Spots with Ibrutinib: Have been on Ibrutinib for... - CLL Support

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Spots with Ibrutinib

Broadbent profile image
11 Replies

Have been on Ibrutinib for over a year and had few side effects. But just lately have experienced blemishes on my skin. Is this a possible side effect?

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Broadbent
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11 Replies
Cllcanada profile image
CllcanadaTop Poster CURE Hero

Dark spots and bruising are a common side effect of Imbruvica (ibrutinib). Tell your CLL doctor and monitor them...

~chris

Broadbent profile image
Broadbent in reply toCllcanada

Thank you Chris, but these are more like under the skin blood spots.

Jph02006 profile image
Jph02006 in reply toBroadbent

I believe they are also related to Ibrutinib. I know what you are describing and for me they started with Ibrutinib treatment

Cllcanada profile image
CllcanadaTop Poster CURE Hero in reply toJph02006

Known side effect of Imbruvica (ibrutinib)..

Petechiae are pinpoint, round spots that appear on the skin as a result of bleeding. The bleeding causes the petechiae to appear red, brown or purple.

Petechiae (puh-TEE-kee-ee) commonly appear in clusters and may look like a rash. Usually flat to the touch, petechiae don't lose color when you press on them.

Sometimes they appear on the inner surfaces of the mouth or the eyelids.

~chris

Lola69 profile image
Lola69 in reply toCllcanada

Can I get my dark spot lasered?

RJR1 profile image
RJR1

Get them regularly. Often fairly large in size. Almost look like a blood blister under the skin. They often seem to follow a bruise or bump. Usually clear after a few days

Kevin54613 profile image
Kevin54613

I got them around my armpits when I started imbruvica. Come and go often. Last year they blistered and I was diagnosed with shingles.

Shepherd777 profile image
Shepherd777

Have blood blisters pin size on and off. Had whole body rash for a week or two like chicken pox, but they didn't itch.

Broadbent profile image
Broadbent

Thanks G

kimiD profile image
kimiD

Petechiae is a known side effect of ibrutinib. I have them on occasion in various locations, and was told that usually it is not serious. Bleeding is a risk when on ibrutinib, so it would be important to let your prescribing physician know.

Lola69 profile image
Lola69

Hi. I have spots and rashes but otherwise doing well also I have 15 on my left breast!

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