab
http://www.cancernetwork.com/chronic-lymphocytic-leukemia/venetoclax-rituximab-improves-survival-relapsedrefractory-cll —Dennis, 71,
Ibrutinib
http://www.cancernetwork.com/chronic-lymphocytic-leukemia/venetoclax-rituximab-improves-survival-relapsedrefractory-cll —Dennis, 71,
Ibrutinib
Fant1924
in
CLL Support
6 years ago
Loss of a great man
He tried
Ibrutinib
July 2016 and had a beautiful response the first 6 weeks which was one of the last times I’ve heard my father say “boy I feel great”. In mid August 2016, the dose was increased and the toxicity levels and side effects became too much to bear.
He tried
Ibrutinib
July 2016 and had a beautiful response the first 6 weeks which was one of the last times I’ve heard my father say “boy I feel great”. In mid August 2016, the dose was increased and the toxicity levels and side effects became too much to bear.
Stevediam
in
CLL Support
6 years ago
New
I looked up prices and there is no way I will be able to afford
ibrutinib
. I can not put my family in the poor house.
I looked up prices and there is no way I will be able to afford
ibrutinib
. I can not put my family in the poor house.
joann504
in
CLL Support
6 years ago
Neutropenia with Ibrutinib
The doctor says it is very unlikely to be linked to
Ibrutinib
. Yet, neutropenia is stated as one of the side effects. Otherwise, the response to
Ibrutinib
is fine so far with manageable AFIB.
The doctor says it is very unlikely to be linked to
Ibrutinib
. Yet, neutropenia is stated as one of the side effects. Otherwise, the response to
Ibrutinib
is fine so far with manageable AFIB.
artkula
in
CLL Support
6 years ago
Cll with thrush
Husband now going to start
ibrutinib
which was delayed as we had not received appointment for his has lung condition of plural effusion, Eventually received appointment to for 12th February when they will aspirate and seeing cll consultant on 4th March to hopefully commence treatment.
Husband now going to start
ibrutinib
which was delayed as we had not received appointment for his has lung condition of plural effusion, Eventually received appointment to for 12th February when they will aspirate and seeing cll consultant on 4th March to hopefully commence treatment.
Fannynorthy
in
CLL Support
6 years ago
SERIOUSLY sore throat!
I'm seeing my consultant tomorrow, but my question is this: do
Ibrutinib
side effects get better??
I'm seeing my consultant tomorrow, but my question is this: do
Ibrutinib
side effects get better??
UKfulloflife
in
CLL Support
6 years ago
When is the best time of day to take Venetoclax
I an TP53 depleated and failed
Ibrutinib
after 3 months due to very sever side effects, such as A-FIB , uncontrolled Parkinsonian tremor , asceptic hemingitis, constant fever and sever bones' pain. 2 weeks after stopping IB my lymph nodes are back. Thanks Gidi
I an TP53 depleated and failed
Ibrutinib
after 3 months due to very sever side effects, such as A-FIB , uncontrolled Parkinsonian tremor , asceptic hemingitis, constant fever and sever bones' pain. 2 weeks after stopping IB my lymph nodes are back. Thanks Gidi
GIDI
in
CLL Support
6 years ago
Pain
Exactly on my capitate and middle finger (
ibrutinib
since november 2017 )... Anyone with this kind of pain? Terrible..both shoulders are still "killing" with pain also...
Exactly on my capitate and middle finger (
ibrutinib
since november 2017 )... Anyone with this kind of pain? Terrible..both shoulders are still "killing" with pain also...
Deta1961
in
CLL Support
6 years ago
This is my rant for the day
Today is my first day without taking
Ibrutinib
since April 2, 2017. Last November my company made the decision to change insurance providers.
Today is my first day without taking
Ibrutinib
since April 2, 2017. Last November my company made the decision to change insurance providers.
pilantd
in
CLL Support
6 years ago
This trial is going to reopen- Called CAPTIVATE. Ibrutinib plus venetoclax study sponsored by Pharmacyclics - Study Number PCYC-1142 .
Title: Phase 2 Study of the Combination of
Ibrutinib
Plus Venetoclax in Subjects With Treatment-naïve Chronic Lymphocytic Leukemia/Small Lymphocytic Lymphoma Be well, Hoffy
Title: Phase 2 Study of the Combination of
Ibrutinib
Plus Venetoclax in Subjects With Treatment-naïve Chronic Lymphocytic Leukemia/Small Lymphocytic Lymphoma Be well, Hoffy
Hoffy
in
CLL Support
6 years ago
Spots with Ibrutinib
Have been on
Ibrutinib
for over a year and had few side effects. But just lately have experienced blemishes on my skin. Is this a possible side effect?
Have been on
Ibrutinib
for over a year and had few side effects. But just lately have experienced blemishes on my skin. Is this a possible side effect?
Broadbent
in
CLL Support
6 years ago
Ibrutinib / Venetoclax (Ramp up)
Hi everyone. Well its been a while since the last time I posted. I wanted to share my experience so far on the Clinical Trial I'm on IB with V. I have been on IB now since October and experienced every side effect you can think of in the beginning.. Nothing serious. Muscle cramps.. Burning in my finger
Hi everyone. Well its been a while since the last time I posted. I wanted to share my experience so far on the Clinical Trial I'm on IB with V. I have been on IB now since October and experienced every side effect you can think of in the beginning.. Nothing serious. Muscle cramps.. Burning in my finger
BCTexas
in
CLL Support
6 years ago
CLL Programme on BBC Radio 4
., there is a programme on BBC Radio4 on CLL; seems to be focussing on a Venetoclax/
Ibrutinib
trial at Leeds. Reporter is Simon Cox, a senior BBC reporter who has CLL. There is also a "story" on the BBC News app today (6th).
., there is a programme on BBC Radio4 on CLL; seems to be focussing on a Venetoclax/
Ibrutinib
trial at Leeds. Reporter is Simon Cox, a senior BBC reporter who has CLL. There is also a "story" on the BBC News app today (6th).
MR2Don
in
CLL Support
6 years ago
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